Pam T
@pamt0.bsky.social
Five adult children, two grandchildren, strewn around the globe, and two cats
Reposted by Pam T
A damning one star review of Robert Galbraith (JK Rowling) book, The Ink Black Heart, which includes two characters with ME/CFS
www.goodreads.com/review/show/...
Screenshot from latest Science for ME weekly update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
www.goodreads.com/review/show/...
Screenshot from latest Science for ME weekly update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
December 8, 2025 at 2:49 AM
A damning one star review of Robert Galbraith (JK Rowling) book, The Ink Black Heart, which includes two characters with ME/CFS
www.goodreads.com/review/show/...
Screenshot from latest Science for ME weekly update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
www.goodreads.com/review/show/...
Screenshot from latest Science for ME weekly update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Reposted by Pam T
Help
Loudoun County, VA area. This family is devastated!:
“Day four of Skyler missing. Please come home. Please keep searching. I miss her more than I need the air in my lungs. Thank you so much everyone for continuously helping.”
“Day four of Skyler missing. Please come home. Please keep searching. I miss her more than I need the air in my lungs. Thank you so much everyone for continuously helping.”
June 29, 2025 at 3:05 AM
Help
Reposted by Pam T
Disability benefit cuts will harm hundreds of thousands, MPs warn: 'A disaster on every front'
'it's very clear that if this goes ahead, the wider cost to society will be bigger than any money they save'
www.bigissue.com/news/social-...
'it's very clear that if this goes ahead, the wider cost to society will be bigger than any money they save'
www.bigissue.com/news/social-...
Labour's disability benefit cuts set to be a 'disaster on all fronts'
Disability benefits cuts will harm hundreds of thousands of people and cost some individuals almost £900 a month, MPs have warned.
www.bigissue.com
June 16, 2025 at 10:42 AM
Disability benefit cuts will harm hundreds of thousands, MPs warn: 'A disaster on every front'
'it's very clear that if this goes ahead, the wider cost to society will be bigger than any money they save'
www.bigissue.com/news/social-...
'it's very clear that if this goes ahead, the wider cost to society will be bigger than any money they save'
www.bigissue.com/news/social-...
Reposted by Pam T
This is beautiful. Let me try to describe it for alt text: Watercolor painting of two hands knitting, colored in blues and greens like Earth’s land and oceans. Simple black knitting needles. The stitches are tiny, colorful people shaped like Xs, arms and legs outstretched, holding onto each other.
This drawing is by Anja Rozen, a 13-year-old primary school student in Slovenia.
She was chosen from 600,000 children around the world to create a piece of art to show what peace looks like.
She was chosen from 600,000 children around the world to create a piece of art to show what peace looks like.
March 7, 2025 at 1:43 AM
This is beautiful. Let me try to describe it for alt text: Watercolor painting of two hands knitting, colored in blues and greens like Earth’s land and oceans. Simple black knitting needles. The stitches are tiny, colorful people shaped like Xs, arms and legs outstretched, holding onto each other.
Reposted by Pam T
Byline Times is facing major DDOS (malicious traffic-flooding) issues on our site apparently after this article went live...
bylinetimes.com/2025/02/21/d...
bylinetimes.com/2025/02/21/d...
Donald Trump Was Recruited by the KGB Under Codename 'Krasnov' Claims Former Soviet Spy Chief
A former senior KGB chief claims Trump was recruited by them in 1987 due to his role as a prominent US businessman
bylinetimes.com
February 21, 2025 at 10:31 PM
Byline Times is facing major DDOS (malicious traffic-flooding) issues on our site apparently after this article went live...
bylinetimes.com/2025/02/21/d...
bylinetimes.com/2025/02/21/d...
Reposted by Pam T
✍️ Open letter to the home secretary
Labour’s cruel asylum plans betray refugees, court the far right, and risk their own downfall
– it’s time to change course.
Labour’s cruel asylum plans betray refugees, court the far right, and risk their own downfall
– it’s time to change course.
Open letter to the home secretary
Labour’s cruel asylum plans betray refugees, court the far right, and risk their own downfall – it’s time to change course
yorkshirebylines.co.uk
February 18, 2025 at 6:01 AM
✍️ Open letter to the home secretary
Labour’s cruel asylum plans betray refugees, court the far right, and risk their own downfall
– it’s time to change course.
Labour’s cruel asylum plans betray refugees, court the far right, and risk their own downfall
– it’s time to change course.
