Tim Atkinson
@timjatkinson.bsky.social
East Midlands Regional Organiser for @amnestyuk.bsky.social
Interested in #activism, #volunteering, #charities, #ukpolitics, all things geek, community organising, environment, health and social care.
Interested in #activism, #volunteering, #charities, #ukpolitics, all things geek, community organising, environment, health and social care.
Well, that's it after ten years of experiences and adventures at @mndassoc.bsky.social. It's been a privilege and a game-changer to campaign with the #MND community.
A big thank you to everyone - volunteer and staff - who I worked with and learned from along the way.
A big thank you to everyone - volunteer and staff - who I worked with and learned from along the way.
November 4, 2025 at 7:27 PM
Well, that's it after ten years of experiences and adventures at @mndassoc.bsky.social. It's been a privilege and a game-changer to campaign with the #MND community.
A big thank you to everyone - volunteer and staff - who I worked with and learned from along the way.
A big thank you to everyone - volunteer and staff - who I worked with and learned from along the way.
Reposted by Tim Atkinson
Please ask your councillors to sign up and help fight this terrible disease #MND 👇🏼
We've set up our new #MND Councillor Network for councillors across the country to receive our campaign asks, learn more about supporting people living with MND in their area and be updated on the work of the Association.
Ask your councillors to sign up now! 👇
www.mndassociation.org/join-our-cou...
Ask your councillors to sign up now! 👇
www.mndassociation.org/join-our-cou...
Join our Councillor Network
The MND Association has a long and proud history of working with local decision-makers to deliver real change for people living with MND. If you want to keep up to date with Association campaigning, a...
www.mndassociation.org
October 23, 2025 at 12:28 PM
Please ask your councillors to sign up and help fight this terrible disease #MND 👇🏼
We've set up our new #MND Councillor Network for councillors across the country to receive our campaign asks, learn more about supporting people living with MND in their area and be updated on the work of the Association.
Ask your councillors to sign up now! 👇
www.mndassociation.org/join-our-cou...
Ask your councillors to sign up now! 👇
www.mndassociation.org/join-our-cou...
Join our Councillor Network
The MND Association has a long and proud history of working with local decision-makers to deliver real change for people living with MND. If you want to keep up to date with Association campaigning, a...
www.mndassociation.org
October 23, 2025 at 12:13 PM
We've set up our new #MND Councillor Network for councillors across the country to receive our campaign asks, learn more about supporting people living with MND in their area and be updated on the work of the Association.
Ask your councillors to sign up now! 👇
www.mndassociation.org/join-our-cou...
Ask your councillors to sign up now! 👇
www.mndassociation.org/join-our-cou...
Reposted by Tim Atkinson
Wheelchair accessible homes are a right NOT a luxury 🏠 Next week we're facilitating a gathering in Parliament Square of people with disabilities to speak out and demand that the Planning and Infrastructure Bill must mandate that 10% of new build homes are wheelchair accessible
October 17, 2025 at 9:08 AM
Wheelchair accessible homes are a right NOT a luxury 🏠 Next week we're facilitating a gathering in Parliament Square of people with disabilities to speak out and demand that the Planning and Infrastructure Bill must mandate that 10% of new build homes are wheelchair accessible
Reposted by Tim Atkinson
[NEW] How does the quality of local government services vary across the country – and what is driving performance?
The first instalment of our Public Services Performance Tracker 2025 with @nuffieldfoundation.org is out now🚨👇 www.instituteforgovernment.org.uk/publication/...
The first instalment of our Public Services Performance Tracker 2025 with @nuffieldfoundation.org is out now🚨👇 www.instituteforgovernment.org.uk/publication/...
October 15, 2025 at 4:21 PM
[NEW] How does the quality of local government services vary across the country – and what is driving performance?
The first instalment of our Public Services Performance Tracker 2025 with @nuffieldfoundation.org is out now🚨👇 www.instituteforgovernment.org.uk/publication/...
The first instalment of our Public Services Performance Tracker 2025 with @nuffieldfoundation.org is out now🚨👇 www.instituteforgovernment.org.uk/publication/...
