Alisa
@ibc-advocate.bsky.social
Inflammatory breast cancer #IBC survivor and patient advocate. #thinkibc Loves: science | running | cats | books | chocolate
Reposted by Alisa
More insights on this unethical vaccine study - which is paid for by the CDC and involves experimenting on a vulnerable infant population.
When Vaccine Research Raises the Wrong Questions
How the CDC quietly announced funding a study for global vaccine research that has questionable ethical considerations
drrubin.substack.com
December 19, 2025 at 1:46 AM
More insights on this unethical vaccine study - which is paid for by the CDC and involves experimenting on a vulnerable infant population.
Reposted by Alisa
From in silico prediction to experimental validation: Identification of drugs and novel synergistic combinations that inhibit growth of inflammatory breast cancer cells https://www.biorxiv.org/content/10.64898/2025.12.10.693562v1
December 13, 2025 at 9:47 PM
From in silico prediction to experimental validation: Identification of drugs and novel synergistic combinations that inhibit growth of inflammatory breast cancer cells https://www.biorxiv.org/content/10.64898/2025.12.10.693562v1
Reposted by Alisa
UNITE to help end breast cancer at the #NBCCSummit! Join tireless and talented breast cancer advocates who will help NBCC achieve our mission to end breast cancer for everyone. Nbcc.info/26Summit
December 14, 2025 at 5:00 PM
UNITE to help end breast cancer at the #NBCCSummit! Join tireless and talented breast cancer advocates who will help NBCC achieve our mission to end breast cancer for everyone. Nbcc.info/26Summit
All of this. Especially for MBC but for all patients. #cansky
It’s the Treatment that Fails the Patient, Not the Patient Who Fails the Treatment - Olubukola Ayodele
@bookiephronesis.bsky.social
oncodaily.com/voices/olubu...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews
@bookiephronesis.bsky.social
oncodaily.com/voices/olubu...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews
Olubukola Ayodele: It's the Treatment that Fails the Patient, Not the Patient Who Fails the Treatment - OncoDaily
Olubukola Ayodele: It's the Treatment that Fails the Patient, Not the Patient Who Fails the Treatment / cancer, MBC, metastatic breast cancer, Olubukola
oncodaily.com
December 13, 2025 at 11:45 PM
All of this. Especially for MBC but for all patients. #cansky
Chemo = brain fog. Chemo + hormone suppression = more brain fog. You don’t say. Seriously, though, I am glad to see it’s getting studied. jamanetwork.com/journals/jam...
Unraveling the Complexity of Cancer-Related Cognitive Impairment in Breast Cancer
Cancer-related cognitive impairment (CRCI) is an important clinical problem that affects many patients with cancer and includes difficulties in memory, attention, processing speed, and executive funct...
jamanetwork.com
December 13, 2025 at 11:42 PM
Chemo = brain fog. Chemo + hormone suppression = more brain fog. You don’t say. Seriously, though, I am glad to see it’s getting studied. jamanetwork.com/journals/jam...
Reposted by Alisa
When ProPublica’s @gingerthompson.bsky.social began talking to people in Albany, GA, she didn’t expect that they would be so fearful to criticize the town’s sole hospital on the record — or how powerless they were to hold that hospital to account.
Read our 5-part "Sick in a Hospital Town" series:
Read our 5-part "Sick in a Hospital Town" series:
Sick in a Hospital Town: As Phoebe Memorial Grew, the Health of Albany, Georgia, Declined
The five-part series, “Sick in a Hospital Town,” pursues one question: Why are people in Albany so sick when its most powerful institution is a hospital?
projects.propublica.org
December 13, 2025 at 9:00 PM
When ProPublica’s @gingerthompson.bsky.social began talking to people in Albany, GA, she didn’t expect that they would be so fearful to criticize the town’s sole hospital on the record — or how powerless they were to hold that hospital to account.
