#LifeHasShatteredMyHopesAndMyDreams
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todd-m-stein.bsky.social
#ISeeYou #YouMatter #Disabled #ChronicallyIll #ChronicPain #ChronicFatigue #MyPainMatters #YourPainMatters #PainChangesPeople #ChronicPainChangesEverything #UntreatedPainIsTorture #LifeHasShatteredMyHopesAndMyDreams #ButYouDontLookSick #InvisibleDisability #InvisibleIllness #InvisiblePain #ImFine
“Shout-out to disabled people who aren't "inspirational", who are unemployed or stuck with a job they don't like, who didn't do well academically and/or had to drop out of school, who aren't in a position to live and take care of themselves independently even if they would like to, who don't "just get on with things without complaining", whose lives didn't work out in the way they were hoping for, who haven't "overcome" their disability in the way that society tells us we're supposed to. You exist, you're worthwhile and you matter.” (Credit: “Bendy Bunny”)
September 19, 2025 at 6:28 PM
todd-m-stein.bsky.social
#MaylsFibromyalgiaAwarenessMonth #LifeInPain #YouAreNotAlone
#MyPainMatters #YourPainMatters #PainChangesPeople
#ChronicPainChangesEverything #99PrescriptionsButAPainPillAintOne #UntreatedPainIsTorture
#ChronicPain #Fibromyalgia #Fibro #ChronicFatigue
#FibroFog #ButYouDontLookSick #ImFine #ImNotOk
(1/4 copy/paste of a post I shared on LinkedIn) “#MaylsFibromyalgiaAwarenessMonth #LifeInPain #YouAreNotAlone #MyPainMatters #YourPainMatters #PainChangesPeople #ChronicPainChangesEverything #ChronicPainHurtsEveryonelnvolved #99PrescriptionsButAPainPillAintO ne #UntreatedPainIsTorture #ChronicPain #Fibromyalgia #Fibro #ChronicFatigue #OccipitalNeuralgia #Migraine #TMJD #Osteoarthritis #DiabeticNeuropathy #ButYouDontLookSick #InvisibleChronicPain #InvisibleDisability #InvisibleDisease #InvisiblellIness #InvisiblePain #Depression #PTSD” … (2/4 copy/paste of a post I shared on LinkedIn) “#CPTSD #AccompanyingConditions #IBS #IBSD #HeartDisease #Type2Diabetes #Memorylssues #FibroFog #BrainFog #Anxiety #ChronicDryMouth #Burning Tongue #BurningMouthSyndrome #HiatalHernia #AcidReflux #Hyperhidrosis #SleepApnea #CPAP #SedentaryLife #WeightGain #Obesity #Exhausted #MedicallyRetired #UsedToBeLivingTheDream #NowMyLifelsANightmare #IWantMyLifeBack #IMissTheOldMe #TheOldToddSteinIsDead #ImFine #ImNotOkay #SomebodySaveMe #LifeHasShatteredMyHopesAndMyDreams #ThisIsNotMyFault #IDidNotCauseThis #IDidNothingWrong #ThisCouldHappenToAnyone #ItCouldHappenToYou #Disabled #ChronicallyIII #ChronicPainPatient” … (3/4 copy/paste of a post I shared on LinkedIn) “#ChronicPainAdvocate #ChronicPainAwareness #FibromyalgiaAwareness #FibromyalgiaAdvocate #FibromyalgiaResearch “Follow me on Bluesky for more about #MyLifelnPain…” — (Shared post from Fibromyalgia National Health Organization on LinkedIn) “You are not alone in this fight! Enjoy all the Fibromyalgia Awareness taking place in May. Lean into all the connections and community support. #Fibromyalgia #FibromyalgiaAwareness #FibromyalgiaWarrior” (Meme I shared from & on LinkedIn) Credit per meme to “@fibromyalgianational” “FIBROMYALGIA AWARENESS MONTH MAY 2025”
May 4, 2025 at 2:01 AM
todd-m-stein.bsky.social
Thx, @broadwaybabyto.bsky.social
#ChronicIllness #ChronicIllnessEpidemic #Disabled #ButYouDontLookSick #InvisibleDisability #InvisibleDisease #InvisibleIllness #InvisiblePain #99PrescriptionsButAPainPillAintOne #UntreatedPainIsTorture #ChronicPain #LifeHasShatteredMyHopesAndMyDreams #ImFine #ImNotOk
broadwaybabyto.bsky.social Kelly @broadwaybabyto.bsky.social · Apr 23
The US is trying to ban masks, mRNA vaccines, dismantle healthcare and social supports and arranging to keep lists of people with autism (and possibly other disabilities).