Reposted by Tim Atkinson
I've asked my MP to meet with the MND Association this autumn, to discuss how they can help constituents living with #MND in my local area. Can you take 1 minute to email your MP too?👇
act.mndassociation.org/2025-11-APPG
act.mndassociation.org/2025-11-APPG
Urge your MP to attend our next APPG meeting on 12 November
Urge your MP to attend our next APPG meeting on 12 November The All-Party Parliamentary Group (APPG) on MND is a group of MPs and Peers from different parties, who work together to make sure the Gover...
act.mndassociation.org
October 17, 2025 at 7:50 AM
I've asked my MP to meet with the MND Association this autumn, to discuss how they can help constituents living with #MND in my local area. Can you take 1 minute to email your MP too?👇
act.mndassociation.org/2025-11-APPG
act.mndassociation.org/2025-11-APPG
Reposted by Tim Atkinson
Prices are rising tomorrow! 📈
Want to hear the latest #MND #ALS research updates? Make sure you register for the 36th International Symposium on #ALS #MND TODAY before the price goes up!
Register now: symposium.mndassociation.org/register/
#alsmndsymp
Want to hear the latest #MND #ALS research updates? Make sure you register for the 36th International Symposium on #ALS #MND TODAY before the price goes up!
Register now: symposium.mndassociation.org/register/
#alsmndsymp
October 14, 2025 at 7:17 AM
Prices are rising tomorrow! 📈
Want to hear the latest #MND #ALS research updates? Make sure you register for the 36th International Symposium on #ALS #MND TODAY before the price goes up!
Register now: symposium.mndassociation.org/register/
#alsmndsymp
Want to hear the latest #MND #ALS research updates? Make sure you register for the 36th International Symposium on #ALS #MND TODAY before the price goes up!
Register now: symposium.mndassociation.org/register/
#alsmndsymp
Our upcoming All-Party Parliamentary Group (APPG) on #MND is coming up this November!
Your MP can attend to hear about our upcoming campaign and other updates.
Please email your MP and ask them to attend by clicking here: act.mndassociation.org/2025-11-APPG
Your MP can attend to hear about our upcoming campaign and other updates.
Please email your MP and ask them to attend by clicking here: act.mndassociation.org/2025-11-APPG
Urge your MP to attend our next APPG meeting on 12 November
Urge your MP to attend our next APPG meeting on 12 November The All-Party Parliamentary Group (APPG) on MND is a group of MPs and Peers from different parties, who work together to make sure the Gover...
act.mndassociation.org
October 9, 2025 at 8:02 AM
Our upcoming All-Party Parliamentary Group (APPG) on #MND is coming up this November!
Your MP can attend to hear about our upcoming campaign and other updates.
Please email your MP and ask them to attend by clicking here: act.mndassociation.org/2025-11-APPG
Your MP can attend to hear about our upcoming campaign and other updates.
Please email your MP and ask them to attend by clicking here: act.mndassociation.org/2025-11-APPG
Reposted by Tim Atkinson
We must find an effective treatment for #ALS #MND
@ukmndri.bsky.social
BBC News - Former England captain Moody reveals MND diagnosis
www.bbc.com/sport/rugby-...
@ukmndri.bsky.social
BBC News - Former England captain Moody reveals MND diagnosis
www.bbc.com/sport/rugby-...
Lewis Moody: Former England captain reveals motor neurone disease diagnosis
Former England captain Lewis Moody reveals he has been diagnosed with motor neurone disease in an exclusive BBC interview.
www.bbc.com
October 6, 2025 at 7:32 AM
We must find an effective treatment for #ALS #MND
@ukmndri.bsky.social
BBC News - Former England captain Moody reveals MND diagnosis
www.bbc.com/sport/rugby-...
@ukmndri.bsky.social
BBC News - Former England captain Moody reveals MND diagnosis
www.bbc.com/sport/rugby-...
Reposted by Tim Atkinson
Applications for our Biomedical Research Projects are open. 🔬🧪
Apply if you have an idea which could advance our understanding of #MND #ALS and help find effective treatments!
📆 Deadline: 31 October
More info: www.mndassociation.org/research/for...
Apply if you have an idea which could advance our understanding of #MND #ALS and help find effective treatments!
📆 Deadline: 31 October
More info: www.mndassociation.org/research/for...
October 2, 2025 at 7:58 AM
Applications for our Biomedical Research Projects are open. 🔬🧪
Apply if you have an idea which could advance our understanding of #MND #ALS and help find effective treatments!
