Lucy
@wildlifelucy.bsky.social
Nature lover🐦, peace seeker, gentle soul. From engineer to psychology graduate. Now more husk than human🐌: Housebound Pw #MECFS #PoTS #CPTSD #Menieres
Reposted by Lucy
1) Moving paper by young ME/CFS researcher Katherine Cheston. She was aware of the great disability it causes but "encountering the reality of this suffering first-hand was still shocking and deeply saddening."
She gives examples of patients who do not get appropriate care.
She gives examples of patients who do not get appropriate care.
December 24, 2025 at 9:15 AM
1) Moving paper by young ME/CFS researcher Katherine Cheston. She was aware of the great disability it causes but "encountering the reality of this suffering first-hand was still shocking and deeply saddening."
She gives examples of patients who do not get appropriate care.
She gives examples of patients who do not get appropriate care.
An early Christmas present from the garden to us all #pwME #pwLC 💙 (too beautiful to keep to myself).
A magnificent sparrowhawk. A male, I think, going by this guide ringersdigiguide.ottenby.se/species/acci...
Twiglet 🦔 was fast asleep, oblivious to the mighty visitor outside her front door! 💚
A magnificent sparrowhawk. A male, I think, going by this guide ringersdigiguide.ottenby.se/species/acci...
Twiglet 🦔 was fast asleep, oblivious to the mighty visitor outside her front door! 💚
December 21, 2025 at 5:34 PM
An early Christmas present from the garden to us all #pwME #pwLC 💙 (too beautiful to keep to myself).
A magnificent sparrowhawk. A male, I think, going by this guide ringersdigiguide.ottenby.se/species/acci...
Twiglet 🦔 was fast asleep, oblivious to the mighty visitor outside her front door! 💚
A magnificent sparrowhawk. A male, I think, going by this guide ringersdigiguide.ottenby.se/species/acci...
Twiglet 🦔 was fast asleep, oblivious to the mighty visitor outside her front door! 💚
Reposted by Lucy
I wrote a Christmas gift guide! Who am I? Anyway, there’s lots of crap out there so get the best deal for the wildlife gardener in your life. Merry Christmas 🎄
open.substack.com/pub/katebrad...
open.substack.com/pub/katebrad...
Gifts for wildlife gardeners that really work
(Or, don't buy a hedgehog box that kills hedgehogs. Ok?)
open.substack.com
December 10, 2025 at 9:28 PM
I wrote a Christmas gift guide! Who am I? Anyway, there’s lots of crap out there so get the best deal for the wildlife gardener in your life. Merry Christmas 🎄
open.substack.com/pub/katebrad...
open.substack.com/pub/katebrad...
I’m sure you’ll all be pleased to know that Twiglet is eating well, demolishing a bowl of kitten biscuits most nights, & adding a variety of garden gleanings to her nest. I’m hoping she’ll do a bit of hibernating at some point. Sending love & strength to those who need it 💙 #pwME
December 1, 2025 at 11:50 AM
I’m sure you’ll all be pleased to know that Twiglet is eating well, demolishing a bowl of kitten biscuits most nights, & adding a variety of garden gleanings to her nest. I’m hoping she’ll do a bit of hibernating at some point. Sending love & strength to those who need it 💙 #pwME
Reposted by Lucy
Available to buy now: One Red Leaf at a Time Greetings Cards.
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
One Red Leaf at a Time Greetings Cards - Raising funds for research into Myalgic Encephalomyelitis
Since so many of you have asked, greetings cards featuring images from the Red Leaf Creative Collaborative are now available to purchase.
theredtreeandme.substack.com
November 16, 2025 at 12:36 PM
Available to buy now: One Red Leaf at a Time Greetings Cards.
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
A slightly different edit to the one I put on Twitter. L➡️R: Robin, LongBoy, the growing hoglet & Honeysuckle. Robin ends up eating the floor biscuits scattered by Honeysuckle, lol. Hoglet leaves, then Honeysuckle, who does a big nervous 💩 & no-one else wants to go in there afterwards 🙈!
