Elly Brosius, MS
@ellybrosius.bsky.social
Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
Pinned
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email [email protected] with event questions and [email protected] to volunteer
Register in next post 1/2
Email [email protected] with event questions and [email protected] to volunteer
Register in next post 1/2
Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions.
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Reposted by Elly Brosius, MS
I once asked a bookseller at a large indie store how many people would have to buy a book for it to get the attention of the store buyer and cause an additional order and they said: Three.
I see some book piracy discourse, and, to make a positive argument in favor of buying books, your marginal ability to influence what books get published and support the careers of writers you like is massive compared to most other forms of media.
November 25, 2025 at 11:07 PM
I once asked a bookseller at a large indie store how many people would have to buy a book for it to get the attention of the store buyer and cause an additional order and they said: Three.
Adding a bookmark for this page!
The rest of this thread will contain our affiliate and/or discount information by vendor.
You can also go to our website to see or share them all at once. www.renegade-research.org/discounts-an...
You can also go to our website to see or share them all at once. www.renegade-research.org/discounts-an...
Discounts & Affiliate Links | Renegade Research
Tests and supplements available at a discount using either a code or special link. Affiliate links to help us fund our mission.
www.renegade-research.org
November 25, 2025 at 8:15 PM
Adding a bookmark for this page!
Reposted by Elly Brosius, MS
Prodrome Science, the store for plasmologens including Glia and Neuro, gave us the affiliate code discount “Falor35” to save 35%! 💸
Glia was used in the @remissionbiome.bsky.social protocol. Go to Prodrome.com and add code “Falor35” at checkout.
Glia was used in the @remissionbiome.bsky.social protocol. Go to Prodrome.com and add code “Falor35” at checkout.
Prodrome | Plasmalogen Supplements for Brain Health
Discover the power of plasmalogen supplements at Prodrome. Real research bringing new hope for people with Dementia, Alzheimer’s, and other brain health.
Prodrome.com
November 25, 2025 at 8:10 PM
Prodrome Science, the store for plasmologens including Glia and Neuro, gave us the affiliate code discount “Falor35” to save 35%! 💸
Glia was used in the @remissionbiome.bsky.social protocol. Go to Prodrome.com and add code “Falor35” at checkout.
Glia was used in the @remissionbiome.bsky.social protocol. Go to Prodrome.com and add code “Falor35” at checkout.
Reposted by Elly Brosius, MS
#MECFS and #LongCovid organizations are underfunded, especially patient-led nonprofits. That’s why Renegade Research has a mixed funding model including affiliate links and discount codes.
With no extra cost to you, potential savings, and raising funds for our projects, it's a win-win! 🧵
With no extra cost to you, potential savings, and raising funds for our projects, it's a win-win! 🧵
November 25, 2025 at 8:02 PM
#MECFS and #LongCovid organizations are underfunded, especially patient-led nonprofits. That’s why Renegade Research has a mixed funding model including affiliate links and discount codes.
With no extra cost to you, potential savings, and raising funds for our projects, it's a win-win! 🧵
With no extra cost to you, potential savings, and raising funds for our projects, it's a win-win! 🧵
Attention Amazon Shoppers:
@renegaderesearch.bsky.social is an Amazon Affiliate!
We earn a small % of purchases made after clicking one of our links and purchasing what you want within 24 hrs.
Categories are on the left: health devices, pets, comfort, science, books, & more.
Pets
a.co/0hrS2JF
@renegaderesearch.bsky.social is an Amazon Affiliate!
We earn a small % of purchases made after clicking one of our links and purchasing what you want within 24 hrs.
Categories are on the left: health devices, pets, comfort, science, books, & more.
Pets
a.co/0hrS2JF
Check out my list on Amazon
a.co
November 21, 2025 at 9:41 PM
Attention Amazon Shoppers:
@renegaderesearch.bsky.social is an Amazon Affiliate!
We earn a small % of purchases made after clicking one of our links and purchasing what you want within 24 hrs.
Categories are on the left: health devices, pets, comfort, science, books, & more.
Pets
a.co/0hrS2JF
@renegaderesearch.bsky.social is an Amazon Affiliate!
We earn a small % of purchases made after clicking one of our links and purchasing what you want within 24 hrs.
