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Dr Emma Clare @dremmaclare.bsky.social · 2d

I’ve been writing about neurodivergence in end-of-life care and advance planning and hearing from people who want to do better but don’t know where to start.

This work means a lot to me. I’ve gathered it all in one place - my new site is live: www.deathwireddifferently.co.uk

#DeathWiredDifferently

Death Wired Differently | Death Doula & Inclusive End-of-Life Support

Compassionate, inclusive end-of-life care and death doula services across the UK. Dr. Emma Clare provides neurodivergent-friendly guidance, training, and resources to support individuals, families, an...

www.deathwireddifferently.co.uk

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Dr Emma Clare @dremmaclare.bsky.social · 16d

A black square with orange underline which reads: Your autistic friends are watching your reaction to the 'autism cure' talk in the news

Not only to see whether you believe the lies, but to see whether you believe autism is something to be 'removed' rather than who we are

To know whether you prop up the language of eugenics which targets us

Now is the time to be a loud ally

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Dr Emma Clare @dremmaclare.bsky.social · 19d

I am very new to it all myself, but have been finding the Visual Snow Initiative and VSS groups on Facebook very helpful/normalising

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Dr Emma Clare @dremmaclare.bsky.social · 24d

Coloured screen filters, coloured lense glasses, minimising stress wherever possible, work on acceptance (including through therapy), connecting with others with VSS have all been helpful

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Reposted by Dr Emma Clare

David Ho @davidho.bsky.social · Aug 31

RFK Jr. is not a vaccine skeptic. He's a vaccine denier whose anti-science extremist views and actions are destroying one of humanity's greatest scientific achievements. He's going to kill a lot of people, and those deaths are on the 52 Republican senators who confirmed him and those enabling him.

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Dr Emma Clare @dremmaclare.bsky.social · Aug 30

Good to see VSS being covered, this is very similar to my own experience

www.theguardian.com/lifeandstyle...

#VisualSnowSyndrome #Neuroaffirming

Experience: I see the world through a layer of snow

My condition has a name – visual snow syndrome – and it could be with me for the rest of my life

www.theguardian.com

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Dr Emma Clare @dremmaclare.bsky.social · Aug 30

Anytime! Let me know if you want to arrange 😊

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Dr Emma Clare @dremmaclare.bsky.social · Aug 25

Special interest grief is a disenfranchised grief. When a special interest becomes inaccessible it can feel like losing part of yourself. For many neurodivergent ppl these aren’t hobbies they’re ways of making sense of the world,regulating overwhelm,finding joy,expressing identity.It's valid & real.

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Reposted by Dr Emma Clare

Emily Hahn, MD @ehahnmd.bsky.social · Aug 14

I’ve been screaming from the rooftops that life under authoritarianism feels mostly normal most of the time for most people. Rights get stripped away and minorities get targeted and most people keep going to work and dealing with the minutia of life. It’s hard to know how to fight or when to flee.

Charlotte Clymer @charlotteclymer.bsky.social · Aug 14

If you've ever wondered what life would have been like or what you would have done had you been living in Germany in the early 1930s, wonder no longer. Every day that passes now is an answer.

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Dr Emma Clare @dremmaclare.bsky.social · Aug 10

Thank you! And of course 😊

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Reposted by Dr Emma Clare

Big Green Books (Simon) @biggreenbooks.bsky.social · Aug 10

I've got another #buyastrangerabook day offer to tell you about!

@raytom81.bsky.social will buy someone the book of their choice, up to £20.

That's any book at all.

So, if you have something in mind, let us know what it is.

UK only

Tom Ray @raytom81.bsky.social · Aug 10

Hiya 👋 I'd love the percival Everett if available and to repay with any book of someone's choice up to £20 x

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Reposted by Dr Emma Clare

Big Green Books (Simon) @biggreenbooks.bsky.social · Aug 10

More #buyastrangerabook (Sunday Special) magic!

@sarahalba.bsky.social is offering to buy one lucky person the book of their choice, up to £15!

So, if there's a particular book you're after, get in touch.

UK only.

Sarah @sarahalba.bsky.social · Aug 10

I can buy a stranger a book up to £15 @biggreenbooks.bsky.social

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Dr Emma Clare @dremmaclare.bsky.social · Aug 10

If anyone is interested in 50 minutes of me talking about end of life doulas, death, dying, and grief (as usual) you can watch/listen to the latest DACI podcast episode below. Pleased to include two @drkathrynmannix.bsky.social mentions

youtu.be/jUhy2J5qZKA?...

#EndofLifeDoula #DeathDoula

The Truth About Life & Death From a Death Doula (Dr Emma Clare)

YouTube video by DACI

youtu.be

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Dr Emma Clare @dremmaclare.bsky.social · Jul 7

My brilliant EoL doula colleague Rachel Hawthorn is hosting an online screening of The Luddenden Shroud – a 30-min film about a hand-felted shroud, nature, grief, and place. Followed by a Q&A. All welcome. Book here:
www.eventbrite.com/e/the-ludden...

The Luddenden Shroud Film Screening

An online screening of The Luddenden Shroud film followed by a Q&A with the producer

www.eventbrite.com

Reposted by Dr Emma Clare

My Future Care @myfuturecare.bsky.social · Jun 27

Leeds became the first city in the UK to commission end-of-life doula support through the NHS in May 2022.