This is not how you tackle the chronic illness epidemic. This is how you begin a nationwide eugenics program.
April 23, 2025 at 10:07 PM
todd-m-stein.bsky.social
8/8: #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraine #TMJD #Osteoarthritis #BurningMouthSyndrome #Disabled #ButYouDontLookSick #InvisibleDisability #InvisibleDisease #Invisiblellness #InvisiblePain #Depression #PTSD #ThisIsMyLife #ImFine #ImNotOkay #LifeHasShatteredMyHopesAndMyDreams
“I POST ABOUT MY CHRONIC PAIN TO SPREAD AWARENESS, HELP KEEP MY FRIENDS & FAMILY INFORMED AND BECAUSE I FIND IT THERAPEUTIC. NO ONE IS FORCED TO READ MY POSTS. —Todd M. Stein”
April 23, 2025 at 8:06 PM
todd-m-stein.bsky.social
#Fibromyalgia #FibromyalgiaSymptoms #FibroFog #LyricaCommercialsLie #LifeInPain #PainChangesPeople #ChronicPainChangesEverything #99PrescriptionsButAPainPillAintOne #UntreatedPainIsTorture #ChronicPain #ChronicFatigue #IBS #ButYouDontLookSick #Depression #LifeHasShatteredMyHopesAndMyDreams #ImFine
“Fibromyalgia The irritable everything syndrome Some of the many symptoms” “Sensitivity to light & noise Dizziness Sciatica Tender joints Sensory Overload Confusion Hypotension Pins and needles Irritability Unregulated temperature Poor concentration Neck & shoulder pain Cramps Gluten & yeast intolerance Aphasia Muscle, knots, spasms, twitches & stiffness Hypermobility Fatigue Nausea Anxiety Nerve pain Morning stiffness Chemical sensitivity Shortness of breath Nose bleeds Aching bones P.M.S. Thyroid disorder Night Sweats Depression Non Refreshing sleep & insomnia tender lymph nodes Plantar fasciitis Non allergic rhinitis Irritable bladder Spinal burring Irritable Bowel Migraines Arm pain Insomnia Hand pain Brain Fog Dysphasia Myofascial pain Numbness/ tingling In hands & feet (paresthesia) Knee pain Menstrual problems Restless legs Lower back pain Widespread muscle pain Dry skin, eyes & mouth Mitral valve prolapse Jaw pain & TMJ”
March 28, 2025 at 1:14 AM
todd-m-stein.bsky.social
slate.com/human-intere...
#LifeInPain #MyPainMatters #PainChangesPeople #ChronicPainChangesEverything #99PrescriptionsButAPainPillAintOne #UntreatedPainIsTorture #ChronicPain #ChronicIllness #ButYouDontLookSick #InvisibleIllness #LifeHasShatteredMyHopesAndMyDreams #ImFine #ChronicPainAwareness
“Pain means you're alive. Pain is good. Pain is life.” -Barry Lyga "Anyone who believes that has never lived in real excruciating to debilitating chronic pain or watched a loved one struggle and crumble in agony begging for the relief that only death can deliver." -Todd M. Stein #MyPainMatters #PainChangesPeople #ChronicPainChangesEverything THE STRUGGLE IS REAL If someone you love battles invisible excruciating to debilitating untreatable & incurable chronic pain & they confide in you that they "can't handle it anymore" & they "are done" or "are ready" for death, don't try to talk them out of it or get mad about it. They don't "want to die" but they "can't 'live' like this anymore." Respect their choice. It was not an easy or quick one to make. #MyPainMatters #PainChangesPeople #ChronicPainChangesEverything --Todd M. Stein I POST ABOUT MY CHRONIC PAIN TO SPREAD AWARENESS, HELP KEEP MY FRIENDS & FAMILY INFORMED AND BECAUSE I FIND IT THERAPEUTIC. NO ONE IS FORCED TO READ MY POSTS. —Todd M. Stein UNITED NATIONS: "UNTREATED PAIN IS TANTAMOUNT TO TORTURE OR CRUEL, INHUMAN OR DEGRADING TREATMENT OR PUNISHMENT." https://www.medcentral.com/pain/chronic/unted-nations-says-untreated-pain-inhumane-cruel https://wwwohchrorg/sites/default/fies/Documents/HRBodies/HRCouncil/RegularSession/Session22/A.HRC2253.English.pdf #UntreatedPainIsTorture #ChronicPain #ChronicPainAwareness #MyPainMatters #PainChangesPeople #ChronicPainChangesEverything -Todd M. Stein, chronic pain advocate & patient, todd-m-stein.bsky.social
