Pinned
Mari Carmen
@macala0902.bsky.social
· Nov 14
No es mi mejor dibujo pero me encanta. El pastel no lo domino 🤭
Dibujo a pastel inspirado en una obra de Robert Kelley ❤️
Dibujo a pastel inspirado en una obra de Robert Kelley ❤️
Reposted by Mari Carmen
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
ME/CFS Scandal Follow up
The ME/CFS scandal goes much deeper than my 27-minute explainer video. That was just an introduction — how for decades patients were told…
medium.com
January 19, 2026 at 7:53 AM
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Reposted by Mari Carmen
las discapacidades dinámicas existen, las sillas de ruedas no solo se usan porque no puedas usar las piernas, estoy paseando una silla de ruedas porque come menos que un perro, etc etc
January 16, 2026 at 9:50 AM
las discapacidades dinámicas existen, las sillas de ruedas no solo se usan porque no puedas usar las piernas, estoy paseando una silla de ruedas porque come menos que un perro, etc etc
Reposted by Mari Carmen
he vuelto a alquilar la silla de ruedas y el modo en el que me mira la gente cuando me ve caminando al lado de ella es un poema. ser disca también es sentir todo el tiempo que tienes que darle explicaciones a todo el mundo
January 16, 2026 at 9:48 AM
he vuelto a alquilar la silla de ruedas y el modo en el que me mira la gente cuando me ve caminando al lado de ella es un poema. ser disca también es sentir todo el tiempo que tienes que darle explicaciones a todo el mundo
Reposted by Mari Carmen
And here are the links:
▶️ Original Explainer Video (27 mins)
youtu.be/RiwX9Y0NbiQ?...
🗒️ Explainer Video Transcript
medium.com/@abrokenbatt...
✏️ New Follow up article
medium.com/@abrokenbatt...
▶️ Original Explainer Video (27 mins)
youtu.be/RiwX9Y0NbiQ?...
🗒️ Explainer Video Transcript
medium.com/@abrokenbatt...
✏️ New Follow up article
medium.com/@abrokenbatt...
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery
youtu.be
January 19, 2026 at 7:53 AM
And here are the links:
▶️ Original Explainer Video (27 mins)
youtu.be/RiwX9Y0NbiQ?...
🗒️ Explainer Video Transcript
medium.com/@abrokenbatt...
✏️ New Follow up article
medium.com/@abrokenbatt...
▶️ Original Explainer Video (27 mins)
youtu.be/RiwX9Y0NbiQ?...
🗒️ Explainer Video Transcript
medium.com/@abrokenbatt...
✏️ New Follow up article
medium.com/@abrokenbatt...
Reposted by Mari Carmen
"The other side" with what we know today = SCIENCE F**** FICTION.
The abuser playing victim is as old as depravation.
Medicine and scientists, wake the fuck up! This nonsense by these people is hindering your own field most of all! It is not to #pwME to put this right! Clean your own house!
The abuser playing victim is as old as depravation.
Medicine and scientists, wake the fuck up! This nonsense by these people is hindering your own field most of all! It is not to #pwME to put this right! Clean your own house!
January 18, 2026 at 7:05 PM
"The other side" with what we know today = SCIENCE F**** FICTION.
The abuser playing victim is as old as depravation.
Medicine and scientists, wake the fuck up! This nonsense by these people is hindering your own field most of all! It is not to #pwME to put this right! Clean your own house!
The abuser playing victim is as old as depravation.
Medicine and scientists, wake the fuck up! This nonsense by these people is hindering your own field most of all! It is not to #pwME to put this right! Clean your own house!
