RaiinbowEyes
@raiinboweyes.bsky.social
Chronically ill, disabled, cat mom, aspiring medical science communicator, witch, nerd. Still COVIDing. I follow spoonies back 🥄
I’m still here. Just been a nasty few months. Go figure, the rise of facism and likely impending economic collapse really doesn’t help people already struggling with depression. 🙃 Please suggest to me accounts with uplifting content. I really need more good in my feed. #NEISVoid
March 31, 2025 at 4:52 AM
I’m still here. Just been a nasty few months. Go figure, the rise of facism and likely impending economic collapse really doesn’t help people already struggling with depression. 🙃 Please suggest to me accounts with uplifting content. I really need more good in my feed. #NEISVoid
Hail to Yule, the longest night
of all the turning year!
Awake the resurrecting light
that banishes despair.
For now the tide will start to turn,
and night will yield to day!
And the waning year will shed its skin
and cast the dark away 🖤💛
Yule is Come by Jaiya
youtu.be/BRRO4fF41So?...
of all the turning year!
Awake the resurrecting light
that banishes despair.
For now the tide will start to turn,
and night will yield to day!
And the waning year will shed its skin
and cast the dark away 🖤💛
Yule is Come by Jaiya
youtu.be/BRRO4fF41So?...
December 22, 2024 at 5:53 AM
Hail to Yule, the longest night
of all the turning year!
Awake the resurrecting light
that banishes despair.
For now the tide will start to turn,
and night will yield to day!
And the waning year will shed its skin
and cast the dark away 🖤💛
Yule is Come by Jaiya
youtu.be/BRRO4fF41So?...
of all the turning year!
Awake the resurrecting light
that banishes despair.
For now the tide will start to turn,
and night will yield to day!
And the waning year will shed its skin
and cast the dark away 🖤💛
Yule is Come by Jaiya
youtu.be/BRRO4fF41So?...
Playlist of trauma free #Yule songs - This is a playlist made up of all #Christmas sounding and themed songs, with no traditional/classic music. (May vary from where you were raised so YMMV.) Enjoy 😊
YouTube:
www.youtube.com/playlist?lis...
Spotify:
open.spotify.com/playlist/23C...
YouTube:
www.youtube.com/playlist?lis...
Spotify:
open.spotify.com/playlist/23C...
Trauma Free Yuletide (US) - YouTube
www.youtube.com
December 19, 2024 at 7:27 PM
Playlist of trauma free #Yule songs - This is a playlist made up of all #Christmas sounding and themed songs, with no traditional/classic music. (May vary from where you were raised so YMMV.) Enjoy 😊
YouTube:
www.youtube.com/playlist?lis...
Spotify:
open.spotify.com/playlist/23C...
YouTube:
www.youtube.com/playlist?lis...
Spotify:
open.spotify.com/playlist/23C...
So looking forward to it! #Yule
Bring Back the Light by Gypsy just popped in my head seeing this. Such a great winter solstice song ❄️
youtu.be/vfZCBzzjft4?...
Bring Back the Light by Gypsy just popped in my head seeing this. Such a great winter solstice song ❄️
youtu.be/vfZCBzzjft4?...
SIXTEEN DAYS UNTIL THE SOLSTICE AND THEN THE DAYS START GETTING LONGER AGAIN
December 6, 2024 at 9:00 PM
So looking forward to it! #Yule
Bring Back the Light by Gypsy just popped in my head seeing this. Such a great winter solstice song ❄️
youtu.be/vfZCBzzjft4?...
Bring Back the Light by Gypsy just popped in my head seeing this. Such a great winter solstice song ❄️
youtu.be/vfZCBzzjft4?...
We already known ORSs (not electrolyte products) are as hydrating as IV fluids. But did you know that a proper ORS can potentially be even more beneficial than #IVfluids for #POTS in some ways?
Let’s take a quick look. 🧵 #ORSforPOTS #NEISvoid #dysautonomia
www.ncbi.nlm.nih.gov/pmc/articles...
Let’s take a quick look. 🧵 #ORSforPOTS #NEISvoid #dysautonomia
www.ncbi.nlm.nih.gov/pmc/articles...
The Benefits of Oral Rehydration on Orthostatic Intolerance in Children with POTS
To evaluate whether equal volumes of oral rehydration solution (ORS) or intravenous saline provide similar improvements in cardiovascular status during controlled orthostatic challenge when administer...
www.ncbi.nlm.nih.gov
December 6, 2024 at 6:48 PM
We already known ORSs (not electrolyte products) are as hydrating as IV fluids. But did you know that a proper ORS can potentially be even more beneficial than #IVfluids for #POTS in some ways?
