So much to look forward to. 🤦 #HappyNewYear 🥳
This will be my 4th year tracking my migraines.
Tracking each month helps identify my peak days — when it’s safe to socialise & exercise without exacerbating & prolonging symptoms.
#MigraineChat #MigraineTracker #ChronicMigraine #HemiplegicMigraine
This will be my 4th year tracking my migraines.
Tracking each month helps identify my peak days — when it’s safe to socialise & exercise without exacerbating & prolonging symptoms.
#MigraineChat #MigraineTracker #ChronicMigraine #HemiplegicMigraine
December 31, 2025 at 2:39 PM
So much to look forward to. 🤦 #HappyNewYear 🥳
This will be my 4th year tracking my migraines.
Tracking each month helps identify my peak days — when it’s safe to socialise & exercise without exacerbating & prolonging symptoms.
#MigraineChat #MigraineTracker #ChronicMigraine #HemiplegicMigraine
This will be my 4th year tracking my migraines.
Tracking each month helps identify my peak days — when it’s safe to socialise & exercise without exacerbating & prolonging symptoms.
#MigraineChat #MigraineTracker #ChronicMigraine #HemiplegicMigraine
Calling it 'just a headache' is like calling a tornado 'just a bit of wind.' 🌀 Some migraine patients have all the debilitating symptoms but no headache. #vestibularmigraine #hemiplegicmigraine #NotJustAHeadache more here https://www.migraine.org.au/types
November 14, 2025 at 7:02 AM
Calling it 'just a headache' is like calling a tornado 'just a bit of wind.' 🌀 Some migraine patients have all the debilitating symptoms but no headache. #vestibularmigraine #hemiplegicmigraine #NotJustAHeadache more here https://www.migraine.org.au/types
It's Factsheet Friday!
Hemiplegic Migraine involves temporary weakness or paralysis. It’s rare but serious. Our updated factsheet outlines what this subtype is, and what to watch out for. Link in comments 👇
#MigraineAustralia #HemiplegicMigraine #UpdatedFactsheets
Hemiplegic Migraine involves temporary weakness or paralysis. It’s rare but serious. Our updated factsheet outlines what this subtype is, and what to watch out for. Link in comments 👇
#MigraineAustralia #HemiplegicMigraine #UpdatedFactsheets
November 13, 2025 at 11:02 PM
It's Factsheet Friday!
Hemiplegic Migraine involves temporary weakness or paralysis. It’s rare but serious. Our updated factsheet outlines what this subtype is, and what to watch out for. Link in comments 👇
#MigraineAustralia #HemiplegicMigraine #UpdatedFactsheets
Hemiplegic Migraine involves temporary weakness or paralysis. It’s rare but serious. Our updated factsheet outlines what this subtype is, and what to watch out for. Link in comments 👇
#MigraineAustralia #HemiplegicMigraine #UpdatedFactsheets
I was hospitalized with #HemiplegicMigraine that nearly killed me. My family were called to the hospital and they brought my two year old daughter to say goodbye to me, as well as a lawyer to write a will giving my child and assets to my parents. It was a horrible moment. I lapsed into a 4 day coma.
October 7, 2025 at 5:42 PM
I was hospitalized with #HemiplegicMigraine that nearly killed me. My family were called to the hospital and they brought my two year old daughter to say goodbye to me, as well as a lawyer to write a will giving my child and assets to my parents. It was a horrible moment. I lapsed into a 4 day coma.
For real 💨😭🤪
#RareDiseases:
#HemiplegicMigraine
Migraine With Brainstem Aura
#AbdominalMigraine
#OcularMigraine (founder of TZA gets these)
#VestibularMigraine
#ThunderclapHeadaches
#OccipitalNeuralgia (founder of TZA gets these)
And there's more.
#headaches #migraines #chronicillness #chronicpain
#RareDiseases:
#HemiplegicMigraine
Migraine With Brainstem Aura
#AbdominalMigraine
#OcularMigraine (founder of TZA gets these)
#VestibularMigraine
#ThunderclapHeadaches
#OccipitalNeuralgia (founder of TZA gets these)
And there's more.