Reposted by Mari Carmen
7/ In the UK, some clinical bodies (BACME) & doctors use dysregulation to reframe the theory for CBT & exercise, framing illness as partially psychological & holistic. Anthropologically, this mirrors stress, conversion & idioms of distress: coherent narratives, but not evidentiary in a medical sense
January 19, 2026 at 12:51 AM
7/ In the UK, some clinical bodies (BACME) & doctors use dysregulation to reframe the theory for CBT & exercise, framing illness as partially psychological & holistic. Anthropologically, this mirrors stress, conversion & idioms of distress: coherent narratives, but not evidentiary in a medical sense
🤭🤭 Es una 🎨 muy conocida de un 👨🏻🎨 también conocidísimo 😉
Buenos días 🤗 🤗
#PictdleRevisited #379 (2/6)
🎨🟥🟩⬜⬜⬜⬜
pictdle.com
Buenos días 🤗 🤗
#PictdleRevisited #379 (2/6)
🎨🟥🟩⬜⬜⬜⬜
pictdle.com
a woman is smiling in front of a screen with eltrecetv.com written on it
ALT: a woman is smiling in front of a screen with eltrecetv.com written on it
media.tenor.com
January 15, 2026 at 11:45 AM
🤭🤭 Es una 🎨 muy conocida de un 👨🏻🎨 también conocidísimo 😉
Buenos días 🤗 🤗
#PictdleRevisited #379 (2/6)
🎨🟥🟩⬜⬜⬜⬜
pictdle.com
Buenos días 🤗 🤗
#PictdleRevisited #379 (2/6)
🎨🟥🟩⬜⬜⬜⬜
pictdle.com
Reposted by Mari Carmen
“I’ve met people who have had it for 10 years, 25 years. Some are bedridden, some can’t walk across the street. It’s stupid to call it chronic fatigue syndrome. It should be called the forever dead syndrome.”
Quote from Keith Jarrett on ME/CFS (more in image)
Quote from Keith Jarrett on ME/CFS (more in image)
January 13, 2026 at 3:14 AM
“I’ve met people who have had it for 10 years, 25 years. Some are bedridden, some can’t walk across the street. It’s stupid to call it chronic fatigue syndrome. It should be called the forever dead syndrome.”
Quote from Keith Jarrett on ME/CFS (more in image)
Quote from Keith Jarrett on ME/CFS (more in image)
No daba con el título 😅😅 cuando di con el 👨🏻🎨.
Iba muy confiada con el rojo JAJAJA 😂
Buen día 🤗 🤗
#PictdleRevisited #376 (4/6)
🎨🟥🟨🟨🟩⬜⬜
pictdle.com
Iba muy confiada con el rojo JAJAJA 😂
Buen día 🤗 🤗
#PictdleRevisited #376 (4/6)
🎨🟥🟨🟨🟩⬜⬜
pictdle.com
a woman in a black tank top is making a funny face in front of a sign that says ' a ' on it
ALT: a woman in a black tank top is making a funny face in front of a sign that says ' a ' on it
media.tenor.com
January 12, 2026 at 9:19 AM
No daba con el título 😅😅 cuando di con el 👨🏻🎨.
Iba muy confiada con el rojo JAJAJA 😂
Buen día 🤗 🤗
#PictdleRevisited #376 (4/6)
🎨🟥🟨🟨🟩⬜⬜
pictdle.com
Iba muy confiada con el rojo JAJAJA 😂
Buen día 🤗 🤗
#PictdleRevisited #376 (4/6)
🎨🟥🟨🟨🟩⬜⬜
pictdle.com
Reposted by Mari Carmen
#medsky
ME/CFS is an umbrella term so it's important to stratify patients.
But all Dr's need to understand the danger of exercise in these patient groups.
Pushing patients to exercise has led to dire outcomes.
ME/CFS is an umbrella term so it's important to stratify patients.
But all Dr's need to understand the danger of exercise in these patient groups.
Pushing patients to exercise has led to dire outcomes.
More evidence that exercise should be approached with extreme caution in people with #MECFS , as well as those with #longcovid or other chronic illnesses who experience post-exertional malaise: www.medscape.com/viewarticle/...
Multiple Abnormal Responses to Exertion Seen in ME/CFS
Findings underscore the risk for graded exercise in people with post-exertional malaise and point to careful activity pacing as a safer approach.
www.medscape.com
January 9, 2026 at 6:01 PM
#medsky
ME/CFS is an umbrella term so it's important to stratify patients.
But all Dr's need to understand the danger of exercise in these patient groups.
Pushing patients to exercise has led to dire outcomes.
ME/CFS is an umbrella term so it's important to stratify patients.
But all Dr's need to understand the danger of exercise in these patient groups.
Pushing patients to exercise has led to dire outcomes.
Reposted by Mari Carmen
🧵
Speaking Your Body’s Truth: Talking to Providers About Post-Exertional Symptom Exacerbation
onelifelivedwell.substack.com/p/speaking-y...
From a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid
#LongCovid #MEcfs #CFS #PwME #POTS #PEM #PESE
1/
Speaking Your Body’s Truth: Talking to Providers About Post-Exertional Symptom Exacerbation
onelifelivedwell.substack.com/p/speaking-y...
