💜 ShinyEevee
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shinyeevee1.bsky.social
💜 ShinyEevee
@shinyeevee1.bsky.social
Trying to embrace life with resilience 💪 Living with Long COVID & POTS. Masks, clean air and safety for all 🌎💙
Pinned
@markdixon.bsky.social et @mchristinebd.bsky.social ont créé une ressource géniale et concise sur les précautions essentielles contre la COVID-19! Les versions française et anglaise sont disponibles ici : bit.ly/lesscovid. Faites passer le mot! 🙌🌍
Reposted by 💜 ShinyEevee
🎯

Je côtoie des centaines d’humains chaque jour.

Mes élèves sont malades.

Mes collègues sont malades.

Je n’ai pas été malade depuis mon
infection à la COVID en 2020.

Je porte TOUJOURS un #KN95 au travail depuis mon infection.

… Et personne ne fait le lien entre tout ça. 🤷‍♂️

#ConnectTheDots
Je m’ennuie du temps où c’était mal vu de sortir malade. Le bon vieux temps pas si lointain d’après covid.

Là tout le monde s’en torche et tout le monde est malade.

Mes enfants, mes employés, tout le monde est malade

Restez donc chez vous quand vous morvez

#RestezChezVousEsti
December 5, 2025 at 1:08 AM
Mon amie Nandini du REACL souhaite envoyer des mitaines et des chaussons chauffants à des enfants atteints de covid longue (10‑17 ans) dont les familles n’ont pas les moyens de s'en procurer.

Si c'est votre cas, n'hésitez pas à lui écrire à l'adresse courriel à la fin de sa publication 🩷
❣️A small gesture from CLCN for Canadian Children with Long COVID with warmth:
1/ As CLCN moves into 2026, our focus remains clear: Keep showing up for Canadian children in every space while driving recognition for Pediatric LC & pushing for biomedical research and treatments for long term recovery
December 8, 2025 at 10:52 PM
« En général, les saisons grippales H3N2 sont plus sévères […]. [Nul] besoin d’attendre les directives de santé publique pour prendre des mesures afin de se protéger ».

Merci Dre Filiatrault de rappeler comment se protéger des virus transmissibles par aérosols! surreynowleader.com/2025/12/06/o...
OPINION: Don’t wait for B.C. public health to protect you this flu season - Surrey Now-Leader
H3N2 could make this a rough winter – be prepared
surreynowleader.com
December 8, 2025 at 1:18 AM
Depuis quatre ans, Ethan a la covid longue avec dysautonomie gastro-intestinale et souffre de douleurs abdominales sévères qui l’empêchent de dormir et d’aller à l’école.

Sa famille a besoin d’aide pour accéder au traitement qui pourrait lui apporter un soulagement. 💙

gofund.me/a03fc6e7e
Donate to Painful chronic illness steals childhood from an Ontario boy, organized by Kelly Pearce
Financial assistance needed to obtain innovative new treatmen… Kelly Pearce needs your support for Painful chronic illness steals childhood from an Ontario boy
gofund.me
December 3, 2025 at 6:10 AM
Reposted by 💜 ShinyEevee
1. Long Covid has a "signature of chronic immune activation". That is exactly what mast cell activation syndrome (MCAS) is and perhaps explains why so many long Covid patients also have MCAS. An important find, I believe.

@shinyeevee1.bsky.social @taniaspencer.bsky.social
🚨🧵 by Zdenek Vrozina on Covid's impact:

"COVID can cause a long-lasting breakdown of immune homeostasis, where elevated IL-7 and IL-15 keep T cells activated for months after the acute infection.
In some people this dysregulated state becomes..."

18-tweet 🧵
threadreaderapp.com/thread/19947...
November 30, 2025 at 3:05 AM
Reposted by 💜 ShinyEevee
1. Mémo👇 pour la Dre Caroline Quach, l'INSPQ et la Direction de la Santé publique du Québec.
Some vaccines like COVID and flu don’t stop completely stop infection.

But they do reduce the risk of getting infected and greatly reduce severe illness risk.

They are still worth getting.

Since they are not 100% effective it’s also wise to add another layer of protection by wearing a mask.
November 24, 2025 at 1:15 AM
Reposted by 💜 ShinyEevee
How sad! I have seen so many healthy women in the prime of their lives severely impacted by long Covid.

