Am Chima
@ace9801.bsky.social
ME - patient/advocate LC, ME/CFS & more; RACE - human; RELIGION - truth; BIAS - unbiased integrity/evidence based science/reality; AVERSIONS - money, ego & power driven DEMENTORS; ASPIRATIONS - a DEMENTOR-free world & satisfying my “cerebral nerd crushes'!
Reposted by Am Chima
For up to half of people with #LongCOVID, activities like exercise can trigger post-exertional malaise (PEM). Yet Long COVID clinics around the world are offering exercise as treatment while dismissing its serious harms.
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
November 24, 2025 at 4:48 PM
For up to half of people with #LongCOVID, activities like exercise can trigger post-exertional malaise (PEM). Yet Long COVID clinics around the world are offering exercise as treatment while dismissing its serious harms.
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
THIS…
sick people should be able to count on social programs for care so we don't have to put ourselves through self-esteem shredding relationships just to get sufficient help
I feel so incredibly worthless today and am questioning why I'm even on this planet, and while part of me knows--
I feel so incredibly worthless today and am questioning why I'm even on this planet, and while part of me knows--
November 24, 2025 at 9:18 PM
THIS…
Systrom: "Many of us in the field..believe that ME/CFS is often, but not always..post-infectious..for not totally clear reasons, there is autoimmunity, which may run amuck on overdrive with associated inflammation...then downstream.those pathways, we think there are some issues with oxygen supply.."
Open Medicine Foundation: 'An Interview with Ron Davis, PhD, and David Systrom, MD: Low Oxygen, Low Energy'
www.youtube.com/watch?v=KILx...
www.youtube.com/watch?v=KILx...
November 11, 2025 at 6:49 PM
Reposted by Am Chima
This is a very deft thread. A concise precis of our conversation on conservatism, capitalism, and disability
Thank you @mecfsskeptic.bsky.social
#MECFS #LongCovid @davetuller1.bsky.social
Thank you @mecfsskeptic.bsky.social
#MECFS #LongCovid @davetuller1.bsky.social
1) Interesting interview of Prof. Brian Hughes by David Tuller.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
November 7, 2025 at 10:18 PM
This is a very deft thread. A concise precis of our conversation on conservatism, capitalism, and disability
Thank you @mecfsskeptic.bsky.social
#MECFS #LongCovid @davetuller1.bsky.social
Thank you @mecfsskeptic.bsky.social
#MECFS #LongCovid @davetuller1.bsky.social
An absolutely stellar piece of writing…thank you Julia Doubleday!
Not sure if I have it in me to watch this show as I feel as if I am living it in real life and it hits too close to home…we shall see! 😔
PS…perhaps this show merits a “trigger alert”!
#COVIDisnotover
#LongCOVID
#MEcfs
#pwME
#PVS
Not sure if I have it in me to watch this show as I feel as if I am living it in real life and it hits too close to home…we shall see! 😔
PS…perhaps this show merits a “trigger alert”!
#COVIDisnotover
#LongCOVID
#MEcfs
#pwME
#PVS
Living with Long COVID often feels like living in a horror movie. Along with your disease comes a creepy Hive Mind refusal to acknowledge the dangers of COVID infection. In Vince Gilligan's new Apple TV show Pluribus, the Hive Mind comes to life:
www.thegauntlet.news/p/pluribus-c...
www.thegauntlet.news/p/pluribus-c...
"Pluribus" captures the isolation of COVID-awareness in a COVID denialist world
For years I've described having Long COVID as living in a horror movie. Now that horror movie (well, prestige Apple TV show) is here.
www.thegauntlet.news
November 11, 2025 at 4:58 PM
An absolutely stellar piece of writing…thank you Julia Doubleday!
Not sure if I have it in me to watch this show as I feel as if I am living it in real life and it hits too close to home…we shall see! 😔
PS…perhaps this show merits a “trigger alert”!
#COVIDisnotover
#LongCOVID
#MEcfs
#pwME
#PVS
Not sure if I have it in me to watch this show as I feel as if I am living it in real life and it hits too close to home…we shall see! 😔
PS…perhaps this show merits a “trigger alert”!
#COVIDisnotover
#LongCOVID
#MEcfs
#pwME
#PVS
Reposted by Am Chima
Not taking Covid seriously enough, Maximising social harm, Cardiovascular complications, Occupational brain fog, and more
open.substack.com/pub/johndupu...
open.substack.com/pub/johndupu...
