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Something Chronic

@somethingchronic.bsky.social

760 followers 1.6K following 740 posts

Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness

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Something Chronic @somethingchronic.bsky.social · May 21

Will ‘reframing my beliefs’ cure the muscle atrophy that #severeME has caused? Will it help me get downstairs in my home again after 2 years? Will it help Karen Gordon & @whitneydafoe.bsky.social? Why ignore 1000s of studies with irrefutable evidence #MECFS is physiological? @tessamunt.bsky.social

Picture of bare legs with socks just visible. The legs have significant muscle atrophy due to severe ME/CFS.

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Something Chronic @somethingchronic.bsky.social · 12h

What rubbish but I wouldn’t expect anything else from the Editor of the Spectator, it’s an abhorrent far right mouthpiece.

Reposted by Something Chronic

Ricardo Levins Morales Art Studio @rlmartstudio.bsky.social · 15h

This week in 1988: 1,000+ ACT UP demonstrators shut down the FDA headquarters, demanding (and eventually winning) action on developing HIV/AIDS treatments. ACT UP's militant and creative actions always included powerful visual artwork, and paved the way for movements in the decades to come.

A photograph from the 1988 ACT UP demonstration outside the FDA. Many people are participating in a die-in on the front steps, holding mock tombstones with messages like "RIP - killed by the FDA" and "Dead from lack of drugs." A line of police officers (some with classic 80s mustaches) wearing riot helmets stands between them and the building; one cop wearing white gloves is walking through the demonstrators. Affixed to the 2nd story windows of the building is a series of posters and a large blank banner reading Silence = Death.

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Something Chronic @somethingchronic.bsky.social · 15h

Totally agree! I’ve also never understood why political parties don’t have to show their budget calculations when they claim they’ll fund x, y+z. So often they scrap it all when in power as it was never realistic in the first place. No company would ever work like this so why does the UK government?

Reposted by Something Chronic

valebodi.bsky.social @valebodi.bsky.social · 16h

Prolonged acetylcholine-induced vasodilatation in the peripheral microcirculation of #pwME

www.meresearch.org.uk/research/ace...

These findings are further evidence of a disturbance to acetylcholine in ME/CFS, and suggest that a cholinesterase abnormality is involved, Khan et al. 2003)

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Reposted by Something Chronic

Peter Stefanovic @peterstefanovic.bsky.social · 1d

These national heroes have now waited more than a year for a meeting with Keir Starmer to discuss the justice & compensation Labour committed to in opposition. They are now in their eighties and are dying waiting for justice. This is no way to treat veterans Prime Minister

youtu.be/hSQNLn2Ocr8?...

Video emerges of Deputy PM,Defence Secretary & other Ministers BACKING compensation for Nuclear Vets

YouTube video by Peter Stefanovic

youtu.be

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Dave Vetter @davidrvetter.bsky.social · 23h

Every day is a good day to point out that 92% of Reform's donations were found to come from figures and groups linked to the fossil fuel industry. @desmog.com

Nigel Farage’s Reform Party Has Accepted £2.3 Million from Fossil Fuel Interests, Climate Deniers, and Polluters Since 2019 Election

Reform UK has received more than £2.3 million from oil and gas interests, highly polluting industries, and climate science deniers since December 2019, amounting to 92 percent of the party’s donations...

www.desmog.com

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Something Chronic @somethingchronic.bsky.social · 19h

🎶💖

Something Chronic @somethingchronic.bsky.social · 19h

2/2
www.theguardian.com/politics/201...

bylinetimes.com/2024/06/19/t...

The Five Questions Nigel Farage is Never Asked About Brexit, Trump and Russia

As the media provides the Reform Leader with a prominent platform, Peter Jukes considers all the concerning lines of enquiry that journalists never confront him with

bylinetimes.com

Something Chronic @somethingchronic.bsky.social · 19h

Remember when Farage visited the Ecuadorean embassy when WikiLeaks’ Julian Assange was living there? @carolecadwalla.bsky.social wrote & tweeted about it. Others have too – good questions for Farage in @bylinetimes.bsky.social article. 1/2

www.theguardian.com/politics/201...

x.com/carolecadwal...

When Nigel Farage met Julian Assange

Why did Ukip’s ex-leader want to slip in unnoticed to meet the WikiLeaks chief at the Ecuadorian embassy?

www.theguardian.com

Reposted by Something Chronic

Adam Fare 🖤🤍💜 @adamfare1996.bsky.social · 1d

Disability benefits processes, “reforms”, and cuts kill people.

They kill disabled people through poverty.
They kill disabled people through fear.