📆 Deadline: 31 October
More info: www.mndassociation.org/research/for...
Apply if you have an idea which could advance our understanding of #MND #ALS and help find effective treatments!
📆 Deadline: 31 October
More info: www.mndassociation.org/research/for...
Reposted by Tim Atkinson
MND patients fighting for a treatment for the disease denied because of hospital capacity is truly scandalous. Sadly this won't help my mum but the NHS can and must do better for these families: t.co/9qQPs2qxqs
https://www.thetimes.com/article/3866e5b1-0321-40b6-bfeb-0cc84d94cb53?shareToken=972cb5f69e52f2627b0994ddd7dc6974
t.co
September 30, 2025 at 10:59 AM
MND patients fighting for a treatment for the disease denied because of hospital capacity is truly scandalous. Sadly this won't help my mum but the NHS can and must do better for these families: t.co/9qQPs2qxqs
Reposted by Tim Atkinson
Heard about how genetic testing and counselling is key to unlocking the future of precision medicine for people with #MND @mndassoc.bsky.social
September 27, 2025 at 2:03 PM
Heard about how genetic testing and counselling is key to unlocking the future of precision medicine for people with #MND @mndassoc.bsky.social
Reposted by Tim Atkinson
We've published our new organisational strategy, which has renewed our commitment to research.
Now we want to hear from #MND #ALS researchers 🔬
Please complete this survey to tell us more about your views 👇
www.smartsurvey.co.uk/s/EOLHKG/
Thank you 💙🧡
Now we want to hear from #MND #ALS researchers 🔬
Please complete this survey to tell us more about your views 👇
www.smartsurvey.co.uk/s/EOLHKG/
Thank you 💙🧡
Tell us your views on MND research
Please take the time to complete our survey. Your feedback is important.
www.smartsurvey.co.uk
September 19, 2025 at 10:47 AM
We've published our new organisational strategy, which has renewed our commitment to research.
Now we want to hear from #MND #ALS researchers 🔬
Please complete this survey to tell us more about your views 👇
www.smartsurvey.co.uk/s/EOLHKG/
Thank you 💙🧡
Now we want to hear from #MND #ALS researchers 🔬
Please complete this survey to tell us more about your views 👇
www.smartsurvey.co.uk/s/EOLHKG/
Thank you 💙🧡
Reposted by Tim Atkinson
The number of people providing 35 hours or more a week of unpaid care increased from 1.1 million in 2003/04 to 1.9 million in 2023/24.
New requests for support increased from 1.8 million in 2015/16 to 2.1 million in 2023/24, mainly from working age adults www.independent.co.uk/news/health/...
New requests for support increased from 1.8 million in 2015/16 to 2.1 million in 2023/24, mainly from working age adults www.independent.co.uk/news/health/...
www.independent.co.uk
September 19, 2025 at 7:54 AM
The number of people providing 35 hours or more a week of unpaid care increased from 1.1 million in 2003/04 to 1.9 million in 2023/24.
New requests for support increased from 1.8 million in 2015/16 to 2.1 million in 2023/24, mainly from working age adults www.independent.co.uk/news/health/...
New requests for support increased from 1.8 million in 2015/16 to 2.1 million in 2023/24, mainly from working age adults www.independent.co.uk/news/health/...
Reposted by Tim Atkinson
We look forward to our last Information & Knowledge Exchange of 2025 on 23/09
Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice
Book on mndassociation.org/education-ev...
Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice
Book on mndassociation.org/education-ev...
Calendar of events
Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.
mndassociation.org
September 10, 2025 at 3:11 PM
We look forward to our last Information & Knowledge Exchange of 2025 on 23/09
Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice
Book on mndassociation.org/education-ev...
Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice
Book on mndassociation.org/education-ev...
Reposted by Tim Atkinson
🗣️"The waiting list for a new-build wheelchair accessible home is currently 40 years.
If you don't live in an accessible home as a Disabled person, it's a dangerous home, and a dangerous home you could be living in for 40 years."
DR UK's Mikey speaking to The Housing Select Committee 👇
If you don't live in an accessible home as a Disabled person, it's a dangerous home, and a dangerous home you could be living in for 40 years."