Not taking Covid seriously enough, Maximising social harm, Cardiovascular complications, Occupational brain fog, and more
Bonus Not today little Brazilian bat
open.substack.com
November 7, 2025 at 6:46 PM
Not taking Covid seriously enough, Maximising social harm, Cardiovascular complications, Occupational brain fog, and more
open.substack.com/pub/johndupu...
open.substack.com/pub/johndupu...
Thank you Simon for carrying the “scientific torch” for this community.
Your efforts are definitely needed and much appreciated.
#longcovidisreal
#pseudoscience
#longCOVID
Your efforts are definitely needed and much appreciated.
#longcovidisreal
#pseudoscience
#longCOVID
In a statement, CBC told me:
"After reviewing the interview, we concluded that it needed to be re-edited and re-posted to include further context and questions around the procedure and treatment Deacon experienced. That has now been done."
Will update the story with this soon.
"After reviewing the interview, we concluded that it needed to be re-edited and re-posted to include further context and questions around the procedure and treatment Deacon experienced. That has now been done."
Will update the story with this soon.
Earlier this week, the CBC broadcast an interview with Gill Deacon, discussing her Long COVID recovery using brain retraining.
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
November 8, 2025 at 12:13 AM
Thank you Simon for carrying the “scientific torch” for this community.
Your efforts are definitely needed and much appreciated.
#longcovidisreal
#pseudoscience
#longCOVID
Your efforts are definitely needed and much appreciated.
#longcovidisreal
#pseudoscience
#longCOVID
Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.
November 7, 2025 at 12:37 AM
Bye bye political dynasty…welcome to the era of “by the people…for the people”!
A phenomenal speech!
www.youtube.com/watch?v=G1NY...
A phenomenal speech!
www.youtube.com/watch?v=G1NY...
LIVE: Zohran Mamdani's Victory Speech in New York City
YouTube video by Bloomberg Television
www.youtube.com
November 5, 2025 at 4:52 AM
Bye bye political dynasty…welcome to the era of “by the people…for the people”!
A phenomenal speech!
www.youtube.com/watch?v=G1NY...
A phenomenal speech!
www.youtube.com/watch?v=G1NY...
And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis
A brief summary of the presentations.
simonspichak.beehiiv.com
November 5, 2025 at 2:49 AM
Reposted by Am Chima
We've just launched the first large, site-less (home, direct to participant) randomized trial for treatment of #LongCovid, testing tirzepatide (a GLP-1 drug) vs placebo. Please help spread the word
www.scripps.edu/news-and-eve...
www.scripps.edu/news-and-eve...
Scripps Research scientists launch new digital clinical trial to test repurposed drug for long COVID symptom relief
www.scripps.edu
October 31, 2025 at 5:07 PM
We've just launched the first large, site-less (home, direct to participant) randomized trial for treatment of #LongCovid, testing tirzepatide (a GLP-1 drug) vs placebo. Please help spread the word
www.scripps.edu/news-and-eve...
www.scripps.edu/news-and-eve...
Reposted by Am Chima
Medscape report on the IACFS/ME conference that took place last week:
"No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
www.medscape.com/viewarticle/...
No mention of new data from new treatment trials here
#MEcfs #CFS #PwME
"No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
www.medscape.com/viewarticle/...
No mention of new data from new treatment trials here
#MEcfs #CFS #PwME
November 1, 2025 at 8:32 PM
Medscape report on the IACFS/ME conference that took place last week:
"No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
www.medscape.com/viewarticle/...
No mention of new data from new treatment trials here
#MEcfs #CFS #PwME
"No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
www.medscape.com/viewarticle/...
No mention of new data from new treatment trials here
#MEcfs #CFS #PwME
Iwasaki doing “Iwasaki”…such a medical research rockstar!
So grateful for all the work that she and her colleagues and collaborators continue to do!
So grateful for all the work that she and her colleagues and collaborators continue to do!
November 1, 2025 at 9:30 PM
Iwasaki doing “Iwasaki”…such a medical research rockstar!
So grateful for all the work that she and her colleagues and collaborators continue to do!
So grateful for all the work that she and her colleagues and collaborators continue to do!
Reposted by Am Chima
Recent data showing that re-infections increase the risk of Long COVID and serious complications in children.
