Patient Experience Library
@patientlibrary.bsky.social
Open access evidence base for patient experience, lived experience, patient/public involvement. www.patientlibrary.net
Reposted by Patient Experience Library
Two of our volunteers spoke to the BBC about the government's announcement that The National Covid Memorial Wall will be made permanent - and of the Wall's importance in bridging institutional accountability with public grief. ❤️
The Covid tribute wall 'bridging accountability with grief'
The half-mile stretch of red hearts along the South Bank will be preserved as a permanent memorial.
www.bbc.co.uk
November 25, 2025 at 3:38 PM
Two of our volunteers spoke to the BBC about the government's announcement that The National Covid Memorial Wall will be made permanent - and of the Wall's importance in bridging institutional accountability with public grief. ❤️
Reposted by Patient Experience Library
Drug industry payments to groups of influential MPs—“the next great parliamentary scandal?”
Matthew Limb @bmj.com
www.bmj.com/content/391/...
Access @patientlibrary.bsky.social's APPG Influence Tracker here: www.patientlibrary.net/cgi-bin/libr...
Matthew Limb @bmj.com
www.bmj.com/content/391/...
Access @patientlibrary.bsky.social's APPG Influence Tracker here: www.patientlibrary.net/cgi-bin/libr...
Drug industry payments to groups of influential MPs—“the next great parliamentary scandal?”
MPs and peers must act urgently to avert potential scandal from drug industry payments and connections to parliamentary interest groups, researchers have said.
A new study of pharmaceutical firms’ de...
www.bmj.com
November 25, 2025 at 10:15 AM
Drug industry payments to groups of influential MPs—“the next great parliamentary scandal?”
Matthew Limb @bmj.com
www.bmj.com/content/391/...
Access @patientlibrary.bsky.social's APPG Influence Tracker here: www.patientlibrary.net/cgi-bin/libr...
Matthew Limb @bmj.com
www.bmj.com/content/391/...
Access @patientlibrary.bsky.social's APPG Influence Tracker here: www.patientlibrary.net/cgi-bin/libr...
Reposted by Patient Experience Library
I am constantly so impressed with my local GP clinic. It is impossibly efficient. There is no relationship with an individual doctor - I don't want one - but the moment you have a concern about something they sort a call back that day or a walk-in appointment that week. They're just brilliant.
November 24, 2025 at 12:30 PM
I am constantly so impressed with my local GP clinic. It is impossibly efficient. There is no relationship with an individual doctor - I don't want one - but the moment you have a concern about something they sort a call back that day or a walk-in appointment that week. They're just brilliant.
Reposted by Patient Experience Library
ICYMI: Boris Johnson responded to the Covid Inquiry via his Telegraph column - he failed to apologise
Covid-19 Bereaved Families for Justice: "It is beyond contempt that he has chosen to respond to the Covid Inquiry by attacking the Covid Bereaved for "wrangling" about the deaths of our loved ones"
Covid-19 Bereaved Families for Justice: "It is beyond contempt that he has chosen to respond to the Covid Inquiry by attacking the Covid Bereaved for "wrangling" about the deaths of our loved ones"
November 24, 2025 at 2:09 PM
ICYMI: Boris Johnson responded to the Covid Inquiry via his Telegraph column - he failed to apologise
Covid-19 Bereaved Families for Justice: "It is beyond contempt that he has chosen to respond to the Covid Inquiry by attacking the Covid Bereaved for "wrangling" about the deaths of our loved ones"
Covid-19 Bereaved Families for Justice: "It is beyond contempt that he has chosen to respond to the Covid Inquiry by attacking the Covid Bereaved for "wrangling" about the deaths of our loved ones"
Reposted by Patient Experience Library
Reposted by Patient Experience Library
"My NHS colleagues & I weren’t willing to let the bodies pile high in their thousands. Boris no longer mentions them at all."
My piece on the responses to the UK Covid-UK Inquiry report that try to airbrush the dead away.
Sincere thanks, @theobserveruk.bsky.social.
observer.co.uk/news/nationa...