Read our 5-part "Sick in a Hospital Town" series:
Read our 5-part "Sick in a Hospital Town" series:
Reposted by Alisa
"New research finds the latest quirk of #GLP-1 receptor agonists is that they may influence the interpretation of oncological #FDG PET/CT scans. 'We noticed unusual uptake in 1 of our pts on a GLP-1 agonist, which prompted a wider review.' The team conducted a retrospective case ..." 1/3 #CanSky
GLP-1s May Throw Off Some Medical Scans
The latest quirk linked to GLP-1 receptor agonists is of more concern to doctors than patients
www.medpagetoday.com
December 13, 2025 at 6:53 PM
Reposted by Alisa
Inflammatory breast cancer is very aggressive.
The aggressive biology of IBC may override any additional risks imposed by a postpartum diagnosis.
pubmed.ncbi.nlm.nih.gov/40938309/
The aggressive biology of IBC may override any additional risks imposed by a postpartum diagnosis.
pubmed.ncbi.nlm.nih.gov/40938309/
Impact of Postpartum Diagnosis on Survival of Women with Inflammatory Breast Cancer - PubMed
Unlike in noninflammatory invasive breast cancer, postpartum diagnosis did not negatively affect prognosis in IBC. These findings highlight the continuing need to identify unique drivers of aggressive biology in IBC.
pubmed.ncbi.nlm.nih.gov
December 8, 2025 at 4:53 PM
Inflammatory breast cancer is very aggressive.
The aggressive biology of IBC may override any additional risks imposed by a postpartum diagnosis.
pubmed.ncbi.nlm.nih.gov/40938309/
The aggressive biology of IBC may override any additional risks imposed by a postpartum diagnosis.
pubmed.ncbi.nlm.nih.gov/40938309/
Reposted by Alisa
📢 Hot from the Press: Now published in #NEJM!
We are excited to share that the pivotal DESTINY-Breast05 data „Trastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer“ presented by Sibylle Loibl at #SABCS2025, is now available.
🔗 Read the full NEJM article:
www.nejm.org/doi/full/10....
We are excited to share that the pivotal DESTINY-Breast05 data „Trastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer“ presented by Sibylle Loibl at #SABCS2025, is now available.
🔗 Read the full NEJM article:
www.nejm.org/doi/full/10....
Trastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer | NEJM
Patients with human epidermal growth factor receptor 2 (HER2)–positive early breast cancer and residual disease after neoadjuvant therapy are at high risk for recurrence. In a phase 3, open-label, ...
www.nejm.org
December 10, 2025 at 10:14 PM
📢 Hot from the Press: Now published in #NEJM!
We are excited to share that the pivotal DESTINY-Breast05 data „Trastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer“ presented by Sibylle Loibl at #SABCS2025, is now available.
🔗 Read the full NEJM article:
www.nejm.org/doi/full/10....
We are excited to share that the pivotal DESTINY-Breast05 data „Trastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer“ presented by Sibylle Loibl at #SABCS2025, is now available.
🔗 Read the full NEJM article:
www.nejm.org/doi/full/10....
MRIs are still the gold standard for inflammatory breast cancer.
Resection of MRI-Detected Disease Fails to Improve Recurrence Rates in Early Breast Cancer @sabcsss.bsky.social #SABCS2025 #bcsm #oncology www.onclive.com/view/resecti...
Resection of MRI-Detected Disease Fails to Improve Recurrence Rates in Early Breast Cancer | OncLive
Locoregional recurrence-free rates were similar in newly diagnosed breast cancer, irrespective of resection of MRI-detected disease.
www.onclive.com
December 12, 2025 at 3:44 AM
MRIs are still the gold standard for inflammatory breast cancer.
So interesting listening to @tmprowell.bsky.social and other FDA oncologists on an Alamo Advocate panel. Thank you so much for being there and answering patient advocate questions. #sabcs2025
December 11, 2025 at 6:28 PM
So interesting listening to @tmprowell.bsky.social and other FDA oncologists on an Alamo Advocate panel. Thank you so much for being there and answering patient advocate questions. #sabcs2025
Reposted by Alisa
Partners in Progress: This #SABCS25 Plenary Lecture will showcase how patients and advocates have expanded their roles in every stage of breast cancer research—including clinical trial design. Learn more in SABCS Meeting News:
buff.ly/yKwCDRx
buff.ly/yKwCDRx
November 21, 2025 at 5:00 PM
Partners in Progress: This #SABCS25 Plenary Lecture will showcase how patients and advocates have expanded their roles in every stage of breast cancer research—including clinical trial design. Learn more in SABCS Meeting News:
buff.ly/yKwCDRx
buff.ly/yKwCDRx
Reposted by Alisa
Presenters share the latest cutting-edge research—including data from the ALTERNATE, I-SPY, and MARRES trials—during a Rapid Fire session at #SABCS25.