From being a professional athlete to being in a wheelchair, from being a fun mom to an ill parent who spends their day in their bed in the dark with ice on their head and belly.

It’s awful!
Brazilian singer Eva Rodrigues Praia Walkey, 40, has died after nearly 5 years battling severe Long COVID. She faced repeated hospitalisations, grueling treatment, and never regained her health. Her family confirmed she passed away on 18 November in Manaus, Brazil.

Source: archive.md/nxK4K
November 23, 2025 at 4:18 AM
Reposted by 💜 ShinyEevee
Covid has left behind many people, and it's still happening to this day. The forums of people with long Covid see new persons every week who have just developed the illness.

It could be anyone of us next. These cases are dramatic, but like every other illness, there are much milder ones.
Best thing that could come from this is to better educate doctors, so they understand what Long COVID is possibly how to diagnose/treat features of the disorder (no clear diagnostic/treatment yet).
They need to trust people & actually try to help.
#N95inAllPublicIndoorSpaces
youtu.be/y1rSQIFr0fY?...
The First Feature-Length Documentary on ME/CFS and Long COVID (Now Crowdfunding)
YouTube video by What Doesn't Kill You
youtu.be
November 22, 2025 at 12:34 AM
Reposted by 💜 ShinyEevee
Alice Wong taught us that disabled people don’t just leave memories behind—they leave infrastructure. Lineages of care. Methods of collectivity, survival. She named the connective tissue that holds our communities together, even across death, even across the losses that come too fast and too often.
November 16, 2025 at 12:08 AM
Reposted by 💜 ShinyEevee
I am so sorry to hear about Alice Wong's death. She has shown so much courage, resiliency and grace. RIP.
Alice Wong, a writer and activist who was born with muscular dystrophy and who fought relentlessly for equal rights and access for people with disabilities, died on Friday. She was 51. nyti.ms/4r9WqEr
November 15, 2025 at 10:17 PM
Merci pour tout @sfdirewolf.bsky.social 🙏🤍
Heartbroken to hear of @sfdirewolf.bsky.social ‘s transition to be a crip anscestor AND feeling so honored to have been alive in the time as this brilliant human, and gotten to learn from her.

May her memory continue to always be a blessing.
November 15, 2025 at 6:35 AM
Reposted by 💜 ShinyEevee
Heartbroken to hear of @sfdirewolf.bsky.social ‘s transition to be a crip anscestor AND feeling so honored to have been alive in the time as this brilliant human, and gotten to learn from her.

May her memory continue to always be a blessing.
November 15, 2025 at 5:50 AM
Reposted by 💜 ShinyEevee
🧵🔥Annonce majeure en Allemagne🇩🇪: une Décennie nationale de lutte contre les maladies post-infectieuses (2026-2036) est lancée.

🎯Objectif : comprendre et traiter le #CovidLong et l’ #EM

Budget total : 500 millions d’euros !
November 14, 2025 at 5:28 PM
Reposted by 💜 ShinyEevee
La 3ᵉ Conférence internationale sur la covid longue (19–20 novembre, Boston) approche à grands pas! Joignez-vous à des experts, en personne ou en ligne, pour faire progresser les soins, la recherche et les solutions de santé publique liés à la CL. S'inscrire : virology.eventsair.com/long-covid-i...
November 10, 2025 at 1:30 AM
Reposted by 💜 ShinyEevee
The 3rd Long COVID International Conference 2025 (Nov 19–20, Boston, MA) is nearly here! Join global experts, in person or virtually, to advance long Covid care, research, and public health solutions. Learn more & register: virology.eventsair.com/long-covid-i... #LongCOVIDIntl
November 10, 2025 at 1:30 AM
Reposted by 💜 ShinyEevee
La Conférence internationale sur la covid longue 2025 aura lieu dans 3 semaines. Conférenciers et experts partageront des perspectives novatrices. Tarif réduit pour les patients (en ligne).
S'inscrire :
Général : amededu.co/47cQW3M
Patients : virology.eventsair.com/long-covid-i...
#LongCOVIDIntl
October 31, 2025 at 5:40 PM
Reposted by 💜 ShinyEevee
The Long COVID International Conference 2025 is under 3 weeks away. Keynote speakers and expert panellists will explore groundbreaking insights. + Patients can join virtually at a discount.
Register today:
General: amededu.co/47cQW3M
Patients: virology.eventsair.com/long-covid-i...
#LongCOVIDIntl
October 31, 2025 at 5:42 PM
Reposted by 💜 ShinyEevee
People continue to call COVID advocates’ pleas for masking “unreasonable”.