My piece on the responses to the UK Covid-UK Inquiry report that try to airbrush the dead away.
Sincere thanks, @theobserveruk.bsky.social.
observer.co.uk/news/nationa...
I’ll never forget the horror of the Covid wards | The Observer
observer.co.uk
November 23, 2025 at 9:18 AM
"My NHS colleagues & I weren’t willing to let the bodies pile high in their thousands. Boris no longer mentions them at all."
My piece on the responses to the UK Covid-UK Inquiry report that try to airbrush the dead away.
Sincere thanks, @theobserveruk.bsky.social.
observer.co.uk/news/nationa...
My piece on the responses to the UK Covid-UK Inquiry report that try to airbrush the dead away.
Sincere thanks, @theobserveruk.bsky.social.
observer.co.uk/news/nationa...
Reposted by Patient Experience Library
Reducing NHS waiting times for elective care
House of Commons Report finds despite spending £3.24bn on transforming diagnostic and surgical services, NHS England has missed its recovery targets, with 22% of patients waiting >6 weeks for diagnostic tests and patients on only 59% of clinical…
House of Commons Report finds despite spending £3.24bn on transforming diagnostic and surgical services, NHS England has missed its recovery targets, with 22% of patients waiting >6 weeks for diagnostic tests and patients on only 59% of clinical…
Reducing NHS waiting times for elective care
House of Commons Report finds despite spending £3.24bn on transforming diagnostic and surgical services, NHS England has missed its recovery targets, with 22% of patients waiting >6 weeks for diagnostic tests and patients on only 59% of clinical pathways being treated within 18 weeks of referral. Reducing NHS waiting times for elective care
innovationandimprovement.wordpress.com
November 24, 2025 at 9:23 AM
Reducing NHS waiting times for elective care
House of Commons Report finds despite spending £3.24bn on transforming diagnostic and surgical services, NHS England has missed its recovery targets, with 22% of patients waiting >6 weeks for diagnostic tests and patients on only 59% of clinical…
House of Commons Report finds despite spending £3.24bn on transforming diagnostic and surgical services, NHS England has missed its recovery targets, with 22% of patients waiting >6 weeks for diagnostic tests and patients on only 59% of clinical…
Reposted by Patient Experience Library
🚨New hospitals paper out today🚨
As covered in The Guardian (theguardian.com/society/2025...), today we published the final 'Hospital of the Future' paper.
This concluding essay distils the key themes and recommendations from across all three 'Hospital of the Future' reports.
As covered in The Guardian (theguardian.com/society/2025...), today we published the final 'Hospital of the Future' paper.
This concluding essay distils the key themes and recommendations from across all three 'Hospital of the Future' reports.
November 24, 2025 at 9:29 AM
🚨New hospitals paper out today🚨
As covered in The Guardian (theguardian.com/society/2025...), today we published the final 'Hospital of the Future' paper.
This concluding essay distils the key themes and recommendations from across all three 'Hospital of the Future' reports.
As covered in The Guardian (theguardian.com/society/2025...), today we published the final 'Hospital of the Future' paper.
This concluding essay distils the key themes and recommendations from across all three 'Hospital of the Future' reports.
Reposted by Patient Experience Library
1/ One of the privileges of writing 'It Takes A Village' with @ippr.org has been hearing from parents about what it’s really like raising healthy children today.
Together with a @publicfirst.bsky.social survey of 1,500+ parents, we held 6 focus groups across England.
Here are my key takeaways 👇
Together with a @publicfirst.bsky.social survey of 1,500+ parents, we held 6 focus groups across England.
Here are my key takeaways 👇
November 24, 2025 at 9:17 AM
1/ One of the privileges of writing 'It Takes A Village' with @ippr.org has been hearing from parents about what it’s really like raising healthy children today.
Together with a @publicfirst.bsky.social survey of 1,500+ parents, we held 6 focus groups across England.
Here are my key takeaways 👇
Together with a @publicfirst.bsky.social survey of 1,500+ parents, we held 6 focus groups across England.