#headaches #migraines #chronicillness #chronicpain
October 7, 2025 at 4:41 PM
For real 💨😭🤪
#RareDiseases:
#HemiplegicMigraine
Migraine With Brainstem Aura
#AbdominalMigraine
#OcularMigraine (founder of TZA gets these)
#VestibularMigraine
#ThunderclapHeadaches
#OccipitalNeuralgia (founder of TZA gets these)
And there's more.
#headaches #migraines #chronicillness #chronicpain
#RareDiseases:
#HemiplegicMigraine
Migraine With Brainstem Aura
#AbdominalMigraine
#OcularMigraine (founder of TZA gets these)
#VestibularMigraine
#ThunderclapHeadaches
#OccipitalNeuralgia (founder of TZA gets these)
And there's more.
#headaches #migraines #chronicillness #chronicpain
www.cerebraltorque.com/blogs/migrai...
🤯
#ChronicIllnessWarriors #ChronicMigraine fam, this article is absolutely AMAZING!!! Anyone else get #MUMS Migraines or #HemiplegicMigraine ???
🤯
#ChronicIllnessWarriors #ChronicMigraine fam, this article is absolutely AMAZING!!! Anyone else get #MUMS Migraines or #HemiplegicMigraine ???
Hemiplegic Migraine and MUMS
Guide to hemiplegic migraine and MUMS (Migraine with Unilateral Motor Symptoms). Symptoms, diagnosis, treatment, genetics, and patient experiences. Distinguish from stroke.
www.cerebraltorque.com
August 8, 2025 at 9:30 PM
www.cerebraltorque.com/blogs/migrai...
🤯
#ChronicIllnessWarriors #ChronicMigraine fam, this article is absolutely AMAZING!!! Anyone else get #MUMS Migraines or #HemiplegicMigraine ???
🤯
#ChronicIllnessWarriors #ChronicMigraine fam, this article is absolutely AMAZING!!! Anyone else get #MUMS Migraines or #HemiplegicMigraine ???
Legs stuck in cement
A #prank no one else can see
'Step forward.' / 'I can't.'
#Vss365 #Haiku #HemiplegicMigraine
A #prank no one else can see
'Step forward.' / 'I can't.'
#Vss365 #Haiku #HemiplegicMigraine
August 8, 2025 at 3:12 PM
Legs stuck in cement
A #prank no one else can see
'Step forward.' / 'I can't.'
#Vss365 #Haiku #HemiplegicMigraine
A #prank no one else can see
'Step forward.' / 'I can't.'
#Vss365 #Haiku #HemiplegicMigraine
As someone who suffers from #HemiplegicMigraine, I applaud this effort! Thank you @trahan.house.gov for your advocacy!
Behind every chronic headache disorder is a person in pain. A parent missing milestones. A worker forced to quit. A teen losing valuable time in school.
I’m introducing the HEADACHE Act for them – and the over 45 million Americans who are suffering in silence.
I’m introducing the HEADACHE Act for them – and the over 45 million Americans who are suffering in silence.
Migraine Is More Than Pain, It’s a Public Health Crisis – DC Journal - InsideSources
Tens of millions live with invisible headache disorders daily. Migraine, cluster headache, post-traumatic headache and the 200 other headache diagnoses
dcjournal.com
July 2, 2025 at 2:49 PM
As someone who suffers from #HemiplegicMigraine, I applaud this effort! Thank you @trahan.house.gov for your advocacy!
💥 Migraines that paralyze? Germany steps up research in hemiplegic migraines 🇩🇪🧠
#HemiplegicMigraine #Neurology #GermanyInnovation #ChronicPain #RareMigraine
www.marketresearchfuture.com/reports/germ...
#HemiplegicMigraine #Neurology #GermanyInnovation #ChronicPain #RareMigraine
www.marketresearchfuture.com/reports/germ...
Germany Hemiplegic Migraine Market Size, Growth Report 2035
Germany Hemiplegic Migraine Market Industry is expected to grow from 83.75(USD Million) in 2024 to 160 (USD Million) by 2035. The Germany Hemiplegic Migraine Market CAGR (growth rate) is expected to b...
www.marketresearchfuture.com
June 17, 2025 at 2:19 PM
💥 Migraines that paralyze? Germany steps up research in hemiplegic migraines 🇩🇪🧠
#HemiplegicMigraine #Neurology #GermanyInnovation #ChronicPain #RareMigraine
www.marketresearchfuture.com/reports/germ...