Categories are on the left: health devices, pets, comfort, science, books, & more.
Pets
a.co/0hrS2JF
This event just got underway. Still time to join and learn about this exciting company dedicated to M E C F S and L C advances and the sophisticated tests: 31 marker and RNA sequencing.
We'll host a Clinician's Roundtable with @amaticahealth.bsky.social. Researchers, patients, caregivers are also welcome.
Amatica is a patient-founded data science company focused on chronic neuro-immune diseases (Long COVID, ME/CFS, MCAS, Fibromyalgia)
Register: us06web.zoom.us/webinar/regi... 2/2
Amatica is a patient-founded data science company focused on chronic neuro-immune diseases (Long COVID, ME/CFS, MCAS, Fibromyalgia)
Register: us06web.zoom.us/webinar/regi... 2/2
Welcome! You are invited to join a webinar: Amatica Health Adds Dashboard for Clinicians. After registering, you will receive a confirmation email about joining the webinar.
Renegade Research is hosting a roundtable for clinicians to learn about how to implement Amatica Health tools in their clinical practices. Researchers, patients, and caregivers are also welcome.
Amat...
us06web.zoom.us
November 21, 2025 at 5:22 PM
This event just got underway. Still time to join and learn about this exciting company dedicated to M E C F S and L C advances and the sophisticated tests: 31 marker and RNA sequencing.
Reposted by Elly Brosius, MS
Amatica Health are offering over a £1000 worth of testing for teens under 18 with Long Covid/ ME.
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
November 19, 2025 at 6:34 PM
Amatica Health are offering over a £1000 worth of testing for teens under 18 with Long Covid/ ME.
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
Reposted by Elly Brosius, MS
This support meeting for ME/CFS, LC, people with PEM, is
TODAY!
9:30 AM Pacific US (Sorry)
11:30 AM Central US
12:30 PM Eastern US
5:30 GMT
TODAY!
9:30 AM Pacific US (Sorry)
11:30 AM Central US
12:30 PM Eastern US
5:30 GMT
Our next meeting is Nov 19 🗓️
NC @MEActNet Chapter SUPPORT Zoom is
Wed. 11/19/25, (3rd Wed every month)
12:30 PM ET US
We welcome those near & far with ME/CFS/POTS/OI/HSD +/- Long Covid(PASC), & caregivers, family, friends, allies.
Got PEM? We do, too.
www.meaction.net/event-detail...
NC @MEActNet Chapter SUPPORT Zoom is
Wed. 11/19/25, (3rd Wed every month)
12:30 PM ET US
We welcome those near & far with ME/CFS/POTS/OI/HSD +/- Long Covid(PASC), & caregivers, family, friends, allies.
Got PEM? We do, too.
www.meaction.net/event-detail...
#MEAction North Carolina Support Call | #MEAction
Please join #MEAction North Carolina for our monthly support call on the third Wednesday of the month at 12:30 PM EST. We welcome all people with ME/CFS or Long Covid, along with their caregivers or ...
www.meaction.net
November 19, 2025 at 4:12 PM
This support meeting for ME/CFS, LC, people with PEM, is
TODAY!
9:30 AM Pacific US (Sorry)
11:30 AM Central US
12:30 PM Eastern US
5:30 GMT
TODAY!
9:30 AM Pacific US (Sorry)
11:30 AM Central US
12:30 PM Eastern US
5:30 GMT
Reposted by Elly Brosius, MS
Art gives emotion a body.
November 17, 2025 at 10:30 PM
Art gives emotion a body.
Reposted by Elly Brosius, MS
Our Data Analysis Team reviewed our @remissionbiome.bsky.social project’s preliminary results in a presentation from Jan. 2024 youtu.be/Y4Un2rQLKTw?...
With @isabelrb.bsky.social, @ellybrosius.bsky.social, @thosvarley.bsky.social, @katboniface.bsky.social, @doc4care.bsky.social, Mike, Sam, Lisa
5/
With @isabelrb.bsky.social, @ellybrosius.bsky.social, @thosvarley.bsky.social, @katboniface.bsky.social, @doc4care.bsky.social, Mike, Sam, Lisa
5/
Remission Biome Project - Preliminary Results Community Meeting by Renegade Research. Jan 17, 2024
YouTube video by Renegade Research
youtu.be
November 15, 2025 at 11:31 PM
Our Data Analysis Team reviewed our @remissionbiome.bsky.social project’s preliminary results in a presentation from Jan. 2024 youtu.be/Y4Un2rQLKTw?...
