@marydimmock.bsky.social
1.2K followers 200 following 30 posts
US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
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Reposted
medpagetoday.com
"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no
Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities
ME/CFS and long COVID patients must qualify as 'medically frail'
www.medpagetoday.com
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moonchildjs.bsky.social
Pope Leo: It's not "pro-life" to be anti-abortion but support
"the inhuman treatment of immigrants"
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matthewcort.land
The healthcare service and delivery system is crushingly difficult to navigate now. We're seeing entire organizations cancel telehealth visits because of the impending-gov-shutdown-Medicare-telehealth-expiration

Those healthcare orgs aren't willing to accept *any* risk they won't get paid.
Reposted
adamserwer.bsky.social
Nothing says “land of the free” like armed agents of the state saying “show me your papers if you want your daughter back” bsky.app/profile/nbcb...
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me-cfs.bsky.social
#MECFS #LongCOVID
bhanlon15.bsky.social
NYT: 'What Do You Want to Read About Disability?'

'Input from readers will help shape our coverage'

'What is our coverage missing? Do you have a story that you want to share? Let us know.'

www.nytimes.com/2025/08/20/u...
What Do You Want to Read About Disability?
www.nytimes.com
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chadbourn.bsky.social
BBC International Editor Jeremy Bowen has confirmed that the entire Al Jazeera team in Gaza City has been killed.
Reposted
batemanhornecenter.bsky.social
In honor of #SevereMEDay, we’re launching #UnitedForME, a shared hashtag to amplify stories, art & education from the Severe ME community. Join us in uplifting voices that need to be heard. 💙 #SevereME @openmedf.bsky.social @solveme.bsky.social @meactnet.bsky.social
Four organization logos appear in a row at the top: Bateman Horne Center, Solve M.E., Open Medicine Foundation, and #MEAction. Below them, bold black text reads: “Together, we’re amplifying Severe ME voices with one united hashtag:” followed by a stylized box containing #UnitedForME.
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miriametucker.bsky.social
On #SevereMEDay reposting my 2022 article about caring for patients with myalgic encephalomyelitis / chronic fatigue syndrome who are too sick to see a doctor. Some can't eat, and may be misdiagnosed with anorexia. #MECFS is not psychiatric. www.medscape.com/viewarticle/...
Clinicians Can Help People With Severe ME/CFS, Even Unseen
About a quarter of people with myalgic encephalomyelitis/chronic fatigue syndrome are homebound or bedbound, making medical office visits difficult, if not impossible. Some require tube feeding.
www.medscape.com
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meactnet.bsky.social
Today is #SevereMEDay - a day we come together to especially take time to honor the 25 percent living with the most severe form of this disease and remember those who have died from ME.

Myalgic encephalomyelitis is a complex chronic disease that presents with symptoms in multiple body systems.
Simple graphic with tan background and a simply drawn red heart with the text: Severe ME Day August 8, 2025. #MEAction logo at bottom.
Reposted
meactnet.bsky.social
As we come to the end of Severe ME Day, I wish I had some powerful words that could bring you peace, hope, and encouragement.

What I can do is remind you that your words have power. Your stories matter.

#SevereMEday #UnitedForME #pwME
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rbreich.bsky.social
"A Prince, whose character is thus marked by every act which may define a Tyrant, is unfit to be the ruler of a free people."

—The Declaration of Independence
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lolennui.bsky.social
It’s every parent’s nightmare, isn’t it? you check your child’s bulletproof backpack and find a picture book about gay penguins
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davidcorn.bsky.social
I concur and have been complaining about this for a while, especially every time the NYT refers to him as a "vaccine skeptic." The search for neutral language undermines the truth and gives a false impression. No, he's a vaccine opponent. A vaccine foe. An anti-vaccine advocate. Pick any of these.
brandyzadrozny.bsky.social
Robert F Kennedy Jr is not a vaccine skeptic. Reporters and editors who’ve decided it’s somehow more fair to call him one instead of the anti-vaccine activist and lawyer he is should stop mischaracterizing him so… in the pursuit of accuracy.
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princess-vimentin.bsky.social
🧪Numerous studies have linked asbestos as the primary cause of mesothelioma, a lung disease & as a result, in part, linked to heightened mortality rates.

I used to work in an old building in Detroit that had old posters w/ warnings about asbestos exposure.

🔗 www.nytimes.com/2025/06/16/u...
E.P.A. Plans to Reconsider a Ban on Cancer-Causing Asbestos
www.nytimes.com
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bhanlon15.bsky.social
Frontiers: “Unwilling or unable? Interpreting effort task performance in myalgic encephalomyelitis/chronic fatigue syndrome”

“In sum, Walitt et al.'s (2024) data provide no evidence of altered effort preference in PI-ME/CFS patients…conclusions…unwarranted..”

www.frontiersin.org/journals/psy...
Frontiers | Unwilling or unable? Interpreting effort task performance in myalgic encephalomyelitis/chronic fatigue syndrome
In a recent, high-profile study of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome (PI-ME/CFS), Walitt et al. (2024) assessed the performa...
www.frontiersin.org