#HemiplegicMigraine #Neurology #GermanyInnovation #ChronicPain #RareMigraine
www.marketresearchfuture.com/reports/germ...
Great to see awareness being made of #Stroke this morning on GMB.
Many will not realise that #HemiplegicMigraine also mimic the signs & symptoms of a stroke, all caused by migraine.
Both of which can happen at any age!
#GMB
Many will not realise that #HemiplegicMigraine also mimic the signs & symptoms of a stroke, all caused by migraine.
Both of which can happen at any age!
#GMB
June 12, 2025 at 7:24 AM
Great to see awareness being made of #Stroke this morning on GMB.
Many will not realise that #HemiplegicMigraine also mimic the signs & symptoms of a stroke, all caused by migraine.
Both of which can happen at any age!
#GMB
Many will not realise that #HemiplegicMigraine also mimic the signs & symptoms of a stroke, all caused by migraine.
Both of which can happen at any age!
#GMB
Strongly identify with this and watching others live their lives more fully #MCAS #hemiplegicmigraine
#chronicillness
#chronicillness
I L I F E P A S S I N G M E B Y I
- Fix The Shadows -
Find The Words that go with this photo in the first comment.
Art and Words by Yves
#photography #photo #blueskyart #fineart #fineartphotography #fixtheshadows #contemporaryart #queerart #artist #art #originalart #artagainstcomplexptsd
- Fix The Shadows -
Find The Words that go with this photo in the first comment.
Art and Words by Yves
#photography #photo #blueskyart #fineart #fineartphotography #fixtheshadows #contemporaryart #queerart #artist #art #originalart #artagainstcomplexptsd
May 4, 2025 at 6:11 PM
Strongly identify with this and watching others live their lives more fully #MCAS #hemiplegicmigraine
#chronicillness
#chronicillness
I ended up having an extra stressful #hemiplegicmigraine today. Along with my usual symptoms (left sided weakness, numbness, tingling, loss of balance, impaired vision, etc) my chest also felt so heavy, my neck seized up and I got muscle twitches in my toes, fingers and face. So hard to not panic 😔
March 14, 2025 at 8:50 PM
I ended up having an extra stressful #hemiplegicmigraine today. Along with my usual symptoms (left sided weakness, numbness, tingling, loss of balance, impaired vision, etc) my chest also felt so heavy, my neck seized up and I got muscle twitches in my toes, fingers and face. So hard to not panic 😔
“Before my #HemiplegicMigraine attacks hit, before I even know they're coming, Ida's already on alert duty. She gives me this look..That's her "Mom, time to find a safe space" face. She also knows to go get her Dad if I need help too": buff.ly/3Q0r1mp
#ServiceDog #migraine
By MigraineGirl
#ServiceDog #migraine
By MigraineGirl
Service Dog Etiquette: A Handler's Guide to Public Interactions
Real-world advice from a service dog team on navigating public spaces – spoiler alert: admire from afar! ✨🦮
buff.ly
March 14, 2025 at 11:30 AM
“Before my #HemiplegicMigraine attacks hit, before I even know they're coming, Ida's already on alert duty. She gives me this look..That's her "Mom, time to find a safe space" face. She also knows to go get her Dad if I need help too": buff.ly/3Q0r1mp
#ServiceDog #migraine
By MigraineGirl
#ServiceDog #migraine
By MigraineGirl
I should be writing, but this relentless hemiplegic migraine keeps crashing the party.
#chronicillness #hemiplegicmigraine #writingcommunity
#chronicillness #hemiplegicmigraine #writingcommunity
March 13, 2025 at 4:15 PM
I should be writing, but this relentless hemiplegic migraine keeps crashing the party.