From a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid
#LongCovid #MEcfs #CFS #PwME #POTS #PEM #PESE
1/
January 9, 2026 at 10:13 PM
🧵
Speaking Your Body’s Truth: Talking to Providers About Post-Exertional Symptom Exacerbation
onelifelivedwell.substack.com/p/speaking-y...
From a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid
#LongCovid #MEcfs #CFS #PwME #POTS #PEM #PESE
1/
Speaking Your Body’s Truth: Talking to Providers About Post-Exertional Symptom Exacerbation
onelifelivedwell.substack.com/p/speaking-y...
From a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid
#LongCovid #MEcfs #CFS #PwME #POTS #PEM #PESE
1/
"Entiendo que el movimiento suele ser beneficioso, pero en mi caso, la actividad tiende a causar un empeoramiento de los síntomas después del esfuerzo. Esto es diferente al desacondicionamiento. ¿Podríamos explorar el ritmo o la conservación de energía?”
#CovidProlongado #PEM #MEcfs #PENE #pwME
#CovidProlongado #PEM #MEcfs #PENE #pwME
January 10, 2026 at 9:22 AM
"Entiendo que el movimiento suele ser beneficioso, pero en mi caso, la actividad tiende a causar un empeoramiento de los síntomas después del esfuerzo. Esto es diferente al desacondicionamiento. ¿Podríamos explorar el ritmo o la conservación de energía?”
#CovidProlongado #PEM #MEcfs #PENE #pwME
#CovidProlongado #PEM #MEcfs #PENE #pwME
Reposted by Mari Carmen
4/
“For conditions like Long COVID and ME/CFS, pushing through can be harmful. I’d like to prioritize my function over fitness right now and focus on stabilizing symptoms before adding intensity.”
#Postcovid #MEcfs #LongCovid #PwME #CFS
“For conditions like Long COVID and ME/CFS, pushing through can be harmful. I’d like to prioritize my function over fitness right now and focus on stabilizing symptoms before adding intensity.”
#Postcovid #MEcfs #LongCovid #PwME #CFS
January 10, 2026 at 12:41 AM
4/
“For conditions like Long COVID and ME/CFS, pushing through can be harmful. I’d like to prioritize my function over fitness right now and focus on stabilizing symptoms before adding intensity.”
#Postcovid #MEcfs #LongCovid #PwME #CFS
“For conditions like Long COVID and ME/CFS, pushing through can be harmful. I’d like to prioritize my function over fitness right now and focus on stabilizing symptoms before adding intensity.”
#Postcovid #MEcfs #LongCovid #PwME #CFS
¡BUM! 🎉🎉🎉🎉
No me lo creo ni yo jajajaja 😂
Buen día 🤗 🤗
#PictdleRevisited #372 (1/6)
🎨🟩⬜⬜⬜⬜⬜
pictdle.com
No me lo creo ni yo jajajaja 😂
Buen día 🤗 🤗
#PictdleRevisited #372 (1/6)
🎨🟩⬜⬜⬜⬜⬜
pictdle.com
a painting of a woman in a yellow dress
ALT: a painting of a woman in a yellow dress
media.tenor.com
January 8, 2026 at 7:08 AM
¡BUM! 🎉🎉🎉🎉
No me lo creo ni yo jajajaja 😂
Buen día 🤗 🤗
#PictdleRevisited #372 (1/6)
🎨🟩⬜⬜⬜⬜⬜
pictdle.com
No me lo creo ni yo jajajaja 😂
Buen día 🤗 🤗
#PictdleRevisited #372 (1/6)
🎨🟩⬜⬜⬜⬜⬜
pictdle.com
Reposted by Mari Carmen
I was diagnosed with POTS years before COVID
When the first cases of Long Covid were reported, I thought we would see breakthroughs in POTS, MCAS, ME/CFS and more.
I assumed the problem was too big to ignore.
Unfortunately I was wrong, and most LC patients have been abandoned like the rest of us.
When the first cases of Long Covid were reported, I thought we would see breakthroughs in POTS, MCAS, ME/CFS and more.
I assumed the problem was too big to ignore.
Unfortunately I was wrong, and most LC patients have been abandoned like the rest of us.
Medscape: Where Is the Medical Home for Postinfectious Illness?
"COVID pandemic brought a surge of more patients with POTS & infection-associated chronic illness. What had once felt like a rare or niche diagnosis now seemed to be everywhere, impossible to ignore"
www.medscape.com/viewarticle/...
"COVID pandemic brought a surge of more patients with POTS & infection-associated chronic illness. What had once felt like a rare or niche diagnosis now seemed to be everywhere, impossible to ignore"
www.medscape.com/viewarticle/...