February 24, 2025 at 9:20 PM
todd-m-stein.bsky.social
Pg3/3 #Fibromyalgia #FibromyalgiaSymptoms #FibroFog #LyricaCommercialsLie #LifeInPain #PainChangesPeople #ChronicPainChangesEverything #99PrescriptionsButAPainPillAintOne #UntreatedPainIsTorture #ChronicPain #ChronicFatigue #IBS #ButYouDontLookSick #Depression #LifeHasShatteredMyHopesAndMyDreams
Sensitivities • Alcohol intolerance • Sensitivity to food/ chemicals(sic) • Sensitivity to light/ noise(sic) • Sensory overload • Sensitivity to pressure and humidity changes Skin • Bruising easily • Eczema • Rashes and sores • Scarring easily • Sensitivity to sun/ heat(sic) (Credit: fourmorespoons) Emotional • Mood swings • Anxiety • Depression • Feeling of helplessness/ hopelessness • Panic attacks • Overreactions • Personality changes Other • Dental problems • Disc degeneration • Nose bleeds • Gum disease • Haemorrhoids(sic) • Canker sores (Credit: fourmorespoons)
February 22, 2025 at 4:16 PM
todd-m-stein.bsky.social
Pg2 #Fibromyalgia #FibromyalgiaSymptoms #FibroFog #LyricaCommercialsLie #LifeInPain #PainChangesPeople #ChronicPainChangesEverything #99PrescriptionsButAPainPillAintOne #UntreatedPainIsTorture #ChronicPain #ChronicFatigue #IBS #ButYouDontLookSick #Depression #LifeHasShatteredMyHopesAndMyDreams #ImOk
Neurological • Brain fog • Blackouts • Light headedness • Numbness and tingling • Syncope (fainting) • Tinnitus (Ringing in one or both ears) • Vertigo • General dizziness • Carpal tunnel • Poor concentration • Seizures • Sensitivity to light (Credit: fourmorespoons) Sleep • Altered sleep/wake schedule • Difficulty falling/staying asleep • Fatigue • Broken sleep • Twitching during sleep • Tossing and turning • Non-restorative sleep • Vivid dreams/ disturbing nightmares Eyes • Eye pain/soreness • Frequent changes in vision • Poor night vision • Rapid vision decline (Credit: fourmorespoons) Cognitive • Confusion • Difficulty following conversation • Difficulty paying attention • Difficulty with long and short term memory • Forgetting how to do routine things • Losing your train of thought • Stuttering or stammering • Word finding difficulty Hair & Nails • Irritated nail beds • Temporary hair loss • Thinning hair • Listless hair (Credit: fourmorespoons) Gastrointestinal • Abdominal cramps • Bloating • Food craving • Irritable Bowel Syndrome (IBS) • Nausea • Changes in appetite • Vomiting • Weight loss or gain Urogenital • Decreased libido • Painful urination/ bladder pain • Pelvic pain • Worsening premenstrual syndrome (PMS) • Frequent urination (Credit: fourmorespoons)
February 22, 2025 at 4:13 PM
todd-m-stein.bsky.social
#Fibromyalgia #FibromyalgiaSymptoms #FibroFog #LyricaCommercialsLie #LifeInPain #PainChangesPeople #ChronicPainChangesEverything #99PrescriptionsButAPainPillAintOne #UntreatedPainIsTorture #ChronicPain #ChronicFatigue #IBS #ButYouDontLookSick #Depression #LifeHasShatteredMyHopesAndMyDreams #ImFine