December 10, 2025 at 3:31 AM
Presenters share the latest cutting-edge research—including data from the ALTERNATE, I-SPY, and MARRES trials—during a Rapid Fire session at #SABCS25.
Excellent talk this afternoon on dormant cell research and ways of targeting those cells to prevent recurrence. Important for all breast cancer survivors, but especially IBC patients. #sabcs2025 #inflammatorybreastcancer
December 9, 2025 at 11:06 PM
Excellent talk this afternoon on dormant cell research and ways of targeting those cells to prevent recurrence. Important for all breast cancer survivors, but especially IBC patients. #sabcs2025 #inflammatorybreastcancer
Reposted by Alisa
San Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino
@ptarantinomd.bsky.social
@sabcs.bsky.social
oncodaily.com/voices/breas...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #SABCS #SABCS2025
@ptarantinomd.bsky.social
@sabcs.bsky.social
oncodaily.com/voices/breas...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #SABCS #SABCS2025
San Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino - OncoDaily
San Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino / Breast Cancer, cancer, Headlines, OncoDaily, Oncology, Paolo
oncodaily.com
December 8, 2025 at 9:59 PM
San Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino
@ptarantinomd.bsky.social
@sabcs.bsky.social
oncodaily.com/voices/breas...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #SABCS #SABCS2025
@ptarantinomd.bsky.social
@sabcs.bsky.social
oncodaily.com/voices/breas...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #SABCS #SABCS2025
Reposted by Alisa
AACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025
@theaacr.bsky.social
@sabcs.bsky.social
@stolaney1.bsky.social
oncodaily.com/industry/aac...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #AACR #BreastCancer #SABCS #SABCS2025
@theaacr.bsky.social
@sabcs.bsky.social
@stolaney1.bsky.social
oncodaily.com/industry/aac...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #AACR #BreastCancer #SABCS #SABCS2025
AACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025 - OncoDaily
AACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025 / AACR, Breast Cancer, OncoDaily, onoclogy, SABCS 2025
oncodaily.com
December 6, 2025 at 5:30 PM
AACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025
@theaacr.bsky.social
@sabcs.bsky.social
@stolaney1.bsky.social
oncodaily.com/industry/aac...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #AACR #BreastCancer #SABCS #SABCS2025
@theaacr.bsky.social
@sabcs.bsky.social
@stolaney1.bsky.social
oncodaily.com/industry/aac...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #AACR #BreastCancer #SABCS #SABCS2025
Excited to be at SABCS, the largest breast cancer symposium in the world #alamoadvocateprogram #sabcs2025 #thinkibc
December 8, 2025 at 11:16 PM
Excited to be at SABCS, the largest breast cancer symposium in the world #alamoadvocateprogram #sabcs2025 #thinkibc
“I truly believe my son saved my life,” says Savannah Curry. “I probably had the cancer before I got pregnant, but if it weren’t for him, I might not have found it so early.”
Read her story about her care at MD Anderson that she says made it all possible: spr.ly/633227oT72
Read her story about her care at MD Anderson that she says made it all possible: spr.ly/633227oT72
Inflammatory breast cancer survivor names son after MD Anderson
Pregnant at 27 and facing inflammatory breast cancer, Savannah found hope and expert care at MD Anderson and named her son Anderson in its honor.
spr.ly
November 30, 2025 at 8:55 PM
Reposted by Alisa
Such wonderful networking and brainstorming today at the IBC Connect and Community - we will create an email distribution to connect clinician and community teams, interested in projects and ideas to improve adherence to guidelines for IBC- Please DM if you would like to join the list! #cansky
November 14, 2025 at 3:48 PM
Such wonderful networking and brainstorming today at the IBC Connect and Community - we will create an email distribution to connect clinician and community teams, interested in projects and ideas to improve adherence to guidelines for IBC- Please DM if you would like to join the list! #cansky
“If your doctor first treats the symptoms as an infection and they don’t improve within a week, ask for more tests, such as imaging or a biopsy, to find the cause. If redness or swelling continues, especially if you’re not breastfeeding, ask for a follow-up visit right away.”