🚩Profound fatigue, PEM, and cognitive challenges
www.medscape.com/viewarticle/...
🚩Profound fatigue, PEM, and cognitive challenges
www.medscape.com/viewarticle/...
Long COVID in Kids: What Pediatricians Need to Know
New research suggests that children and teens who get COVID a second time face twice the risk for developing long COVID.
www.medscape.com
October 30, 2025 at 4:38 PM
Recent data showing that re-infections increase the risk of Long COVID and serious complications in children.
🚩Profound fatigue, PEM, and cognitive challenges
www.medscape.com/viewarticle/...
🚩Profound fatigue, PEM, and cognitive challenges
www.medscape.com/viewarticle/...
Reposted by Am Chima
Earlier this week, the CBC broadcast an interview with Gill Deacon, discussing her Long COVID recovery using brain retraining.
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
CBC’s Flagship Program Platforms “Quackery” for Long COVID
CBC's national broadcast aired an interview with Gill Deacon about her Long COVID recovery. Deacon used an unproven program called the Lightning Process that's been criticized for exploiting patients ...
simonspichak.beehiiv.com
October 31, 2025 at 9:10 PM
Earlier this week, the CBC broadcast an interview with Gill Deacon, discussing her Long COVID recovery using brain retraining.
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
Reposted by Am Chima
Happy to share that I've been selected for the @nationalpress.bsky.social Rare Disease Reporting Fellowship.
nationalpress.org/newsfeed/npf...
nationalpress.org/newsfeed/npf...
NPF Selects More Than 60 International Journalists for 2025 Rare Disease Reporting Fellowship - National Press Foundation
Congratulations to the more than 60 journalists selected worldwide to participate in the National Press Foundation's 2025 Rare Disease Reporting Fellowship, Nov. 17-21!
nationalpress.org
October 31, 2025 at 4:23 PM
Happy to share that I've been selected for the @nationalpress.bsky.social Rare Disease Reporting Fellowship.
nationalpress.org/newsfeed/npf...
nationalpress.org/newsfeed/npf...
Reposted by Am Chima
Ms. Deacon's '15 minutes of fame' is over. What she is sharing is unscientific and dangerous rhetoric that can be extremely harmful to the Long COVID, ME/CFS community. As a Long COVID, ME patient I find it insulting and discouraging that the CBC keeps focusing on Ms. Deacon's story!
October 29, 2025 at 2:06 PM
Ms. Deacon's '15 minutes of fame' is over. What she is sharing is unscientific and dangerous rhetoric that can be extremely harmful to the Long COVID, ME/CFS community. As a Long COVID, ME patient I find it insulting and discouraging that the CBC keeps focusing on Ms. Deacon's story!
A beautiful moving piece…”Shattered, But not gone”.
#COVIDisnotover
#longCOVID
#pandemicisnotover
dandeliontruths.substack.com/p/shattered-...
#COVIDisnotover
#longCOVID
#pandemicisnotover
dandeliontruths.substack.com/p/shattered-...
Shattered, But Not Gone
An Essay on Truth in a Pandemic World
dandeliontruths.substack.com
October 29, 2025 at 2:24 PM
A beautiful moving piece…”Shattered, But not gone”.
#COVIDisnotover
#longCOVID
#pandemicisnotover
dandeliontruths.substack.com/p/shattered-...
#COVIDisnotover
#longCOVID
#pandemicisnotover
dandeliontruths.substack.com/p/shattered-...
Reposted by Am Chima
CBC is platforming unproven pseudoscientific brain retraining programs for #LongCOVID. In reality, some people recover others do not, no matter what they try.
This approach lays the blame on patients who don't get better because they're not trying hard enough.
This approach lays the blame on patients who don't get better because they're not trying hard enough.
October 27, 2025 at 10:50 PM
CBC is platforming unproven pseudoscientific brain retraining programs for #LongCOVID. In reality, some people recover others do not, no matter what they try.
This approach lays the blame on patients who don't get better because they're not trying hard enough.
This approach lays the blame on patients who don't get better because they're not trying hard enough.
Thoroughly disappointed in this LC media coverage that aired Oct 26, 2025 on CBC Canada completely misrepresents this life altering illness…extremely harmful.
Need community advocates to share far and wide & also reach out to CBC. 1/2
#LCisreal
#MEcfs
#pwME
m.youtube.com/watch?v=DXri...
