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Isabel Jordan (she/her)

@seastarbatita.bsky.social

1.8K followers 550 following 330 posts

New platform. New bio. Nerd. Disabled. Honesty is kindness. Even when it’s hard. #PatientsIncluded #ItDoesntHaveToHurt #PatientPartnership #PatientEngagement (avatar by @blackmudpuppy)

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Nov 23

Was honoured to work with @dawnrichards.bsky.social , Zal
Press, and K. Strain on this important paper on #PatientCompensation

pxjournal.org/journal/vol5...

#PatientPartnership

Patient partner compensation in research and health care: the patient perspective on why and how

As patient and family engagement activity broadens across the continuum of care and expands around the world, the question of compensation for an increasingly competent advisory community continues to...

pxjournal.org

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 22

Exact. Same. Feels.

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 22

Good point

Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 22

Sure… but it’s all drama, all the time here 😉

Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 21

It’s so weird

Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 21

Whoah. That totally tracks - the feeling seasick thing. Feel wobbly-bobbily when I stand up. I also have POTS and it kinda feels like that

Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 21

Huh… could it be from low frequency vibration? It feels kinda like pre-migraine ick

Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 21

So, southern coast friends… don’t know if feeling nauseous after an earthquake is a thing? Feeling weirdly nauseous/dizzy after this earthquake (5.1 - prob the biggest I’ve felt)

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 21

Was so loud here. Thought it was rockfall

Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 21

Yah. Yikes

Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 12

Fantastic paper on the need for culture change to emphasize the importance of pain relief in pediatric procedures. 'One-off' events can accumulate & increase trauma & fear - not just of the specific procedure but of healthcare interactions in general.

bmcmedicine.biomedcentral.com/articles/10....

Moments that matter: childhood pain treatment shapes pain for life—we can do better every time in every child - BMC Medicine

Background Needle procedures, such as vaccinations, blood draws, and intravenous cannulation, are the most frequent source of childhood pain, causing fear and reducing the uptake of medical procedures...

bmcmedicine.biomedcentral.com

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 5

My oldest has a (phone) appt at 2pm.. I'll be rushing them off the phone to make it on time. The tables have turned! ;)

Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 5

💥🎤

Dawn Richards, PhD @dawnrichards.bsky.social · Feb 5

Hey! For those of you working in the #PatientEngagement space, please set up meetings and workshops around times that work for the patient partners you work with/are inviting. Seeing too many 'this is the set date/time of our meeting/workshop' revolving around the academic team members only... /1

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 5

ICYMI, I recently posted about the controversy around language in patient partnership. I'm very much in the camp of using the terminology #PatientPartner
over other options & I'm curious how others feel. #PatientPartnership #PatientEngagement

modelingchange.blogspot.com/2025/01/what...

What's in a name?

"What's in a name? That which we call a rose by any other name would smell as sweet" William Shakespeare Romeo and Juliet, Act II, ...

modelingchange.blogspot.com

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Reposted by Isabel Jordan (she/her)

Solutions for Kids in Pain @kidsinpain.bsky.social · Jan 30

Thank you @dalhousieu.bsky.social for featuring SKIP in Dal Solutions & for highlighting the importance of Canada’s first Pediatric Pain Management health standard (tinyurl.com/a2bbs5r2) in improving children's pain! #ItDoesntHaveToHurt @seastarbatita.bsky.social

Read more: tinyurl.com/jvpj6vc3

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Feb 3

Holy cow — it takes a long time to shop when you’re checking every product to make sure it’s not from the US. #WorthIt

Isabel Jordan (she/her) @seastarbatita.bsky.social · Jan 23

I've been trying to get this done for soooooo long!

Isabel Jordan (she/her) @seastarbatita.bsky.social · Jan 23

It's been *waaay* to long in coming, but I've been wanting to write this piece on #PatientPartnership language for well over a year (2 years maybe?). In it I describe why I use the language I do.
#PatientEngagement #PatientOrientedResearch

modelingchange.blogspot.com/2025/01/what...

What's in a name?

"What's in a name? That which we call a rose by any other name would smell as sweet" William Shakespeare Romeo and Juliet, Act II, ...

modelingchange.blogspot.com

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Jan 9

lol re ‘mandatory masking’ in bc healthcare facilities. Was in the ER last night and nobody was wearing a mask except for one healthcare provider. Not. A. Soul.
Greeaaaat 🫤

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Dec 31

LolSOB yes

Isabel Jordan (she/her) @seastarbatita.bsky.social · Dec 31

Sidenote 2: we spent that New Year’s Eve camping with friends in the desert outside of Vegas.

Isabel Jordan (she/her) @seastarbatita.bsky.social · Dec 31

Sidenote 1: the previous fall my husband and I dressed as the Y2K bug and gave props to anyone who could figure it out 😝

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Dec 31

When I hear folks saying it was all a nothingburger, I know why that was the case.

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Dec 31

Here in our little town, I was part of a little grant-funded project putting on seminars for the public and businesses explaining to them why it was important that they downloaded all of those patches to make their equipment Y2K compatible.

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Isabel Jordan (she/her) @seastarbatita.bsky.social · Dec 31

I’ve got a hankering to binge read all of Cory Doctorow’s catalogue. Staring with the ones that I’ve missed and then going back to the ones that I’ve already read

Isabel Jordan (she/her) @seastarbatita.bsky.social · Dec 26

Everything that has transpired has done so according to my design