Too Long Covid
@toolongcovid.bsky.social
Lived experience of Long Covid and parent of a child with LC. Wear a mask. Collective care. Aotearoa NZ.
#longcovid #mecfs #covidcareful #disability #toitutetiriti
https://buymeacoffee.com/toolong
#longcovid #mecfs #covidcareful #disability #toitutetiriti
https://buymeacoffee.com/toolong
Pinned
Too Long Covid
@toolongcovid.bsky.social
· Aug 13
When you're talking, reporting about Covid
It's DISINFO not to mention that the Covid pandemic is ongoing
We are not 'post Covid' in any way, shape or form
It's DISINFO not to mention that the Covid pandemic is ongoing
We are not 'post Covid' in any way, shape or form
House hunting with Long Covid adds another layer of stress. Open homes every weekend for around six weeks!
December 7, 2025 at 8:16 AM
House hunting with Long Covid adds another layer of stress. Open homes every weekend for around six weeks!
Reposted by Too Long Covid
A good 🧵…hits close to home
This is really interesting by @gabyhinsliff.bsky.social exploring idea men are more likely to leave if a partner gets sick. I cover this in my book and the wider context that disabled women are treated differently than men full stop, especially in dating. www.theguardian.com/lifeandstyle...
The truth about the ‘gender care gap’: are men really more likely to abandon their ill wives?
It’s one thing facing a major diagnosis; it’s quite another dealing with your partner pulling away. But does the stereotype match the reality?
www.theguardian.com
December 6, 2025 at 9:00 PM
A good 🧵…hits close to home
Reposted by Too Long Covid
I wrote about #LongCOVID stealing my lifelong favorite hobby of cycling, learning that e-bikes aren't "giving up" or "cheating," and how riding with assistance gave me back one of the greatest joys of my life. bit.ly/48ohIH5
The Greatest Feeling in the World
Seven months with an electric bike.
bit.ly
December 6, 2025 at 5:47 PM
I wrote about #LongCOVID stealing my lifelong favorite hobby of cycling, learning that e-bikes aren't "giving up" or "cheating," and how riding with assistance gave me back one of the greatest joys of my life. bit.ly/48ohIH5
Reposted by Too Long Covid
“In the new year, we’ll be launching our guide for GPs to help with the diagnosis, management, and treatment of Long Covid.”
This is good, it’s badly needed in NZ.
IMO this piece could’ve been stronger in its recs for prevention & more inclusive of other LC conditions, but I’m happy to see it.
This is good, it’s badly needed in NZ.
IMO this piece could’ve been stronger in its recs for prevention & more inclusive of other LC conditions, but I’m happy to see it.
Comment from Victoria University: The easiest way to prevent others contracting Long Covid is to stay home when sick, and for govt to increase paid leave
Long Covid's long reach
newsroom.co.nz
December 6, 2025 at 6:54 PM
“In the new year, we’ll be launching our guide for GPs to help with the diagnosis, management, and treatment of Long Covid.”
This is good, it’s badly needed in NZ.
IMO this piece could’ve been stronger in its recs for prevention & more inclusive of other LC conditions, but I’m happy to see it.
This is good, it’s badly needed in NZ.
IMO this piece could’ve been stronger in its recs for prevention & more inclusive of other LC conditions, but I’m happy to see it.
Reposted by Too Long Covid
How much is a life worth? What about that of a baby? A friend?
For too long, the current Government - led by Luxon, Seymour and Peters - have prioritised money and corporate donors/lobbyists over the lives of everyday Kiwis.
Please share and help spread awareness. Thanks, Tui.
#nzpol #kiwi
For too long, the current Government - led by Luxon, Seymour and Peters - have prioritised money and corporate donors/lobbyists over the lives of everyday Kiwis.
Please share and help spread awareness. Thanks, Tui.
#nzpol #kiwi
How much is a Kiwi's life worth?
How David Seymour, Brooke Van Velden and the right wing Coalition are prioritising money over Kiwi lives at every step
substack.com
December 6, 2025 at 8:51 PM
Reposted by Too Long Covid
For fucks sake, we are on the back of a global pandemic, with more waiting in the wings, we l8ve in a natural disaster prone country, and Maori have worse health outcomes across the country.