Symptoms You Probably Didnt Know Were Related To Fibromyalgia @fourmorespoons Info found at: https//wwwfibromyalgiaresources.com/list-of- fibromyalgia-symptoms/amp/ Symptoms You Probably Didnt Know Were Related To Fibromyalgia @fourmorespoons Info found at: https//wwwfibromyalgiaresources.com/list-of- fibromyalgia-symptoms/amp/ General • Cold extremities • Dry eyes and mouth • Temperature fluctuations • Excessive sweating • Tremors and trembling • Flu like symptoms • Shortness of breath • Poor circulation • Hypoglycemia Equilibrium/ Perception • Clumsiness • Balance issues • Difficulty judging distances • Dropping things • Frequent tripping or stumbling • Bumping into things (Credit: fourmorespoons) Pain • Nerve pain • Chest pain • Joint pain • Morning stiffness • Muscle spasms • Twitching and weakness in muscles • Restless Leg Syndrome • Jaw pain (TMJ syndrome) • Sciatica pain/ back pain • Abdominal pain Cardivascular • Heart palpitations • Irregular heartbeat • Pain that mimics heart attack (Credit: fourmorespoons)
February 22, 2025 at 4:08 PM
todd-m-stein.bsky.social
#Grief #Depression #LifeHasShatteredMyHopesAndMyDreams #IWantMyLifeBack #LifeInPain #MyPainMatters #PainChangesPeople #ChronicPainChangesEverything #99PrescriptionsButAPainPillAintOne #UntreatedPainIsTorture #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraine #Osteoarthritis
“Grief is so much harder than anyone tells you. It isn't just sadness; it's a void, an ache, an unrelenting battle with reality. It's the endless replay of what could have been, and the cruel certainty of what will never be. -Jameson Arasi”
February 22, 2025 at 4:37 AM
todd-m-stein.bsky.social
#ChronicIllness #LifeHasShatteredMyHopesAndMyDreams #ImFine #IAmNotOkay #SomebodySaveMe #SendingOutAnSOS #PainFlare #FibroFog #BrainFog #MemoryLoss #INeedRelief #IWantMyLifeBack #Disabled #MedicallyRetired #NoDisabilityBenefits #FormerSmallBusinessOwner #ChronicPainAwareness #ChronicPainAdvocate
February 20, 2025 at 5:57 PM
todd-m-stein.bsky.social
#ChronicIllness #LifeHasShatteredMyHopesAndMyDreams #ImFine #ImNotOk #SomebodySaveMe #SendingOutAnSOS #INeedRelief #ISpendMyLifeInBedOrOnTheCouch #ThisIsntLiving #IWantMyLifeBack #WhereHasEveryoneGone #FairWeatherFriends #IllAlwaysRememberWhoHasBeenThereForMe #ImSickAndTiredOfBeingSickAndTired #Pain
February 20, 2025 at 5:42 PM
todd-m-stein.bsky.social
#MyPainMatters #PainChangesPeople #ChronicPainChangesEverything #UntreatedPainIsTorture #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraines #TMJD #Osteoarthritis #DiabeticNeuropathy #Depression #ButYouDontLookSick #InvisibleIllness #ImFine #LifeHasShatteredMyHopesAndMyDreams
January 16, 2025 at 7:52 PM
todd-m-stein.bsky.social
#MyPainMatters #PainChangesPeople #ChronicPainChangesEverything #UntreatedPainIsTorture #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraines #TMJD #Osteoarthritis #DiabeticNeuropathy #Depression #ButYouDontLookSick #InvisibleIllness #ImFine #LifeHasShatteredMyHopesAndMyDreams
January 16, 2025 at 7:46 PM
todd-m-stein.bsky.social
#MyPainMatters #PainChangesPeople #ChronicPainChangesEverything #UntreatedPainIsTorture #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraines #TMJD #Osteoarthritis #DiabeticNeuropathy #Depression #ButYouDontLookSick #InvisibleIllness #ImFine #LifeHasShatteredMyHopesAndMyDreams
January 16, 2025 at 7:44 PM
todd-m-stein.bsky.social
#MyPainMatters #ChronicPain #ChronicPainHumor #ButYouDontLookSick #InvisibleIllness #PainChangesPeople #ChronicPainChangesEverything #ImNotOk #UntreatedPainIsTorture #LifeHasShatteredMyHopesAndMyDreams