Here are my key takeaways 👇
Not just politicians but parliament as a whole. As per our Into the Web report: pexlib.net?249750 showing transparency problems with commercial interests and All Party Parliamentary Groups. Our influence tracker shows the connections: www.appgtracker.net
November 21, 2025 at 8:51 PM
Not just politicians but parliament as a whole. As per our Into the Web report: pexlib.net?249750 showing transparency problems with commercial interests and All Party Parliamentary Groups. Our influence tracker shows the connections: www.appgtracker.net
This is why parliament needs to put its own house(s) in order. Our Into the Web report: pexlib.net?249750 shows transparency problems with commercial interests and All Party Parliamentary Groups. And our influence tracker brings connections into the light: www.appgtracker.net
November 20, 2025 at 4:54 PM
This is why parliament needs to put its own house(s) in order. Our Into the Web report: pexlib.net?249750 shows transparency problems with commercial interests and All Party Parliamentary Groups. And our influence tracker brings connections into the light: www.appgtracker.net
Reposted by Patient Experience Library
This week the Department of Health and Social Care has published the first Men's Health Strategy for England. Find out more on the hub below⬇️
www.pslhub.org/learn/organi... #MensHealth #MensHealthStrategy
www.pslhub.org/learn/organi... #MensHealth #MensHealthStrategy
Men's Health Strategy for England (19 November 2025)
This document includes the following strategic framework for the Men's Health Strategy:
www.pslhub.org
November 20, 2025 at 11:28 AM
This week the Department of Health and Social Care has published the first Men's Health Strategy for England. Find out more on the hub below⬇️
www.pslhub.org/learn/organi... #MensHealth #MensHealthStrategy
www.pslhub.org/learn/organi... #MensHealth #MensHealthStrategy
Reposted by Patient Experience Library
Really good to see this NB report & resource launched ✊
Congratulations-& thank you-to all involved @patientlibrary.bsky.social
In Ireland we don't even have an official list of all/cross-party parlaimentary groups, never mind any disclosures 😩
#COI #CDoH #WebOfInfluence
bsky.app/profile/pati...
Congratulations-& thank you-to all involved @patientlibrary.bsky.social
In Ireland we don't even have an official list of all/cross-party parlaimentary groups, never mind any disclosures 😩
#COI #CDoH #WebOfInfluence
bsky.app/profile/pati...
Does transparency matter between drug companies and politicians? Find out via our Into the Web report: pexlib.net?249750 And use our APPG Influence tracker to see who is connected with whom among health-related All Party Parliamentary Groups: www.appgtracker.net
November 20, 2025 at 10:09 AM
Really good to see this NB report & resource launched ✊
Congratulations-& thank you-to all involved @patientlibrary.bsky.social
In Ireland we don't even have an official list of all/cross-party parlaimentary groups, never mind any disclosures 😩
#COI #CDoH #WebOfInfluence
bsky.app/profile/pati...
Congratulations-& thank you-to all involved @patientlibrary.bsky.social
In Ireland we don't even have an official list of all/cross-party parlaimentary groups, never mind any disclosures 😩
#COI #CDoH #WebOfInfluence
bsky.app/profile/pati...
Reposted by Patient Experience Library
The #NHSProductivityCommission Call for Evidence is a chance for you to share your ideas about how productivity could be improved across hospital care, primary care, community care and mental health.
More information and guidance for responding ⬇️
https://bit.ly/4oHG9UY
More information and guidance for responding ⬇️
https://bit.ly/4oHG9UY
November 20, 2025 at 9:01 AM
The #NHSProductivityCommission Call for Evidence is a chance for you to share your ideas about how productivity could be improved across hospital care, primary care, community care and mental health.