What the fuck is wrong with these fucking idiots?
What the fuck is wrong with these fucking idiots?
National Public Health Service faces job cuts to emergency management, pandemic preparedness, Māori health
National Public Health Service faces job cuts to emergency management, pandemic preparedness, Māori health
The staff cuts will see reductions to emergency management, pandemic preparedness and Māori health.
www.rnz.co.nz
December 5, 2025 at 5:08 AM
For fucks sake, we are on the back of a global pandemic, with more waiting in the wings, we l8ve in a natural disaster prone country, and Maori have worse health outcomes across the country.
What the fuck is wrong with these fucking idiots?
What the fuck is wrong with these fucking idiots?
Reposted by Too Long Covid
Such callous disregard for the public. Those in privileged positions better able to isolate without needing state support will fare much better than those already struggling to survive in this shoulder shrug reaction to new pandemics.
Reality is, it will likely be airborne.
Reminds me BVV #nzpol
Reality is, it will likely be airborne.
Reminds me BVV #nzpol
And if you can’t believe the NHS would publish something categorically stating that “it would be a waste of public health resources & capacity” to attempt to halt the spread of a new pandemic virus…
…then here’s the link so you can read it for yourself:
england.nhs.uk/long-read/fr...
…then here’s the link so you can read it for yourself:
england.nhs.uk/long-read/fr...
December 5, 2025 at 6:45 PM
Such callous disregard for the public. Those in privileged positions better able to isolate without needing state support will fare much better than those already struggling to survive in this shoulder shrug reaction to new pandemics.
Reality is, it will likely be airborne.
Reminds me BVV #nzpol
Reality is, it will likely be airborne.
Reminds me BVV #nzpol
Sounds like ideology to me. Just vibes-based decisions.
Public Health Agency faces job cuts to emergency management, pandemic preparedness, Māori health
Public Health Agency faces job cuts to emergency management, pandemic preparedness, Māori health
The staff cuts will see reductions to emergency management, pandemic preparedness and Māori health.
www.rnz.co.nz
December 5, 2025 at 7:34 PM
Sounds like ideology to me. Just vibes-based decisions.
Reposted by Too Long Covid
Kaden went into toxic shock syndrome after getting the flu & strep throat. He had heart, liver and kidney failure, resulting in his legs having to be amputated
Listen to the kids. Many of them take infectious disease more seriously than adults 💔
people.com/7-year-old-b...
Listen to the kids. Many of them take infectious disease more seriously than adults 💔
people.com/7-year-old-b...
7-Year-Old Boy Who Lost Legs After Complications from the Flu Urges Everyone to Get the Flu Vaccine
Kaden Stevenson contracted the life-changing case of the flu in December 2022. Within days, the 7-year-old boy developed toxic shock syndrome, and the infection went into his bloodstream, causing his ...
people.com
December 4, 2025 at 3:11 PM
Kaden went into toxic shock syndrome after getting the flu & strep throat. He had heart, liver and kidney failure, resulting in his legs having to be amputated
Listen to the kids. Many of them take infectious disease more seriously than adults 💔
people.com/7-year-old-b...
Listen to the kids. Many of them take infectious disease more seriously than adults 💔
people.com/7-year-old-b...
Reposted by Too Long Covid
"Never spread the lie in the headline" should be a hard rule of 21st century journalism.
Research shows that repeating lies helps to spread them, and people read headlines more than they read stories. - Gil Duran #nzpol
Research shows that repeating lies helps to spread them, and people read headlines more than they read stories. - Gil Duran #nzpol
New primary English, maths curriculum results exceeding expectations, ministry says
Labour MPs have hit back at David Seymour as he joked they were chasing Oscars.
www.rnz.co.nz
December 3, 2025 at 6:26 PM
"Never spread the lie in the headline" should be a hard rule of 21st century journalism.
Research shows that repeating lies helps to spread them, and people read headlines more than they read stories. - Gil Duran #nzpol
Research shows that repeating lies helps to spread them, and people read headlines more than they read stories. - Gil Duran #nzpol
Reposted by Too Long Covid
My brave and heroic daughter helped put together this open letter hoping to prevent others from suffering from Long Covid as she is, please sign
our.actionstation.org.nz/petitions/a-...
our.actionstation.org.nz/petitions/a-...
