Too Long Covid 💚
@toolongcovid.bsky.social
Lived experience of Long Covid and parent of a child with LC. Wear a mask. Collective care. Aotearoa NZ.
#longcovid #mecfs #covidcareful #disability #toitutetiriti
https://buymeacoffee.com/toolong
#longcovid #mecfs #covidcareful #disability #toitutetiriti
https://buymeacoffee.com/toolong
Pinned
When you're talking, reporting about Covid
It's DISINFO not to mention that the Covid pandemic is ongoing
We are not 'post Covid' in any way, shape or form
It's DISINFO not to mention that the Covid pandemic is ongoing
We are not 'post Covid' in any way, shape or form
Reposted by Too Long Covid 💚
China is currently experiencing a significant outbreak of the H3N2 flu strain, the highly contagious so-called "Winter Vomiting Disease," which has overwhelmed hospitals across the country, particularly affecting children. Many are wondering if we could be facing a new, forthcoming pandemic.
Hospitals in China Have Been Overwhelmed By a New Virus in 2025
As the country of China experiences a debilitating outbreak of the H3N2 virus, many are wondering if this will balloon to a worldwide issue.
www.greenmatters.com
December 8, 2025 at 10:06 PM
China is currently experiencing a significant outbreak of the H3N2 flu strain, the highly contagious so-called "Winter Vomiting Disease," which has overwhelmed hospitals across the country, particularly affecting children. Many are wondering if we could be facing a new, forthcoming pandemic.
Reposted by Too Long Covid 💚
2 or more people interacting online...
99% of all internet traffic.
We are spectacular at making dumb fucking legislation in NZ.
Remember it's not the kids who will be affected, but every Kiwi - want to be online, you need to give your private information (for it to eventually stolen or traded).
99% of all internet traffic.
We are spectacular at making dumb fucking legislation in NZ.
Remember it's not the kids who will be affected, but every Kiwi - want to be online, you need to give your private information (for it to eventually stolen or traded).
December 9, 2025 at 3:34 AM
2 or more people interacting online...
99% of all internet traffic.
We are spectacular at making dumb fucking legislation in NZ.
Remember it's not the kids who will be affected, but every Kiwi - want to be online, you need to give your private information (for it to eventually stolen or traded).
99% of all internet traffic.
We are spectacular at making dumb fucking legislation in NZ.
Remember it's not the kids who will be affected, but every Kiwi - want to be online, you need to give your private information (for it to eventually stolen or traded).
Reposted by Too Long Covid 💚
"Some may be navigating how to ask for precautions from reluctant family members in order to attend holiday gatherings, while some may be experiencing dread around turning down invitations to events they're not comfortable attending."
www.oliviabelknaptherapy.com/post/navigat...
www.oliviabelknaptherapy.com/post/navigat...
Navigating Holidays While COVID Conscious
Phrases for the COVID conscious community to use when navigating precautions for holiday gatherings
www.oliviabelknaptherapy.com
December 9, 2025 at 3:26 AM
"Some may be navigating how to ask for precautions from reluctant family members in order to attend holiday gatherings, while some may be experiencing dread around turning down invitations to events they're not comfortable attending."
www.oliviabelknaptherapy.com/post/navigat...
www.oliviabelknaptherapy.com/post/navigat...
Reposted by Too Long Covid 💚
The Atlas Network has 589 think tanks in 103 countries that finance the hatred and hoaxes of the extreme right.
Its objective is to protect the privileges of capital owners.
#nzpol
Its objective is to protect the privileges of capital owners.
#nzpol
Atlas Network: Disinformation as a Weapon of Neoliberalism
The organization, founded in 1981, has 589 think tanks in 103 countries that finance the hatred and hoaxes of the extreme right. The objective: to protect the privileges of capital owners.
progressive.international
December 8, 2025 at 4:19 PM
The Atlas Network has 589 think tanks in 103 countries that finance the hatred and hoaxes of the extreme right.
Its objective is to protect the privileges of capital owners.
#nzpol
Its objective is to protect the privileges of capital owners.
#nzpol
Reposted by Too Long Covid 💚
Reposted by Too Long Covid 💚
Those of you who are noticing the homogenization of design &
color …
if you would like to learn more look up the book “chromophobia”
As well as any Art books on Surrealism, or Fascism & Art.
color …
if you would like to learn more look up the book “chromophobia”
As well as any Art books on Surrealism, or Fascism & Art.
December 7, 2025 at 11:10 PM
Those of you who are noticing the homogenization of design &
color …
if you would like to learn more look up the book “chromophobia”
As well as any Art books on Surrealism, or Fascism & Art.
color …
if you would like to learn more look up the book “chromophobia”
As well as any Art books on Surrealism, or Fascism & Art.
