Vicki Singer
@vdsinger.bsky.social
accessibility coordinator (IAAP certified CPACC) at WUSTL PHS. disabled mama. cerebral palsy, soprano. gamer
Reposted by Vicki Singer
My area of St Louis needs donations to keep families and children fed during the shutdown. This is an urgent situation. You can donate here: ucityeducationfoundation.app.neoncrm.com/campaigns/uc...
UCEF | SDUC Community Food Drive
The School District of University City will host a Community Food Drive to help ensure that all families have access to essential food resources during the upcoming holiday season.
Donations will go d...
ucityeducationfoundation.app.neoncrm.com
October 30, 2025 at 2:49 AM
My area of St Louis needs donations to keep families and children fed during the shutdown. This is an urgent situation. You can donate here: ucityeducationfoundation.app.neoncrm.com/campaigns/uc...
Reposted by Vicki Singer
SNAP, the country's largest anti-hunger program, dates back to the Great Depression and has never been disrupted this way. Most recipients are seniors, families with kids, and those with disabilities.
'Uncharted territory': Ongoing shutdown threatens food aid for 42 million people
SNAP, the country's largest anti-hunger program, dates back to the Great Depression and has never been disrupted this way. Most recipients are seniors, families with kids, and those with disabilities.
n.pr
October 27, 2025 at 1:37 PM
SNAP, the country's largest anti-hunger program, dates back to the Great Depression and has never been disrupted this way. Most recipients are seniors, families with kids, and those with disabilities.
Always so proud of Sara and her work!
Public Health People: A conversation with pediatric-care researcher Sara Malone
schoolofpublichealth.washu.edu/public-healt...
schoolofpublichealth.washu.edu/public-healt...
Public Health People: A conversation with pediatric-care researcher Sara Malone - WashU School of Public Health
Sara Malone’s early work with sick children inspired her mission to improve pediatric hospital care.
schoolofpublichealth.washu.edu
October 26, 2025 at 8:05 PM
Always so proud of Sara and her work!
Reposted by Vicki Singer
Just watched this awesome youth and autistic led video at #PCORI2025 which provided a study update in plain language: notless.org/research/
Research – Different Not Less
notless.org
October 22, 2025 at 5:58 PM
Just watched this awesome youth and autistic led video at #PCORI2025 which provided a study update in plain language: notless.org/research/
Reposted by Vicki Singer
Breaking news: The Education Department is looking to move a $15 billion program supporting students with disabilities out of the agency as it works to close the agency altogether, a department official said.
Trump administration seeks to move special education to different agency
The move would affect the $15 billion IDEA program and comes as the administration seeks to close down the federal Education Department
wapo.st
October 21, 2025 at 8:42 PM
Breaking news: The Education Department is looking to move a $15 billion program supporting students with disabilities out of the agency as it works to close the agency altogether, a department official said.
Reposted by Vicki Singer
October 21, 2025 at 11:39 AM
Reposted by Vicki Singer
Protest posters are cool. Want to know what's also cool? Adding in alt-text so people who use screen readers can know what they say.
October 18, 2025 at 6:10 PM
Protest posters are cool. Want to know what's also cool? Adding in alt-text so people who use screen readers can know what they say.
Reposted by Vicki Singer
Trump approves FEMA aid for St. Louis tornado relief www.stltoday.com/news/local/g...
Trump approves FEMA aid for St. Louis tornado recovery
Sen. Eric Schmitt says Trump has authorized $71 million in aid to eastern Missouri communities affected by the deadly May 16 storm.
www.stltoday.com
June 10, 2025 at 2:12 AM
Trump approves FEMA aid for St. Louis tornado relief www.stltoday.com/news/local/g...
Reposted by Vicki Singer
If you work at a public university, your emails are likely FOIA-able.
If you mix your personal & work email accounts, it may make your personal email FOIA-able.
If you mix your personal & work email accounts, it may make your personal email FOIA-able.
tl;dr — this EO co-opts the language of open science to implement a system of political control wherein presidential appointees are given broad latitude to designate any number of reasonable scientific activities and inferences as scientific misconduct, and to penalize those involved accordingly.
Restoring Gold Standard Science
By the authority vested in me as President by the Constitution and the laws of the United States of America, including section 7301 of title 5, United
www.whitehouse.gov
May 25, 2025 at 1:34 PM
If you work at a public university, your emails are likely FOIA-able.
If you mix your personal & work email accounts, it may make your personal email FOIA-able.
If you mix your personal & work email accounts, it may make your personal email FOIA-able.
Reposted by Vicki Singer
Former president Joe Biden thanked Americans for their “love and support,” a day after it was disclosed he has been diagnosed with an aggressive form of prostate cancer.
“Cancer touches us all,” Biden wrote on X.