September 13, 2025 at 10:54 AM
A slightly different edit to the one I put on Twitter. L➡️R: Robin, LongBoy, the growing hoglet & Honeysuckle. Robin ends up eating the floor biscuits scattered by Honeysuckle, lol. Hoglet leaves, then Honeysuckle, who does a big nervous 💩 & no-one else wants to go in there afterwards 🙈!
Filling the kettle for my afternoon cuppa & I spotted a little orange butterfly fluttering about the mown meadow. Turned out to be an egg laying Small Copper, making the most of the Common Sorrel. She'd also brought a friend, a female Common Blue. 🧡☕️💙 #Gardening4Wildlife @bcwarwickshire.bsky.social
September 11, 2025 at 2:56 PM
Filling the kettle for my afternoon cuppa & I spotted a little orange butterfly fluttering about the mown meadow. Turned out to be an egg laying Small Copper, making the most of the Common Sorrel. She'd also brought a friend, a female Common Blue. 🧡☕️💙 #Gardening4Wildlife @bcwarwickshire.bsky.social
Reposted by Lucy
The Irish health service has initiated a process to develop a clinical guideline for ME (#MyalgicEncephalomyelitis). I am honoured to be part of its Steering Group
The process so far has been extremely progressive
I am hugely optimistic that a world-leading guideline will be produced
#pwME #MECFS
The process so far has been extremely progressive
I am hugely optimistic that a world-leading guideline will be produced
#pwME #MECFS
Myalgic Encephalomyelitis (ME) - HSE.ie
www.hse.ie
September 9, 2025 at 2:46 PM
Reposted by Lucy
Thinking of Savannah and hoping all clinicians and advocates can work together “at pace” (as government likes to say) for her best interests in accordance with needs of someone with severe ME.
💙
💙
🧵 Savannah update - please share widely.
Formerly known as Gigi, Savannah (S) is in Room 4, Ward 1, Queen Elizabeth Hospital, Woolwich with very severe ME.
All her energy is being spent on calling for help.
There is a virtual MDT 10.30 tomorrow. S has asked that Dr Weir and I be invited to join
1/2
Formerly known as Gigi, Savannah (S) is in Room 4, Ward 1, Queen Elizabeth Hospital, Woolwich with very severe ME.
All her energy is being spent on calling for help.
There is a virtual MDT 10.30 tomorrow. S has asked that Dr Weir and I be invited to join
1/2
September 8, 2025 at 6:16 PM
Thinking of Savannah and hoping all clinicians and advocates can work together “at pace” (as government likes to say) for her best interests in accordance with needs of someone with severe ME.
💙
💙
In my wildest dreams, I don’t think I could ever have imagined that my garden would host a Sedge Warbler for an afternoon. Caught initially on the RING camera whilst I was curled up in bed. It hung around until the evening & I got to see/film it. More garden magic 💚 #WarksBirds
August 17, 2025 at 9:49 AM
In my wildest dreams, I don’t think I could ever have imagined that my garden would host a Sedge Warbler for an afternoon. Caught initially on the RING camera whilst I was curled up in bed. It hung around until the evening & I got to see/film it. More garden magic 💚 #WarksBirds
Reposted by Lucy
Thanks to Emily Dugan and the Sunday Times for exposing this aspect of how Maeve died from ME. A Devon County Council cover up. Maeve was taking them to judical review, dying in the attempt.
Devon County Council may have learnt nothing from the inquest. I have learnt a lot about them.
1/4
Devon County Council may have learnt nothing from the inquest. I have learnt a lot about them.
1/4
August 10, 2025 at 7:17 AM
Thanks to Emily Dugan and the Sunday Times for exposing this aspect of how Maeve died from ME. A Devon County Council cover up. Maeve was taking them to judical review, dying in the attempt.
Devon County Council may have learnt nothing from the inquest. I have learnt a lot about them.
1/4
Devon County Council may have learnt nothing from the inquest. I have learnt a lot about them.
1/4
Reposted by Lucy
Full Article - The Times
As my daughter died of ME, the state met in secret to blame me
Maeve Boothby O’Neill’s mother had no idea she was being accused in private of causing or fabricating the illness that would take her life aged 27
archive.ph/2025.08.09-2...
