Saeed Jones
@theferocity.bsky.social
140K followers 2.7K following 20K posts
Poet and cultural critic. I co-host the podcast VIBE CHECK. Also, I teach creative writing at Harvard Medical School. BOOKS: Prelude to Bruise, How We Fight for Our Lives, Alive at the End of the World. THE PEOPLE’S PROJECT is out now.
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Reposted by Saeed Jones
pettyyeti.bsky.social
my autistic kid has a totally different year at school depending on who his teacher is. accommodation is so important for autism. my autistic kid is brilliant and funny and kind, and I wouldn't give him a "cure" if they found one. he just needs help navigating our neurotypically-normative world
theferocity.bsky.social
OOP, it’s always eugenics!! Damn.
Reposted by Saeed Jones
tressiemcphd.bsky.social
I think…people’s obsession with “a cause”…is precisely because autism’s genetic randomness is hard to stratify by social class……………..
audralmitchell.bsky.social
THERE. ARE. NO. 'CAUSES'. OF. AUTISM.

(other than being born as a member of Homo sapiens, which is a huge risk factor for turning out to be Autistic).
theferocity.bsky.social
Ohhhhhhh, yes. That’s a great point.
theferocity.bsky.social
I’m learning so much and grateful because I’ve been baffled.
Reposted by Saeed Jones
sophronia.bsky.social
There is so little support for disability in our medical system. Raising a kid with high needs means a huge amount of time and money and frustration, and everyone knows that the US medical system will not help and will not change. So people look for someone to blame.
theferocity.bsky.social
Whew, this was really helpful. And makes so much sense.
Reposted by Saeed Jones
nicolechung.bsky.social
I’m not autistic, just a parent to an autistic kid w/ fairly significant support needs, but I personally find it very frustrating to see so many people fixated on preventing, reducing, or “curing” autism and neurodiversity instead of talking about inclusion + getting folks whatever support they need
Reposted by Saeed Jones
pamacious.bsky.social
We're learning so much more about the experiences of nonverbal autistic people now, too, thanks to increasing awareness and assistive technology, and what really stood out to me was how much their intelligence, experiences, and suffering have been unheard and dismissed in favor of the parents' POV.
Reposted by Saeed Jones
allisonhantschel.com
Parents of autistic kids feel, honestly rightly, that the medical establishment doesn't respect or listen to them, especially to women, about their kids. Then that completely understandable feeling gets preyed upon by grifters who promise easy answers (it's the vaccines!) based on lies.
theferocity.bsky.social
Thank you for explaining this.
Reposted by Saeed Jones
theloaraxe.bsky.social
Parents of non-verbal children who are unable to care for themselves are massively overrepresented in the conversation about autism. And those kids can't really speak for themselves (without assistive technology). This tends to color talk about the entire spectrum.
Reposted by Saeed Jones
amyhoy.bsky.social
it's bc so many "autism parents" hate their children for being disabled.

it's never driven by autistic adults. autistic adults grow to be, at best, wary of "autism parents"
theferocity.bsky.social
I don’t exactly how to phrase this, but like… is autism that bad???? Like, why is it such a source of fear??? Of course there are challenges but you can be autistic and have a rich, fulfilling life! Many people do! I don’t understand the preoccupation.
theferocity.bsky.social
*throws phone across room*
solomonmissouri.bsky.social
Autism is in the penises ??????
theferocity.bsky.social
The show is good. But YIKES.
theferocity.bsky.social
Bitch, WHAT—
snowden.st
Yeah, this was in Dallas in the late 90s, but we had 4 armed men come in with real unloaded guns, and take a few of us aside. Said they were here to kill believers, and asked if we were believers. After we all said "Yes", they unmasked themselves as dads from church.
theferocity.bsky.social
Every senator who voted to confirm RFK, Jr. should get kicked in the stomach every single time he makes the news.
theferocity.bsky.social
The shark has been JUMPED.