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Tim Atkinson @timjatkinson.bsky.social · 10h

Our upcoming All-Party Parliamentary Group (APPG) on #MND is coming up this November!

Your MP can attend to hear about our upcoming campaign and other updates.

Please email your MP and ask them to attend by clicking here: act.mndassociation.org/2025-11-APPG

Urge your MP to attend our next APPG meeting on 12 November

Urge your MP to attend our next APPG meeting on 12 November The All-Party Parliamentary Group (APPG) on MND is a group of MPs and Peers from different parties, who work together to make sure the Gover...

act.mndassociation.org

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Reposted by Tim Atkinson

Ammar Al-Chalabi @ammaralchalabi.bsky.social · 3d

We must find an effective treatment for #ALS #MND

@ukmndri.bsky.social

BBC News - Former England captain Moody reveals MND diagnosis
www.bbc.com/sport/rugby-...

Lewis Moody: Former England captain reveals motor neurone disease diagnosis

Former England captain Lewis Moody reveals he has been diagnosed with motor neurone disease in an exclusive BBC interview.

www.bbc.com

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Reposted by Tim Atkinson

MND Research @mndresearch.bsky.social · 7d

Applications for our Biomedical Research Projects are open. 🔬🧪
Apply if you have an idea which could advance our understanding of #MND #ALS and help find effective treatments!
📆 Deadline: 31 October
More info: www.mndassociation.org/research/for...

Text reads: Now open! Accepting applications for biomedical research projects. Deadline: 31 October 2025

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Tim Atkinson @timjatkinson.bsky.social · 9d

Thank you for your support and a great article Shaun.

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Shaun Lintern @shaunlintern.bsky.social · 9d

MND patients fighting for a treatment for the disease denied because of hospital capacity is truly scandalous. Sadly this won't help my mum but the NHS can and must do better for these families: t.co/9qQPs2qxqs

https://www.thetimes.com/article/3866e5b1-0321-40b6-bfeb-0cc84d94cb53?shareToken=972cb5f69e52f2627b0994ddd7dc6974

t.co

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Munira Wilson MP @munirawilson.bsky.social · 12d

Heard about how genetic testing and counselling is key to unlocking the future of precision medicine for people with #MND @mndassoc.bsky.social

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MND Research @mndresearch.bsky.social · 20d

We've published our new organisational strategy, which has renewed our commitment to research.

Now we want to hear from #MND #ALS researchers 🔬

Please complete this survey to tell us more about your views 👇
www.smartsurvey.co.uk/s/EOLHKG/

Thank you 💙🧡

Tell us your views on MND research

Please take the time to complete our survey. Your feedback is important.

www.smartsurvey.co.uk

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Reposted by Tim Atkinson

Shaun Lintern @shaunlintern.bsky.social · 20d

The number of people providing 35 hours or more a week of unpaid care increased from 1.1 million in 2003/04 to 1.9 million in 2023/24.

New requests for support increased from 1.8 million in 2015/16 to 2.1 million in 2023/24, mainly from working age adults www.independent.co.uk/news/health/...

www.independent.co.uk

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MND Education @mndeducation.bsky.social · 29d

We look forward to our last Information & Knowledge Exchange of 2025 on 23/09

Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice

Book on mndassociation.org/education-ev...

Calendar of events

Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

mndassociation.org

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Reposted by Tim Atkinson

Disability Rights UK @disrightsuk.bsky.social · Sep 9

🗣️"The waiting list for a new-build wheelchair accessible home is currently 40 years.

If you don't live in an accessible home as a Disabled person, it's a dangerous home, and a dangerous home you could be living in for 40 years."

DR UK's Mikey speaking to The Housing Select Committee 👇

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Disability Rights UK @disrightsuk.bsky.social · Sep 1

🏠Accessible Homes Week Webinar!

Join Habinteg and CAE for this free webinar sharing the latest insights into England's plans for accessible homes - and a discussion about the inequality still rife in housing.

Sign up here👇
www.eventbrite.co.uk/e/forecast-f...

Forecast for accessible homes 2025: one decade on… milestone or millstone?

Join Habinteg and CAE for this free webinar sharing the latest insights into England's plans for accessible homes.

www.eventbrite.co.uk

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Reposted by Tim Atkinson

Nuffield Trust @nuffieldtrust.org.uk · Sep 9

Read our full response to the publication of new league tables for NHS trusts in England 👇

New league tables of limited use to patients

Thea Stein responds to the introduction of quarterly rankings for all NHS trusts in England.

www.nuffieldtrust.org.uk

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Tim Atkinson @timjatkinson.bsky.social · Sep 3

Great - thank you :)

Tim Atkinson @timjatkinson.bsky.social · Aug 29

The @mndassoc.bsky.social would really like to hear from anyone who has:

- received a Disabled Facilities Grant (DFG) for major adaptations to their home in the last two years
- but, found that the grant did not meet the full costs.