Explore the learnings to date from this pilot project ⤵️

#EndOfLife #PersonCentredCare

Dr Emma Clare @dremmaclare.bsky.social · Jun 26

Interested in how #EndofLifeDoulas can collaborate with and complement NHS services? Our evaluation report for our Leeds EoL Doula Pilot Project is now available to read/download here 😊
eol-doula.uk/leeds-nhs-co...

Leeds NHS Commissioned Project - End of Life Doula UK

Our Leeds NHS pilot project concluded in September 2024. You can download and read our full service evaluation report here. In a pioneering step for end of life care, Leeds became the first city in th...

eol-doula.uk

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Dr Emma Clare @dremmaclare.bsky.social · Jun 26

Interested in how #EndofLifeDoulas can collaborate with and complement NHS services? Our evaluation report for our Leeds EoL Doula Pilot Project is now available to read/download here 😊
eol-doula.uk/leeds-nhs-co...

Leeds NHS Commissioned Project - End of Life Doula UK

Our Leeds NHS pilot project concluded in September 2024. You can download and read our full service evaluation report here. In a pioneering step for end of life care, Leeds became the first city in th...

eol-doula.uk

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Reposted by Dr Emma Clare

Dr Rachel Clarke @drrachelclarke.com · Jun 19

Sharing this on the eve of tomorrow's vote.

I am a palliative care doctor who is not opposed to AD. But enshrining in law a state-funded right to die, while not enshrine a similar right to the palliative care that might make life worth living, is so very wrong.

www.theguardian.com/commentisfre...

MPs have personal beliefs, but also solemn duties: that’s why they must reject the assisted dying bill this week | Gordon Brown

Our obligations to each other are ill served if laws focus unduly on those who want assisted dying. The priority should be the best palliative care, says former prime minister Gordon Brown

www.theguardian.com

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Dr Emma Clare @dremmaclare.bsky.social · Jun 19

Oh thank you very much! This is beautiful, such a human inscription. I recognise the name too. Is this in York? 🙂

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Reposted by Dr Emma Clare

Prof Sheena Cruickshank @sheencr.bsky.social · Jun 19

So important to see RCP make this statement about the preventable deaths and diseases poor air quality causes. We know it worsens infections , allergy,asthma and COPD severity too 🧪

UK air pollution killing more than 500 people a week, doctors say

Royal College of Physicians also says poor air quality costs country more than £500m a week

www.theguardian.com

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Reposted by Dr Emma Clare

the algorithms + miscarriage project @paul-ord.bsky.social · Jun 18

Good morning! A friendly wee reminder that The Algorithms + Miscarriage Project is now seeking participants for interview. See poster for details...

@tommyscharity.bsky.social @cendeathsociety.bsky.social @asdsdeath.bsky.social @bsatheory.bsky.social

#miscarriage #algorithms #onlinesafety

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Dr Emma Clare @dremmaclare.bsky.social · Jun 17

Very pleased to be announcing this! A huge amount of work and real team effort. Excited to see what is next! 😊🥳
#EndofLifeDoula

End of Life Doula UK @eoldoulauk.bsky.social · Jun 17

Big news: we’re now a registered charity! This opens doors to new funding, partnerships & growth; helping us strengthen our work & support even more people in our community. Thank you to everyone who’s helped us on the journey so far! #eolduk #eol #charity

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Reposted by Dr Emma Clare

Elizabeth Jacobs, PhD @elizabethjacobs.bsky.social · Jun 9

RFK Jr. has just removed every member of the Advisory Committee on Immunization Practices (ACIP).

These members review vaccine data and make approval recommendations. This is completely horrifying and will likely delay vaccine approvals.

RFK Jr. must be removed from office IMMEDIATELY.

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Reposted by Dr Emma Clare

End of Life Doula International Research Group @eold-irg.bsky.social · Jun 3

Save the date!

The fourth annual End of Life Doula International Research Group symposium is September 5-6 with the theme Research is a verb: Sharing knowledge as collaboration.

Online Sept 5-6, tickets and full programme live soon.

#EOLDIRG #research #event #EOLD #DeathLiteracy

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Reposted by Dr Emma Clare

End of Life Doula International Research Group @eold-irg.bsky.social · Jun 5

Opportunities for self-awareness, reflection and honest evaluation are always important - this goes for end of life doulas, too. How we work with opportunities and realities in the workplace, in tandem with our highest goals for work are shown in this graphic.

#EOLDIRG
#research
#resources

A faceless figure of a person surrounded by ribbons of different colours and white text showing aspects of work, and with like coloured sections forming two semi-circles around the person showing goals for work. Top title banner reads " Key intersecting tensions for end of life doulas " Bottom centre circle reads " EOLDs "

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Reposted by Dr Emma Clare

End of Life Doula International Research Group @eold-irg.bsky.social · Jun 3

Hello world of #research - we are new here!

The End-of-Life Doula International Research Group (EOLD-IRG) is a collective of diverse individuals interested in developing a collaborative approach to research relevant to end-of-life doulas across national and international boundaries.

#EOLDIRG

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