Reposted by Pam T
"PEM is a red flag that all healthcare professionals should identify from the clinical history. Do not advise patients to ignore and push through their symptoms. Often, sufferers do not realise that trivial or previously tolerated levels of exertion can cause PEM." Dr Nina Muirhead
Learn more from
Learn more from
January 14, 2025 at 7:56 PM
"PEM is a red flag that all healthcare professionals should identify from the clinical history. Do not advise patients to ignore and push through their symptoms. Often, sufferers do not realise that trivial or previously tolerated levels of exertion can cause PEM." Dr Nina Muirhead
Learn more from
Learn more from
Reposted by Pam T
The far-right is rising across Europe, but we're seeing early tentative signs that they can be frozen out of power. What's required is an absolute refusal from decent people on the centre-right to work with them inews.co.uk/opinion/nige...
Nigel Farage is watching hungrily as the far right sweeps to power across Europe
In 2025, European liberal democracy will be in a fight for its survival
inews.co.uk
December 23, 2024 at 10:01 AM
The far-right is rising across Europe, but we're seeing early tentative signs that they can be frozen out of power. What's required is an absolute refusal from decent people on the centre-right to work with them inews.co.uk/opinion/nige...
Reposted by Pam T
The devastation on its way is unimaginable - like nothing humanity has ever witnessed before - and everyone will wish they had been climate activists and ‘hysterics’ when they had the chance. We are in a moment of unprecedented stupidity
December 22, 2024 at 1:41 PM
The devastation on its way is unimaginable - like nothing humanity has ever witnessed before - and everyone will wish they had been climate activists and ‘hysterics’ when they had the chance. We are in a moment of unprecedented stupidity
Reposted by Pam T
We're sleepwalking towards total climate collapse– it's why I'm petitioning the UK Govt to BAN fossil fuel advertising and sponsorships , following the lead of cities and countries around the world petition.parliament.uk/petitions/70...
December 18, 2024 at 10:51 AM
We're sleepwalking towards total climate collapse– it's why I'm petitioning the UK Govt to BAN fossil fuel advertising and sponsorships , following the lead of cities and countries around the world petition.parliament.uk/petitions/70...
Reposted by Pam T
Please please please donate to help this sweet boy. LCAS had to wait 5 days to try to find the owners before they could proceed with this. Let’s get Simon his surgery ASAP so he can find his forever home. 🩷
Sweet Simon has been dealt a rough hand. He was hit by a car & now has 2 broken legs that need to be repaired by an orthopedic surgeon costing $1,000s. Can you help us with a donation today? flcas.org/donate
Thank you LCAS for providing Simon with such wonderful care!
Thank you LCAS for providing Simon with such wonderful care!
December 17, 2024 at 1:34 AM
Please please please donate to help this sweet boy. LCAS had to wait 5 days to try to find the owners before they could proceed with this. Let’s get Simon his surgery ASAP so he can find his forever home. 🩷
Reposted by Pam T
@Katybrc.bsky.social you have replies turned off (so may not see this) but I can answer your question: me. At the highest level.
There are dangerous mistakes & assumptions in the Royal Devon & Exeter's #ME guide
1 which stands out, in the jug metaphor they claim 'laughter & having fun' & 'enjoyable activities' improve 'energy supply'
Who will be calling them out on this?
#MEcfs #pwME
www.royaldevon.nhs.uk/media/texncs...
1 which stands out, in the jug metaphor they claim 'laughter & having fun' & 'enjoyable activities' improve 'energy supply'
Who will be calling them out on this?
#MEcfs #pwME
www.royaldevon.nhs.uk/media/texncs...
www.royaldevon.nhs.uk
December 16, 2024 at 7:52 AM
@Katybrc.bsky.social you have replies turned off (so may not see this) but I can answer your question: me. At the highest level.
Reposted by Pam T
I said hello to
the line of people waiting
I call this: "Hi, queue."
the line of people waiting
I call this: "Hi, queue."
December 14, 2024 at 3:28 PM
I said hello to
the line of people waiting
I call this: "Hi, queue."
the line of people waiting
I call this: "Hi, queue."
Reposted by Pam T
One of the few posts I have seen where disease progression is acknowledged. This is one of the missing links for NHS and every ME organisation that got lost in a nationally funded service for CFS that never assessed for PEM.
December 13, 2024 at 7:17 AM
One of the few posts I have seen where disease progression is acknowledged. This is one of the missing links for NHS and every ME organisation that got lost in a nationally funded service for CFS that never assessed for PEM.
Reposted by Pam T
🔥Wow!
A first for Royal Devon Myalgic Encephalomyelitis Clinic.
They’ve shared the very much needed reference information on ME that every UK Hospital Trust should aspire to. This is the closest to a care pathway as has ever existed in the UK
I want to say a big thank you to them 🙏
#pwME #pwLC
A first for Royal Devon Myalgic Encephalomyelitis Clinic.
