Desi Jones
@desirjones.bsky.social
1.6K followers 400 following 20 posts
Incoming Assistant Professor at UMD | autism, stigma, intersectionality, and Black neurodivergent experiences | Wellesley College Alumna | #ADHD cat mom
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Reposted by Desi Jones
thinkingautism.com
The experiences of autistic people with intersecting marginalized identities—especially Black autistic adults—"remain underexplored in research, contributing to a limited understanding of stigma’s impact across diverse communities." @desirjones.bsky.social et al:

www.liebertpub.com/doi/epub/10....
www.liebertpub.com
Reposted by Desi Jones
melodyschreiber.com
The thing is, being autistic doesn't need to be "stopped" or "cured" or further demonized. The entire conversation is wrong.
Reposted by Desi Jones
thinkingautism.com
OK folks, the Stanford Neurodiversity Summit #SNS25 is underway. We're here to "treasure the strengths" of neurodivergent people. SNS is an outgrowth of the Stanford Neurodiversity Project, founded in 2018, which includes the Adult Neurodevelopment Clinic. The first SNS was in 2020. #neurodiversity
Reposted by Desi Jones
noahsasson.bsky.social
I'm so proud of @desirjones.bsky.social for this important paper and all the hard work she put into it. I'm also very grateful for @drmbothapsych.bsky.social for their many contributions in shaping this project.
desirjones.bsky.social
Black autistic adults are too often left out of conversations about stigma and autism.

Our new paper shows how stigma is shaped by race, gender, and sexuality, creating unique challenges for Black autistic adults, women, and LGBTQ+ autistic people.

www.liebertpub.com/d...
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“I’m Kind of Stuck in the Middle. I Don’t Know Where to Go”: Race, Autism, and Intersectional Stigma Among Black and White Autistic Adults | Autism in Adulthood
Background: Autistic adults frequently experience social stigma, which may be compounded by additional marginalized identities such as race, gender, and sexual orientation. Black autistic adults, in particular, may face unique challenges at the intersection of racial bias and autism stigma. However, the experiences of autistic people with intersecting marginalized identities remain underexplored in research, contributing to a limited understanding of stigma’s impact across diverse communities. Methods: We used qualitative methods to explore how intersecting identities shape autistic adults’ experiences of stigma and marginalization, with an emphasis on Black autistic adults. In total, 32 autistic adults (16 Black and 16 White) completed a semi-structured interview regarding their social experiences. Participants shared recent stories of peer exclusion, acceptance, discrimination, and support that they had experienced, as well as their feelings surrounding these events. We recorded and transcribed these interviews and used an inductive, or data-driven, approach to thematic analysis to identify salient themes in the data. Results: We generated three intersectional themes, which encompassed the unique impact of stigma on those with intersecting identities. Specifically, these themes included: (1) identity-based discrimination shaped by race, gender, and LGBTQ+ status; (2) challenges in obtaining and processing an autism diagnosis; and (3) difficulties navigating personal identity, particularly among Black autistic participants. While autistic adults broadly reported stigma experiences, Black participants often described layered forms of exclusion related to both their race and autistic traits. Across racial groups, women and LGBTQ+ participants also reported distinct forms of marginalization and erasure. Conclusion: These findings highlight how autism stigma intersects with other marginalized identities to shape social experiences. Black autistic adults, along with autistic women and LGBTQ+ autistic people, may encounter compounded barriers to acceptance, identity development, and belonging. These results underscore the need for more inclusive research and supports that attend to the diversity of autistic experiences.
www.liebertpub.com
Reposted by Desi Jones
thinkingautism.com
If Robert F. Kennedy the Lesser's Big September Announcement "does indeed come out favoring folinate or folate as a 'cure' or 'treatment' for autism, then move over ivermectin bc there’s gonna be a new grift in town." @ejwillingham.bsky.social in the TPGA Newsletter:

buttondown.com/TPGA/archive...
RFK Jr's big September autism announcement | What autistic students want
RFK Jr is obsessed with mitochondria, probably thanks to the wellness whisperers around him.
buttondown.com
Reposted by Desi Jones
thinkingautism.com
"Black autistic adults, along with autistic women and LGBTQ+ autistic people, may encounter compounded barriers to acceptance, identity development, and belonging. [We need] more inclusive research & supports that attend to the diversity of autistic experiences."

www.liebertpub.com/doi/epub/10....
www.liebertpub.com
desirjones.bsky.social
@noahsasson.bsky.social @drmbothapsych.bsky.social thank you both for all of your support and guidance. I'm so proud of this paper and happy to have it out in the world!
desirjones.bsky.social
For anyone without journal access, the full preprint is available here:
osf.io/preprints/psy...

#BlackAutisticAdults #Intersectionality #AutismResearch #Neurodiversity #DisabilityJustice #AutismAcceptance
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desirjones.bsky.social
Black autistic adults are too often left out of conversations about stigma and autism.