DR UK's Mikey speaking to The Housing Select Committee 👇
September 9, 2025 at 10:37 AM
🗣️"The waiting list for a new-build wheelchair accessible home is currently 40 years.
If you don't live in an accessible home as a Disabled person, it's a dangerous home, and a dangerous home you could be living in for 40 years."
DR UK's Mikey speaking to The Housing Select Committee 👇
If you don't live in an accessible home as a Disabled person, it's a dangerous home, and a dangerous home you could be living in for 40 years."
DR UK's Mikey speaking to The Housing Select Committee 👇
Reposted by Tim Atkinson
🏠Accessible Homes Week Webinar!
Join Habinteg and CAE for this free webinar sharing the latest insights into England's plans for accessible homes - and a discussion about the inequality still rife in housing.
Sign up here👇
www.eventbrite.co.uk/e/forecast-f...
Join Habinteg and CAE for this free webinar sharing the latest insights into England's plans for accessible homes - and a discussion about the inequality still rife in housing.
Sign up here👇
www.eventbrite.co.uk/e/forecast-f...
Forecast for accessible homes 2025: one decade on… milestone or millstone?
Join Habinteg and CAE for this free webinar sharing the latest insights into England's plans for accessible homes.
www.eventbrite.co.uk
September 1, 2025 at 9:49 AM
🏠Accessible Homes Week Webinar!
Join Habinteg and CAE for this free webinar sharing the latest insights into England's plans for accessible homes - and a discussion about the inequality still rife in housing.
Sign up here👇
www.eventbrite.co.uk/e/forecast-f...
Join Habinteg and CAE for this free webinar sharing the latest insights into England's plans for accessible homes - and a discussion about the inequality still rife in housing.
Sign up here👇
www.eventbrite.co.uk/e/forecast-f...
Reposted by Tim Atkinson
Read our full response to the publication of new league tables for NHS trusts in England 👇
New league tables of limited use to patients
Thea Stein responds to the introduction of quarterly rankings for all NHS trusts in England.
www.nuffieldtrust.org.uk
September 9, 2025 at 8:30 AM
Read our full response to the publication of new league tables for NHS trusts in England 👇
The @mndassoc.bsky.social would really like to hear from anyone who has:
- received a Disabled Facilities Grant (DFG) for major adaptations to their home in the last two years
- but, found that the grant did not meet the full costs.
Please email me at [email protected] - thanks!
- received a Disabled Facilities Grant (DFG) for major adaptations to their home in the last two years
- but, found that the grant did not meet the full costs.
Please email me at [email protected] - thanks!
August 29, 2025 at 9:08 AM
The @mndassoc.bsky.social would really like to hear from anyone who has:
- received a Disabled Facilities Grant (DFG) for major adaptations to their home in the last two years
- but, found that the grant did not meet the full costs.
Please email me at [email protected] - thanks!
- received a Disabled Facilities Grant (DFG) for major adaptations to their home in the last two years
- but, found that the grant did not meet the full costs.
Please email me at [email protected] - thanks!
Reposted by Tim Atkinson
I've asked my MP to meet with the MND Association (@mndassoc.bsky.social) this autumn, to discuss how they can help constituents living with #MND in my local area. Can you take 1 minute to email your MP too?👇
act.mndassociation.org/2025-autumn-...
act.mndassociation.org/2025-autumn-...
Invite your MP to meet us this autumn
This autumn we’ll be at the Conservative, Labour and Liberal Democrat party conferences. It’s an unmissable opportunity to put MND at the forefront of MPs’ minds, at the year’s most important gatherin...
act.mndassociation.org
August 26, 2025 at 8:19 AM
I've asked my MP to meet with the MND Association (@mndassoc.bsky.social) this autumn, to discuss how they can help constituents living with #MND in my local area. Can you take 1 minute to email your MP too?👇
act.mndassociation.org/2025-autumn-...
act.mndassociation.org/2025-autumn-...
I've asked my MP to meet with the MND Association (@mndassoc.bsky.social) this autumn, to discuss how they can help constituents living with #MND in my local area. Can you take 1 minute to email your MP too?👇
act.mndassociation.org/2025-autumn-...
act.mndassociation.org/2025-autumn-...