December 2, 2025 at 6:04 AM
My brave and heroic daughter helped put together this open letter hoping to prevent others from suffering from Long Covid as she is, please sign
our.actionstation.org.nz/petitions/a-...
our.actionstation.org.nz/petitions/a-...
Reposted by Too Long Covid
LLMs only use *any* kind of punctuation, etc, because of all the usually stolen works they were trained on.
when someone tells me not to use em dashes because AI uses em dashes
December 1, 2025 at 4:58 AM
LLMs only use *any* kind of punctuation, etc, because of all the usually stolen works they were trained on.
Reposted by Too Long Covid
If "pressure on household budgets" is the government's justification for setting rates caps of two to four per cent then there's zero excuse for not setting rent increase caps on landlords at the same level.
December 1, 2025 at 3:42 AM
If "pressure on household budgets" is the government's justification for setting rates caps of two to four per cent then there's zero excuse for not setting rent increase caps on landlords at the same level.
I started writing in 2015. I ended up with Long Covid in 2020.
The stories still swirl and build in my mind but I don't know whether I'll be able to write each day, whether my thoughts will arrange themselves neatly into words and sentences.
The stories still swirl and build in my mind but I don't know whether I'll be able to write each day, whether my thoughts will arrange themselves neatly into words and sentences.
December 1, 2025 at 9:37 PM
I started writing in 2015. I ended up with Long Covid in 2020.
The stories still swirl and build in my mind but I don't know whether I'll be able to write each day, whether my thoughts will arrange themselves neatly into words and sentences.
The stories still swirl and build in my mind but I don't know whether I'll be able to write each day, whether my thoughts will arrange themselves neatly into words and sentences.
Reposted by Too Long Covid
6 years since the first official covid case makes you think about a lot of things. Makes you wonder. Makes you wish things were a lot different. Makes you hopeless.
December 1, 2025 at 8:16 PM
6 years since the first official covid case makes you think about a lot of things. Makes you wonder. Makes you wish things were a lot different. Makes you hopeless.
Reposted by Too Long Covid
Disabled people were one of the first groups targeted by the Nazis.
They coined the term “useless eaters”.
They tested the gas chambers on us.
They knew most people wouldn’t fight to save our lives.
That’s why the President using the R slur is so dangerous.
We’re not expendable
They coined the term “useless eaters”.
They tested the gas chambers on us.
They knew most people wouldn’t fight to save our lives.
That’s why the President using the R slur is so dangerous.
We’re not expendable
December 1, 2025 at 4:36 AM
Disabled people were one of the first groups targeted by the Nazis.
They coined the term “useless eaters”.
They tested the gas chambers on us.
They knew most people wouldn’t fight to save our lives.
That’s why the President using the R slur is so dangerous.
We’re not expendable
They coined the term “useless eaters”.
They tested the gas chambers on us.
They knew most people wouldn’t fight to save our lives.
That’s why the President using the R slur is so dangerous.
We’re not expendable
Just so many exhausting things all the time by this coalition.
My family and friends have disengaged from politics completely.
My family and friends have disengaged from politics completely.
December 1, 2025 at 9:17 PM
Just so many exhausting things all the time by this coalition.
My family and friends have disengaged from politics completely.
My family and friends have disengaged from politics completely.
Reposted by Too Long Covid
NZ is now several steps behind every comparable jurisdiction on social media regulation.
We don’t need blanket bans for under-16s. We need:
• a regulator
• enforceable duties of care
• penalties for platforms who ignore NZ law
Delay has gendered consequences.
#nzpol
www.stuff.co.nz/politics/360...
We don’t need blanket bans for under-16s. We need:
• a regulator
• enforceable duties of care
• penalties for platforms who ignore NZ law
Delay has gendered consequences.
#nzpol
www.stuff.co.nz/politics/360...
December 1, 2025 at 8:45 PM
NZ is now several steps behind every comparable jurisdiction on social media regulation.
We don’t need blanket bans for under-16s. We need:
• a regulator
• enforceable duties of care
• penalties for platforms who ignore NZ law
Delay has gendered consequences.
#nzpol
www.stuff.co.nz/politics/360...
