On my way to @thekingsfund.bsky.social to join a panel with the fab @jacoblant.bsky.social talking all things 10 yr plan and people &communities. Thanks Jacob for leading by example and sharing the power with lived experience
@nationalvoices.bsky.social

Great opportunity for #LivedExperience There's a great group of us and we can't wait to meet new people

🚀 We’re recruiting!

National Voices is looking for more Lived Experience Partners to help shape and influence our work with their unique insights and expertise.

🔗 Find out more here: tinyurl.com/5n7xh4k8

📆 Apply by Friday 12 September.

Completely agree. Have a son with LD who has had his surgery cancelled. So much went in to preparing him and it's completely thrown him. Has a huge impact on him and us as his unpaid carers

This also impacts me as his unpaid carer. I'm already exhausted from the preparation that has gone in to ensure he's ready and keep him safe. Another month of elongated stress and no sleep to come

Strikes tomorrow mean my son's surgery has been cancelled. He's an incredibly stressed young man with learning disability who has built up to this surgery all week. Seizures ⬆️and now has to reset to a new date in 4 weeks time.Remember unseen impact on patients when striking @rachel-p.bsky.social

We need to hear from as many carers as possible to help shape our future policy and campaigning work.

Please take our survey and tell us what needs to be done: https://www.surveymonkey.com/r/QNPDKV2?utm_source=bluesky&utm_medium=social&utm_campaign&utm_content=ap_4yly8ojbkk

www.wm-adass.org.uk/improvement/...

Such a sad but not surprising report

NHS 10-Year-Plan is out!📣

We are pleased to see the ambition for carers to be actively involved in care planning and welcome the new section for the NHS app called ‘My Carer’.

Without carers the healthcare system would collapse we must see them supported in all areas

Honest discussion between @rachel-p.bsky.social and Jim Mackey in @patients-association.org.uk webinar. Curiosity is key. Working in a meaningful way with patients

It's #CoProWeek25 ❗

This year’s theme is Innovation through Co-production. A reminder that when people with lived experience shape solutions, we get innovation that works.

Looking forward to the activities this week as we continue to work towards people being at the heart of care and support.

This is fantastic

Really interesting to read this

Unpaid carers contribute the equivalent of four million paid care workers to the social care system.

Without them, the system would collapse.

But over the past 10 years, the number of carers receiving support has decreased – find out more in Social Care 360:
buff.ly/BOSpLAG

At #NHSConfedExpo today, Victor Adebowale explored the complex relationship between the NHS and adult social care, highlighting the urgent need for collaboration to enhance care delivery.

Uclh are amazing! I have a very needle phobic adult son who needed to be admitted to national hospital for neurology and neurosurgery. They went above and beyond to ensure they knew what mattered to him and did bloods under GA too whilst having surgery

youtu.be/xVWJhlTw2oU?...

Fab new video coproduced in Nottingham/shire to support person centred care using a one page profile

And you got to spend time with the incredible @muntma.bsky.social

The refreshed Good Lives Framework shared by @learningdiseng.bsky.social lays out what people with learning disabilities say they want and need to live well.

Read the updated framework and easy read version here: www.learningdisabilityengland.org.uk/the-framework/...

Amazing to see in the blueprint for ICBs that working fully with people and communities is vital. Really pleasantly surprised to read the document and see how often coproduction and codesign feature. Hopefully the ICBs will develop plans that reflect this
@jacoblant.bsky.social @rachel-p.bsky.social

Spontaneous trip to the beach was so good for us all. Finished off with chips overlooking the sea

Amongst many issues with this whole process is the point that there are no perfect footprints for NHS organisations. We do not live our lives in neat boxes, and wherever a boundary is put there will be cross border issues. We'd make so much more progress if we could pick a structure and stick to it.

And maybe because so often social care is seen as an adjunct to the NHS, something to get frail older people out of hospital, rather than as it should be, the support which enables people - including those frail older people - to thrive in their community.