More information and guidance for responding ⬇️
https://bit.ly/4oHG9UY
More information and guidance for responding ⬇️
https://bit.ly/4oHG9UY
Reposted by Patient Experience Library
On #WorldPhilosophyDay2025 learn about project EPIC: here is our website with details of our seminar series, our open access articles and books, our six case studies and many online resources for everyone epistemicinjusticein... #philsky #epistemicinjustice
November 20, 2025 at 8:00 AM
On #WorldPhilosophyDay2025 learn about project EPIC: here is our website with details of our seminar series, our open access articles and books, our six case studies and many online resources for everyone epistemicinjusticein... #philsky #epistemicinjustice
And this is why we need better transparency in parliamentary process and the NHS. As per our Into the Web report: pexlib.net?249750 and APPG Influence tracker showing who is connected with whom among health-related All Party Parliamentary Groups: www.appgtracker.net
November 19, 2025 at 6:04 PM
And this is why we need better transparency in parliamentary process and the NHS. As per our Into the Web report: pexlib.net?249750 and APPG Influence tracker showing who is connected with whom among health-related All Party Parliamentary Groups: www.appgtracker.net
Reposted by Patient Experience Library
Tomorrow is a hugely important day.
At 4pm, the UK Covid-19 Inquiry will publish its report into the UK’s pandemic decision-making & political governance.
I dearly hope our political leaders & decision-makers will listen, learn &, above all, act on the findings.
Because there will be a next time.
At 4pm, the UK Covid-19 Inquiry will publish its report into the UK’s pandemic decision-making & political governance.
I dearly hope our political leaders & decision-makers will listen, learn &, above all, act on the findings.
Because there will be a next time.
November 19, 2025 at 2:24 PM
Tomorrow is a hugely important day.
At 4pm, the UK Covid-19 Inquiry will publish its report into the UK’s pandemic decision-making & political governance.
I dearly hope our political leaders & decision-makers will listen, learn &, above all, act on the findings.
Because there will be a next time.
At 4pm, the UK Covid-19 Inquiry will publish its report into the UK’s pandemic decision-making & political governance.
I dearly hope our political leaders & decision-makers will listen, learn &, above all, act on the findings.
Because there will be a next time.
Reposted by Patient Experience Library
There's a remarkable amount of good quality evidence for the value of online patient feedback for the NHS.
Most feedback is positive (lifts morale, reduces burnout) + patients are better than staff at predicting hospital mortality.
My latest blog:
www.careopinion.org.uk/blogposts/13...
Most feedback is positive (lifts morale, reduces burnout) + patients are better than staff at predicting hospital mortality.
My latest blog:
www.careopinion.org.uk/blogposts/13...
Online patient feedback: where's the evidence?
Question from Care Opinion
www.careopinion.org.uk
November 19, 2025 at 3:33 PM
There's a remarkable amount of good quality evidence for the value of online patient feedback for the NHS.
Most feedback is positive (lifts morale, reduces burnout) + patients are better than staff at predicting hospital mortality.
My latest blog:
www.careopinion.org.uk/blogposts/13...
Most feedback is positive (lifts morale, reduces burnout) + patients are better than staff at predicting hospital mortality.
My latest blog:
www.careopinion.org.uk/blogposts/13...
Reposted by Patient Experience Library
This is such a worry for those of us with congenital heart conditions and our families in Scotland 🥲 both children and adults in Scotland are currently being sent to England for heart surgeries.
www.heraldscotland.com/news/2563013...
www.heraldscotland.com/news/2563013...
Patients transferred to England following safety review at Scottish hospital
Adults who were born with a heart condition are being transferred to England for surgery following a safety review of the dedicated Scottish centre.
www.heraldscotland.com
November 19, 2025 at 11:04 AM
This is such a worry for those of us with congenital heart conditions and our families in Scotland 🥲 both children and adults in Scotland are currently being sent to England for heart surgeries.
www.heraldscotland.com/news/2563013...
www.heraldscotland.com/news/2563013...
Does transparency matter between drug companies and politicians? Find out via our Into the Web report: pexlib.net?249750 And use our APPG Influence tracker to see who is connected with whom among health-related All Party Parliamentary Groups: www.appgtracker.net
November 19, 2025 at 11:13 AM
Does transparency matter between drug companies and politicians? Find out via our Into the Web report: pexlib.net?249750 And use our APPG Influence tracker to see who is connected with whom among health-related All Party Parliamentary Groups: www.appgtracker.net
Reposted by Patient Experience Library
If you live in England and have cancer, you don’t have to pay for NHS prescriptions, but you’ll need a medical exemption certificate. You’re eligible if you’re receiving treatment for: Cancer, effects of cancer, effects of cancer treatment. Find out more: www.cancerresearchuk.org/.../free-pre....
