remi (they/them)
@dominosmum444.bsky.social
cvd conscious queer living with ME/CFS + long cvd. currently doing life from bed. meanjin, au.
Reposted by remi (they/them)
Don’t underestimate the impact you’re making when you choose to wear a mask.
You’re protecting your health & the health of your community. You’re helping ease the burden on our healthcare system.
You’re standing in solidarity with disabled people & telling the government that no one is expendable
You’re protecting your health & the health of your community. You’re helping ease the burden on our healthcare system.
You’re standing in solidarity with disabled people & telling the government that no one is expendable
January 22, 2025 at 11:33 AM
Don’t underestimate the impact you’re making when you choose to wear a mask.
You’re protecting your health & the health of your community. You’re helping ease the burden on our healthcare system.
You’re standing in solidarity with disabled people & telling the government that no one is expendable
You’re protecting your health & the health of your community. You’re helping ease the burden on our healthcare system.
You’re standing in solidarity with disabled people & telling the government that no one is expendable
Reposted by remi (they/them)
Please sign and share this petition for Line in Denmark, who is being threatened with involuntary psychiatric hospitalization if she doesn’t push through her very severe ME. Absolutely barbaric and could be life threatening www.change.org/p/prevent-fo... #SaveLine #SevereME
Sign the Petition
Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark
www.change.org
January 20, 2025 at 8:26 PM
Please sign and share this petition for Line in Denmark, who is being threatened with involuntary psychiatric hospitalization if she doesn’t push through her very severe ME. Absolutely barbaric and could be life threatening www.change.org/p/prevent-fo... #SaveLine #SevereME
this!!! i was always just more ‘tired’ than other people, frequently got a sore throat whenever i was ‘run down’ (which would happen every 4-6 weeks like clockwork or whenever i exercised). i *wish* i had known then what i know now.
Another thing that scares me is that among the 11,785 infected participants, 4692 (39.8%) were “ME/CFS-like, w/ at least one ME/CFS symptom.” My friends & I talk often about how we were “ME/CFS-like” for years before we got sick enough to actually meet the criteria
4.5% rate of ME/CFS post Covid infection.
If you know how bad ME/CFS is, you know that’s a terrifying statistic.
If you know how bad ME/CFS is, you know that’s a terrifying statistic.
January 14, 2025 at 12:38 PM
this!!! i was always just more ‘tired’ than other people, frequently got a sore throat whenever i was ‘run down’ (which would happen every 4-6 weeks like clockwork or whenever i exercised). i *wish* i had known then what i know now.
Reposted by remi (they/them)
PwME have only been saying that this would happen since March 2020 🫠😭
(this is not a ‘gotcha’ thing. it’s fucking depressing af watching it aaaaallllll unfold like so many of us predicted, including the fascism)
(this is not a ‘gotcha’ thing. it’s fucking depressing af watching it aaaaallllll unfold like so many of us predicted, including the fascism)
Massive prospective study published today shows that 4.5% of people who had #COVID19 later met #MECFS diagnostic criteria, compared to just 0.6% of people who never were infected by the SARS-CoV-2 virus
88% of these new ME/CFS cases also met the criteria for a diagnosis of #LongCovid
88% of these new ME/CFS cases also met the criteria for a diagnosis of #LongCovid
NIH-funded study finds cases of ME/CFS increase following SARS-CoV-2
ME/CFS is a complex, serious, and chronic condition that often occurs following an infection.
www.nih.gov
January 14, 2025 at 10:59 AM
PwME have only been saying that this would happen since March 2020 🫠😭
(this is not a ‘gotcha’ thing. it’s fucking depressing af watching it aaaaallllll unfold like so many of us predicted, including the fascism)
(this is not a ‘gotcha’ thing. it’s fucking depressing af watching it aaaaallllll unfold like so many of us predicted, including the fascism)
Reposted by remi (they/them)
Urgent callout for local support (individual/group/mutual aid orgs) from ME allies in *Manitoba, Canada* - please repost. TW DV ⬇️
January 14, 2025 at 11:19 AM
Urgent callout for local support (individual/group/mutual aid orgs) from ME allies in *Manitoba, Canada* - please repost. TW DV ⬇️