We don’t need blanket bans for under-16s. We need:
• a regulator
• enforceable duties of care
• penalties for platforms who ignore NZ law
Delay has gendered consequences.
#nzpol
www.stuff.co.nz/politics/360...
Flu and colds don’t breach your blood-brain barrier. SARS-CoV-2 does.
Flu and colds don’t shred your endothelial lining and increase your risk of blood clots. SARS-CoV-2 does.
Flu and colds don’t persist in your tissues. SARS-CoV-2 can.
Flu and colds don’t shred your endothelial lining and increase your risk of blood clots. SARS-CoV-2 does.
Flu and colds don’t persist in your tissues. SARS-CoV-2 can.
December 1, 2025 at 8:09 PM
Flu and colds don’t breach your blood-brain barrier. SARS-CoV-2 does.
Flu and colds don’t shred your endothelial lining and increase your risk of blood clots. SARS-CoV-2 does.
Flu and colds don’t persist in your tissues. SARS-CoV-2 can.
Flu and colds don’t shred your endothelial lining and increase your risk of blood clots. SARS-CoV-2 does.
Flu and colds don’t persist in your tissues. SARS-CoV-2 can.
Reposted by Too Long Covid
Trouble is they are all #AtlasNetwork shills, working for foreign corporate & Billionaire #takeover of our wealth & country #nzpol
November 29, 2025 at 10:00 AM
Trouble is they are all #AtlasNetwork shills, working for foreign corporate & Billionaire #takeover of our wealth & country #nzpol
Reposted by Too Long Covid
As I was alluding on this platform about a year ago over a refreshing bowl of Maggi Soup, embedding advertising in natural seeming conversations is pretty inevitable when extracting maximum value from the systems where there are no consumer guard-rails around quality or truth.
The end goal of advertising is to make it indistinguishable from one’s own wants and needs. That aim is finally going to be realized very soon.
Leak confirms OpenAI is preparing ads on ChatGPT for public roll out
OpenAI is now internally testing 'ads' inside ChatGPT that could redefine the web economy.
www.bleepingcomputer.com
November 29, 2025 at 8:03 PM
As I was alluding on this platform about a year ago over a refreshing bowl of Maggi Soup, embedding advertising in natural seeming conversations is pretty inevitable when extracting maximum value from the systems where there are no consumer guard-rails around quality or truth.
Reposted by Too Long Covid
I especially feel this when sociologists who study technology do this.
Y'all are supposed to take sociotechnical approaches to the study of technology. A throwaway AI-generated image does not help that credibility.
Y'all are supposed to take sociotechnical approaches to the study of technology. A throwaway AI-generated image does not help that credibility.
I don’t know if anyone else notices or cares, but when I see a presentation in which the speaker uses obviously generated-AI images to illustrate their slides, it makes me immediately less confident in whatever other content they’re presenting.
November 29, 2025 at 5:54 PM
I especially feel this when sociologists who study technology do this.
Y'all are supposed to take sociotechnical approaches to the study of technology. A throwaway AI-generated image does not help that credibility.
Y'all are supposed to take sociotechnical approaches to the study of technology. A throwaway AI-generated image does not help that credibility.
Reposted by Too Long Covid
From not allowing pets in rentals to closing down facilities to “moving people on” without giving them anywhere to go, to underfunding wrap around services, to deliberately ignoring the wealth distribution crisis, including ignoring the power/food oligarchies in NZ - our policy choices say it all.
Plunged into poverty: Hardship rising in Southland:
National, ACT & NZF failed economic policies are pushing more & more Kiwis into hardship, while the wealthy & foreign corporates get richer #nzpol
www.rnz.co.nz/news/nationa...
National, ACT & NZF failed economic policies are pushing more & more Kiwis into hardship, while the wealthy & foreign corporates get richer #nzpol
www.rnz.co.nz/news/nationa...
Plunged into poverty: Hardship rising in Southland
Social service providers say there's been an uptick in people needing support to feed their family, going without heating, living homeless or sharing shoes.
www.rnz.co.nz
November 29, 2025 at 5:52 PM
From not allowing pets in rentals to closing down facilities to “moving people on” without giving them anywhere to go, to underfunding wrap around services, to deliberately ignoring the wealth distribution crisis, including ignoring the power/food oligarchies in NZ - our policy choices say it all.