With @isabelrb.bsky.social, @ellybrosius.bsky.social, @thosvarley.bsky.social, @katboniface.bsky.social, @doc4care.bsky.social, Mike, Sam, Lisa
5/
With @isabelrb.bsky.social, @ellybrosius.bsky.social, @thosvarley.bsky.social, @katboniface.bsky.social, @doc4care.bsky.social, Mike, Sam, Lisa
5/
Reposted by Elly Brosius, MS
A 2025 Keystone Conference presentation for “Identifying transient remissions from ME/CFS associated with antibiotics: A mixed-methods study” by @thosvarley.bsky.social, @taraf.bsky.social, @katboniface.bsky.social, @ellybrosius.bsky.social, @isabelrb.bsky.social, @tessfalor.bsky.social, Mike
10/
10/
November 16, 2025 at 6:51 PM
A 2025 Keystone Conference presentation for “Identifying transient remissions from ME/CFS associated with antibiotics: A mixed-methods study” by @thosvarley.bsky.social, @taraf.bsky.social, @katboniface.bsky.social, @ellybrosius.bsky.social, @isabelrb.bsky.social, @tessfalor.bsky.social, Mike
10/
10/
Reposted by Elly Brosius, MS
Kristen Johansson details her journey with Lyme disease and how it led her to public health in the newest issue of Hopkins Bloomberg Public Health magazine.
Read her full story: magazine.publichealth.jhu.edu/2025/when-ly...
Read her full story: magazine.publichealth.jhu.edu/2025/when-ly...
November 5, 2025 at 7:08 PM
Kristen Johansson details her journey with Lyme disease and how it led her to public health in the newest issue of Hopkins Bloomberg Public Health magazine.
Read her full story: magazine.publichealth.jhu.edu/2025/when-ly...
Read her full story: magazine.publichealth.jhu.edu/2025/when-ly...
Reposted by Elly Brosius, MS
I have lots of stuff with viruses and bacteria for all your microbiology friends artologica.etsy.com #sciart 🦠
November 12, 2025 at 2:36 PM
I have lots of stuff with viruses and bacteria for all your microbiology friends artologica.etsy.com #sciart 🦠
Reposted by Elly Brosius, MS
![>>Satire - insurance company introduces new "maybe we'll pay...but probably not" coverage option
[pic of doctor talking to patient]
mybodyistryingtokillme.com](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreih535rv32uk4r7kwx3urokd2iewrn75ev72e2lsjwoujj6ggzhtxy@jpeg)
Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions.
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email [email protected] with event questions and [email protected] to volunteer
Register in next post 1/2
Email [email protected] with event questions and [email protected] to volunteer
Register in next post 1/2
November 11, 2025 at 3:10 PM
Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions.
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Follow these folks for uplifting and caring vibes. Love their strategy of 5️⃣ areas volunteering has the power to make the biggest difference:
- tackling loneliness and isolation,
- improving health and wellbeing,
- breaking down barriers,
- equipping communities, and
- creating social cohesion.
- tackling loneliness and isolation,
- improving health and wellbeing,
- breaking down barriers,
- equipping communities, and
- creating social cohesion.
To mark our new strategy, we're celebrating Colin – a volunteer of 25+ years whose journey shows the true power of volunteering.
💬 “It’s about making sure no one feels forgotten.”
Read more: https://volunteeringmatters.org.uk/celebrating-colin/
#VolunteeringMatters #PowerOfVolunteering
💬 “It’s about making sure no one feels forgotten.”
Read more: https://volunteeringmatters.org.uk/celebrating-colin/
#VolunteeringMatters #PowerOfVolunteering
November 11, 2025 at 2:58 PM
Follow these folks for uplifting and caring vibes. Love their strategy of 5️⃣ areas volunteering has the power to make the biggest difference:
- tackling loneliness and isolation,
- improving health and wellbeing,
- breaking down barriers,
- equipping communities, and
- creating social cohesion.