Where Is the Medical Home for Postinfectious Illness?
A rheumatologist calls for greater awareness among her colleagues but also emphasizes that these patients require multidisciplinary care.
www.medscape.com
January 7, 2026 at 5:24 AM
I was diagnosed with POTS years before COVID
When the first cases of Long Covid were reported, I thought we would see breakthroughs in POTS, MCAS, ME/CFS and more.
I assumed the problem was too big to ignore.
Unfortunately I was wrong, and most LC patients have been abandoned like the rest of us.
When the first cases of Long Covid were reported, I thought we would see breakthroughs in POTS, MCAS, ME/CFS and more.
I assumed the problem was too big to ignore.
Unfortunately I was wrong, and most LC patients have been abandoned like the rest of us.
Después de unos días vuelvo a la rutina del #pictdle ❤️❤️
En un principio ni idea, esta 🎨 la descubrí con este juego 😀😀, creo que fácil no es 😉
Buenos días y feliz año 🤗🤗
#PictdleRevisited #371 (2/6)
🎨🟥🟩⬜⬜⬜⬜
pictdle.com
En un principio ni idea, esta 🎨 la descubrí con este juego 😀😀, creo que fácil no es 😉
Buenos días y feliz año 🤗🤗
#PictdleRevisited #371 (2/6)
🎨🟥🟩⬜⬜⬜⬜
pictdle.com
a woman is peeking out of a door and saying `` i 'm back '' while holding a book .
ALT: a woman is peeking out of a door and saying `` i 'm back '' while holding a book .
media.tenor.com
January 7, 2026 at 8:55 AM
Después de unos días vuelvo a la rutina del #pictdle ❤️❤️
En un principio ni idea, esta 🎨 la descubrí con este juego 😀😀, creo que fácil no es 😉
Buenos días y feliz año 🤗🤗
#PictdleRevisited #371 (2/6)
🎨🟥🟩⬜⬜⬜⬜
pictdle.com
En un principio ni idea, esta 🎨 la descubrí con este juego 😀😀, creo que fácil no es 😉
Buenos días y feliz año 🤗🤗
#PictdleRevisited #371 (2/6)
🎨🟥🟩⬜⬜⬜⬜
pictdle.com
Reposted by Mari Carmen
May 2026 be the year that with a bit of imagination and new tech research make such damage 'visible'. Exactly like it happened with MS at some point.
January 3, 2026 at 10:39 AM
May 2026 be the year that with a bit of imagination and new tech research make such damage 'visible'. Exactly like it happened with MS at some point.
+ alcohol intolerance. Those 4 things were like immediate signs, overnight (and the first time I had them in 40y). Today I would be able to self-diagnose myself in 3 minutes if i listened to my complaints on day 1...
They say #ME is complex when they mean total lack of medical awareness.
They say #ME is complex when they mean total lack of medical awareness.
January 3, 2026 at 11:22 AM
Reposted by Mari Carmen
Diagnosing and identifying ME can be actually brutally easy if you know just a bit the list of most common symptoms.
January 3, 2026 at 10:33 AM
Diagnosing and identifying ME can be actually brutally easy if you know just a bit the list of most common symptoms.
Era difícil a la primera 😅, cuanta cosa 🤭
Buenos días 🤗 🤗
#PictdleRevisited #367 (4/6)
🎨🟥🟨🟨🟩⬜⬜
pictdle.com
Buenos días 🤗 🤗
#PictdleRevisited #367 (4/6)
🎨🟥🟨🟨🟩⬜⬜
pictdle.com
a person standing on a wooden floor with the words me muero written on the floor
ALT: a person standing on a wooden floor with the words me muero written on the floor
media.tenor.com
January 3, 2026 at 9:13 AM
Era difícil a la primera 😅, cuanta cosa 🤭
Buenos días 🤗 🤗
#PictdleRevisited #367 (4/6)
🎨🟥🟨🟨🟩⬜⬜
pictdle.com
Buenos días 🤗 🤗
#PictdleRevisited #367 (4/6)
🎨🟥🟨🟨🟩⬜⬜
pictdle.com
Reposted by Mari Carmen
Bastante Rafael por hoy.
Sabéis de donde es esto?
Sabéis de donde es esto?
January 1, 2026 at 8:47 PM
Bastante Rafael por hoy.
Sabéis de donde es esto?
Sabéis de donde es esto?