Invite your MP to meet us this autumn
This autumn we’ll be at the Conservative, Labour and Liberal Democrat party conferences. It’s an unmissable opportunity to put MND at the forefront of MPs’ minds, at the year’s most important gatherin...
act.mndassociation.org
August 26, 2025 at 8:19 AM
I've asked my MP to meet with the MND Association (@mndassoc.bsky.social) this autumn, to discuss how they can help constituents living with #MND in my local area. Can you take 1 minute to email your MP too?👇
act.mndassociation.org/2025-autumn-...
act.mndassociation.org/2025-autumn-...
Reposted by Tim Atkinson
Join us at the largest scientific and medical conference dedicated to #MND #ALS!
🌍 San Diego, USA and Online
📆 5-7 December 2025
🐤 Early bird registration closes 5 September!
Register today: symposium.mndassociation.org/register/
#alsmndsymp
🌍 San Diego, USA and Online
📆 5-7 December 2025
🐤 Early bird registration closes 5 September!
Register today: symposium.mndassociation.org/register/
#alsmndsymp
August 5, 2025 at 3:22 PM
Join us at the largest scientific and medical conference dedicated to #MND #ALS!
🌍 San Diego, USA and Online
📆 5-7 December 2025
🐤 Early bird registration closes 5 September!
Register today: symposium.mndassociation.org/register/
#alsmndsymp
🌍 San Diego, USA and Online
📆 5-7 December 2025
🐤 Early bird registration closes 5 September!
Register today: symposium.mndassociation.org/register/
#alsmndsymp
Reposted by Tim Atkinson
The clock is ticking!⏰
Book before 31 August to access our EARLYBIRD rate for the 2025 Community of Practice Annual Event
Held on 7 October in Birmingham, the day will focus on how HSCPs can support choice & control for people with #MND
Learn more on www.mndassociation.org/education-events
Book before 31 August to access our EARLYBIRD rate for the 2025 Community of Practice Annual Event
Held on 7 October in Birmingham, the day will focus on how HSCPs can support choice & control for people with #MND
Learn more on www.mndassociation.org/education-events
August 6, 2025 at 8:17 AM
The clock is ticking!⏰
Book before 31 August to access our EARLYBIRD rate for the 2025 Community of Practice Annual Event
Held on 7 October in Birmingham, the day will focus on how HSCPs can support choice & control for people with #MND
Learn more on www.mndassociation.org/education-events
Book before 31 August to access our EARLYBIRD rate for the 2025 Community of Practice Annual Event
Held on 7 October in Birmingham, the day will focus on how HSCPs can support choice & control for people with #MND
Learn more on www.mndassociation.org/education-events
Reposted by Tim Atkinson
I am proud to support @mndassoc.bsky.social and their #PrescribeLife campaign.
Some people with SOD1 #MND, 2% of cases, still can't access tofersen and I am backing calls for the Government to find a solution.
You can learn more about the campaign here:
www.mndassociation.org/get-involved...
Some people with SOD1 #MND, 2% of cases, still can't access tofersen and I am backing calls for the Government to find a solution.
You can learn more about the campaign here:
www.mndassociation.org/get-involved...
August 4, 2025 at 12:41 PM
I am proud to support @mndassoc.bsky.social and their #PrescribeLife campaign.
Some people with SOD1 #MND, 2% of cases, still can't access tofersen and I am backing calls for the Government to find a solution.
You can learn more about the campaign here:
www.mndassociation.org/get-involved...
Some people with SOD1 #MND, 2% of cases, still can't access tofersen and I am backing calls for the Government to find a solution.
You can learn more about the campaign here:
www.mndassociation.org/get-involved...
Reposted by Tim Atkinson
Thank you to everyone who joined the #ShowUsYouCare campaign and shared with MPs the importance of good quality, reliable social care.
Wondering if your MP was there? Check our list to find out: careandsupportalliance.com/parliament-2...
Wondering if your MP was there? Check our list to find out: careandsupportalliance.com/parliament-2...
careandsupportalliance.com
July 4, 2025 at 9:20 AM
Thank you to everyone who joined the #ShowUsYouCare campaign and shared with MPs the importance of good quality, reliable social care.
Wondering if your MP was there? Check our list to find out: careandsupportalliance.com/parliament-2...
Wondering if your MP was there? Check our list to find out: careandsupportalliance.com/parliament-2...