Cynthia Johnson
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minetodo.bsky.social
Cynthia Johnson
@minetodo.bsky.social
1.5K followers 400 following 150 posts
Storyteller. Advocate. Stand By ME/CFS!

#StandByMEcfs #StillSickStillFighting #UnitedForME #MEcfs since 2009
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minetodo.bsky.social
Cynthia Johnson @minetodo.bsky.social · Jan 6

Dear friends and kind souls:
Please help as you can today! 💛
With gratitude, Cynthia Johnson
#StandByMEcfs #StillSickStillFighting
gofund.me/0d803d22
Donate to Financial Stability for Chronically-Ill Advocate, organized by Shane Johnson
This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate
gofund.me
Reposted by Cynthia Johnson
minetodo.bsky.social
"No one should be fighting ME/CFS alone"
I urgently need help this week!
As you are able today, please give to this 2024/2025 GoFundMe with a one time gift.
Or sign up for a monthly recurring 2026 donation!
With gratitude, Cynthia 💛
www.gofundme.com/f/financial-...
Donate to Financial Stability for Chronically-Ill Advocate, organized by Shane Johnson
This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate
www.gofundme.com
February 15, 2026 at 10:27 PM
Reposted by Cynthia Johnson
minetodo.bsky.social
Aeolus pillowwriters.wordpress.com/2024/11/08/a...
"Aeolus is dedicated to all those who have suffered from ME/CFS and the people that love them." 💛
Aeolus
Aeolus The grass on the hill seemed to be a bit greener than usual. The breeze running through the trees made them sway in a slightly restless yet magical way. And the yellow roses that covered the…
pillowwriters.wordpress.com
February 14, 2026 at 12:56 AM
Reposted by Cynthia Johnson
openmedf.bsky.social
Reminder: Today, we celebrate you and the strength you show every day. You are strong, you are resilient, and you are not alone. 💙
This image is a reminder note addressed to the "OMF Community." It is dated February 14, 2026. The message expresses admiration and support, stating: "You are strong, you are resilient, and you are worthy of all the love. Today, we celebrate you and the strength you show every day."
February 14, 2026 at 4:41 PM
Reposted by Cynthia Johnson
hopefullizzy.bsky.social
17yrs ago yesterday I got sick, and, I didn’t get better.

I was 14, healthy, active (as you can see bottom left, 3rd down on right, and mid-left are all pre illness).

Everything has been stripped away bit by bit, no matter what I’ve tried.

But, we make the most of whatever we have, however we can
February 15, 2026 at 10:20 PM
minetodo.bsky.social
"No one should be fighting ME/CFS alone"
I urgently need help this week!
As you are able today, please give to this 2024/2025 GoFundMe with a one time gift.
Or sign up for a monthly recurring 2026 donation!
With gratitude, Cynthia 💛
www.gofundme.com/f/financial-...
Donate to Financial Stability for Chronically-Ill Advocate, organized by Shane Johnson
This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate
www.gofundme.com
February 15, 2026 at 10:27 PM
Reposted by Cynthia Johnson
wgfoundation.bsky.social
Reading multiple drafts? That's love.

#valentine
February 13, 2026 at 8:01 PM
Reposted by Cynthia Johnson
julianlennon.bsky.social
Happy V-Day! ♥️🙏🏼😘
February 13, 2026 at 10:35 PM
Reposted by Cynthia Johnson
meactnet.bsky.social
The SAVE America Act was passed by the House yesterday. Next it will go to the Senate. Call or email your senator now if able. The National Coalition on Accessible Voting statement, plain language summary, & link to action is here: https://ncavote.org/resource/nosaveact/
#DisabilityVote
Quote from National Coalition on Accessible Voting: Federal laws require every part of the voting process to be accessible for disabled voters, from registering to vote to casting a ballot. The new barriers in these bills – limiting vote by mail, criminalizing some voter assistance, and adding burdensome voter registration practices – undermine accessibility, disenfranchise eligible voters, and weaken the foundation of our democracy." Text encourages contacting Congress against SAVE Act.
February 12, 2026 at 8:30 PM
minetodo.bsky.social
Aeolus pillowwriters.wordpress.com/2024/11/08/a...
"Aeolus is dedicated to all those who have suffered from ME/CFS and the people that love them." 💛
Aeolus
Aeolus The grass on the hill seemed to be a bit greener than usual. The breeze running through the trees made them sway in a slightly restless yet magical way. And the yellow roses that covered the…
pillowwriters.wordpress.com
February 14, 2026 at 12:56 AM
Reposted by Cynthia Johnson
openmedf.bsky.social
Because of our incredible community, 2025 was a year of meaningful progress.

We’re proud to share our 2025 Annual Report, highlighting the milestones we reached together and the momentum we’re building for the year ahead. 🤝

🔗 2025 Annual Report: https://www.omf.ngo/2025-achievements/.
A close-up photo shows hands stacked together, symbolizing unity, support, and compassion. The background is a soft, blurred green. Overlaid text reads “Annual Report 2025. The OMF logo is at the bottom.
February 12, 2026 at 5:01 PM
Reposted by Cynthia Johnson
bynum.house.gov
We need more money for housing, not tax cuts for billionaires.
February 12, 2026 at 7:38 PM
Reposted by Cynthia Johnson
twffofficial.bsky.social
Become a member of our monthly program, The Muse, which allocates funds to The Cynthia Lennon Scholarship for Girls.

Join today for as little as $10/month:

whitefeatherfoundation.com/campaign/cyn...

