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#MEAction NC @meactionnc.bsky.social · 24d

Meeting Day Today 🗓️
@MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom
Wed. 9/17/25, (3rd Wed every month)
12:30 PM ET.
We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies.

www.meactions.org/event-detail...

#MEAction North Carolina Support Call | Me Actions

Please join #MEAction North Carolina for our monthly support call on the third Wednesday of the month at 12:30 PM EST. We welcome all people with ME/CFS or Long Covid, along with their caregivers or ...

www.meactions.org

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#MEAction NC @meactionnc.bsky.social · Jul 25

This 30+ minute zoom starts in 50 minutes. ME/CFS Program to look at symptoms, treatments, your previous tests, history, genes, and make more sense of it and find targeted aides.

Renegade Research @renegaderesearch.bsky.social · Jul 22

Announcement!!

1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows!

We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC

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Reposted by #MEAction NC

Billy Hanlon @bhanlon15.bsky.social · Jun 23

CT Insider: '‘Razor throat’ COVID: What to know about the new variant and a summer spike'

'Wu said it can still potentially cause unexpected complications for healthy adults and children or lead to more acute problems down the line, like long COVID'

www.ctinsider.com/connecticut/...

‘Razor throat’ COVID: What to know about the new variant and a summer spike

So far, 15 U.S. states have positive Nimbus cases, including Rhode Island, New York, Vermont, and Massachusetts.

www.ctinsider.com

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#MEAction NC @meactionnc.bsky.social · Jun 24

This is awful. This clinic was a success and people traveled to it from all over the state and from other states too. The docs there would tell folks about our support group @sentills.bsky.social and Sen Budd offices wont even meet for @solveme.bsky.social Senate constituent meetings today.

#MEAction Network @meactnet.bsky.social · Jun 23

UNC closed its Long COVID clinic last week after its federal funding ran out. It was the sole #LongCovid clinic in North Carolina.
The clinic has been a lifeline to thousands of people living with Long COVID, ME/CFS and POTS since it opened in 2021.

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Reposted by #MEAction NC

#MEAction Network @meactnet.bsky.social · Jun 23

UNC closed its Long COVID clinic last week after its federal funding ran out. It was the sole #LongCovid clinic in North Carolina.
The clinic has been a lifeline to thousands of people living with Long COVID, ME/CFS and POTS since it opened in 2021.

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Reposted by #MEAction NC

#MEAction Network @meactnet.bsky.social · Jun 23

#MEAction North Carolina is encouraging residents to call their Congress Members to ask for funding. Spread the word on social media. They have templates to help with this! Check them out here: tinyurl.com/4yf74zd2

Fight for UNC’s Long Covid Clinic

Fight for UNC’s Long Covid Clinic! Thank you for joining us in this fight for funding for the UNC Long Covid Recovery Clinic. We all know how hard it is to find a doctor that understands the comple...

tinyurl.com

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Reposted by #MEAction NC

#MEAction Network @meactnet.bsky.social · Jun 23

#MEAction also sent out a press release about the closing of the clinic - read here: bit.ly/44tKkMP

Press Release: UNC Closes its Long COVID Clinic - the Only One in the State

The University of North Carolina closed its Long COVID clinic last week after its federal funding ran out. It was the sole Long COVID clinic in North Carolina. The clinic has been a lifeline to thous...

bit.ly

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Reposted by #MEAction NC

#MEAction Network @meactnet.bsky.social · Jun 23

The Raleigh News and Observer reported on the closing of the UNC Long COVID clinic after #MEAction North Carolina alerted the press last week.
Read article here - bit.ly/43Wlvcl - or here (without subscription): archive.ph/tQ1ff

Funding cuts force one of North Carolina’s only Long COVID clinics to shut its doors

The COVID Recovery Clinic, created in 2021, coordinated treatment efforts for patients whose COVID-19 symptoms persisted long after a diagnosis.

bit.ly

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Reposted by #MEAction NC

#MEAction Network @meactnet.bsky.social · Jun 23

“I got sick at 33 and I’m turning 39 next month… and the Long COVID clinic has been just a lifesaver,” Gillian Lizars told The Charlotte Observer. “I’m concerned for incoming patients who are on their fifth, sixth, 10th COVID infection, developing Long COVID..."