January 16, 2025 at 7:41 PM
todd-m-stein.bsky.social
#MyPainMatters #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraines #TMJD #Osteoarthritis #DiabeticNeuropathy #Depression #ButYouDontLookSick #InvisibleIllness #PainChangesPeople #ChronicPainChangesEverything #ImNotOk #UntreatedPainIsTorture #LifeHasShatteredMyHopesAndMyDreams
January 16, 2025 at 7:39 PM
todd-m-stein.bsky.social
#MyPainMatters #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraine #TMJD #Osteoarthritis #DiabeticNeuropathy #IBS #Depression #ButYouDontLookSick #InvisibleIllness #PainChangesPeople #ChronicPainChangesEverything #ImFine #ImNotOk #ReliefNeeded #LifeHasShatteredMyHopesAndMyDreams
January 16, 2025 at 12:09 AM
todd-m-stein.bsky.social
#MyPainMatters #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraine #TMJD #Osteoarthritis #DiabeticNeuropathy #IBS #Depression #ButYouDontLookSick #InvisibleIllness #PainChangesPeople #ChronicPainChangesEverything #ImFine #ImNotOk #ReliefNeeded #LifeHasShatteredMyHopesAndMyDreams
January 16, 2025 at 12:08 AM
todd-m-stein.bsky.social
#MyPainMatters #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraine #TMJD #Osteoarthritis #DiabeticNeuropathy #IBS #Depression #ButYouDontLookSick #InvisibleIllness #PainChangesPeople #ChronicPainChangesEverything #ImFine #ImNotOk #ReliefNeeded #LifeHasShatteredMyHopesAndMyDreams
January 16, 2025 at 12:07 AM
todd-m-stein.bsky.social
#MyPainMatters #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraine #TMJD #Osteoarthritis #DiabeticNeuropathy #IBS #Depression #ButYouDontLookSick #InvisibleIllness #PainChangesPeople #ChronicPainChangesEverything #ImFine #ImNotOk #ReliefNeeded #LifeHasShatteredMyHopesAndMyDreams
lovewarriorhugs.bsky.social LoveWarriorHugs @lovewarriorhugs.bsky.social · Jan 15
Things that are now normal with a chronic illness
-more doctors than friends
-not smelly clothes
-energy management
-too many drugs
-brain fog

Many more…
#chronicillness
#humor
#chronicillnesshumor
#healthcare
#spoonie
#epilepsy
#multiplescelerosis
January 15, 2025 at 8:12 PM
todd-m-stein.bsky.social
#Awareness #MyPainMatters #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraines #TMJD #Osteoarthritis #DiabeticNeuropathy #IBS #Depression #ButYouDontLookSick #InvisibleIllness #PainChangesPeople #ChronicPainChangesEverything #ImFine #ImNotOkay
#LifeHasShatteredMyHopesAndMyDreams
January 14, 2025 at 6:27 AM
todd-m-stein.bsky.social
#Awareness #MyPainMatters #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraines #TMJD #Osteoarthritis #DiabeticNeuropathy #Depression #ButYouDontLookSick #InvisibleIllness #PainChangesPeople #ChronicPainChangesEverything #ImFine #ImNotOkay
#LifeHasShatteredMyHopesAndMyDreams
January 14, 2025 at 4:33 AM
todd-m-stein.bsky.social
#Awareness #MyPainMatters #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraines #TMJD #Osteoarthritis #DiabeticNeuropathy #BrainFog #Depression #PTSD #ButYouDontLookSick #InvisibleIllness #PainChangesPeople #ChronicPainChangesEverything #ImFine #LifeHasShatteredMyHopesAndMyDreams
January 10, 2025 at 10:57 AM
todd-m-stein.bsky.social
#Awareness #MyPainMatters #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraines #TMJD #Osteoarthritis #DiabeticNeuropathy #Depression #Fog #ButYouDontLookSick #InvisibleIllness #PainChangesPeople #ChronicPainChangesEverything #ImFine #ImNotOkay #LifeHasShatteredMyHopesAndMyDreams
January 9, 2025 at 5:04 PM