They’ve shared the very much needed reference information on ME that every UK Hospital Trust should aspire to. This is the closest to a care pathway as has ever existed in the UK
I want to say a big thank you to them 🙏
#pwME #pwLC
#MaeveInquest update! All credit to NHS Devon for innovating the first step towards an ME specific NHS pathway. For planned and unplanned hospital admissions, details are now public and available here, www.royaldevon.nhs.uk/services/mya...
NHS Royal Devon | Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS)
www.royaldevon.nhs.uk
December 12, 2024 at 12:05 AM
Reposted by Pam T
TW: Severe ME
“People’s lives have been blighted by this disease... they cannot get the care that they deserve and that they need.” - Prof Chris Ponting, DecodeME Investigator.
To hear from those whose family has been most affected by severe ME, watch below ⬇️
news.sky.com/video/in-ful...
“People’s lives have been blighted by this disease... they cannot get the care that they deserve and that they need.” - Prof Chris Ponting, DecodeME Investigator.
To hear from those whose family has been most affected by severe ME, watch below ⬇️
news.sky.com/video/in-ful...
In full: Monday's UK Tonight
Sarah-Jane Mee brings all the big stories across the UK.
news.sky.com
December 11, 2024 at 11:15 AM
TW: Severe ME
“People’s lives have been blighted by this disease... they cannot get the care that they deserve and that they need.” - Prof Chris Ponting, DecodeME Investigator.
To hear from those whose family has been most affected by severe ME, watch below ⬇️
news.sky.com/video/in-ful...
“People’s lives have been blighted by this disease... they cannot get the care that they deserve and that they need.” - Prof Chris Ponting, DecodeME Investigator.
To hear from those whose family has been most affected by severe ME, watch below ⬇️
news.sky.com/video/in-ful...
Reposted by Pam T
#MaeveInquest update! All credit to NHS Devon for innovating the first step towards an ME specific NHS pathway. For planned and unplanned hospital admissions, details are now public and available here, www.royaldevon.nhs.uk/services/mya...
NHS Royal Devon | Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS)
www.royaldevon.nhs.uk
December 11, 2024 at 5:08 PM
#MaeveInquest update! All credit to NHS Devon for innovating the first step towards an ME specific NHS pathway. For planned and unplanned hospital admissions, details are now public and available here, www.royaldevon.nhs.uk/services/mya...
Reposted by Pam T
If this country made the slightest bit of sense we'd be beating Europe's doors down to secure a youth mobility scheme.
inews.co.uk/opinion/brex...
inews.co.uk/opinion/brex...
December 11, 2024 at 3:58 PM
If this country made the slightest bit of sense we'd be beating Europe's doors down to secure a youth mobility scheme.
inews.co.uk/opinion/brex...
inews.co.uk/opinion/brex...
Reposted by Pam T
We’ve just had another granddaughter.
A baby of 2024.
She’ll probably still be alive in the 22nd century…
🙏🏼
How nice it would be to see an end to the misery and destruction.
I strive to be part of a friendly and
peaceful planet.
It can be done…
🇪🇺
Let’s rejoin the EU!
Let’s do that…
🌍
A baby of 2024.
She’ll probably still be alive in the 22nd century…
🙏🏼
How nice it would be to see an end to the misery and destruction.
I strive to be part of a friendly and
peaceful planet.
It can be done…
🇪🇺
Let’s rejoin the EU!
Let’s do that…
🌍
December 8, 2024 at 11:28 AM
We’ve just had another granddaughter.
A baby of 2024.
She’ll probably still be alive in the 22nd century…
🙏🏼
How nice it would be to see an end to the misery and destruction.
I strive to be part of a friendly and
peaceful planet.
It can be done…
🇪🇺
Let’s rejoin the EU!
Let’s do that…
🌍
A baby of 2024.
She’ll probably still be alive in the 22nd century…
🙏🏼
How nice it would be to see an end to the misery and destruction.
I strive to be part of a friendly and
peaceful planet.
It can be done…
🇪🇺
Let’s rejoin the EU!
Let’s do that…
🌍
Reposted by Pam T
open.substack.com/pub/immuneil...
Black condemned the physicians, insurers, politicians, and media that were indoctrinated in the “biopsychosocial (BPS) doctrine” of ME/CFS, which portrays patients as delusional..
Calling this doctrine “a fraud” used in “gaslighting”..
"cost effective"..
Black condemned the physicians, insurers, politicians, and media that were indoctrinated in the “biopsychosocial (BPS) doctrine” of ME/CFS, which portrays patients as delusional..
Calling this doctrine “a fraud” used in “gaslighting”..
