SarahCJR
@sarahcjr.bsky.social
Belfast born, living in the Netherlands. Former English teacher (Brit. & Brit Internat) in Long COVID/ME recovery.
Interests: LC advocacy, clean air classrooms, accessible learning & literature as a lens to view the world.
Interests: LC advocacy, clean air classrooms, accessible learning & literature as a lens to view the world.
Pinned
SarahCJR
@sarahcjr.bsky.social
· Mar 16
Thanks @berlin-buyers-club.bsky.social and @niethersteld.bsky.social for #longcovidawarenessday posters. Read my full FB post here www.facebook.com/share/p/18dQ... with appeals to @minvws.bsky.social @hscni.bsky.social and @hselive.bsky.social. Action needed now!
Reposted by SarahCJR
Prevention matters... New research confirms that young people who have been affected with COVID-19 twice, are twice as likely to develop Long-COVID...
time.com/7322188/covi...
time.com/7322188/covi...
Repeat COVID-19 Infections Could Double Your Risk of Long COVID
The latest study shows that getting repeat COVID-19 infections can come at a high health cost.
time.com
October 11, 2025 at 6:12 AM
Prevention matters... New research confirms that young people who have been affected with COVID-19 twice, are twice as likely to develop Long-COVID...
time.com/7322188/covi...
time.com/7322188/covi...
Reposted by SarahCJR
The Lancet @buonsenso.bsky.social
The take-home message from this study is clear: long COVID is here to stay, even in children, and can be exacerbated by reinfections and sustained by high viral circulation. Governments, health-care systems, and
#LongCovidKids
www.thelancet.com/journals/lan...
The take-home message from this study is clear: long COVID is here to stay, even in children, and can be exacerbated by reinfections and sustained by high viral circulation. Governments, health-care systems, and
#LongCovidKids
www.thelancet.com/journals/lan...
October 2, 2025 at 4:27 AM
The Lancet @buonsenso.bsky.social
The take-home message from this study is clear: long COVID is here to stay, even in children, and can be exacerbated by reinfections and sustained by high viral circulation. Governments, health-care systems, and
#LongCovidKids
www.thelancet.com/journals/lan...
The take-home message from this study is clear: long COVID is here to stay, even in children, and can be exacerbated by reinfections and sustained by high viral circulation. Governments, health-care systems, and
#LongCovidKids
www.thelancet.com/journals/lan...
Reposted by SarahCJR
Oxford BIOBANK + US FlatIron databases. Virus such as Covid and flu increase risk of cancer. New research suggests that respiratory viruses, including Covid-19 and influenza, can awaken dormant cancer cells and cause them to multiply and spread.
www.independent.co.uk/bulletin/lif...
www.independent.co.uk/bulletin/lif...
Link between flu and Covid-19 with cancer revealed
www.independent.co.uk
August 1, 2025 at 8:29 AM
Oxford BIOBANK + US FlatIron databases. Virus such as Covid and flu increase risk of cancer. New research suggests that respiratory viruses, including Covid-19 and influenza, can awaken dormant cancer cells and cause them to multiply and spread.
www.independent.co.uk/bulletin/lif...
www.independent.co.uk/bulletin/lif...
Reposted by SarahCJR
6. The great and tragic irony is that the more societies agree to ignore it, by prioritising a yearning for the status quo above all else, the more of a force multiplier our societies become for the virus.
Societies have become the virus's greatest ally.
/end
Societies have become the virus's greatest ally.
/end
September 25, 2025 at 9:46 AM
6. The great and tragic irony is that the more societies agree to ignore it, by prioritising a yearning for the status quo above all else, the more of a force multiplier our societies become for the virus.
Societies have become the virus's greatest ally.
/end
Societies have become the virus's greatest ally.
/end
Reposted by SarahCJR
Let me be clear. As someone who has been professionally involved with the biodefense / biosecurity sector for nearly 20 years, and has worked on biological risk analysis for Covid-19 since early 2020, reducing one's risk of being infected is not health anxiety. It's just smart.
September 26, 2025 at 9:42 AM
Let me be clear. As someone who has been professionally involved with the biodefense / biosecurity sector for nearly 20 years, and has worked on biological risk analysis for Covid-19 since early 2020, reducing one's risk of being infected is not health anxiety. It's just smart.
Reposted by SarahCJR
CO₂ levels are a proxy for ventilation. High CO₂ = insufficient ventilation; low CO₂ = ventilation working well.
Monitor. Ventilate. Filter. Stay home when sick.
More about our journey here: safeairschools.org/our-journey/
Monitor. Ventilate. Filter. Stay home when sick.