Yet people who’ve already been disabled by COVID have no choice but to live with the “unreasonable” burdens of constant COVID safety.

My latest:
substack.com/home/post/p-...
Beyond all reason
Long COVID patients are constantly harangued about our requests for COVID safety. Yet what we're asking for is far less than what we're called on to do to survive.
substack.com
October 15, 2025 at 5:10 PM
Reposted by 💜 ShinyEevee
Là où la défense des intérêts rencontre la recherche et où la voix des enfants guide nos actions, nous lançons une pétition appelant le gouvernement fédéral à agir pour assurer des soins biomédicaux à tous les jeunes atteints de #COVIDLongue.
Signez et partagez : www.change.org/p/demand-fed...
Sign the Petition
Demand Federal Action on Biomedical Care for Children Living with Long COVID
www.change.org
October 1, 2025 at 4:03 PM
Reposted by 💜 ShinyEevee
Le début de l’automne rime avec rentrée scolaire, mais les enfants atteints de CL font face à des cours manqués et à des symptômes persistants. Leur voix oriente la recherche et les soins. 500 signatures sont nécessaires pour présenter la pétition au Parlement. Signez ici : chng.it/7ZSzLXnp5n
October 1, 2025 at 5:06 PM
"On se doit d’inclure dans les conséquences graves le syndrome post-COVID (diabète, embolie pulmonaire, crise cardiaque, AVC, maladies rénales (...) ainsi que (la) COVID longue, qui peut être si débilitant(e)."

Merci DrFiliatrault et @nancydelagrave.bsky.social!

www.lapresse.ca/dialogue/opi...
La COVID et la Santé publique | Des histoires de grand-mère
L’auteure décèle plusieurs points faibles dans le discours de la Santé publique du Québec au sujet de la prévention de la COVID, notamment en ce qui concerne la vaccination et la propagation du virus.
www.lapresse.ca
September 30, 2025 at 11:19 PM
Reposted by 💜 ShinyEevee
Un beau texte de la Dre Lyne Filiatrault auquel j'ai collaboré à propos des choix de l'INSPQ.

www.lapresse.ca/dialogue/opi...
La COVID et la Santé publique | Des histoires de grand-mère
L’auteure décèle plusieurs points faibles dans le discours de la Santé publique du Québec au sujet de la prévention de la COVID, notamment en ce qui concerne la vaccination et la propagation du virus.
www.lapresse.ca
September 30, 2025 at 3:20 PM
Reposted by 💜 ShinyEevee
Contribuez à façonner la norme canadienne sur les appareils de protection respiratoire!

D’ici le 19 août, la norme CSA Z94.4 est ouverte à l'examen public — et pour la première fois, elle inclut des protections en milieu de soins.

1/3
August 14, 2025 at 6:22 PM
✨ Tweets importants de @corsiaq.bsky.social :

"L'Association canadienne de normalisation a publié la norme provisoire CSA Z94.4, une révision de sa norme sur les respirateurs et la protection respiratoire.

Pour la 1re fois, les milieux de soins sont inclus dans cette nouvelle version provisoire."
1/ Respiratory protection (including respirators)

The Canadian Standards Association (CSA) has released CSA Z94.4, a draft revision of its standard on respirators and respiratory protection.

For the first time they are including healthcare settings in the new draft standard.
July 29, 2025 at 8:47 PM
Reposted by 💜 ShinyEevee
Boosting this again because it's so important to give positive feedback so we can make the proposed standards a reality!

It'll take a few minutes and you have to create an account to leave feedback, but @donoharmbc.bsky.social's guide makes everything super easy!
3/ Do No Harm BC has posted an excellent website dedicated to this new standard: donoharmbc.ca.

Kudos to Canada for setting an international first in development of such a standard.

Thanks to Dick Zoutman of Queen's Univ for the heads up.
DoNoHarm BC
We're a non-partisan action group of British Columbians advocating for evidence-based safety measures in high-risk settings.
donoharmbc.ca
July 29, 2025 at 8:16 PM