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Reposted by #MEAction NC

#MEAction Network @meactnet.bsky.social · Jun 23

While a few clinicians have offered to see Long Covid patients as they return to their original departments, several critical services will no longer be offered to patients: disability paperwork, prior authorizations, referrals outside the local area, and social worker support.

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#MEAction NC @meactionnc.bsky.social · Jun 18

TODAY.
We cope together. Laugh together. Tear up together. Find help & helpers together. Sharing our experience & information together lifts us up. And it saves energy + time finding next treatment or test.
Support group success depends on right mix of facilitators + visitors. This group rocks!

#MEAction NC @meactionnc.bsky.social · Jun 17

WEDNESDAY JUNE 18 12:30 PM Eastern

Join @meactnet.bsky.social's North Carolina Chapter for a monthly support call on the 3rd Wednesday of the month at 12:30 PM ET. We welcome people with ME/CFS or Long Covid, along with their caregivers, family, friends, allies.

www.meactions.org/event-detail...

#MEAction North Carolina Support Call | Me Actions

Please join #MEAction North Carolina for our monthly support call on the third Wednesday of the month at 12:30 PM EST. We welcome all people with ME/CFS or Long Covid, along with their caregivers or ...

www.meactions.org

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Reposted by #MEAction NC

Cynthia Johnson @minetodo.bsky.social · Jun 4

To learn more about ME/CFS, check out:
Bateman Horne Center (www.batemanhornecenter.org).
MEAction Network (www.meaction.net),
Open Medicine Foundation (www.omf.ngo),
Solve M.E. (www.solvecfs.org)
#StandByMEcfs #StillSickStillFighting #MillionsMissing

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#MEAction NC @meactionnc.bsky.social · Jun 17

WEDNESDAY JUNE 18 12:30 PM Eastern

Join @meactnet.bsky.social's North Carolina Chapter for a monthly support call on the 3rd Wednesday of the month at 12:30 PM ET. We welcome people with ME/CFS or Long Covid, along with their caregivers, family, friends, allies.

www.meactions.org/event-detail...

#MEAction North Carolina Support Call | Me Actions

Please join #MEAction North Carolina for our monthly support call on the third Wednesday of the month at 12:30 PM EST. We welcome all people with ME/CFS or Long Covid, along with their caregivers or ...

www.meactions.org

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#MEAction NC @meactionnc.bsky.social · May 21

Our meeting starts in 10 minutes….

#MEAction NC @meactionnc.bsky.social · May 21

💙
TODAY: May 21, 2025 - our ME/CFS/LC zoom support 🫂meeting ( 3rd Wed. of mo.), at 12:30p ET US.
💙
Patients with #MECFS and #LongCovid, allies, caregivers welcome.
💙
Let's double our joys and successes and halve our worries and setbacks by sharing & caring.
💙
www.meactions.org/event-detail...

#MEAction North Carolina Support Call | Me Actions

Please join #MEAction North Carolina for our monthly support call on the third Wednesday of the month at 12:30 PM EST. We welcome all people with ME/CFS or Long Covid, along with their caregivers or ...

www.meactions.org

#MEAction NC @meactionnc.bsky.social · May 21

💙
TODAY: May 21, 2025 - our ME/CFS/LC zoom support 🫂meeting ( 3rd Wed. of mo.), at 12:30p ET US.
💙
Patients with #MECFS and #LongCovid, allies, caregivers welcome.
💙
Let's double our joys and successes and halve our worries and setbacks by sharing & caring.
💙
www.meactions.org/event-detail...

#MEAction North Carolina Support Call | Me Actions

Please join #MEAction North Carolina for our monthly support call on the third Wednesday of the month at 12:30 PM EST. We welcome all people with ME/CFS or Long Covid, along with their caregivers or ...

www.meactions.org

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Reposted by #MEAction NC

Neil deGrasse Tyson @neildegrassetyson.com · May 19

If a foreign adversary snuck into our Federal budget and cut science research and education the way we’re cutting it ourselves — strategically undermining America’s long-term health, wealth, and security — we would likely consider it an act of war.