And all the current rhetoric, hate, and misinformation kills more.

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Something Chronic @somethingchronic.bsky.social · 1d

I think #PhysicsGirl said it really helped her

Something Chronic @somethingchronic.bsky.social · 1d

Hey! I don’t know if they’re representative as I’m really out of the loop on music (am ill & haven’t been able to listen to any for yrs - gutting!) but I checked my Spotify & I’ve got lots of songs saved from: 1989, Red, Reputation & Evermore. Evermore is more recent – I remember really liking it! ㋡

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GylesNaMopaleen @gylesnamopaleen.bsky.social · 6d

Dear Diary. The opening day spech I wrote for Kemi went really well. Javier sent a lovely bouquet of flowers in thanks for my tips on how to fix the Argentine economy and Nigel Farage smiled at me. Popping to Paris today. New PM needed. Mange Tout! Eurostar ahoy!

liz truss sitting at a desk writing something into a book.

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Reposted by Something Chronic

EuropeanPowell @europeanpowell.bsky.social · 6d

Reminder - Palantir has 24 contracts with key UK institutions, the NHS, the Ministry of Defence, the Cabinet Office, the police force, and the DLUHC.
23 of the contracts were given by the Tories.
The most recent contract given to Palantir was to Coventry City Council by Keir Starmer in April 2025.

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Reposted by Something Chronic

Peter Jukes @peterjukes.bsky.social · 1d

Most people seem to have missed who retweeted this picture of Farage in Gill’s office a few days after Gill began receiving his first bribes from Oleh Voloshyn (Oleg Voloshin). None other than…

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Reposted by Something Chronic

Declassified UK @declassifieduk.org · 1d

Pearson Engineering is owned by the Israeli government. Now, it has hired a lobbying firm run by the husband of Hollie Ridley, Labour’s general secretary.

www.declassifieduk.org/top-labour-o...

Top Labour official married to lobbyist for Israeli arms firm

Pearson Engineering is owned by the Israeli government. Now, it has hired a lobbying firm run by the husband of Hollie Ridley, Labour’s general secretary.

www.declassifieduk.org

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Reposted by Something Chronic

Mark Chadbourn @chadbourn.bsky.social · 1d

Someone made a lot of money through insider trading. On the international betting site Polymarket, the eventual winner of the Nobel Peace Prize Maria Corina Machado went from rank outsider to 70% favourite in the early hours of Friday before the award was announced.

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Something Chronic @somethingchronic.bsky.social · 1d

Definitely!!

Something Chronic @somethingchronic.bsky.social · 1d

It’s weird how hard the word sorry is for a lot of people!

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Reposted by Something Chronic

The Sick Times @thesicktimes.org · 2d

A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything.

Then, without warning, Argenx canceled the trial.

Most of them have now relapsed.

They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5

A photo Nicole Barrick, a woman in a pink KN95 mask, receives an infusion of Vyvgart. The text reads, "The Sick Times. Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White."

"For those living with Long COVID, every ounce of hope is hard-won. This isn’t just about physical symptoms. It’s about the emotional toll of being given hope — and then having it taken away." - Vyvgart clinical trial participants
Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White

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Something Chronic @somethingchronic.bsky.social · 2d

💙💞

Something Chronic @somethingchronic.bsky.social · 2d

Please donate to David Tuller’s crowdfund if you’re able!

Most people with #MEcfs or #LongCovid already know how important DT’s work & advocacy has been in advancing help for us

… For anyone who doesn’t yet, he’s basically our Superman! 🦸‍♂️

(It’s also his birthday today so it’d be rude not to 😜🥳)

David Tuller @davetuller1.bsky.social · 4d

Berkeley's crowdfunder has reached 5% of the goal after its first day, with 49 donors! This pace won't keep up, but it's a decent start. Thanks to all past, current and future supporters!
crowdfund.berkeley.edu/project/47768

David Tuller's Trial by Error Fall 2025

Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!

crowdfund.berkeley.edu

Something Chronic @somethingchronic.bsky.social · 2d

Happy Birthday!!✨🥳✨

Something Chronic @somethingchronic.bsky.social · 2d

It makes me so mad because he’s capable of understanding the nuance but he’d rather espouse bigoted views because it keeps him in the public eye and he gets paid far more to be a bully. It’s so sad because he could help people instead of harm them. I’ll never understand choosing profit over people.

Reposted by Something Chronic

Natasha Devon @natashadevon.bsky.social · 2d

Has anyone noticed or cared that it’s World Mental Health Day today? (Apparently, the theme is ‘access to services’).

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