As my daughter died of ME, the state met in secret to blame me
Maeve Boothby O’Neill’s mother had no idea she was being accused in private of causing or fabricating the illness that would take her life aged 27
archive.ph/2025.08.09-2...
August 10, 2025 at 7:10 AM
Full Article - The Times
As my daughter died of ME, the state met in secret to blame me
Maeve Boothby O’Neill’s mother had no idea she was being accused in private of causing or fabricating the illness that would take her life aged 27
archive.ph/2025.08.09-2...
As my daughter died of ME, the state met in secret to blame me
Maeve Boothby O’Neill’s mother had no idea she was being accused in private of causing or fabricating the illness that would take her life aged 27
archive.ph/2025.08.09-2...
Reposted by Lucy
Huge thank you to Chris Ponting and the @decodemestudy.bsky.social team for all their work on this project, and the work still to come.
These results are a great foundation and provide a lot of validation for patients across the world 🩵
These results are a great foundation and provide a lot of validation for patients across the world 🩵
Clip: Professor Chris Ponting tells BBC Scotland the world’s largest genetic study of #MECFS has identified eight genome regions linked to the disease. He says the field is finally being kickstarted after years of stigma and neglect.
August 7, 2025 at 9:31 AM
Huge thank you to Chris Ponting and the @decodemestudy.bsky.social team for all their work on this project, and the work still to come.
These results are a great foundation and provide a lot of validation for patients across the world 🩵
These results are a great foundation and provide a lot of validation for patients across the world 🩵
Reposted by Lucy
Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population.
-
Summary of our results: shorturl.at/pgsjk
Check out our full preprint paper: shorturl.at/VwN3s
-
Summary of our results: shorturl.at/pgsjk
Check out our full preprint paper: shorturl.at/VwN3s
August 6, 2025 at 6:24 PM
Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population.
-
Summary of our results: shorturl.at/pgsjk
Check out our full preprint paper: shorturl.at/VwN3s
-
Summary of our results: shorturl.at/pgsjk
Check out our full preprint paper: shorturl.at/VwN3s
Reposted by Lucy
A selection of disability focused designs available in my Redbubble shop. I rarely see bedridden people represented in iconography and illustration around disability.
www.redbubble.com/i/t-shirt/Va...
#Disability #DisabledArtists #illustration #TeeDesign
www.redbubble.com/i/t-shirt/Va...
#Disability #DisabledArtists #illustration #TeeDesign
July 22, 2025 at 1:29 PM
A selection of disability focused designs available in my Redbubble shop. I rarely see bedridden people represented in iconography and illustration around disability.
www.redbubble.com/i/t-shirt/Va...
#Disability #DisabledArtists #illustration #TeeDesign
www.redbubble.com/i/t-shirt/Va...
#Disability #DisabledArtists #illustration #TeeDesign
Reposted by Lucy
July 22, 2025 at 6:59 PM
When I became housebound, I kinda thought I'd never see another Small Blue butterfly. They rely on Kidney Vetch &, although I scattered seed, it never germinated. I cannot describe how gobsmacked I am that one has just turned up in my garden. The thrill is going to kill me 🤪
July 19, 2025 at 3:29 PM
When I became housebound, I kinda thought I'd never see another Small Blue butterfly. They rely on Kidney Vetch &, although I scattered seed, it never germinated. I cannot describe how gobsmacked I am that one has just turned up in my garden. The thrill is going to kill me 🤪
Reposted by Lucy
Even if you don’t usually like poetry, I think that you might find something here to enjoy. Plus it’s raising money for urgently needed surgery. Win win!
Join me for ‘A Summer Night’s Dream of Poetry’ tonight, 7pm on Friday 18th July (though the video will be available afterwards if you can’t make it): www.jkrowbory.co.uk/2025/07/a-su...
July 18, 2025 at 12:22 PM
Even if you don’t usually like poetry, I think that you might find something here to enjoy. Plus it’s raising money for urgently needed surgery. Win win!