Our new paper shows how stigma is shaped by race, gender, and sexuality, creating unique challenges for Black autistic adults, women, and LGBTQ+ autistic people.

www.liebertpub.com/d...
1/2
“I’m Kind of Stuck in the Middle. I Don’t Know Where to Go”: Race, Autism, and Intersectional Stigma Among Black and White Autistic Adults | Autism in Adulthood
Background: Autistic adults frequently experience social stigma, which may be compounded by additional marginalized identities such as race, gender, and sexual orientation. Black autistic adults, in particular, may face unique challenges at the intersection of racial bias and autism stigma. However, the experiences of autistic people with intersecting marginalized identities remain underexplored in research, contributing to a limited understanding of stigma’s impact across diverse communities. Methods: We used qualitative methods to explore how intersecting identities shape autistic adults’ experiences of stigma and marginalization, with an emphasis on Black autistic adults. In total, 32 autistic adults (16 Black and 16 White) completed a semi-structured interview regarding their social experiences. Participants shared recent stories of peer exclusion, acceptance, discrimination, and support that they had experienced, as well as their feelings surrounding these events. We recorded and transcribed these interviews and used an inductive, or data-driven, approach to thematic analysis to identify salient themes in the data. Results: We generated three intersectional themes, which encompassed the unique impact of stigma on those with intersecting identities. Specifically, these themes included: (1) identity-based discrimination shaped by race, gender, and LGBTQ+ status; (2) challenges in obtaining and processing an autism diagnosis; and (3) difficulties navigating personal identity, particularly among Black autistic participants. While autistic adults broadly reported stigma experiences, Black participants often described layered forms of exclusion related to both their race and autistic traits. Across racial groups, women and LGBTQ+ participants also reported distinct forms of marginalization and erasure. Conclusion: These findings highlight how autism stigma intersects with other marginalized identities to shape social experiences. Black autistic adults, along with autistic women and LGBTQ+ autistic people, may encounter compounded barriers to acceptance, identity development, and belonging. These results underscore the need for more inclusive research and supports that attend to the diversity of autistic experiences.
www.liebertpub.com
desirjones.bsky.social
New commentary in JAACAP! Here, we highlight gaps in the literature on Black autistic youths' mental health, and call for research that examines risk and protective factors across individual, family, community, and societal levels.
Free access thru 8/31.

www.sciencedirect.com/science/arti...
The Critical Need for Research Examining Mental Health Risk and Protective Factors in Black Autistic Youth
www.sciencedirect.com
Reposted by Desi Jones
altnps.bsky.social
Think Elon Musk is out of Washington? Think again. DOGE is quietly building a massive data collection system designed to centralize unprecedented access to your personal information Social Security, taxes, medical diagnoses, and more.
Reposted by Desi Jones
altcdc.altgov.info
Still fuming about that press conference. The way RFK Jr. talks about autism is not just scientifically wrong—it’s deeply offensive.

Calling autistic kids "damaged" or implying they’ve been "lost" or "stolen" doesn’t just spread misinformation—it dehumanizes real people.
Reposted by Desi Jones
Reposted by Desi Jones
thinkingautism.com
Here are 10 ways to honor autistic people! While #AutismAwareness has a role, especially in spaces where autism info is bad/absent, autistic people deserve the love & respect that come with #AutismAcceptance — not merely acknowledgment that autism exists:

thinkingautismguide.com/2023/10/ten-... 1/
Ten Ways to Honor Autistic People Via Autism Acceptance
Autism awareness is passive; autism acceptance is a choice. Here are 10 ways you can honor Autism Acceptance, & autistic people of all ages.
thinkingautismguide.com
Reposted by Desi Jones
drstevenkapp.bsky.social
One way to be Autistic and Living the Dream is to have your first first-authored paper published (in the top autism journal @autisminadulthood.bsky.social) on Autism Acceptance Day! Congratulations @kmunday.bsky.social & important research on autistic adults' experiences with substance-use services.
desirjones.bsky.social
This is silly, but just the idea of having my own lab has brought me so much joy. I just got keys to the space and filmed a little walkthrough video for my mom and husband. Can't wait to get things set up 🙂
Reposted by Desi Jones
standupforscience.bsky.social
TODAY IS THE DAY! 🧪☀️⬇️

Join us at the Lincoln Memorial or your local site to Stand Up for Science!
Flyer for stand up for science--more information available at www.standupforscience2025.org
desirjones.bsky.social
Lol they were arguing that the university is using this to hire "scholar-activists". Like thank you?
desirjones.bsky.social
Thanks Steven! I'm going to talk to my department and see if they have any advice, but feeling annoyed that this kind of thing keeps happening.
desirjones.bsky.social
Sigh. I KNEW this was coming. Someone wrote an anti-DEI article about my postdoc program and linked a spreadsheet with all of our demographics and contact information.
Reposted by Desi Jones
luckytran.com
FRIDAY: Join @standupforscience.bsky.social rallies around the US to protest funding cuts, illegal firings, and censorship of scientists. In response to the attacks, the most important thing we can do is to visually show that science has strong support in this country, so please show up if you can!