- tackling loneliness and isolation,
- improving health and wellbeing,
- breaking down barriers,
- equipping communities, and
- creating social cohesion.
Reposted by Elly Brosius, MS
November 2, 2025 at 4:44 PM
Reposted by Elly Brosius, MS
See see/take our polls on #TheAnesthesiaQuestion on X about anesthesia / sedation / numbing (including dental) responses for pw ME/CFS (CCCriteria)(linked in this post), for people with hyper-mobile connective tissue issues, & for people with neither (coming soon).
x.com/RenegadeRes/...
x.com/RenegadeRes/...
Renegade Research on X: "1/16 This is a thread with 14 polls about responses in patients with ME/CFS (from any trigger, including COVID-19) to anesthesia / sedation / numbing (including dental). Please ONLY fill this one out if you meet the Canadian Consensus Criteria for ME/CFS. We appreciate people https://t.co/Nwu8pTggd3" / X
1/16 This is a thread with 14 polls about responses in patients with ME/CFS (from any trigger, including COVID-19) to anesthesia / sedation / numbing (including dental). Please ONLY fill this one out if you meet the Canadian Consensus Criteria for ME/CFS. We appreciate people https://t.co/Nwu8pTggd3
x.com
November 2, 2025 at 4:46 PM
See see/take our polls on #TheAnesthesiaQuestion on X about anesthesia / sedation / numbing (including dental) responses for pw ME/CFS (CCCriteria)(linked in this post), for people with hyper-mobile connective tissue issues, & for people with neither (coming soon).
x.com/RenegadeRes/...
x.com/RenegadeRes/...
Reposted by Elly Brosius, MS
Reminder - the Long COVID Treatment Trial - Tirzepatide (LoCITT-T) is open in 49 US states (all but Hawaii), DC, & PR.
More info & eligibility survey here:
longcovid.scripps.edu/locitt-t/?ut...
We're hosting a webinar w/ Q&A on 11/5, register here:
scrippsresearch.zoom.us/webinar/regi...
More info & eligibility survey here:
longcovid.scripps.edu/locitt-t/?ut...
We're hosting a webinar w/ Q&A on 11/5, register here:
scrippsresearch.zoom.us/webinar/regi...
LoCITT-T - Long COVID Treatment Trial
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
longcovid.scripps.edu
November 3, 2025 at 4:37 PM
Reminder - the Long COVID Treatment Trial - Tirzepatide (LoCITT-T) is open in 49 US states (all but Hawaii), DC, & PR.
More info & eligibility survey here:
longcovid.scripps.edu/locitt-t/?ut...
We're hosting a webinar w/ Q&A on 11/5, register here:
scrippsresearch.zoom.us/webinar/regi...
More info & eligibility survey here:
longcovid.scripps.edu/locitt-t/?ut...
We're hosting a webinar w/ Q&A on 11/5, register here:
scrippsresearch.zoom.us/webinar/regi...
2 of 3 polls of #TheAnesthesiaQuestion by @renegaderesearch.bsky.social are up on X.
This 1 is for people with (pw) connective tissue issues.
Another is for pwME/CFS or LC who meet CCC def.
Both open for a few more days.
The 3rd one will be for people with neither.
x.com/RenegadeRes/...
This 1 is for people with (pw) connective tissue issues.
Another is for pwME/CFS or LC who meet CCC def.
Both open for a few more days.
The 3rd one will be for people with neither.
x.com/RenegadeRes/...
Renegade Research on X: "1/16 This is a thread with 14 polls about responses in patients with diagnosed or suspected hypermobile connective tissue issues (e.g. Ehlers-Danlos syndrome (EDS), Hypermobility Spectrum Disorder (HSD), Marfan syndrome, or issues that are likely related to connective tissue," / X
1/16 This is a thread with 14 polls about responses in patients with diagnosed or suspected hypermobile connective tissue issues (e.g. Ehlers-Danlos syndrome (EDS), Hypermobility Spectrum Disorder (HSD), Marfan syndrome, or issues that are likely related to connective tissue,
x.com
November 2, 2025 at 4:25 PM
2 of 3 polls of #TheAnesthesiaQuestion by @renegaderesearch.bsky.social are up on X.