🎨
February 12, 2026 at 1:36 AM
Reposted by Cynthia Johnson
minetodo.bsky.social

Dear friends and kind souls:
Please help as you can today! 💛
With gratitude, Cynthia Johnson
#StandByMEcfs #StillSickStillFighting
gofund.me/0d803d22
Donate to Financial Stability for Chronically-Ill Advocate, organized by Shane Johnson
This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate
gofund.me
January 6, 2025 at 10:17 PM
Reposted by Cynthia Johnson
meactnet.bsky.social
Contact Congress! ncavote.org/resource/nos...

From the National Coalition on Accessible Voting:
Disability & civil rights organizations are calling on Congress to stand against the SAVE Act, SAVE America Act, and MEGA Act. These bills will make it much harder for people with disabilities to vote.
Simple graphic with blue background and yellow box with a paper that says vote going into a slit at the top. Text in white: Disability Rights Groups Warn Congress: SAVE Act Bills Would Block Millions From Voting Text in red oval underneath: Contact Congress Today!
February 11, 2026 at 6:46 PM
Reposted by Cynthia Johnson
barackobama.bsky.social
Republicans are still trying to pass the SAVE Act—a bill that would make it harder to vote and disenfranchise millions of Americans. Join @redistrictingaction.org and tell your member of Congress to vote no: act.redistrictingaction.org/a/natl-saveact-cte
February 11, 2026 at 11:03 PM
Reposted by Cynthia Johnson
wamesmecfs.bsky.social
The Disabled Persons Railcard gives 1/3 off rail fares across Britain for the cardholder & one accompanying adult, if you are in receipt of e.g. PIP or DLA. From 1 March additional people can apply: those who can demonstrate need through existing documentation e.g. Blue Badge.
tinyurl.com/347743be
Rail industry announces expansion of the application process for the
tinyurl.com
February 11, 2026 at 5:12 PM
Reposted by Cynthia Johnson
meactnet.bsky.social
Telehealth flexibilities for Medicare are extended until Dec. 31, 2027. As many of you were able to express to elected officials, telemedicine is a crucial service for our community.

We will continue to advocate to make telehealth expansions PERMANENT! www.meaction.net/post/more-gr...
A doctor on a laptop screen (woman with medium skin tone and short dark hair wearing a white lab coat) while a person looks (only shown from behind- dark hair and orange top) on as if have an appointment with the medical professional. Text: Telemedicine coverage has be EXTENDED!
February 6, 2026 at 5:34 PM
Reposted by Cynthia Johnson
meactnet.bsky.social
We have heard so many stories of why telemedicine matters to you personally, and we are thrilled that this has extended.

Thank you again for taking action! Let’s celebrate this key win and keep doing the work together!
February 6, 2026 at 5:34 PM
Reposted by Cynthia Johnson
julianlennon.bsky.social
🙏🏻

Praying for the World right now… 🕊️
Dandelion wish
February 6, 2026 at 7:56 PM
Reposted by Cynthia Johnson
meactnet.bsky.social
The clock is ticking. The NIH now has 180 days to develop an implementation plan for the ME/CFS Research Roadmap. In 6 months, we SHOULD have a plan to implement the NIH’s roadmap for biomarkers, treatments & clinical trials.

#MEAction partnered with #NotJustFatigue to secure this support.

#NIH
A large alarm clock with a road going behind it against a cream background. Text: The Clock is Ticking. The NIH has been directed by Congress to come up with a plan to implement the ME/CFS Research Roadmap in 6 months.
February 4, 2026 at 6:19 PM
Reposted by Cynthia Johnson
hollyl.bsky.social
Hi all! Trying to share items for mutual aid...help for #pwME #MyalgicEncephalomyelitis #LongCovid #disability.

Some I am aware of including unhoused, possible eviction, in hospital, medical needs, etc.

Please take a look. Pick one to share.

Tonight's sunset cuz pretty.
Red and pink sunset w bare trees
February 6, 2026 at 1:15 AM
Reposted by Cynthia Johnson
openmedf.bsky.social
Get the latest on OMF research in 2026.

➡️ Add impact to your inbox! Subscribe to OMF newsletter 👉 https://ow.ly/w0TO50WwRs4

🌟 When you subscribe, you’ll get the latest on OMF research, announcements, campaigns, and more—delivered straight to your inbox.

#pwME #MECFS #LongCOVID #pwLC #OMFResearch
At the bottom is a picture of Wenzhong Xiao, Alain Moreau, Ron Davis, Chris Armstrong, David Systrom, Jonas Bergquist, Linda Tannenbaum, and Maureen Hanson. The text reads: “Don’t miss a thing, sign up for our newsletter.”
February 2, 2026 at 3:23 PM
Reposted by Cynthia Johnson
ludwigcancer.bsky.social
We’re excited to announce the launch of the Ludwig Laboratory for Cell Therapy at Weill Cornell Medicine’s Sandra and Edward Meyer Cancer Center. The lab is directed by former Ludwig Lausanne Director George Coukos, an authority on tumor immunology & cellular immunotherapy. bit.ly/3ZdebG8

#CanSky
February 2, 2026 at 4:01 PM
Reposted by Cynthia Johnson
batemanhornecenter.bsky.social
Today, the CEOs of @solveme.bsky.social, @meactnet.bsky.social, @openmedf.bsky.social, and @batemanhornecenter.bsky.social met to align, collaborate, and strengthen how we support one another’s work.

Progress isn’t always visible, but it is happening. And we’re doing it together.

#UnitedForME
Six individuals in a virtual meeting. Text reads: "Strong leadership creates strong results." Logos of Bateman Horne Center, OMF, Solve M.E., and #MEAction displayed below.
January 14, 2026 at 10:42 PM