#lc19
What DO we have for people who have Long Covid?

In🇨🇦we have no diagnosis, treatment or cures

We also don’t have Novavax while many with LC19 can’t tolerate mRNA 💉

We don’t have safe healthcare bc HCWs refuse N95s

People are losing jobs, QOL & are housebound & bedridden

So yeah-Russian roulette
January 27, 2026 at 4:55 PM
Mandates for HCWs&in hospitals would have saved me from being forcibly infected against my will3x

I asked them to wear N95s when I had to unmask

They refused

Gave me Covid every time

I became >disabled from LC19 w/ each infection

I STILL can’t access safe healthcare or the Novavax💉I need in 🇨🇦
January 26, 2026 at 3:31 PM
My LC19 symptoms got worse w/ each mRNA💉(3xPfizer)Novavax was MUCH easier on me

May I ask why Novavax is not recommended for some? I want to be sure I know about complications

I’ll be hopefully getting 1 more💉before a surgery coming up soon

TY for sharing,online info & support helps so much!🥰
January 23, 2026 at 5:22 PM
You’re awesome! My husband is incredibly supportive as well. Partners who hang in there are gold.

My SO is doing lots around the house now too since my🪫is in the red most of the day due to PEM from LC19

Our baselines are everything & we NEED to avoid ALL viruses now!

Bon courage & all the best ❤️‍🩹
January 23, 2026 at 5:09 PM
So sorry😔

I paid for antibody tests 3 months out from my💉2x & both tests came back with0️⃣protection(antibodies)

I can only do Novavax but can’t afford the shots in the🇺🇸4x/year
nor do I want to travel there that much!

The ONLY place I got Covid was HAI 3x & HCWs gave me LC19🫤

🇨🇦failed to protect us
January 23, 2026 at 4:54 PM
Just sucks when it’s your parents telling your siblings that you’re faking Long Covid to manipulate them & you’re walking away from family bc they”don’t do Covid”&
“HCWs aren’t masking so why should we?”

It’s been REALLY great having DRs throw LC19 patients(many who got LC19 FROM HCWs!)under the🚌😡
January 23, 2026 at 4:42 PM
January 21, 2026 at 6:22 PM
GP told my husband his😷to protect me(I have LC19 from being forcibly infected by unmasked HCWs 3x)was creating a harmful immunity debt

My husband asked me

“Who should I believe?My DR or’the people’you follow online?”

My online peeps provide studies

My DR undid my credibility in 1 visit
W/0️⃣proof😔
January 7, 2026 at 4:03 AM
I learned that family&friends will challenge your requests for protection

then assume you’re faking LC19 bc of “anxiety”

then label you crazy

(even after you’ve seen specialists who advise you not to get worse bc no ME/PEM treatments)

Then everyone vanishes

Our society says😷lives aren’t worthy😔
December 30, 2025 at 4:04 PM
I need a safer🏥to have my next surgery in

The ONLY place I have been forcibly infected in is healthcare by un😷HCWs who gave me Long Covid,reinfected me 2x,which made my LC19 worse&myQOL as a disabled person considerably less

I can’t even protect myself w/ a💉bc🇨🇦is denying us Novavax😔

5+yrs of hell
December 25, 2025 at 11:40 AM
If you’re not supposed to get a flu shot if your immune system is compromised(currently fighting another viral infection like Covid)

Those with LC19 could see their baselines compromised with 💉complications

N95s need to be mandated for HCWs bc not everyone can be💉who need healthcare&HAI are ⬆️
December 8, 2025 at 2:53 PM
We need a name that will reinstate protections after 6+ years of watching bad actors rip those very protections away in the interest of stock portfolios

Incidents of ME & PEM are⬆️as well since Covid can trigger both

QOL for LC19 can be worse than treated HIV bc we suffer hidden away in dark rooms
December 7, 2025 at 2:54 PM
Is Novavax something you’d risk going to the🇺🇸for?I had no choice bc mRNA isn’t an option for me due to it setting back my baseline by making my LC19 symptoms worse & increasing my PEM

bsky.app/profile/wram...
Canadians can get Novavax in Michigan right now. It’s $200USD ($277CAD) everyone is qualified only need to bring ID

I got mine at Krogers. I called ahead to ensure it was in stock & they set aside my shot for me since I was traveling from🇨🇦

CVS in NY said they’re expecting Novavax in a few weeks
November 8, 2025 at 12:25 PM
LIVE TONIGHT AT 8PM: Monday Mailbag PLAYOFF EDITION as @rhodeislandfc.bsky.social advances past the Charleston Battery to the semis to take on @northcarolinafc.bsky.social.

