Pelagie
@portiaeva.bsky.social
Art, history, science and my significant other. 💕
POTS - covid longhauler.
Living in Antwerp.
POTS - covid longhauler.
Living in Antwerp.
Reposted by Pelagie
Herinnering aan de regering-De Wever: ‘Ieder heeft het recht op menswaardig leven’
Herinnering aan de regering-De Wever: ‘Ieder heeft het recht op menswaardig leven’
42 emeritus professoren van Belgische universiteiten vinden dat het afbraakbeleid van de sociale zekerheid, zoals voorgesteld door de huidige regering, niet alleen sociaal onrechtvaardig is, maar ook...
ift.tt
April 28, 2025 at 12:03 PM
Herinnering aan de regering-De Wever: ‘Ieder heeft het recht op menswaardig leven’
Reposted by Pelagie
Hieronder in screenshots een (lang) verslag van de tweede Nederlandse #LongCovid dag van 21 maart jl. Het is geschreven door Mieke Beselaere en hier gedeeld met haar toestemming.
1/3
1/3
April 12, 2025 at 11:49 AM
Hieronder in screenshots een (lang) verslag van de tweede Nederlandse #LongCovid dag van 21 maart jl. Het is geschreven door Mieke Beselaere en hier gedeeld met haar toestemming.
1/3
1/3
Reposted by Pelagie
When asking ChatGPT how it manages to stay so firmly cc when there's so much denial around.
April 5, 2025 at 7:44 PM
When asking ChatGPT how it manages to stay so firmly cc when there's so much denial around.
Reposted by Pelagie
Day 911.
Saw the number, had to post.
"Nine One One: What's you're emergency?"
My life has been taken from me. I need it back.
"Can you give me a description of the perpetrator?"
Not really, no. Fast, subtle, impossible to pin down. Seemed innocent enough. Then took everything. #LongCOVID
Saw the number, had to post.
"Nine One One: What's you're emergency?"
My life has been taken from me. I need it back.
"Can you give me a description of the perpetrator?"
Not really, no. Fast, subtle, impossible to pin down. Seemed innocent enough. Then took everything. #LongCOVID
March 8, 2025 at 6:24 AM
Day 911.
Saw the number, had to post.
"Nine One One: What's you're emergency?"
My life has been taken from me. I need it back.
"Can you give me a description of the perpetrator?"
Not really, no. Fast, subtle, impossible to pin down. Seemed innocent enough. Then took everything. #LongCOVID
Saw the number, had to post.
"Nine One One: What's you're emergency?"
My life has been taken from me. I need it back.
"Can you give me a description of the perpetrator?"
Not really, no. Fast, subtle, impossible to pin down. Seemed innocent enough. Then took everything. #LongCOVID
Reposted by Pelagie
Funny how when a real scientist responds to an ideologue about their dated beliefs the cracks start to show re: #LongCOVID. Initially I was annoyed that Nature even legitimized such a weak response from Garner et al, but now all the world can see that the emperor has no clothes.
The GET fanatics didn't like a study last year about muscle abnormalities in Long Covid. So they sent in a response full of nonsense, and the authors' cogent responses makes the critics look silly: virology.ws/2025/02/15/t...
Trial By Error: GET Ideologues Try to Rebut Muscle Abnormality Study--and Fail | Virology Blog
By David Tuller, DrPH It is a pleasure to read a pointed and effective smack-down of an ill-informed argument, especially when the argument is pushing the g ...
virology.ws
February 16, 2025 at 2:17 AM
Funny how when a real scientist responds to an ideologue about their dated beliefs the cracks start to show re: #LongCOVID. Initially I was annoyed that Nature even legitimized such a weak response from Garner et al, but now all the world can see that the emperor has no clothes.
Reposted by Pelagie
New blood-clotting disorder identified #PF4 #VITT #MECFS #LongCovid
medicalxpress.com/news/2025-02...
medicalxpress.com/news/2025-02...
New blood-clotting disorder identified
Researchers at McMaster University have made a discovery in the field of hematology, providing an explanation for spontaneous and unusual blood-clotting that continues to occur despite treatment with ...
medicalxpress.com
February 14, 2025 at 10:14 PM
New blood-clotting disorder identified #PF4 #VITT #MECFS #LongCovid
medicalxpress.com/news/2025-02...
medicalxpress.com/news/2025-02...
Reposted by Pelagie
Went to dentist yesterday, and the hygienist got nervous when I said I had Long COVID. I assumed she misheard and thought I said I had COVID. I clarified it was Long COVID and wasn't contagious.
She had no idea what Long COVID even was. A medical professional.
This is not a good state of things.
She had no idea what Long COVID even was. A medical professional.
This is not a good state of things.
February 12, 2025 at 8:04 PM
Went to dentist yesterday, and the hygienist got nervous when I said I had Long COVID. I assumed she misheard and thought I said I had COVID. I clarified it was Long COVID and wasn't contagious.
She had no idea what Long COVID even was. A medical professional.
This is not a good state of things.
She had no idea what Long COVID even was. A medical professional.
This is not a good state of things.
Reposted by Pelagie
More #LongCovid and #MECFS similarities in swollen left hippocampus.
Significant associations between hippocampal subfield volumes and severity of Pain, Duration of illness, Severity of fatigue, Impaired concentration, Unrefreshing sleep, and Physical function in both conditions.
AI summary:
Significant associations between hippocampal subfield volumes and severity of Pain, Duration of illness, Severity of fatigue, Impaired concentration, Unrefreshing sleep, and Physical function in both conditions.
AI summary:
February 11, 2025 at 3:16 AM
More #LongCovid and #MECFS similarities in swollen left hippocampus.