Reposted by Too Long Covid 💚
Mine too!! Please sign 👇🏼👇🏼
This cause is close to my heart - please sign: our.actionstation.org.nz/petitions/a-...
A Call for Safe Air and Masking in Healthcare Settings
We, the general public, and the undersigned clinicians, scientists, and health professionals, call for the urgent reinstatement of basic airborne-infection-control measures—clean indoor air and approp...
our.actionstation.org.nz
December 8, 2025 at 9:39 PM
Mine too!! Please sign 👇🏼👇🏼
Reposted by Too Long Covid 💚
Incidentally, are NZ political parties still posting, campaigning,or engaging on that hell site? Would check myself but I deliberately deleted my account back when I realised the disinformation & hate speech escalation was the whole Atlas Network point..🤔💭 #nzpol
Ok this is obviously a step in the right direction, but it's way, way to little. The EU should treat Musk as a hostile agent, and Twitter as one of his main attack vectors
December 8, 2025 at 6:23 PM
Incidentally, are NZ political parties still posting, campaigning,or engaging on that hell site? Would check myself but I deliberately deleted my account back when I realised the disinformation & hate speech escalation was the whole Atlas Network point..🤔💭 #nzpol
There's something really weird going on with this McSkimming stuff. Nats and Labour all trying to sweep it under the carpet.
December 9, 2025 at 12:11 AM
There's something really weird going on with this McSkimming stuff. Nats and Labour all trying to sweep it under the carpet.
😡😡
An OIA confirms it: the Ministry of Education are using AI - Copilot- to develop the new school curriculum. Article here, more as it develops. Please share widely: www.emilywrites.co.nz/yup-theyre-u...
#nzpol #kikorangi
#nzpol #kikorangi
Yup, they're using AI to develop the NZ curriculum
The Ministry of Education is using AI to develop the new curriculum for New Zealand students.
In a response to an Official Information Act request made by a member of the public and supplied to Emil...
www.emilywrites.co.nz
December 9, 2025 at 12:09 AM
😡😡
Reposted by Too Long Covid 💚
Covid and Reflux are common bed fellows. There are multiple mechanisms, but vagal injury and dysautonomia are its expertise
doi.org/10.1038/s415...
doi.org/10.1038/s415...
Esophageal motility disorders after COVID-19 infection - Scientific Reports
Scientific Reports - Esophageal motility disorders after COVID-19 infection
doi.org
December 7, 2025 at 8:57 PM
Covid and Reflux are common bed fellows. There are multiple mechanisms, but vagal injury and dysautonomia are its expertise
doi.org/10.1038/s415...
doi.org/10.1038/s415...
Reposted by Too Long Covid 💚
I made a formal complaint about this last week and WINZ had a manager call me within an hour to formally apologise. It was a training and IT issue that they are now resolving to prevent it happening again.
On the back of my struggles with WINZ today and in October, I'm bringing this back.
I'd say stopping someone's SLP without warning for a Regional Medical Advisor to verify their diagnosed, well-documented disability counts as a sanction. www.rnz.co.nz/news/nationa...
I'd say stopping someone's SLP without warning for a Regional Medical Advisor to verify their diagnosed, well-documented disability counts as a sanction. www.rnz.co.nz/news/nationa...
Sickness beneficiaries worried about potential for sanctions
One benefit recipient says threat to cut payments in 2015 led to worse health concerns.
www.rnz.co.nz
December 8, 2025 at 8:25 PM
I made a formal complaint about this last week and WINZ had a manager call me within an hour to formally apologise. It was a training and IT issue that they are now resolving to prevent it happening again.
"I did everything right"
People with Long Covid can be surprised that they had all the vaccines and still developed #longcovid
The only way to prevent Long Covid is to prevent Covid infections
People with Long Covid can be surprised that they had all the vaccines and still developed #longcovid
The only way to prevent Long Covid is to prevent Covid infections
December 8, 2025 at 10:47 PM
"I did everything right"
People with Long Covid can be surprised that they had all the vaccines and still developed #longcovid
The only way to prevent Long Covid is to prevent Covid infections
People with Long Covid can be surprised that they had all the vaccines and still developed #longcovid
The only way to prevent Long Covid is to prevent Covid infections
#pwLC People with Long Covid either lose their jobs or have to work fewer hours because of symptoms. If they need a benefit, they do not qualify for disability benefits.
#disability #pwME #dynamicdisability
#disability #pwME #dynamicdisability
December 8, 2025 at 10:45 PM
#pwLC People with Long Covid either lose their jobs or have to work fewer hours because of symptoms. If they need a benefit, they do not qualify for disability benefits.
#disability #pwME #dynamicdisability
#disability #pwME #dynamicdisability
Reposted by Too Long Covid 💚
I had multiple run ins with Lyme Disease. When it burrows in undiagnosed it can be some of the most unpleasant shit imaginable. I still have some lingering, Long Covid-ish bullshit from it.