"cost effective"..
Britain on the Verge of Criminalizing “Malingering” by ME/CFS Patients and Other Desperately Ill People
Scottish lawyer David J. Black attacks the “ruthless war of attrition” on benefits for Britain’s “poor-sick” and its U.S.-based insurance company instigators
open.substack.com
December 7, 2024 at 4:42 PM
open.substack.com/pub/immuneil...
Black condemned the physicians, insurers, politicians, and media that were indoctrinated in the “biopsychosocial (BPS) doctrine” of ME/CFS, which portrays patients as delusional..
Calling this doctrine “a fraud” used in “gaslighting”..
"cost effective"..
Black condemned the physicians, insurers, politicians, and media that were indoctrinated in the “biopsychosocial (BPS) doctrine” of ME/CFS, which portrays patients as delusional..
Calling this doctrine “a fraud” used in “gaslighting”..
"cost effective"..
Reposted by Pam T
Reform UK leader Nigel Farage says
“We need to leave the ECHR so we can deport people that come illegally & take back control of our borders & that’s what the public wants”
Share if you disagree with his populist boll**** the UK should join Russia & Belarus outside the ECHR
youtu.be/iSTN-h8NoyY
“We need to leave the ECHR so we can deport people that come illegally & take back control of our borders & that’s what the public wants”
Share if you disagree with his populist boll**** the UK should join Russia & Belarus outside the ECHR
youtu.be/iSTN-h8NoyY
Reform UK leader Nigel Farage says public want to leave the ECHR - let’s put the record straight
YouTube video by Peter Stefanovic
youtu.be
December 6, 2024 at 4:04 PM
Reform UK leader Nigel Farage says
“We need to leave the ECHR so we can deport people that come illegally & take back control of our borders & that’s what the public wants”
Share if you disagree with his populist boll**** the UK should join Russia & Belarus outside the ECHR
youtu.be/iSTN-h8NoyY
“We need to leave the ECHR so we can deport people that come illegally & take back control of our borders & that’s what the public wants”
Share if you disagree with his populist boll**** the UK should join Russia & Belarus outside the ECHR
youtu.be/iSTN-h8NoyY
Reposted by Pam T
Reform UK leader Nigel Farage says the public want to leave the ECHR
Let him know he’s wrong by sharing this widely
Let him know he’s wrong by sharing this widely
Reform UK leader Nigel Farage says
“We need to leave the ECHR so we can deport people that come illegally & take back control of our borders & that’s what the public wants”
Share if you disagree with his populist boll**** the UK should join Russia & Belarus outside the ECHR
youtu.be/iSTN-h8NoyY
“We need to leave the ECHR so we can deport people that come illegally & take back control of our borders & that’s what the public wants”
Share if you disagree with his populist boll**** the UK should join Russia & Belarus outside the ECHR
youtu.be/iSTN-h8NoyY
Reform UK leader Nigel Farage says public want to leave the ECHR - let’s put the record straight
YouTube video by Peter Stefanovic
youtu.be
December 6, 2024 at 5:23 PM
Reform UK leader Nigel Farage says the public want to leave the ECHR
Let him know he’s wrong by sharing this widely
Let him know he’s wrong by sharing this widely
Reposted by Pam T
December 6, 2024 at 10:52 PM
Reposted by Pam T
"Sir Stephen Powis, national medical director of NHS England, said that a “stocktake of existing CFS/ME services in England is being undertaken as an initial step” #maeveinquiry #mecfs
Open access 👇
www.thetimes.com/article/cb1e...
Open access 👇
www.thetimes.com/article/cb1e...
NHS to review ME services after death of Maeve Boothby O’Neill
Health minister and Nice commit to work to improve patient outcomes after landmark inquest
www.thetimes.com
December 6, 2024 at 2:56 PM
"Sir Stephen Powis, national medical director of NHS England, said that a “stocktake of existing CFS/ME services in England is being undertaken as an initial step” #maeveinquiry #mecfs
Open access 👇
www.thetimes.com/article/cb1e...
Open access 👇
www.thetimes.com/article/cb1e...
Private healthcare is lobbying Wes Streeting to sign a new PFI deal with them. Time is running out to ask Wes Streeting to say NO. Please add your name to this petition now. #NoNewPFI
weownit.org.uk/act-now/tell...
weownit.org.uk/act-now/tell...
December 7, 2024 at 12:16 PM
Private healthcare is lobbying Wes Streeting to sign a new PFI deal with them. Time is running out to ask Wes Streeting to say NO. Please add your name to this petition now. #NoNewPFI
weownit.org.uk/act-now/tell...
weownit.org.uk/act-now/tell...