“Cancer touches us all,” Biden wrote on X.
Biden thanks Americans for ‘love and support’ after prostate cancer diagnosis
“Cancer touches us all,” the former president said as he spoke out for the first time since it was revealed he was diagnosed with aggressive form of prostate cancer.
www.washingtonpost.com
May 19, 2025 at 1:37 PM
Former president Joe Biden thanked Americans for their “love and support,” a day after it was disclosed he has been diagnosed with an aggressive form of prostate cancer.
“Cancer touches us all,” Biden wrote on X.
“Cancer touches us all,” Biden wrote on X.
Reposted by Vicki Singer
If your organization is sharing posts for Global Accessibility Awareness Day: Like all images shared on Bluesky, images in posts with the #GAAD or #GAAD2025 hashtags need alt text. Posts about accessibility come off as hollow and performative if they aren't accessible and don't have alt text.
May 14, 2025 at 2:55 PM
Reposted by Vicki Singer
New Robert Wood Johnson Evidence for Action Call for Research Proposals
#FundSocSci
www.evidenceforaction.org/research-adv...
#FundSocSci
www.evidenceforaction.org/research-adv...
April 24, 2025 at 5:17 PM
New Robert Wood Johnson Evidence for Action Call for Research Proposals
#FundSocSci
www.evidenceforaction.org/research-adv...
#FundSocSci
www.evidenceforaction.org/research-adv...
Reposted by Vicki Singer
If you're non-disabled and are furious about recent ableist comments, one material thing you can do is ask disabled and chronically ill people in your life if they need help with anything. They may say no and respect that, but we live in an ableist society where asking for help is hard.
April 19, 2025 at 9:21 PM
If you're non-disabled and are furious about recent ableist comments, one material thing you can do is ask disabled and chronically ill people in your life if they need help with anything. They may say no and respect that, but we live in an ableist society where asking for help is hard.
Reposted by Vicki Singer
A Startling Admission From a G.O.P. Senator: ‘We Are All Afraid’ www.nytimes.com/2025/04/17/u...
Senator Lisa Murkowski Makes Startling Admission as Trump Wages Retribution Campaign
Lisa Murkowski, a longtime senator from Alaska and an independent voice in an increasingly tribal party, has been the rare Republican on Capitol Hill willing to criticize President Trump’s actions.
www.nytimes.com
April 17, 2025 at 11:48 PM
A Startling Admission From a G.O.P. Senator: ‘We Are All Afraid’ www.nytimes.com/2025/04/17/u...
Reposted by Vicki Singer
Still fuming about that press conference. The way RFK Jr. talks about autism is not just scientifically wrong—it’s deeply offensive.
Calling autistic kids "damaged" or implying they’ve been "lost" or "stolen" doesn’t just spread misinformation—it dehumanizes real people.
Calling autistic kids "damaged" or implying they’ve been "lost" or "stolen" doesn’t just spread misinformation—it dehumanizes real people.
April 16, 2025 at 9:12 PM
Still fuming about that press conference. The way RFK Jr. talks about autism is not just scientifically wrong—it’s deeply offensive.
Calling autistic kids "damaged" or implying they’ve been "lost" or "stolen" doesn’t just spread misinformation—it dehumanizes real people.
Calling autistic kids "damaged" or implying they’ve been "lost" or "stolen" doesn’t just spread misinformation—it dehumanizes real people.
Reposted by Vicki Singer
MY SON'S AUTISM WAS NOT PREVENTABLE.
We know now why he has autism.
He has a gene deletion, 16p11.2
It's deeply insulting to say this was preventable.
www.simonssearchlight.org
We know now why he has autism.
He has a gene deletion, 16p11.2
It's deeply insulting to say this was preventable.
www.simonssearchlight.org
RFK Jr. Calls Autism ‘Preventable,’ Drawing Ire From Researchers www.nytimes.com/2025/04/16/u...
RFK Jr. Calls Autism ‘Preventable,’ Drawing Ire From Researchers
The health secretary said he would prioritize studies into environmental causes while harshly discounting other factors scientists say are likely contributing to rising rates of the condition.
www.nytimes.com
April 16, 2025 at 10:01 PM
MY SON'S AUTISM WAS NOT PREVENTABLE.
We know now why he has autism.
He has a gene deletion, 16p11.2
It's deeply insulting to say this was preventable.
www.simonssearchlight.org
We know now why he has autism.
He has a gene deletion, 16p11.2
It's deeply insulting to say this was preventable.
www.simonssearchlight.org
Reposted by Vicki Singer
Accessibility features take months.
Accessibility culture takes years.
Both are worth building
Accessibility culture takes years.
Both are worth building
December 27, 2024 at 6:20 PM
Accessibility features take months.
