Mari Carmen
banner
macala0902.bsky.social
Mari Carmen
@macala0902.bsky.social
¡YO QUÉ SÉ!


Pinned
No es mi mejor dibujo pero me encanta. El pastel no lo domino 🤭
Dibujo a pastel inspirado en una obra de Robert Kelley ❤️
"La organización alemana de suicidio asistido está recibiendo muchas solicitudes de jóvenes con EM/SFC.

Un artículo inquietante, pero me alegra que se haya escrito y no se haya ignorado, como suele ocurrir."
#MEcfs
#EMsfc
#EncefalomielitisMiálgica
German Assisted suicide organisation is seing many applicants from young people with ME/CFS.

Haunting article but glad it was written and not ignored as usual.
taz.de taz @taz.de · 1d
Suizidhelfer verzeichnen mehr Anträge von jungen Menschen mit ME/CFS-Erkrankung, darunter auch Post Covid, die Hilfe zur Selbsttötung erbitten.
November 28, 2025 at 7:07 AM
Step into comfort this Christmas! 🧦💚💙 Our Betty the Battery socks are bright, fun and full of meaning.

🎁 Support ME/CFS advocacy with every pair - zurl.co/kgP51

#BettyTheBattery #EmergeAustralia #MECFS #ChristmasStocking #GiftIdeas #PowerOurPath #christmasgiving
November 28, 2025 at 7:05 AM
Reposted by Mari Carmen
Step into comfort this Christmas! 🧦💚💙 Our Betty the Battery socks are bright, fun and full of meaning.

🎁 Support ME/CFS advocacy with every pair - zurl.co/kgP51

#BettyTheBattery #EmergeAustralia #MECFS #ChristmasStocking #GiftIdeas #PowerOurPath #christmasgiving
November 27, 2025 at 9:00 PM
"Muchas personas tienen que afrontar esta enfermedad solas, a menudo en detrimento de su salud."
#MEcfs
#EncefalomielitisMiálgica
#EMsfc
#pwME
I’m incredibly grateful for my husband.

He never doubts my symptoms. He’s always supportive and willing to take things off my plate so I can rest.

I wish everyone in the #MECFS community had a caregiver like him.

Too many have to go this illness alone often to the detriment of their health.
November 28, 2025 at 6:56 AM
La, La, Laaaaaaaaa 🎉 🎉 🎉
Ese cielo 😉😉

Buenos días 🤗 🤗

#PictdleRevisited #331 (1/6)
🎨🟩⬜⬜⬜⬜⬜
pictdle.com
a swifterpics photo of a woman dancing on stage
ALT: a swifterpics photo of a woman dancing on stage
media.tenor.com
November 28, 2025 at 6:53 AM
Reposted by Mari Carmen
Buenos dias gentes bonitas del sielito.
November 28, 2025 at 5:33 AM
Reposted by Mari Carmen
In recent @jamanetworkopen.com exercise study with clinically insiginficant findings, all participants scored way below healthy adults--a major fact overlooked by the paper. Also, @thesicktimes.org reports on exercise trials. virology.ws/2025/11/25/t...
Trial By Error: JAMA Touts Long COVID Exercise Trial with Clinically Insignificant Results; Most LC Exercise Trials Ignore PEM, Per Sick Times | Virology Blog
By David Tuller, DrPH In its current “Medical News in Brief” section, JAMA is touting and amplifying the questionable claims of a flawed trial to treat or p ...
virology.ws
November 26, 2025 at 7:33 AM
Reposted by Mari Carmen
“Anil, ik zou zo graag willen dat ik iets voor je kon doen!!”

Dit is iets wat ik vaak hoor van veel lieve vrienden.

Die mogelijkheid is er nu. Over 4 dagen. Het 1e PAIS-protest!

Lees hier meer over het protest: hetpaisprotest.nl

#PAISprotest #niethersteld @NietHersteld
November 26, 2025 at 12:43 PM
He tenido que abrir porque no me centraba 😅. Si no conoces la 🎨 en concreto no es fácil, yo la vi por primera vez en este juego, normalmente es un 👨🏻‍🎨 con mucho más color .
Este 👨🏻‍🎨 no me va, siempre que sale lo digo 😐

#PictdleRevisited #330 (2/6)
🎨🟥🟩⬜⬜⬜⬜
pictdle.com
a person making a heart shape with their hands in front of a dog that is wearing a striped shirt
ALT: a person making a heart shape with their hands in front of a dog that is wearing a striped shirt
media.tenor.com
November 27, 2025 at 9:39 AM
¡AMO! ❤️❤️
Ojalá así tan contentos 😉
Buenos días 🤗 🤗

#PictdleRevisited #329 (1/6)
🎨🟩⬜⬜⬜⬜⬜
pictdle.com
a close up of a woman 's face on a stage in front of a screen .
ALT: a close up of a woman 's face on a stage in front of a screen .
media.tenor.com
November 26, 2025 at 6:20 AM
¡BUM! 🎉🎉🎉🎉🎉🎉
Hoy es más fácil, creo 😃

Buenos días 🤗 🤗

#PictdleRevisited #328 (1/6)
🎨🟩⬜⬜⬜⬜⬜
pictdle.com
two women are sitting next to each other and one is pointing at the camera
ALT: two women are sitting next to each other and one is pointing at the camera
media.tenor.com
November 25, 2025 at 8:39 AM
Uyyyy, cachis 😂, aunque acerté por probar con el estilo 😉