Please email me at [email protected] - thanks!

Tim Atkinson @timjatkinson.bsky.social · Aug 29

Thanks Ammar! Is this the one the Institute did a news story on earlier this week?

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Tim Atkinson @timjatkinson.bsky.social · Aug 26

I've asked my MP to meet with the MND Association (@mndassoc.bsky.social) this autumn, to discuss how they can help constituents living with #MND in my local area. Can you take 1 minute to email your MP too?👇

act.mndassociation.org/2025-autumn-...

Invite your MP to meet us this autumn

This autumn we’ll be at the Conservative, Labour and Liberal Democrat party conferences. It’s an unmissable opportunity to put MND at the forefront of MPs’ minds, at the year’s most important gatherin...

act.mndassociation.org

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Tim Atkinson @timjatkinson.bsky.social · Aug 26

I've asked my MP to meet with the MND Association (@mndassoc.bsky.social) this autumn, to discuss how they can help constituents living with #MND in my local area. Can you take 1 minute to email your MP too?👇

act.mndassociation.org/2025-autumn-...

Invite your MP to meet us this autumn

This autumn we’ll be at the Conservative, Labour and Liberal Democrat party conferences. It’s an unmissable opportunity to put MND at the forefront of MPs’ minds, at the year’s most important gatherin...

act.mndassociation.org

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Reposted by Tim Atkinson

MND Research @mndresearch.bsky.social · Aug 5

Join us at the largest scientific and medical conference dedicated to #MND #ALS!

🌍 San Diego, USA and Online
📆 5-7 December 2025
🐤 Early bird registration closes 5 September!

Register today: symposium.mndassociation.org/register/
#alsmndsymp

Text reads: Beat the price rise! 36th International Symposium on ALS/MND

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MND Education @mndeducation.bsky.social · Aug 6

The clock is ticking!⏰

Book before 31 August to access our EARLYBIRD rate for the 2025 Community of Practice Annual Event

Held on 7 October in Birmingham, the day will focus on how HSCPs can support choice & control for people with #MND

Learn more on www.mndassociation.org/education-events

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Reposted by Tim Atkinson

Bambos Charalambous @bambosmp.bsky.social · Aug 4

I am proud to support @mndassoc.bsky.social and their #PrescribeLife campaign.

Some people with SOD1 #MND, 2% of cases, still can't access tofersen and I am backing calls for the Government to find a solution.

You can learn more about the campaign here:
www.mndassociation.org/get-involved...

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Care and Support Alliance @csalliance.bsky.social · Jul 4

Thank you to everyone who joined the #ShowUsYouCare campaign and shared with MPs the importance of good quality, reliable social care.

Wondering if your MP was there? Check our list to find out: careandsupportalliance.com/parliament-2...

careandsupportalliance.com

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Care and Support Alliance @csalliance.bsky.social · Jul 4

Emily Holzhausen, CSA Co-Chair, said: “MPs – your voice really matters to us. We want you to hold decision makers to account and work with us to secure a better future for social care. Investing in care is investing in all of us”. (4/5)

Photo of Emily, CSA Co-Chair, speaking into a microphone.

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Care and Support Alliance @csalliance.bsky.social · Jul 4

Jack, who receives social care, said: “The less care I get, the less independent I am. There's a real lack of aspiration for what a good life is for someone with a disability. We need a well-funded, needs-led care system that moves from enabling mere survival to fulfilling lives.” (3/5)

Photo of Jack, who uses an electric wheelchair, speaking into a microphone.

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Care and Support Alliance @csalliance.bsky.social · Jul 4

We heard from @annadixonmp.bsky.social‬ : “We must build political consensus on social care, and raise public awareness of how important care and support is. People who draw on and provide care are too often invisible. We have to change that and celebrate the value of care and support.” (2/5)

Photo of Anna Dixon MP speaking into a microphone.

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Care and Support Alliance @csalliance.bsky.social · Jul 4

Yesterday, thanks to over 2000 campaigners who sent invitations, we welcomed MPs to our #ShowUsYouCare event in Parliament. Our attendees heard about the 3.5 million people unable to get the support they need and how we can work together to change this. (1/5)

Photo of a group of people holding signs that say 'I care!' There is an MP, two working age adults in wheelchairs, and several unpaid carers.

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