Accessibility culture takes years.
Both are worth building
Accessibility culture takes years.
Both are worth building
Reposted by Vicki Singer
An autistic, nonverbal teenage boy who was shot repeatedly by Idaho police from the other side of a chain link fence while he was holding a knife died Saturday after being removed from life support, his family said.
Intellectually disabled teen shot by Idaho police dies after being removed from life support
Relatives say an autistic and nonverbal teenage boy who was shot by Idaho police from the other side of a chain link fence while holding a knife has died.
bit.ly
April 12, 2025 at 8:12 PM
An autistic, nonverbal teenage boy who was shot repeatedly by Idaho police from the other side of a chain link fence while he was holding a knife died Saturday after being removed from life support, his family said.
Reposted by Vicki Singer
Sadly my best advice to young patients is to bring a male advocate with you if at all possible.
Even in 2025, having a man in the room can drastically improve outcomes.
Failing that, having ANY advocate is better than none. Don’t be afraid to speak up for yourself.
For more tips on advocacy:
Even in 2025, having a man in the room can drastically improve outcomes.
Failing that, having ANY advocate is better than none. Don’t be afraid to speak up for yourself.
For more tips on advocacy:
How to be an Effective Advocate for a Disabled Patient
Disabled patients are rightfully terrified of being hospitalized. We are stripped of our agency and control in a hospital environment. Having an effective advocate can vastly improve the experience.
www.disabledginger.com
March 31, 2025 at 3:56 AM
Sadly my best advice to young patients is to bring a male advocate with you if at all possible.
Even in 2025, having a man in the room can drastically improve outcomes.
Failing that, having ANY advocate is better than none. Don’t be afraid to speak up for yourself.
For more tips on advocacy:
Even in 2025, having a man in the room can drastically improve outcomes.
Failing that, having ANY advocate is better than none. Don’t be afraid to speak up for yourself.
For more tips on advocacy:
Reposted by Vicki Singer
The Trump Regime has deleted DOJ guidance to businesses on complying with the Americans With Disabilities Act.
25% of Americans live with a disability.
Trump cannot delete the ADA, and he cannot delete disabled Americans. We are not going back to asylums and sanitariums.
25% of Americans live with a disability.
Trump cannot delete the ADA, and he cannot delete disabled Americans. We are not going back to asylums and sanitariums.
The ADA Is Still Law | Matthew Cortland
Get more from Matthew Cortland on Patreon
www.patreon.com
March 19, 2025 at 9:56 PM
The Trump Regime has deleted DOJ guidance to businesses on complying with the Americans With Disabilities Act.
25% of Americans live with a disability.
Trump cannot delete the ADA, and he cannot delete disabled Americans. We are not going back to asylums and sanitariums.
25% of Americans live with a disability.
Trump cannot delete the ADA, and he cannot delete disabled Americans. We are not going back to asylums and sanitariums.
Reposted by Vicki Singer
new paper from our lab using implementation science while continuing to test the impact of participant-centered informed consent key information pages. TY to Siteman Cancer Center & WashU ICTS for their funding support. @ashhoustenotd.bsky.social et al bmjopen.bmj.com/content/15/3...
Accelerating implementation of visual key information to improve informed consent in research: a single-institution feasibility study and implementation testing
Objective Current consent processes often fail to communicate study information effectively and may lead to disparities in study participation. The 2018 Common Rule introduced a mandatory key informat...
bmjopen.bmj.com
March 19, 2025 at 9:14 AM
new paper from our lab using implementation science while continuing to test the impact of participant-centered informed consent key information pages. TY to Siteman Cancer Center & WashU ICTS for their funding support. @ashhoustenotd.bsky.social et al bmjopen.bmj.com/content/15/3...
Reposted by Vicki Singer
One thing is clear: Any plan to shut down the Education Department — and, indeed, the cuts and layoffs that have already happened — will disproportionately hurt students with disabilities
www.vox.com/policy/40359...
www.vox.com/policy/40359...
What dismantling the Education Department means for kids with disabilities
Trump’s education policy threatens everything from speech therapy to wheelchair access.
www.vox.com
March 13, 2025 at 1:12 PM
One thing is clear: Any plan to shut down the Education Department — and, indeed, the cuts and layoffs that have already happened — will disproportionately hurt students with disabilities
www.vox.com/policy/40359...
www.vox.com/policy/40359...
still struggling to adapt to BlueSky- but glad some people have found me here!
February 26, 2025 at 3:25 PM
still struggling to adapt to BlueSky- but glad some people have found me here!
trying to find the #DisCo #DisabilityCommunity on this app. Send help!
October 17, 2023 at 9:28 PM
trying to find the #DisCo #DisabilityCommunity on this app. Send help!