Buenos días 🤗 🤗

#PictdleRevisited #327 (2/6)
🎨🟨🟩⬜⬜⬜⬜
pictdle.com
a black and white photo of a woman holding a mug
ALT: a black and white photo of a woman holding a mug
media.tenor.com
November 24, 2025 at 9:10 AM
Reposted by Mari Carmen
Why do these people keep promoting exercise studies with reported benefits that do not reach the threshold for clinical significance? Here's another one of these, from @jamanetworkopen.com: virology.ws/2025/11/21/t...
Trial By Error: Another Exercise Trial with Clinically Insignificant Findings | Virology Blog
By David Tuller, DrPH A recent study from JAMA Network Open, called “Resistance Exercise Therapy After COVID-19 Infection: A Randomized Clinical Trial,” dem ...
virology.ws
November 23, 2025 at 8:20 PM
Reposted by Mari Carmen
‪2/‬
‪From the Science for ME weekly update:‬

‪“The debate was led by Tessa Munt MP, who contrasted the tiny amount of money spent on ME/CFS research with hugely wasteful government spending on other projects.”‬
November 23, 2025 at 11:50 PM
Reposted by Mari Carmen
Mucosal Viruses in ME/CFS: A Missing Piece of the Puzzle?

www.mdpi.com/1422-0067/26...

"Emerging evidence from saliva, mucosal tissues, & longitudinal studies suggests latent viruses can persist and periodically reactivate at mucosal sites, potentially driving immune dysregulation"

#MEcfs #PwME
www.mdpi.com
November 24, 2025 at 2:40 AM
Reposted by Mari Carmen
Mindblowing how interchangeable and identical are some of the newest discoveries related to RA, MS, fibro... this on RA was the identical finding a month ago about MS!

ME is getting there but the rage of knowing we have 50 years of delay is hard to take.
November 24, 2025 at 7:39 AM
Magnífica ❤️ y eso que no es un tema espectacular 😉

Buenos días 🤗 🤗

#PictdleRevisited #326 (2/6)
🎨🟨🟩⬜⬜⬜⬜
pictdle.com
a woman is smiling in front of a screen with eltrecetv.com written on it
ALT: a woman is smiling in front of a screen with eltrecetv.com written on it
media.tenor.com
November 23, 2025 at 9:12 AM
¡AMO! 🎉🎉🎉🎉🎉🎉🎉🎉

Buenos días 🤗🤗

#PictdleRevisited #325 (1/6)
🎨🟩⬜⬜⬜⬜⬜
pictdle.com
taylor swift is flexing her muscles on stage while wearing a blue dress and necklace .
ALT: taylor swift is flexing her muscles on stage while wearing a blue dress and necklace .
media.tenor.com
November 22, 2025 at 9:55 AM
Reposted by Mari Carmen
PolyBio released this study today.

They used questionnaires and machine learning to identify subtypes of #LongCovid

Want to guess what symptom they left out? It’s only one that affects approx 50% of LC patients 🤦🏻‍♀️

1/
New machine learning study identifies distinct Long COVID symptom endotypes across four major cohorts - PolyBio Research Foundation
PolyBio-supported research uses questionnaire-based machine learning to successfully identify global Long COVID endotypes.A new preprint titled “Machine Learning Analysis of Post-Acute...
polybio.org
November 21, 2025 at 3:34 AM
Me acordé de cuando salió porque no lo conocía y fue todo al rojo 😂. No me va 🤭

Buenos días 🤗 🤗

#PictdleRevisited #324 (1/6)
🎨🟩⬜⬜⬜⬜⬜
pictdle.com
a woman in a purple top is sitting in front of a sign that says " talent "
ALT: a woman in a purple top is sitting in front of a sign that says " talent "
media.tenor.com
November 21, 2025 at 9:40 AM
Reposted by Mari Carmen
#PradoEducación Conciertos del programa de culturas urbanas SGAE FLIPAS 2025 en el Museo del Prado

21 de noviembre: Mamoun El Bied Emila Trevisani e Irene Ivankovà

28 de noviembre: Oumoukala Sow Cisse y Silvia Torres

Entrada gratuita: www.museodelprado.es/recurso/prog...
November 20, 2025 at 10:20 AM
Ni idea 😂😂 ni siquiera me he acercado 🤭🤭

Buenos días 🤗 🤗

#PictdleRevisited #323 (X/6)
🎨🟥🟥🟥🟥🟥🟥
pictdle.com
a baby is sitting in a car seat with a funny face .
ALT: a baby is sitting in a car seat with a funny face .
media.tenor.com
November 20, 2025 at 10:34 AM
Atentas hoy 😉

Buenos días 🤗 🤗

#PictdleRevisited #322 (1/6)
🎨🟩⬜⬜⬜⬜⬜
pictdle.com
a woman with pink and blue hair is reading a book and drinking from a cup
ALT: a woman with pink and blue hair is reading a book and drinking from a cup
media.tenor.com
November 19, 2025 at 6:52 AM
Tras varias peticiones, he publicado todos los vídeos de televisión de mi canal de YouTube. Ahora se pueden buscar y aparecerán en mi página principal y en la pestaña de vídeos.
After a number of requests I’ve made all of the TV clips on my YouTube channel public. They’re now searchable on and will appear on my homepage and in the videos tab.

youtube.com/@brokenbattery
Broken Battery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
youtube.com
November 19, 2025 at 6:44 AM