More about our journey here: safeairschools.org/our-journey/
a sign that says we are all in this together with a picture of the earth
ALT: a sign that says we are all in this together with a picture of the earth
media.tenor.com
September 10, 2025 at 9:40 AM
CO₂ levels are a proxy for ventilation. High CO₂ = insufficient ventilation; low CO₂ = ventilation working well.
Monitor. Ventilate. Filter. Stay home when sick.
More about our journey here: safeairschools.org/our-journey/
Monitor. Ventilate. Filter. Stay home when sick.
More about our journey here: safeairschools.org/our-journey/
Reposted by SarahCJR
Rosie is exhausted after doing 4 back-to-back interviews yesterday. This is the reality of living with #longcovid and #ME/CFS
Rosie wants to make sure that all wheelchair users can use the Glider (bus) with confidence.
“I value my independence and just want to be able to travel to and from college without any worry or stress."
www.bbc.co.uk/news/article...
“I value my independence and just want to be able to travel to and from college without any worry or stress."
www.bbc.co.uk/news/article...
Equality Commission: Student settles discrimination case against Translink
Rosie Pidgeon received £7,500 from Translink in the case which was settled without liability.
www.bbc.co.uk
September 11, 2025 at 6:49 AM
Rosie is exhausted after doing 4 back-to-back interviews yesterday. This is the reality of living with #longcovid and #ME/CFS
Reposted by SarahCJR
Reposted by SarahCJR
🏆 Winner (Ages 5–11): Clara M, Age 10
🎨 Poster Title: “Understand We Need Your Support”
Her moving poster, “Understand We Need Your Support,” uses bold imagery and heartfelt messaging to highlight the importance of empathy and support for children living with Long Covid.
🎨 Poster Title: “Understand We Need Your Support”
Her moving poster, “Understand We Need Your Support,” uses bold imagery and heartfelt messaging to highlight the importance of empathy and support for children living with Long Covid.
August 29, 2025 at 5:34 PM
🏆 Winner (Ages 5–11): Clara M, Age 10
🎨 Poster Title: “Understand We Need Your Support”
Her moving poster, “Understand We Need Your Support,” uses bold imagery and heartfelt messaging to highlight the importance of empathy and support for children living with Long Covid.
🎨 Poster Title: “Understand We Need Your Support”
Her moving poster, “Understand We Need Your Support,” uses bold imagery and heartfelt messaging to highlight the importance of empathy and support for children living with Long Covid.
Reposted by SarahCJR
🏆 Winner (Ages 12–21): Caitlin Glasgow, Age 14
🎨 Poster Title: “How To Help Someone With Long Covid”
We are proud to announce that Caitlin Glasgow, age 14, is the winner of the 12–21 age category in the Long Covid Kids Poster Design Competition 2025! 🎉
🎨 Poster Title: “How To Help Someone With Long Covid”
We are proud to announce that Caitlin Glasgow, age 14, is the winner of the 12–21 age category in the Long Covid Kids Poster Design Competition 2025! 🎉
August 29, 2025 at 5:34 PM
🏆 Winner (Ages 12–21): Caitlin Glasgow, Age 14
🎨 Poster Title: “How To Help Someone With Long Covid”
We are proud to announce that Caitlin Glasgow, age 14, is the winner of the 12–21 age category in the Long Covid Kids Poster Design Competition 2025! 🎉
🎨 Poster Title: “How To Help Someone With Long Covid”
We are proud to announce that Caitlin Glasgow, age 14, is the winner of the 12–21 age category in the Long Covid Kids Poster Design Competition 2025! 🎉
Reposted by SarahCJR
We advocate for universal air sensors in healthcare and education the technology exists to live stream the data as in Latvia.
Let’s make our Air Quality visible without doing so we cannot make the changes necessary for health and comfort .
#Cleantheair
Let’s make our Air Quality visible without doing so we cannot make the changes necessary for health and comfort .
#Cleantheair
August 22, 2025 at 9:04 AM
We advocate for universal air sensors in healthcare and education the technology exists to live stream the data as in Latvia.
Let’s make our Air Quality visible without doing so we cannot make the changes necessary for health and comfort .
#Cleantheair
Let’s make our Air Quality visible without doing so we cannot make the changes necessary for health and comfort .
#Cleantheair
Reposted by SarahCJR
"We urge practitioners to treat patient-generated data as a valuable resource. Without this shift, patients with contested illnesses like long Covid risk remaining stuck in a system where they have to be their own doctors."
Dr Jayadeva
www.bbc.co.uk/news/article...?
#LongCovid #PatientAdvocacy
Dr Jayadeva
www.bbc.co.uk/news/article...?
