Desi Jones
@desirjones.bsky.social
1.6K followers
400 following
20 posts
Incoming Assistant Professor at UMD | autism, stigma, intersectionality, and Black neurodivergent experiences | Wellesley College Alumna | #ADHD cat mom
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Reposted by Desi Jones
Reposted by Desi Jones
Reposted by Desi Jones
Reposted by Desi Jones
Noah Sasson
@noahsasson.bsky.social
· Sep 8
Desi Jones
@desirjones.bsky.social
· Sep 8
“I’m Kind of Stuck in the Middle. I Don’t Know Where to Go”: Race, Autism, and Intersectional Stigma Among Black and White Autistic Adults | Autism in Adulthood
Background: Autistic adults frequently experience social stigma, which may be compounded by additional marginalized identities such as race, gender, and sexual orientation. Black autistic adults, in particular, may face unique challenges at the intersection of racial bias and autism stigma. However, the experiences of autistic people with intersecting marginalized identities remain underexplored in research, contributing to a limited understanding of stigma’s impact across diverse communities. Methods: We used qualitative methods to explore how intersecting identities shape autistic adults’ experiences of stigma and marginalization, with an emphasis on Black autistic adults. In total, 32 autistic adults (16 Black and 16 White) completed a semi-structured interview regarding their social experiences. Participants shared recent stories of peer exclusion, acceptance, discrimination, and support that they had experienced, as well as their feelings surrounding these events. We recorded and transcribed these interviews and used an inductive, or data-driven, approach to thematic analysis to identify salient themes in the data. Results: We generated three intersectional themes, which encompassed the unique impact of stigma on those with intersecting identities. Specifically, these themes included: (1) identity-based discrimination shaped by race, gender, and LGBTQ+ status; (2) challenges in obtaining and processing an autism diagnosis; and (3) difficulties navigating personal identity, particularly among Black autistic participants. While autistic adults broadly reported stigma experiences, Black participants often described layered forms of exclusion related to both their race and autistic traits. Across racial groups, women and LGBTQ+ participants also reported distinct forms of marginalization and erasure. Conclusion: These findings highlight how autism stigma intersects with other marginalized identities to shape social experiences. Black autistic adults, along with autistic women and LGBTQ+ autistic people, may encounter compounded barriers to acceptance, identity development, and belonging. These results underscore the need for more inclusive research and supports that attend to the diversity of autistic experiences.
www.liebertpub.com
Reposted by Desi Jones
Desi Jones
@desirjones.bsky.social
· Sep 8
Desi Jones
@desirjones.bsky.social
· Sep 8
Why Race and Autism Cannot Be Separated in Lived Experience
The comment (below from a substack user) suggests that being Black and being autistic are “two different things that don’t have a significant effect on each other.” This statement overlooks the realit...
phenomenallyautistic.substack.com
Desi Jones
@desirjones.bsky.social
· Sep 8
Desi Jones
@desirjones.bsky.social
· Sep 8
“I’m Kind of Stuck in the Middle. I Don’t Know Where to Go”: Race, Autism, and Intersectional Stigma Among Black and White Autistic Adults | Autism in Adulthood
Background: Autistic adults frequently experience social stigma, which may be compounded by additional marginalized identities such as race, gender, and sexual orientation. Black autistic adults, in particular, may face unique challenges at the intersection of racial bias and autism stigma. However, the experiences of autistic people with intersecting marginalized identities remain underexplored in research, contributing to a limited understanding of stigma’s impact across diverse communities. Methods: We used qualitative methods to explore how intersecting identities shape autistic adults’ experiences of stigma and marginalization, with an emphasis on Black autistic adults. In total, 32 autistic adults (16 Black and 16 White) completed a semi-structured interview regarding their social experiences. Participants shared recent stories of peer exclusion, acceptance, discrimination, and support that they had experienced, as well as their feelings surrounding these events. We recorded and transcribed these interviews and used an inductive, or data-driven, approach to thematic analysis to identify salient themes in the data. Results: We generated three intersectional themes, which encompassed the unique impact of stigma on those with intersecting identities. Specifically, these themes included: (1) identity-based discrimination shaped by race, gender, and LGBTQ+ status; (2) challenges in obtaining and processing an autism diagnosis; and (3) difficulties navigating personal identity, particularly among Black autistic participants. While autistic adults broadly reported stigma experiences, Black participants often described layered forms of exclusion related to both their race and autistic traits. Across racial groups, women and LGBTQ+ participants also reported distinct forms of marginalization and erasure. Conclusion: These findings highlight how autism stigma intersects with other marginalized identities to shape social experiences. Black autistic adults, along with autistic women and LGBTQ+ autistic people, may encounter compounded barriers to acceptance, identity development, and belonging. These results underscore the need for more inclusive research and supports that attend to the diversity of autistic experiences.
www.liebertpub.com
Reposted by Desi Jones
Ann Memmott
@annmemmott.bsky.social
· Aug 26
JCPP Advances | ACAMH Child Development Journal | Wiley Online Library
Background Accounts of emotional dysregulation in autism and attention-deficit/hyperactivity disorder (ADHD) are typically based on external adult observations anchored in neurotypical notions of em...
acamh.onlinelibrary.wiley.com
Reposted by Desi Jones
Reposted by Desi Jones
Alt CDC (they/them)
@altcdc.altgov.info
· Apr 16
Reposted by Desi Jones
Reposted by Desi Jones
Steven Kapp
@drstevenkapp.bsky.social
· Apr 2
Desi Jones
@desirjones.bsky.social
· Apr 2
Reposted by Desi Jones
Desi Jones
@desirjones.bsky.social
· Mar 6
Desi Jones
@desirjones.bsky.social
· Mar 6
Desi Jones
@desirjones.bsky.social
· Mar 6
Reposted by Desi Jones