Tasha Marie | Pain Warrior Code
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painwarriorcode.bsky.social
Tasha Marie | Pain Warrior Code
@painwarriorcode.bsky.social
Tasha Marie. Chronic Migraine Warrior. Blogger. Speaker. Empowering those with chronic illnesses to find peace, perseverance & prosperity.
Matt 11:28 ✝
www.PainWarriorCode.Com
Reposted by Tasha Marie | Pain Warrior Code
SciTech Daily: 'The Unresolved Puzzle of Long COVID: 30% of Young People Still Suffer After Two Years'

'Researchers emphasized the need for further investigation and collaboration to address unresolved cases'

scitechdaily.com/the-unresolv...
The Unresolved Puzzle of Long COVID: 30% of Young People Still Suffer After Two Years
A UCL study found that 70% of young people with long Covid recovered within 24 months, but recovery was less likely among older teenagers, females, and those from deprived backgrounds. Researchers emp...
scitechdaily.com
December 9, 2024 at 5:05 PM
Reposted by Tasha Marie | Pain Warrior Code
I don’t really spend that much time with my abled friends anymore because I can see their eyes glaze over whenever they ask how I’m doing and I have to tell them the truth. Since the other option is just lying so they’ll feel better, overall the appeal of socializing with them isn’t very high.
People have a clock when it comes to being around the chronically. They’re supportive at first - but if you don’t get better quickly - they grow resentful & abandon you.

They never consider that it might be hard for US that we will never get better. They never consider our feelings at all.
December 10, 2024 at 3:35 AM
Reposted by Tasha Marie | Pain Warrior Code
People have a clock when it comes to being around the chronically. They’re supportive at first - but if you don’t get better quickly - they grow resentful & abandon you.

They never consider that it might be hard for US that we will never get better. They never consider our feelings at all.
December 10, 2024 at 3:29 AM
Good friends are few and far between.

I pray that we will all be surrounded by people of good character and quality. People who will show up for us when needed.

May we also support them as best as we can in return!
December 10, 2024 at 11:16 AM
Reposted by Tasha Marie | Pain Warrior Code
Hating yourself for things you can’t control will never make you better, it will only make you bitter.
December 4, 2024 at 2:10 AM
When you’ve worked on building up your self confidence & you’re making moves - know that there will be someone trying to undo all of your work. Sometimes they will be individuals/institutions you usually felt safe with. Protect your mental space at all costs!
April 9, 2024 at 7:24 PM
Sometimes people don’t have the capacity to even try to understand your situation & provide you with the support you need. Once you recognise this, lower your expectations of them - it prevents disappointment in the long run!
December 22, 2023 at 1:00 PM
I know it’s hard, but remember that you’ve got this.

Be encouraged 💝
December 11, 2023 at 6:11 PM
So I recently attended a parliamentary event, hosted by The Migraine Trust at The Houses Of Parliament. It was an honour to represent & advocate for migraineurs by sharing my experience with MPs & Lords. It was also empowering to meet others who deal with migraines like myself!
December 11, 2023 at 6:11 PM
If you have felt defeated or frustrated today, this is your reminder to keep going. You are tough. You’ve got what it takes to see this through.

#Migraine #MigraineChat #ChronicIllness
October 9, 2023 at 2:28 PM
I will say this, conversing on here has been quite an easy and positive experience so far. Just straight chronic illness conversation - without having to swim through a bunch of tweets focused on politics! Lol
October 8, 2023 at 10:51 PM
@ravenmae.bsky.social nice to catch you over here!! 😃
October 8, 2023 at 9:55 PM
Have you ever tried emgality for migraines? If so, what was your experience like? My neurologist is recommending either that or Botox next. Please share your experiences & stories to help me decide which one to try!

#Migraine #Spoonie #ChronicPain #ChronicIllness #ChronicWarrior #MigraineChat
October 8, 2023 at 4:35 PM
Sounds like the story of my life at the moment! Every time I leave the house it just seems to make things worse. My immune system is practically a ghost nowadays 🤦🏾‍♀️
Mantra
i went out in public It Was A Mistake
October 8, 2023 at 11:02 AM
Reposted by Tasha Marie | Pain Warrior Code
I've decided to open my code-distribution project to folks in the disability community as well as the chronically ill community. Please help spread the word! And I continue to be grateful for donated codes. forms.gle/ohDAHronsA2t...
October 7, 2023 at 4:26 PM
I can definitely believe this!
October 7, 2023 at 2:29 PM
Just a reminder to all of you that you are valuable no matter what. Your condition does not make you any less valuable, even in a society that says it does. 🫂

#ChronicPain #Spoonie #ChronicIllness #MigraineChat #Migraine
October 7, 2023 at 2:28 PM
Reposted by Tasha Marie | Pain Warrior Code
The access of disabled people should not depend on the arbitrariness of nondisabled people.
October 7, 2023 at 2:54 AM
Reposted by Tasha Marie | Pain Warrior Code
As new, migraine-specific treatments come out, access can get expensive. This is especially true if you are un- or underinsured. I compiled some tips that might help.

These are pretty US-centric. If you live elsewhere and have suggestion, I’m happy to add them with credit to you!

#MigraineChat
Healthcare Costs So High, They’ve Got You Down (Some Tips)
With the release of more new treatments targeted to migraine, there is reason to be hopeful that better treatments are out there. Unless you happen to be like me: under-insured. Or worse, you find you...
thecounterfactualbrain.wordpress.com
October 6, 2023 at 12:15 PM
Okay so I’ve finally made it to Bluesky. Let’s go! 👏🏾
October 6, 2023 at 8:32 PM
@julierehmeyer.bsky.social thanks for all of your effort to make sure those of us in the chronic illness community could access codes and transfer to this app! 🙏🏾
October 6, 2023 at 8:31 PM