I made the mistake of reading this story at Reddit where the comments are nothing but sneering dismissiveness
I made the mistake of reading this story at Reddit where the comments are nothing but sneering dismissiveness
Justin Timberlake 'Prioritizing His Health' After Lyme Disease Diagnosis, 'Grueling' Tour: Source (Exclusive)
Justin Timberlake is putting his health first. As his whirlwind 2025, which included the end of a two-year world tour and a shocking Lyme disease diagnosis, comes to a close, the singer and wife Jessi...
people.com
December 8, 2025 at 10:21 PM
I had multiple run ins with Lyme Disease. When it burrows in undiagnosed it can be some of the most unpleasant shit imaginable. I still have some lingering, Long Covid-ish bullshit from it.
I made the mistake of reading this story at Reddit where the comments are nothing but sneering dismissiveness
I made the mistake of reading this story at Reddit where the comments are nothing but sneering dismissiveness
Reposted by Too Long Covid 💚
Having worked in the DV sector here: this is unfortunately a correct statistic. Financial abuse needs to be listed here as well as this is quite common.
This is a horrific statistic: "One in three women in New Zealand have experienced physical, sexual, or coercive violence
from an intimate partner in their lifetimes. When
psychological abuse is added, it increases to one
in two women (55%)."
(from Manatū Wahine)
from an intimate partner in their lifetimes. When
psychological abuse is added, it increases to one
in two women (55%)."
(from Manatū Wahine)
December 8, 2025 at 9:18 PM
Having worked in the DV sector here: this is unfortunately a correct statistic. Financial abuse needs to be listed here as well as this is quite common.
They don't want to improve the economy *for us*.
- probably improving economy in 2026
Honestly this bunch will find some way to fuck it up
They’re too greedy. They see an improving economy and their eyes light up like a cash register.
Mark my words, they’re too inept for the economy to improve in 2026
Honestly this bunch will find some way to fuck it up
They’re too greedy. They see an improving economy and their eyes light up like a cash register.
Mark my words, they’re too inept for the economy to improve in 2026
December 8, 2025 at 10:26 PM
They don't want to improve the economy *for us*.
I know that one poll doesn't mean anything but still... heavy sighs.
December 8, 2025 at 7:24 PM
I know that one poll doesn't mean anything but still... heavy sighs.
Reposted by Too Long Covid 💚
I mean…Luxon has manoeuvred NZ to be on the side of the fascist war criminals. Think about that. Polls or no polls, this is how far-right the NZ public have silently been goose stepped. #nzpol
December 8, 2025 at 2:54 PM
I mean…Luxon has manoeuvred NZ to be on the side of the fascist war criminals. Think about that. Polls or no polls, this is how far-right the NZ public have silently been goose stepped. #nzpol
Reposted by Too Long Covid 💚
Luxon has never tried to ask a European to do anything in the month of September and it shows
2-3 weeks break for plebs over Xmas and New Year is not what’s fucking over our economy Christopher.
December 7, 2025 at 10:37 PM
Luxon has never tried to ask a European to do anything in the month of September and it shows
I need a good story-based game to dissociate with for a few hours
December 8, 2025 at 10:20 AM
I need a good story-based game to dissociate with for a few hours
Reposted by Too Long Covid 💚
It arose through a convergence of data signals across epidemiology, immunology, virology, pediatrics, and clinical practice. Taken as a whole, the evidence breaks the old frame.
The real lesson here has little to do with COVID.
6/7
The real lesson here has little to do with COVID.
6/7
December 8, 2025 at 3:21 AM
It arose through a convergence of data signals across epidemiology, immunology, virology, pediatrics, and clinical practice. Taken as a whole, the evidence breaks the old frame.
The real lesson here has little to do with COVID.
6/7
The real lesson here has little to do with COVID.
6/7
*Preventable* rise in child mortality
For the First Time This Century, Child Mortality Is Likely to Rise.
"For the first time in 25 years, child mortality rates for preventable diseases are projected to increase, after having declined for 25 years."
Source: archive.md/9AqXz
"For the first time in 25 years, child mortality rates for preventable diseases are projected to increase, after having declined for 25 years."
Source: archive.md/9AqXz
December 8, 2025 at 7:03 AM
*Preventable* rise in child mortality
Reposted by Too Long Covid 💚
"What we need is regulation and consequences. Whenever I have reported an account or comment for hate speech or bullying, my report has made no difference. The comment remains, the account still exists, and it’s up to me to block and move on, while that person or bot continues to spread hate."
December 8, 2025 at 5:48 AM
"What we need is regulation and consequences. Whenever I have reported an account or comment for hate speech or bullying, my report has made no difference. The comment remains, the account still exists, and it’s up to me to block and move on, while that person or bot continues to spread hate."