#LongCovid #PatientAdvocacy
Long Covid patients gaslit by GPs, Surrey study finds - BBC News
The University of Surrey study says patients faced "gatekeeping" of medical treatment from doctors.
www.bbc.co.uk
August 22, 2025 at 4:35 PM
"We urge practitioners to treat patient-generated data as a valuable resource. Without this shift, patients with contested illnesses like long Covid risk remaining stuck in a system where they have to be their own doctors."
Dr Jayadeva
www.bbc.co.uk/news/article...?
#LongCovid #PatientAdvocacy
Dr Jayadeva
www.bbc.co.uk/news/article...?
#LongCovid #PatientAdvocacy
Reposted by SarahCJR
Reposted by SarahCJR
From the British Medical Journal this week:
"A growing number of scientists believe that the SARS-CoV-2 virus may be subtly altering our immune systems. If correct, their hypothesis will change how we understand everything from RSV to shingles to sepsis."
www.bmj.com/content/390/...
"A growing number of scientists believe that the SARS-CoV-2 virus may be subtly altering our immune systems. If correct, their hypothesis will change how we understand everything from RSV to shingles to sepsis."
www.bmj.com/content/390/...
Why scientists are rethinking the immune effects of SARS-CoV-2
“Immunity debt,” a theory to explain the global surge in non-covid infections since pandemic restrictions were lifted, is increasingly being challenged by emerging evidence. Nick Tsergas reports
Myco...
www.bmj.com
August 21, 2025 at 9:58 AM
From the British Medical Journal this week:
"A growing number of scientists believe that the SARS-CoV-2 virus may be subtly altering our immune systems. If correct, their hypothesis will change how we understand everything from RSV to shingles to sepsis."
www.bmj.com/content/390/...
"A growing number of scientists believe that the SARS-CoV-2 virus may be subtly altering our immune systems. If correct, their hypothesis will change how we understand everything from RSV to shingles to sepsis."
www.bmj.com/content/390/...
Reposted by SarahCJR
The clear benefit of Covid-19 vaccination demonstrated in this study illustrates exactly why limiting access to vaccination is a significant negative to productivity and the economy in general.
www.news-medical.net/news/2025081...
www.news-medical.net/news/2025081...
Long COVID linked to lasting financial hardship and work disruption
While the economic impact of the COVID-19 pandemic continues to be widely studied and debated, the financial toll of the COVID-19 pandemic for individual patients is less understood.
www.news-medical.net
August 14, 2025 at 8:23 AM
The clear benefit of Covid-19 vaccination demonstrated in this study illustrates exactly why limiting access to vaccination is a significant negative to productivity and the economy in general.
www.news-medical.net/news/2025081...
www.news-medical.net/news/2025081...
Reposted by SarahCJR
It is #SevereMEDay
Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission.
We can play a key role in education of other health professionals, to advocate for safe management and care
@thecsp.bsky.social
www.physiosforme.com/severe-me
Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission.
We can play a key role in education of other health professionals, to advocate for safe management and care
@thecsp.bsky.social
www.physiosforme.com/severe-me
Severe ME | Physiosforme
www.physiosforme.com
August 8, 2025 at 7:18 PM
It is #SevereMEDay
Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission.
We can play a key role in education of other health professionals, to advocate for safe management and care
@thecsp.bsky.social
www.physiosforme.com/severe-me
Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission.
We can play a key role in education of other health professionals, to advocate for safe management and care
@thecsp.bsky.social
www.physiosforme.com/severe-me
Reposted by SarahCJR
1. I've said exactly this for quite some time. Expanding on Adrian's @sillyputty78.bsky.social point on X / Twitter here, Covid-19 has three distinct characteristics as a disease that enables it to be denied at a societal level.
August 10, 2025 at 5:59 PM
1. I've said exactly this for quite some time. Expanding on Adrian's @sillyputty78.bsky.social point on X / Twitter here, Covid-19 has three distinct characteristics as a disease that enables it to be denied at a societal level.
Reposted by SarahCJR
📣 Oproep aan de politiek: passend en structureel beleid voor mensen met PAIS.
Het is van groot belang dat er een duidelijke politieke keuze wordt gemaakt voor mensen met #PAIS. Wij roepen politieke partijen op om beleid voor PAIS mee te nemen in hun verkiezingsprogramma. 🧵
Het is van groot belang dat er een duidelijke politieke keuze wordt gemaakt voor mensen met #PAIS. Wij roepen politieke partijen op om beleid voor PAIS mee te nemen in hun verkiezingsprogramma. 🧵
July 18, 2025 at 10:05 AM
📣 Oproep aan de politiek: passend en structureel beleid voor mensen met PAIS.