Significant associations between hippocampal subfield volumes and severity of Pain, Duration of illness, Severity of fatigue, Impaired concentration, Unrefreshing sleep, and Physical function in both conditions.
AI summary:
Significant associations between hippocampal subfield volumes and severity of Pain, Duration of illness, Severity of fatigue, Impaired concentration, Unrefreshing sleep, and Physical function in both conditions.
AI summary:
Reposted by Pelagie
I'm receiving reports from Indiana something is seriously wrong.
Hospitals are filling up with flu A patients on ventilators.
The ICU is overflowing, forcing critically ill patients into the Progressive Care Unit (PCU).
Hospitals are filling up with flu A patients on ventilators.
The ICU is overflowing, forcing critically ill patients into the Progressive Care Unit (PCU).
February 11, 2025 at 12:50 AM
I'm receiving reports from Indiana something is seriously wrong.
Hospitals are filling up with flu A patients on ventilators.
The ICU is overflowing, forcing critically ill patients into the Progressive Care Unit (PCU).
Hospitals are filling up with flu A patients on ventilators.
The ICU is overflowing, forcing critically ill patients into the Progressive Care Unit (PCU).
Reposted by Pelagie
#uzleuven op X schreef:
Help mee infecties voorkomen nu het winterinfectieplan overschakelt naar code oranje.🟠
Geen neus-mondmasker op zak? Vraag ernaar bij de toegangen of op de afdeling. Check de richtlijnen voor je raadpleging, onderzoek, opname of bezoek […]
[Original post on mastodon.nl]
Help mee infecties voorkomen nu het winterinfectieplan overschakelt naar code oranje.🟠
Geen neus-mondmasker op zak? Vraag ernaar bij de toegangen of op de afdeling. Check de richtlijnen voor je raadpleging, onderzoek, opname of bezoek […]
[Original post on mastodon.nl]
January 16, 2025 at 12:51 AM
#uzleuven op X schreef:
Help mee infecties voorkomen nu het winterinfectieplan overschakelt naar code oranje.🟠
Geen neus-mondmasker op zak? Vraag ernaar bij de toegangen of op de afdeling. Check de richtlijnen voor je raadpleging, onderzoek, opname of bezoek […]
[Original post on mastodon.nl]
Help mee infecties voorkomen nu het winterinfectieplan overschakelt naar code oranje.🟠
Geen neus-mondmasker op zak? Vraag ernaar bij de toegangen of op de afdeling. Check de richtlijnen voor je raadpleging, onderzoek, opname of bezoek […]
[Original post on mastodon.nl]
Reposted by Pelagie
Layla Moran has the distinction of being the first MP to break the #WallOfSilence on #covid and #longcovid and point out the government's deliberate avoidance of it. 👏https://centralbylines.co.uk/news/health/covid-19-is-there-a-gagging-order/
November 26, 2024 at 11:34 PM
Layla Moran has the distinction of being the first MP to break the #WallOfSilence on #covid and #longcovid and point out the government's deliberate avoidance of it. 👏https://centralbylines.co.uk/news/health/covid-19-is-there-a-gagging-order/
Reposted by Pelagie
New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.
youtu.be/RiwX9Y0NbiQ?...
youtu.be/RiwX9Y0NbiQ?...
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery
youtu.be
November 21, 2024 at 12:42 PM
New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.
youtu.be/RiwX9Y0NbiQ?...
youtu.be/RiwX9Y0NbiQ?...
Reposted by Pelagie
“Compassion is the new morality.”
— Arthur Schopenhauer, 1840.
🙏🏼🌍🕊️
— Arthur Schopenhauer, 1840.
🙏🏼🌍🕊️
November 16, 2024 at 2:40 PM
“Compassion is the new morality.”
— Arthur Schopenhauer, 1840.
🙏🏼🌍🕊️
— Arthur Schopenhauer, 1840.
🙏🏼🌍🕊️
Reposted by Pelagie
Schopenhauer said that we should address each other not as "Mr" or "Mrs", but as "fellow sufferer, companion in misery" - thinking of trying this out.
November 18, 2024 at 9:21 AM
Schopenhauer said that we should address each other not as "Mr" or "Mrs", but as "fellow sufferer, companion in misery" - thinking of trying this out.
Reposted by Pelagie
#COVID-19 patients faced 12% to 74% higher odds for various types of alopecia, a tripled risk for vasculitis, 68% higher odds for Crohn's and 59% higher odds for sarcoidosis, the study found.
#MedSky #Covid
medicalxpress.com/news/2023-10...
#MedSky #Covid
medicalxpress.com/news/2023-10...
COVID might raise odds for immune disorders like Crohn's, alopecia
In rare cases, some patients may develop an autoimmune disease following a bout of COVID, Korean researchers report.
medicalxpress.com
November 11, 2024 at 2:24 AM
#COVID-19 patients faced 12% to 74% higher odds for various types of alopecia, a tripled risk for vasculitis, 68% higher odds for Crohn's and 59% higher odds for sarcoidosis, the study found.
#MedSky #Covid
medicalxpress.com/news/2023-10...
#MedSky #Covid
medicalxpress.com/news/2023-10...
Reposted by Pelagie
Reposted by Pelagie
There is no cure for Long Covid.
Repeat infections raise your risk of developing Long Covid.
If you have Long Covid, repeat infections put you at risk of worsened Long Covid.
Repeat infections raise your risk of developing Long Covid.
If you have Long Covid, repeat infections put you at risk of worsened Long Covid.
November 14, 2024 at 5:07 PM
There is no cure for Long Covid.
Repeat infections raise your risk of developing Long Covid.
If you have Long Covid, repeat infections put you at risk of worsened Long Covid.
Repeat infections raise your risk of developing Long Covid.
If you have Long Covid, repeat infections put you at risk of worsened Long Covid.