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Reposted by #MEAction NC

traceydooley.bsky.social @traceydooley.bsky.social · Apr 18

Concert to raise awareness of M.E. and funds for Smile For ME and ME Research UK, organised by Isaac, whose sister is bedridden and tube-fed due to #MyalgicEncephalomyelitis:

#Myalgicencephalomyelitis #SevereME #MECFS #BlueSunday #BlueSundayforMETheConcert

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Reposted by #MEAction NC

Louise Kenward @louisekenward.bsky.social · May 3

Ahead of #BlueSunday #MECFS Isaac Greer @drjogreer.bsky.social is raising money for research into ME/CFS

www.eventbrite.co.uk/e/blue-sunda...

Blue Sunday - Tea Party for ME - The Concert 2025

An online concert to raise awareness of ME and also to raise money for ME Research UK and SMILE for ME

www.eventbrite.co.uk

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Reposted by #MEAction NC

Andrea Fighting for #MECFS Diagnostic Biomarkers @mecfsnanoneedle.bsky.social · May 18

Today is Blue Sunday for #MECFS
Support #MECFS Biomarker projects directly.
Please donate to the largest ME/CFS Biomarker study
Help make a ME/CFS diagnostic test a reality
tinyurl.com/BlueOMFBioQu...
#pwME #MillionsMissing #BlueSunday

This Blue Sunday for ME/CFS
Support ME/CFS Biomarker Projects

Picture of blue and white teapot and cup and saucer

Donate OMF BioQuest
1200 Samples (600 ME/CFS Samples)
Analyzing 10,000 Proteins and Metabolites

https://tinyurl.com/BlueOMFBioQuest

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Reposted by #MEAction NC

Smile For ME @smileformeuk.bsky.social · May 18

Happy Blue Sunday love Smile For ME 🩵 We’re enjoying iced cookies and wearing blue. How are you joining in?

Thank you to those choosing to support Smile For ME. Donate: smileforme.org.uk/bluesunday

#BlueSunday2025 #TeaPartyForME2025

Woman wearing blue cardigan holding blue and gold biscuits that spell out Happy Blue Sunday Love Smile For ME

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Reposted by #MEAction NC

Lizzy @hopefullizzy.bsky.social · May 18

Happy #BlueSunday #TeaPartyForME2025

I hope you have as comfortable a day as possible, can wear something blue, and experience something lovely, be that taste, touch, hear, smell, or sight, I hope some loveliness finds you.

#TeaPartyforME Keep going everyone, you’re such a strong community.

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Reposted by #MEAction NC

Tom Kindlon @tomkindlon.bsky.social · May 18

2/
Yesterday I posted how my mum decorated the table for #blueSunday.

Here's today's spread.

We are doing it in aid of @irishmecfsassoc.bsky.social
idonate.ie/event/BlueSu... but other worthy charities other worthy charities are listed here the-slow-lane.com/donation-pag... )

#BlueSunday2025

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Reposted by #MEAction NC

Nantigone @nantigone.bsky.social · May 18

Aujourd'hui c'est le goûter géant tout en bleu pour inonder d’une vague bleue sur les Réseaux Sociaux et sensibiliser à l'#EncephalomyeliteMyalgique !

Voici donc ma participation avec cette photo prise cette semaine en sortant d'un RV (pourri) à l'hôpital.

#gouterbleu2025 #BlueSunday

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Reposted by #MEAction NC

#MEAction Network @meactnet.bsky.social · May 18

Check out the virtual #BlueSunday gathering by @meactmaryland.bsky.social!

Details below!

Thank you #MEAction Maryland!

#MEAction Georgia also has a Blue Sunday gathering with a virtual option.

#pwME #MyalgicEncephalomyelitis #MillionsMissing

MEActMaryland @meactmaryland.bsky.social · May 14

BLUE SUNDAY
May 18th @ 1pm ET

Living with #MECFS can be isolating, but you're not alone. Join the virtual Blue Sunday gathering to connect with others who understand.

We'll be sharing moments of community and raising awareness together

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Reposted by #MEAction NC

#MEAction Network @meactnet.bsky.social · May 18

Kim runs our Partner Caregiver Support grouo. They meet virtually on the 1st Sunday of the month. Kim or a fellow caregiver gives a short presentation on a caregiving topic, & then meet in small breakout rooms to connect with other caregivers.

Thank you, Kim!

www.meactions.org/event-detail...

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