Need community advocates to share far and wide & also reach out to CBC. 1/2
#LCisreal
#MEcfs
#pwME
m.youtube.com/watch?v=DXri...
Her mysterious symptoms turned out to be long COVID
YouTube video by CBC News: The National
m.youtube.com
October 28, 2025 at 4:45 PM
Thoroughly disappointed in this LC media coverage that aired Oct 26, 2025 on CBC Canada completely misrepresents this life altering illness…extremely harmful.
Need community advocates to share far and wide & also reach out to CBC. 1/2
#LCisreal
#MEcfs
#pwME
m.youtube.com/watch?v=DXri...
Need community advocates to share far and wide & also reach out to CBC. 1/2
#LCisreal
#MEcfs
#pwME
m.youtube.com/watch?v=DXri...
Reposted by Am Chima
This piece for @thesicktimes.org about people with Long COVID receiving diagnoses of funcitonal neurological disorder...
thesicktimes.org/2025/09/26/l...
thesicktimes.org/2025/09/26/l...
Long COVID is not FND, but some patients are getting diagnosed with it. Here’s what to do if it happens to you. - The Sick Times
Some people with Long COVID are receiving potentially unhelpful diagnoses of functional neurological disorder (FND), a condition in which people experience neurological symptoms that cannot be attribu...
thesicktimes.org
September 26, 2025 at 4:36 PM
This piece for @thesicktimes.org about people with Long COVID receiving diagnoses of funcitonal neurological disorder...
thesicktimes.org/2025/09/26/l...
thesicktimes.org/2025/09/26/l...
Reposted by Am Chima
Timely @TheLancet paper about #Longcovidkids, showing that risk of developing #LongCOVID effectively doubles in kids after their second infection.
Now do third, fourth, nth infections…
“We knew how to protect you, and we didn’t”
🤔 sound familiar?
www.thelancet.com/journals/lan...
Now do third, fourth, nth infections…
“We knew how to protect you, and we didn’t”
🤔 sound familiar?
www.thelancet.com/journals/lan...
Long COVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective cohort study
Children and adolescents face a significantly higher risk of various PASC outcomes
after reinfection with SARS-CoV-2. These findings add to previous evidence linking
paediatric long COVID to multisyst...
www.thelancet.com
October 1, 2025 at 11:16 AM
Timely @TheLancet paper about #Longcovidkids, showing that risk of developing #LongCOVID effectively doubles in kids after their second infection.
Now do third, fourth, nth infections…
“We knew how to protect you, and we didn’t”
🤔 sound familiar?
www.thelancet.com/journals/lan...
Now do third, fourth, nth infections…
“We knew how to protect you, and we didn’t”
🤔 sound familiar?
www.thelancet.com/journals/lan...
Reposted by Am Chima
Working on a story for @thesicktimes.org about the quality, utility, and risks of exercise trials in Long COVID (and how often they mention/measure PEM). Looking to speak with anyone that's participated in these trials and experienced PEM/other negative side effects as a result.
September 5, 2025 at 7:26 PM
Working on a story for @thesicktimes.org about the quality, utility, and risks of exercise trials in Long COVID (and how often they mention/measure PEM). Looking to speak with anyone that's participated in these trials and experienced PEM/other negative side effects as a result.
These folks need to go back to school and take “UNBIASED RESEARCH 101” with a prerequisite of “HIPPOCRATIC OATH 101”.
Thank you David Tuller for calling out such harmful “pseudoscience” rhetoric time and time again!
#LONGCOVID
#MEcfs
#pwME
#PEM
www.facebook.com/share/1CTyMK...
Thank you David Tuller for calling out such harmful “pseudoscience” rhetoric time and time again!
#LONGCOVID
#MEcfs
#pwME
#PEM
www.facebook.com/share/1CTyMK...
Redirecting...
www.facebook.com
August 16, 2025 at 5:38 PM
These folks need to go back to school and take “UNBIASED RESEARCH 101” with a prerequisite of “HIPPOCRATIC OATH 101”.
Thank you David Tuller for calling out such harmful “pseudoscience” rhetoric time and time again!
#LONGCOVID
#MEcfs
#pwME
#PEM
www.facebook.com/share/1CTyMK...
Thank you David Tuller for calling out such harmful “pseudoscience” rhetoric time and time again!
#LONGCOVID
#MEcfs
#pwME
#PEM
www.facebook.com/share/1CTyMK...