#chronicillness #hemiplegicmigraine #writingcommunity
#chronicillness #hemiplegicmigraine #writingcommunity
I’ve tried a slew of different meds in the last year, today is day one of Qulipta for my chronic hemiplegic migraines. Crossing my fingers! #qulipta #hemiplegicmigraine
February 14, 2025 at 7:54 PM
I’ve tried a slew of different meds in the last year, today is day one of Qulipta for my chronic hemiplegic migraines. Crossing my fingers! #qulipta #hemiplegicmigraine
The air pressure is dropping, my very sensitive brain is now reacting to it.. as a human barometer, this is a big one #hemiplegicmigraine #storm #windy
January 22, 2025 at 9:59 PM
The air pressure is dropping, my very sensitive brain is now reacting to it.. as a human barometer, this is a big one #hemiplegicmigraine #storm #windy
I am also a disabled artist. I put my pain on paper. A visual to maybe help someone understand #migraine #disabledartist #art #originalart #hemiplegicmigraine #mumsmigraine #chronicmigraine #chronicillness
January 22, 2025 at 12:49 PM
I am also a disabled artist. I put my pain on paper. A visual to maybe help someone understand #migraine #disabledartist #art #originalart #hemiplegicmigraine #mumsmigraine #chronicmigraine #chronicillness
Paint me bronze, robe me
A living statue, I’ll be
#Guess til strength comes back
#Vss365 #TemporaryParalysis #HemiplegicMigraine
A living statue, I’ll be
#Guess til strength comes back
#Vss365 #TemporaryParalysis #HemiplegicMigraine
January 8, 2025 at 6:36 PM
Paint me bronze, robe me
A living statue, I’ll be
#Guess til strength comes back
#Vss365 #TemporaryParalysis #HemiplegicMigraine
A living statue, I’ll be
#Guess til strength comes back
#Vss365 #TemporaryParalysis #HemiplegicMigraine
January 7, 2025 at 6:04 PM
Anyone with a #migraine disorder find that they have #mood issues following a severe episode?
Anytime I have a #hemiplegicmigraine, I find that I'm #depressed for days afterwards. Not sure how I can manage that.
#Disability
#MedSky
#ChronicIllness
Anytime I have a #hemiplegicmigraine, I find that I'm #depressed for days afterwards. Not sure how I can manage that.
#Disability
#MedSky
#ChronicIllness
January 5, 2025 at 5:53 PM
Anyone with a #migraine disorder find that they have #mood issues following a severe episode?
Anytime I have a #hemiplegicmigraine, I find that I'm #depressed for days afterwards. Not sure how I can manage that.
#Disability
#MedSky
#ChronicIllness
Anytime I have a #hemiplegicmigraine, I find that I'm #depressed for days afterwards. Not sure how I can manage that.
#Disability
#MedSky
#ChronicIllness
I'm not angry or upset I'm just....baffled really #ambulatorywheelchairuser #wheelchair #accessibility #accomodation #chronicillness #spoonie #autonomicdysfunction #fibromyalgia #seizures #hemiplegicmigraine #disabled #transgender #neurospicy
December 20, 2024 at 9:23 PM
I'm not angry or upset I'm just....baffled really #ambulatorywheelchairuser #wheelchair #accessibility #accomodation #chronicillness #spoonie #autonomicdysfunction #fibromyalgia #seizures #hemiplegicmigraine #disabled #transgender #neurospicy
November 27, 2024 at 9:52 PM
I know this sounds a trifle but in the main I have been bedbound for six months but today I am up and dressed and want to celebrate! Yippee feels good. There is bluesky! #chronicillness #chronicfatigue #hemiplegicmigraine.
November 25, 2024 at 11:08 AM
I know this sounds a trifle but in the main I have been bedbound for six months but today I am up and dressed and want to celebrate! Yippee feels good. There is bluesky! #chronicillness #chronicfatigue #hemiplegicmigraine.
Been living with the consequences on #hemiplegicmigraine and #dysautonomia the last ten days and yesterday I couldn’t walk. I would love to raise more awareness of these conditions on Bluesky and hope the connected welfare organisations join #chronicillnessawareness #chronicillness
November 21, 2024 at 8:09 AM
Been living with the consequences on #hemiplegicmigraine and #dysautonomia the last ten days and yesterday I couldn’t walk. I would love to raise more awareness of these conditions on Bluesky and hope the connected welfare organisations join #chronicillnessawareness #chronicillness
Well I wasn’t expecting that at the start of the week, nerve blocks tomorrow into my greater occipital nerves at the base of my brain. Hospital had an appointment just when I thought they had forgot about me. Yes they hurt. But they help #complexmigraine #hemiplegicmigraine #notjustaheadache
November 20, 2024 at 6:12 PM
Well I wasn’t expecting that at the start of the week, nerve blocks tomorrow into my greater occipital nerves at the base of my brain. Hospital had an appointment just when I thought they had forgot about me. Yes they hurt. But they help #complexmigraine #hemiplegicmigraine #notjustaheadache