Patient Experience Library
@patientlibrary.bsky.social
1.5K followers 1.6K following 120 posts
Open access evidence base for patient experience, lived experience, patient/public involvement. www.patientlibrary.net
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thementalelf.bsky.social
Welcome to the #CMHP25 Memorial Lecture given by Colette Lane, Professional Lead for Lived Experience Development at Surrey & Borders Partnership NHS Foundation Trust, who is going to talk about Embedding Lived Experience at the Heart of Transformation.

Colette is joining live via Zoom.

THREAD 🧵
Reposted by Patient Experience Library
scie.org.uk
SCIE, in partnership with The Access Group, is stepping forward to help lead the sector drive to define national standards of care.

Together, we are hosting roundtables in October and November to co-produce a framework that will support consistency, personalisation and quality across the country.
Towards a National Care Service - SCIE
SCIE, in partnership with The Access Group, is stepping forward to lead the sector drive to define national standards of care and shape the government’s reforms.
www.scie.org.uk
Reposted by Patient Experience Library
thisinstitute.cam.ac.uk
Can the new 10-Year Health Plan deliver on its ambitious promises? This BMJ Commission Analysis article examines the Plan along with priorities, delivery, health inequalities & workforce morale & asks what needs to change for it to work? Read the article: ths.im/3VIc23l @marydixonwoods.bsky.social
NHS signage in situ
Reposted by Patient Experience Library
ingyingram.bsky.social
Really good podcast from @thisinstitute.cam.ac.uk on health #coproduction + engagement. Discussion gets properly (yes, even in 30 mins!) into nuances, complexities, hopes + pitfalls

www.thisinstitute.cam.ac.uk/podcast/co-p...

#MedSky #PPI #QISky #codesign
Co-production and engagement with service users
www.thisinstitute.cam.ac.uk
Reposted by Patient Experience Library
ayph.bsky.social
We collaborated with South Yorkshire Digital Health Hub to develop a digital health charter for young adults. As a NHS 10 year health plan radical shift is analogue to digital, its vital we involve young people in digital health innovations that meet their distinctive needs.

youtu.be/HKU_3e7DES0
Beyond Assumptions - Young Adults and Digital Health
YouTube video by South Yorkshire Digital Health Hub
youtu.be
Reposted by Patient Experience Library
pifonline.bsky.social
We are very happy to announce the new-look PIF TICK website is now live.

The revamped PIF TICK website helps people find trusted health information and avoid dangerous misinformation.

See the updated PIF TICK website here: piftick.org.uk
Read the news story here: pifonline.org.uk/news/pif-tic...
Bright blue background. On the left reads: Health information you can trust with a woman holding the PIF TICK. On the right it reads: Search our certified PIF TICK creators by health topic on piftick.org.uk. Underneath are check boxes that read: Evidence-based. Up-to-date. Easy to use and understand.
Reposted by Patient Experience Library
researching-reb.bsky.social
Bluesky #youthinvolvement people! I am seeking young people (aged 10–24) to share their experiences as collaborators in health research for an upcoming book project. Participation can take part via chat, workshop, or writing (€20–25 voucher). Link to express interest: tinyurl.com/youthinhealt...
A visually bright poster that asks if you have ever been involved (or tried to be involved) in health research as a contributor? It asks if you want to be involved in providing feedback on an upcoming book, and outlines that participation requires you to be aged 10-24, speak english and have access to the internet. It outlines that taking part can involve a 1-1 chat, a group workshop or written feedback. The email to get involved is ResearchInvolvement.KH@outlook.com
Reposted by Patient Experience Library
quiteclare.bsky.social
More professional oversharing from me in the Irish Times today. Three years on, I look back at what I think I've learned from my miscarriage experiences.
It's paywalled, but I'll pull some of the major ideas below.