Inflammatory breast cancer (IBC) can cause redness, swelling or warmth instead of a lump you can feel. Because of that, diagnosis sometimes happens later than it should. Here's what to look for. https://www.franciscanhealth.org/community/blog/inflammatory-breast-cancer-might-not-have-a-lump
November 18, 2025 at 10:12 AM
“If your doctor first treats the symptoms as an infection and they don’t improve within a week, ask for more tests, such as imaging or a biopsy, to find the cause. If redness or swelling continues, especially if you’re not breastfeeding, ask for a follow-up visit right away.”
Reposted by Alisa
I wish your friend well. Obamacare saved my life. I lost my health insurance in Aug of 2016. Found a lump Oct 2016. Signed up for ACA insurance Jan 2017 and started treatment for my Stage III TN IBC(Triple Negative Inflammatory Breast Cancer) which is also a death sentence without treatment.
November 12, 2025 at 11:54 AM
I wish your friend well. Obamacare saved my life. I lost my health insurance in Aug of 2016. Found a lump Oct 2016. Signed up for ACA insurance Jan 2017 and started treatment for my Stage III TN IBC(Triple Negative Inflammatory Breast Cancer) which is also a death sentence without treatment.
Honored to be a presenter at IBC Community Connect Conference - it’s wonderful to be in the presence of so many brilliant, dedicated people. #IBCCC2025 Thank you @ibcradiation.bsky.social for bringing everyone together.
November 14, 2025 at 5:30 PM
Honored to be a presenter at IBC Community Connect Conference - it’s wonderful to be in the presence of so many brilliant, dedicated people. #IBCCC2025 Thank you @ibcradiation.bsky.social for bringing everyone together.
Reposted by Alisa
💬 Viewpoint: Medical education should shift from pattern recognition to critical thinking and pathophysiological reasoning to reduce diagnostic errors and adapt to #AI advancements. #MedEd
ja.ma/46VhjuI
ja.ma/46VhjuI
September 25, 2025 at 4:15 PM
💬 Viewpoint: Medical education should shift from pattern recognition to critical thinking and pathophysiological reasoning to reduce diagnostic errors and adapt to #AI advancements. #MedEd
ja.ma/46VhjuI
ja.ma/46VhjuI
Looking forward to reading this one.
You've heard me talk about it.
You've seen me write about it.
And now it's your chance to pre-order my forthcoming book Coverage Denied!
Combining survey & administrative data with extensive interviews, my book highlights the harms caused by coverage barriers. Hope you'll read it!
cup.org/4nfM2IM
You've seen me write about it.
And now it's your chance to pre-order my forthcoming book Coverage Denied!
Combining survey & administrative data with extensive interviews, my book highlights the harms caused by coverage barriers. Hope you'll read it!
cup.org/4nfM2IM
Coming 2026!
@mirandayaver.bsky.social's Coverage Denied: How Health Insurers Drive Inequality in the United States is a sobering account of the ways in which coverage denials damage patient health and exacerbate inequalities.
Pre-order now! 🗺️ 🩺📊
https://cup.org/4nfM2IM
@mirandayaver.bsky.social's Coverage Denied: How Health Insurers Drive Inequality in the United States is a sobering account of the ways in which coverage denials damage patient health and exacerbate inequalities.
Pre-order now! 🗺️ 🩺📊
https://cup.org/4nfM2IM
September 25, 2025 at 6:13 PM
Looking forward to reading this one.
Important, evidence-based information about birth control pills.
Birth control pills change your hormone levels, which both lower and increase your risk for developing different types of cancer.
Read what our Dr. Roni Wilke has to say: spr.ly/63323Akwg1 #OncSky #EndCancer
Read what our Dr. Roni Wilke has to say: spr.ly/63323Akwg1 #OncSky #EndCancer
The pill and cancer: Is there a link?
Most birth control pills contain human-made versions of the female sex hormones estrogen and progesterone. So, are they putting you at risk for cancer?
spr.ly
September 22, 2025 at 9:10 PM
Important, evidence-based information about birth control pills.