November 19, 2025 at 10:19 AM
If you live in England and have cancer, you don’t have to pay for NHS prescriptions, but you’ll need a medical exemption certificate. You’re eligible if you’re receiving treatment for: Cancer, effects of cancer, effects of cancer treatment. Find out more: www.cancerresearchuk.org/.../free-pre....
Reposted by Patient Experience Library
Having been involved in the roll out of social prescribing it’s good to see that there is indeed an impact. This team used sensible outcome measures and showed a small but definite change in multiple indicators.
Time to stop trying to answer daft questions about SP tho (eg reductions in admissions)
Time to stop trying to answer daft questions about SP tho (eg reductions in admissions)
ICYMI: A #mustread on #socialprescribing. First - at-scale - quant evaluation of effect in general practice i've seen. Small individual impacts, scaling significantly at population level. Congrats to @lukemunford.bsky.social and colleagues bjgp.org/content/earl...
Impact of the rollout of the national social prescribing link worker programme on population outcomes: evidence from a repeated cross-sectional survey
Background Social prescribing link workers have been rolled out nationally through the Additional Roles Reimbursement Scheme. Link workers connect people to advice and support to address the non-medic...
bjgp.org
November 19, 2025 at 9:11 AM
Having been involved in the roll out of social prescribing it’s good to see that there is indeed an impact. This team used sensible outcome measures and showed a small but definite change in multiple indicators.
Time to stop trying to answer daft questions about SP tho (eg reductions in admissions)
Time to stop trying to answer daft questions about SP tho (eg reductions in admissions)
Reposted by Patient Experience Library
The Royal Society for Public Health (RSPH) has published a report entitled: ‘Caring about Health’.
The report looks at the health outcomes of adults using social care services and how the system can have a more active role in health improvement.
Read More: buff.ly/yZNrmv8
@rsph.bsky.social
The report looks at the health outcomes of adults using social care services and how the system can have a more active role in health improvement.
Read More: buff.ly/yZNrmv8
@rsph.bsky.social
November 19, 2025 at 7:45 AM
The Royal Society for Public Health (RSPH) has published a report entitled: ‘Caring about Health’.
The report looks at the health outcomes of adults using social care services and how the system can have a more active role in health improvement.
Read More: buff.ly/yZNrmv8
@rsph.bsky.social
The report looks at the health outcomes of adults using social care services and how the system can have a more active role in health improvement.
Read More: buff.ly/yZNrmv8
@rsph.bsky.social
Reposted by Patient Experience Library
Not long ago, vaccines had largely bipartisan support. But they have become a divisive issue in the U.S., fueled by the COVID-19 pandemic and political policies that are increasingly questioning the safety and need for them.
time.com/7334826/repu...
time.com/7334826/repu...
How People Feel About Vaccines Is Now Largely Political
A new survey reveals growing divides on issues related to vaccines.
time.com
November 19, 2025 at 3:42 AM
Not long ago, vaccines had largely bipartisan support. But they have become a divisive issue in the U.S., fueled by the COVID-19 pandemic and political policies that are increasingly questioning the safety and need for them.
time.com/7334826/repu...
time.com/7334826/repu...
Great to hear! Another good way to let people know (incl. the staff who looked after you so well) is via Care Opinion (www.careopinion.org.uk) Worth posting there to spread good news! #PatientExperience
Care Opinion
The UK's independent non-profit feedback platform for health and social care. Share your story - help make our services better.
www.careopinion.org.uk
November 14, 2025 at 12:38 PM
Great to hear! Another good way to let people know (incl. the staff who looked after you so well) is via Care Opinion (www.careopinion.org.uk) Worth posting there to spread good news! #PatientExperience