Can't make the show live? Ask away in the comments below.

www.youtube.com/watch?v=Lc19...
Monday Mailbag 11/3/25
YouTube video by Raising Anchor Podcast
www.youtube.com
November 3, 2025 at 10:02 PM
Long Covid sufferers being gaslit by DRs/repeatedly infected by HCWs refusing 2 wear N95s,have no other way to protect themselves than do their own research

W/out online studies& LC19 researchers here,those w/ LC19 wouldn’t know how to manage ME& PEM due2 C19 or current levels of community spread🤷🏻‍♀️
October 28, 2025 at 12:33 PM
This is beyond Harper’s IDU,Trump’s MAGA&2025

The richest men in the🌎want us uneducated/sick/poor/scared&it is working inLOTS of countries right now but everyone’s in denial& sleepwalking off cliffs

It STOPS when we say so but we’re distracted by🎪with0️⃣🍞

UK’s war on LC19:

bsky.app/profile/elho...
Shame on Labour to be talking about overdiagnosis of mental health problems. Also simultaneously ignoring the mountain of research on neuro covid and the mental health issues known to be caused from COVID infections! We need urgent loud opposition to this. 🧵
Simon Wessely — the controversial psychiatrist once dubbed “Britain’s most hated doctor” has been appointed vice chair of Labour’s review into overdiagnosis of mental health and neurodivergence.

www.benefitsandwork.co.uk/news/controv...
October 7, 2025 at 11:09 AM
I’m tough&I’d happily endure 2weeks of the worst symptoms for 3months of antibodies but it’s a worsening baseline with no treatment that scares me ME&PEM are no joke-AVOID LC19!

💉are life savers&we’re SO lucky to have them!! I pray we never return to🪦with children dying from preventable diseases 🙏🏻
September 20, 2025 at 4:59 PM
Families took it one step further&abandoned members disabled by Long Covid

Family couldn’t tolerate LC19 sufferers wearing a😷-calling them anxious&saying they’d no longer “enable” this need to protect their baseline bc “Covid is over”

Being labeled mentally ill by family&gaslit by Drs is cruel😔
September 7, 2025 at 2:48 PM
Some w/ Long Covid experience worsening of symptoms with each dose of Pfizer or Moderna to the point that some never recovered their baseline yrs later

For me,each of my 3 doses of Pfizer increased my disability from LC19 - ME&PEM(pain/migraines/fatigue etc)

Novavax was the only💉I could tolerate
August 25, 2025 at 5:17 PM
I feel like patients would get so much out of appointments if they had doctors advocating with & for them

Some with LC19 are literally bed bound with ME&PEM (again,something MANY Drs dismiss)so advocacy is exhausting
on top of trying to get a diagnosis

Every bit of support makes a difference ❤️‍🩹
August 25, 2025 at 3:18 PM
Those isolated for 5 YRS have been SCREAMING for💉&airborne protection on the deaf ears of gov’t & DRs(who won’t even wear N95s)-never mind advocate for Novavax for their patients who are disabled by Covid

Nothing changes if HCWs continue to downplay LC19 & act like mRNA is enough for Canadians🤷🏻‍♀️
August 25, 2025 at 1:44 PM
My GP won’t help me if I’m infected bc he’s done nothing for my Long Covid for 5+yrs(other than tell me I shouldn’t wear N95s everywhere bc it’s weakening my immune system& that C19 is mild now)

He says he only knows one other person w/LC19&they’re fine now

I’m not,he’s chalking it up to menopause
August 25, 2025 at 1:12 PM
THANK YOU for all you&your spouse do to protect others!🥰

I was infected 3x by HCWs refusing to😷

1st in 2020(before💉)gave me LC19 & it got worse with each infection

I can’t tolerate mRNA so you’re helping people like me w/ no💉options

I lost the life I once 🩵d but hope 1 day for treatment/cure
August 23, 2025 at 3:53 PM
💯 please pass on my thanks to everyone who is working so hard (and especially those who mask up!) to swim upstream

The fact that researchers & HCWs are also experiencing exhausting situations isn’t lost on me

Those w LC19 pray for your success EVERY day

Bon Courage & make good trouble!
May 18, 2025 at 4:49 AM
I’m a Canadian who has been forcibly infected w C19 3x by HCWs whoSTILLrefuse 2😷

I lost my life2 LC19 due2🏥s undoing the sacrifices I made isolating4 5YRS

I have0️⃣treatment options&no hope4future💉bc I can only tolerate Novavax

HCWs needs2do better4 those left2”fall by the wayside”start w N95s🤷🏻‍♀️
May 18, 2025 at 3:53 AM