www.irishtimes.com/health/your-...
In hospital for my miscarriage surgery, I waited with two women checking in to give birth
There is compassion in good design. You wouldn’t have a wedding planner and an undertaker share a reception
www.irishtimes.com
patientlibrary.bsky.social
Ok many thanks. Haven't seen this before, but will check and correct. Thanks again!
patientlibrary.bsky.social
Hmm... all working fine our end! Have you got the date settings right? Alternatively, what browser are you using please? (Email us if it's easier - [email protected])
patientlibrary.bsky.social
Latest (August 2025) NHS England waiting lists data out today. What are the waiting times for the treatments you need at NHS Trusts near you? Find out here: www.patientlibrary.net/waitinglists #PatientExperience
Reposted by Patient Experience Library
sallygainsbury.bsky.social
Trump and pharma are lobbying gov hard to water-down the NHS’s ability to contain spending on new branded drugs. Today’s long read from me and the LSE’s Huseyin Naci sets out why the gov should hold firm to protect the health of the NHS and UK public nuffieldtrust.org.uk/news-item/th... >>
The tough choices at the heart of the government’s dispute with big pharma
The government has been locked in a dispute with pharmaceutical companies for a number of months over how much the NHS pays for new branded medicines. Sally Gainsbury and Huseyin Naci set out the issu...
nuffieldtrust.org.uk
patientlibrary.bsky.social
Patients often talk about medical care that has been excellent but communications and admin systems that have been poor. @hayleygullen.com tells her story of battling bureaucracy in the latest edition of our quarterly magazine. Get your copy here: pexlib.net?249293
Reposted by Patient Experience Library
thekingsfund.bsky.social
The social care system is not fit for purpose. Many people can't access the care and support they need and others are left facing catastrophic costs. Our new long read outlines the six key issues and the options cited to tackle them. https://bit.ly/3VPOdH3
Fixing Social Care: The Six Key Problems And How To Tackle Them
Different people have different opinions about what’s ‘wrong’ with social care and how to fix it. This long read outlines the six key issues and the options cited to tackle them.
www.kingsfund.org.uk
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wrigleyfield.bsky.social
New podcast episode where I talk about what's going on with mortality in the US

A wide-ranging discussion of what happened before the pandemic & what's happened since then; racial disparities and how to get our heads around their scope; why things might be going so badly for Millennials & Gen Zers
Prof. Elizabeth Wrigley-Field Discusses Excess Deaths
Because the US death rate has exceeded that of 21 other high income countries for over four decades, an estimated 14.7 million US lives have been lost since1980.
www.thehealthcarepolicypodcast.com
Reposted by Patient Experience Library
drlizamorton.bsky.social
My new book 'Beyond the Medical Gaze: Practicing Psychologically Informed Healthcare' is NOW AVAILABLE ONLINE from @oxunipress.bsky.social
Available in print from 28 Nov 25.
Download: academic.oup.com/book/61406

#booksky #medsky #psychsky #chronicillness #healthcare #livedexperience
Beyond the Medical Gaze: Practicing Psychologically Informed Healthcare
Abstract. Long-term health conditions (LTCs) affect one-third of the global population and are associated with a heightened risk of depression, anxiety, me
academic.oup.com
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hayleygullen.com
NHS bureaucratic failures are on my mind a lot right now. Can you tell????

#cansky
Reposted by Patient Experience Library
thelancet.com
Maternal wellbeing has been described in the literature, but no consensus on a global definition is available 🌍

Introducing “Maternal wellbeing: a WHO definition and conceptual framework”, now in @lancetobgyn-wh.bsky.social 👉 tinyurl.com/ytj8umfs
Maternal wellbeing concepts. Copyrights: WHO/Adrien Liard.
patientlibrary.bsky.social
Patient Experience Quarterly out now. News, views and comment from the world of #PatientExperience and patient/public involvement. Plus our top picks from recent research studies and surveys. Get your copy here: pexlib.net?249293
Reposted by Patient Experience Library
healthwatchengland.bsky.social
Think there is no power in your feedback? Don't believe it can make a difference to services? We want to show you this isn't the case. Check out some recent examples of how your feedback made a difference - www.healthwatch.co.uk/our-impact
Your feedback can lead to change and help make care better for everyone
Reposted by Patient Experience Library
copronetwales.bsky.social
Our 12 week course, Co-production and You, has always been very highly rated by our previous students. Don't just take our word for it, check out the feedback below 👇
Spaces are starting to be booked - don't miss out! Find out more and book: buff.ly/Bede6gA
Reposted by Patient Experience Library
nursingtimes.bsky.social
New pill for advanced lung cancer recommended by NICE

A daily pill for treating an aggressive form of lung cancer that affects younger patients is being made available on the NHS in England. #NICE #lungcancer #NHS #cancer #nursing #healthcare #health

www.nursingtimes.net/cancer/new-p...
New pill for advanced lung cancer recommended by NICE
A daily pill for treating an aggressive form of lung cancer that affects younger patients is being made available on the NHS in England.
www.nursingtimes.net
patientlibrary.bsky.social
Referrals that vanish without trace. Phones that don’t get answered. Baffling jargon. @hayleygullen.com tells her story of battling NHS bureaucracy in the latest edition of #PatientExperience quarterly. Get your copy here: pexlib.net?249293