Reposted by Lucy
📰Al Fresco Naughtiness Goes Digital📰 (see what I did there?!). This Buff Tailed #Bumblebee pair were going at it on the pavement outside a school and the♀️looked exhausted. So I rescued them from being trampled by the kids, and moved them onto an echinacea. #ukwildlife
July 3, 2025 at 2:54 PM
📰Al Fresco Naughtiness Goes Digital📰 (see what I did there?!). This Buff Tailed #Bumblebee pair were going at it on the pavement outside a school and the♀️looked exhausted. So I rescued them from being trampled by the kids, and moved them onto an echinacea. #ukwildlife
Reposted by Lucy
This is a short clip of the #leafcutterbee taken on my phone from one of her visits. #gardenwildlife #ukwildlife #insect #solitarybee #invertebrates #wildlifefrommywindow
July 1, 2025 at 4:29 PM
This is a short clip of the #leafcutterbee taken on my phone from one of her visits. #gardenwildlife #ukwildlife #insect #solitarybee #invertebrates #wildlifefrommywindow
Reposted by Lucy
It’s 30 June….the ME Delivery Plan is a no-show. It’s unacceptable.
#pwME have been left in darkness for too long. I’m with @HelenMorganLibDem.bsky.social:
‘The government must think again, publish the plan without delay, and allocate it the resources it needs to make a real difference.’
#pwME have been left in darkness for too long. I’m with @HelenMorganLibDem.bsky.social:
‘The government must think again, publish the plan without delay, and allocate it the resources it needs to make a real difference.’
June 30, 2025 at 9:13 AM
Sunday vibes: the calm, soothing sight of 3 happy hogs 🥰
June 29, 2025 at 9:34 AM
Sunday vibes: the calm, soothing sight of 3 happy hogs 🥰
🎶 Sea Holly brings all the bees to the yard 🎶
I’ve been amazed at how popular the Sea Holly (Eryngium × zabelii 'Jos Eijking’) is with the bees. It’s been covered in them. And then, a smart Six Spot Burnet moth joined in this week. #Gardening4Wildlife #MothsMatter
I’ve been amazed at how popular the Sea Holly (Eryngium × zabelii 'Jos Eijking’) is with the bees. It’s been covered in them. And then, a smart Six Spot Burnet moth joined in this week. #Gardening4Wildlife #MothsMatter
June 27, 2025 at 9:58 AM
🎶 Sea Holly brings all the bees to the yard 🎶
I’ve been amazed at how popular the Sea Holly (Eryngium × zabelii 'Jos Eijking’) is with the bees. It’s been covered in them. And then, a smart Six Spot Burnet moth joined in this week. #Gardening4Wildlife #MothsMatter
I’ve been amazed at how popular the Sea Holly (Eryngium × zabelii 'Jos Eijking’) is with the bees. It’s been covered in them. And then, a smart Six Spot Burnet moth joined in this week. #Gardening4Wildlife #MothsMatter
Something beautiful to end the day 🩷. An Elephant Hawkmoth in my tiny little meadow area. I accidentally disturbed it when I went to fill up the birdbath just now.
Beautiful creatures of the night... #Gardening4Wildlife #MothsMatter @bcwarwickshire.bsky.social
Beautiful creatures of the night... #Gardening4Wildlife #MothsMatter @bcwarwickshire.bsky.social
June 23, 2025 at 7:59 PM
Something beautiful to end the day 🩷. An Elephant Hawkmoth in my tiny little meadow area. I accidentally disturbed it when I went to fill up the birdbath just now.
Beautiful creatures of the night... #Gardening4Wildlife #MothsMatter @bcwarwickshire.bsky.social
Beautiful creatures of the night... #Gardening4Wildlife #MothsMatter @bcwarwickshire.bsky.social
A very special book. If I’m ever lucky enough to see another hare, it will be through new eyes. Thank you so much for sharing Hare with us @chloedalton.bsky.social #NoSpoilers
June 22, 2025 at 9:36 AM
A very special book. If I’m ever lucky enough to see another hare, it will be through new eyes. Thank you so much for sharing Hare with us @chloedalton.bsky.social #NoSpoilers