This 1 is for people with (pw) connective tissue issues.
Another is for pwME/CFS or LC who meet CCC def.
Both open for a few more days.
The 3rd one will be for people with neither.
x.com/RenegadeRes/...
This 1 is for people with (pw) connective tissue issues.
Another is for pwME/CFS or LC who meet CCC def.
Both open for a few more days.
The 3rd one will be for people with neither.
x.com/RenegadeRes/...
Reposted by Elly Brosius, MS
When using Microsoft Word or Google Docs, don't just make text bigger and bolder to make it a heading. That will work for sighted users, but screen reader users will miss that and just hear it as normal paragraph text. Use actual heading styles, like level 1 through 6.
November 2, 2025 at 12:55 AM
When using Microsoft Word or Google Docs, don't just make text bigger and bolder to make it a heading. That will work for sighted users, but screen reader users will miss that and just hear it as normal paragraph text. Use actual heading styles, like level 1 through 6.
Reposted by Elly Brosius, MS
Join us once again for an informal
@renegaderesearch.bsky.social Halloween art celebration! Carving not required (see thread for details.) No prizes in 2025. Rewards still include bragging rights, endorphins, and doing something fun. Post with the hashtag #ScareME.
@renegaderesearch.bsky.social Halloween art celebration! Carving not required (see thread for details.) No prizes in 2025. Rewards still include bragging rights, endorphins, and doing something fun. Post with the hashtag #ScareME.
October 29, 2025 at 9:12 PM
Join us once again for an informal
@renegaderesearch.bsky.social Halloween art celebration! Carving not required (see thread for details.) No prizes in 2025. Rewards still include bragging rights, endorphins, and doing something fun. Post with the hashtag #ScareME.
@renegaderesearch.bsky.social Halloween art celebration! Carving not required (see thread for details.) No prizes in 2025. Rewards still include bragging rights, endorphins, and doing something fun. Post with the hashtag #ScareME.
Reminder
Sat Oct 25 2 pm ET US
Dysautonomia /POTS Awareness Day / Month by @renegaderesearch.bsky.social
Live Space on the bird / ex site.
Sat Oct 25 2 pm ET US
Dysautonomia /POTS Awareness Day / Month by @renegaderesearch.bsky.social
Live Space on the bird / ex site.
October 24, 2025 at 11:46 PM
Reminder
Sat Oct 25 2 pm ET US
Dysautonomia /POTS Awareness Day / Month by @renegaderesearch.bsky.social
Live Space on the bird / ex site.
Sat Oct 25 2 pm ET US
Dysautonomia /POTS Awareness Day / Month by @renegaderesearch.bsky.social
Live Space on the bird / ex site.
Reposted by Elly Brosius, MS
Tomorrow
Tuesday, October 21st @ 4pm ET
Community Support Zoom #MEAction Maryland
"Come As You Are"
We've got new zoom links, so email us or check or link tree (in bio).
#MECFS #LongCovid #CommunitySupport
Tuesday, October 21st @ 4pm ET
Community Support Zoom #MEAction Maryland
"Come As You Are"
We've got new zoom links, so email us or check or link tree (in bio).
#MECFS #LongCovid #CommunitySupport
October 20, 2025 at 5:31 PM
Tomorrow
Tuesday, October 21st @ 4pm ET
Community Support Zoom #MEAction Maryland
"Come As You Are"
We've got new zoom links, so email us or check or link tree (in bio).
#MECFS #LongCovid #CommunitySupport
Tuesday, October 21st @ 4pm ET
Community Support Zoom #MEAction Maryland
"Come As You Are"
We've got new zoom links, so email us or check or link tree (in bio).
#MECFS #LongCovid #CommunitySupport
Reposted by Elly Brosius, MS
Vestibular disorders affect people's balance as well as their visual perception of their world around them. Don't make animations, sliders, videos, or rapid movement start automatically, as autoplaying elements could trigger a bad reaction in people who have vestibular disorders.
October 20, 2025 at 2:18 PM
Vestibular disorders affect people's balance as well as their visual perception of their world around them. Don't make animations, sliders, videos, or rapid movement start automatically, as autoplaying elements could trigger a bad reaction in people who have vestibular disorders.