Het is van groot belang dat er een duidelijke politieke keuze wordt gemaakt voor mensen met #PAIS. Wij roepen politieke partijen op om beleid voor PAIS mee te nemen in hun verkiezingsprogramma. 🧵
Het is van groot belang dat er een duidelijke politieke keuze wordt gemaakt voor mensen met #PAIS. Wij roepen politieke partijen op om beleid voor PAIS mee te nemen in hun verkiezingsprogramma. 🧵
Reposted by SarahCJR
someone has to say this otherwise you keep failing all trials & biomarkers.
nowadays #longcovid is (post-covid) #mecfs.
full stop.
all the rest are covid induced known complications (cardio events, diabetes, etc)
nowadays #longcovid is (post-covid) #mecfs.
full stop.
all the rest are covid induced known complications (cardio events, diabetes, etc)
July 19, 2025 at 8:42 AM
someone has to say this otherwise you keep failing all trials & biomarkers.
nowadays #longcovid is (post-covid) #mecfs.
full stop.
all the rest are covid induced known complications (cardio events, diabetes, etc)
nowadays #longcovid is (post-covid) #mecfs.
full stop.
all the rest are covid induced known complications (cardio events, diabetes, etc)
Reposted by SarahCJR
“#Publichealth researchers say strong evidence suggests preventing infection is key to preventing Long Covid, after they found more than a fifth of #children and young people were suffering ongoing symptoms following Covid-19.”
www.rnz.co.nz/news/nationa...
www.rnz.co.nz/news/nationa...
July 6, 2025 at 6:45 AM
“#Publichealth researchers say strong evidence suggests preventing infection is key to preventing Long Covid, after they found more than a fifth of #children and young people were suffering ongoing symptoms following Covid-19.”
www.rnz.co.nz/news/nationa...
www.rnz.co.nz/news/nationa...
Reposted by SarahCJR
This is a mistake. The current political situation in the US means that migrant farm workers are very unlikely to engage with any arm of the federal government. It is a huge risk to deprioritise H5N1.
www.cnn.com/2025/07/07/h...
www.cnn.com/2025/07/07/h...
CDC ends emergency response to H5N1 bird flu | CNN
The US Centers for Disease Control and Prevention says it has ended its emergency response to H5N1 bird flu, citing a drop in cases.
www.cnn.com
July 8, 2025 at 11:58 AM
This is a mistake. The current political situation in the US means that migrant farm workers are very unlikely to engage with any arm of the federal government. It is a huge risk to deprioritise H5N1.
www.cnn.com/2025/07/07/h...
www.cnn.com/2025/07/07/h...
Reposted by SarahCJR
Reposted by SarahCJR
Two days before the 2016 Brexit referendum, Daniel Hannan wrote about what life would be like in Britain on 24 June 2025. (The least accurate thing ever written about Brexit.)
A week ago, he wrote in the Telegraph that Britain is turning into a third world country.
He got paid for both articles.
A week ago, he wrote in the Telegraph that Britain is turning into a third world country.
He got paid for both articles.
June 24, 2025 at 6:46 AM
Two days before the 2016 Brexit referendum, Daniel Hannan wrote about what life would be like in Britain on 24 June 2025. (The least accurate thing ever written about Brexit.)
A week ago, he wrote in the Telegraph that Britain is turning into a third world country.
He got paid for both articles.
A week ago, he wrote in the Telegraph that Britain is turning into a third world country.
He got paid for both articles.
Reposted by SarahCJR
I have seen 2 patients in clinic today whose (severe) Long Covid started with an infection in 2024. Both had experienced previous COVID infections. This really hasn’t gone away 😢
June 20, 2025 at 5:00 PM
I have seen 2 patients in clinic today whose (severe) Long Covid started with an infection in 2024. Both had experienced previous COVID infections. This really hasn’t gone away 😢
Reposted by SarahCJR
Akiko Iwasaki’s latest paper on #LongCOVID being a neuroimmune disease (not a respiratory disease as it was initially thought).
Clear pathomechanisms proposed ⬇️
Clear pathomechanisms proposed ⬇️
Neuroimmune pathophysiology of long COVID
Although COVID-19 was originally considered a respiratory illness, it is now well established that SARS-CoV-2 infection can have far-reaching impacts on the nervous system. Neurological symptoms such...
onlinelibrary.wiley.com
June 21, 2025 at 8:43 AM
Akiko Iwasaki’s latest paper on #LongCOVID being a neuroimmune disease (not a respiratory disease as it was initially thought).
Clear pathomechanisms proposed ⬇️
Clear pathomechanisms proposed ⬇️