Let’s take a quick look. 🧵 #ORSforPOTS #NEISvoid #dysautonomia
www.ncbi.nlm.nih.gov/pmc/articles...
Let’s take a quick look. 🧵 #ORSforPOTS #NEISvoid #dysautonomia
www.ncbi.nlm.nih.gov/pmc/articles...
If you have #POTS and #MECFS and are affected by the #IVfluids shortage, this thread is for you.
Did you know a proper Oral Rehydration Solution is proven to be as hydrating as IV fluids? And even more beneficial for than IV fluids in some ways? Not regular electrolyte drinks. Let’s talk. #NEISvoid
Did you know a proper Oral Rehydration Solution is proven to be as hydrating as IV fluids? And even more beneficial for than IV fluids in some ways? Not regular electrolyte drinks. Let’s talk. #NEISvoid
December 4, 2024 at 6:40 PM
I’m so upset that #LDN has made my #Narcolepsy so much worse and it’s not getting better with time. I knew this was a possibility going in, but it’s literally the only decently effective medication for #MECFS, which is far more terrifying than Narcolepsy. #NEISvoid
December 3, 2024 at 6:06 PM
I’m so upset that #LDN has made my #Narcolepsy so much worse and it’s not getting better with time. I knew this was a possibility going in, but it’s literally the only decently effective medication for #MECFS, which is far more terrifying than Narcolepsy. #NEISvoid
Something a lot of people with #MCAS don’t know up front is that stabilizing mast cells is a long term game. It can take 6 months of taking mast cell stabilizers consistently multiple times daily to see full effects. A lot of people see really significant improvements a year later. #NEISvoid
December 3, 2024 at 4:07 AM
Reposted by RaiinbowEyes
Strong new evidence for T cell exhaustion in myalgic encephalomyelitis (ME/CFS) reflecting chronic viral infection, relevant to #LongCovid, and possible path to treatment candidates
www.pnas.org/doi/epub/10.... @pnas.org
www.pnas.org/doi/epub/10.... @pnas.org
December 2, 2024 at 8:46 PM
Strong new evidence for T cell exhaustion in myalgic encephalomyelitis (ME/CFS) reflecting chronic viral infection, relevant to #LongCovid, and possible path to treatment candidates
www.pnas.org/doi/epub/10.... @pnas.org
www.pnas.org/doi/epub/10.... @pnas.org
Heads up to those with #MCAS and #MCS - Dawn dish soap has changed their original blue soap and lemon free & clear fragrances. Where they were mild and tolerated by some before, they’re now horrible and causing reactions for many. Even normal folks are complaining about how bad they are. 🙁 #NEISvoid
November 30, 2024 at 11:04 PM
Heads up to those with #MCAS and #MCS - Dawn dish soap has changed their original blue soap and lemon free & clear fragrances. Where they were mild and tolerated by some before, they’re now horrible and causing reactions for many. Even normal folks are complaining about how bad they are. 🙁 #NEISvoid
#Thanksgiving is hard for me. Like most of us I have baggage and trauma. This popped into my head as a new tradition to try. Writing things you’re thankful for on leaves. Then returning them outside so they will become fertilizer for new growth. 🧡
November 28, 2024 at 11:22 PM
#Thanksgiving is hard for me. Like most of us I have baggage and trauma. This popped into my head as a new tradition to try. Writing things you’re thankful for on leaves. Then returning them outside so they will become fertilizer for new growth. 🧡
This year I stayed in my lane and just cooked turkey thighs 😆 They’re the best part if the bird IMO, and I have many years of experience with poultry thighs. I thought Cornish hens were the way to go, but this is even better!
having exactly (1) day out of the year where every amateur chef in America attempts to cook a giant bird and not fuck it up is, honestly, a wonderful and hilarious tradition
November 28, 2024 at 7:08 AM
This year I stayed in my lane and just cooked turkey thighs 😆 They’re the best part if the bird IMO, and I have many years of experience with poultry thighs. I thought Cornish hens were the way to go, but this is even better!
Reposted by RaiinbowEyes
Healthcare workers didn’t have a problem masking prior to COVID. Especially in NICU, oncology, transplant and/or around vulnerable patients
I never received pushback. Now ALL I get is pushback
Masks were made political & the patients suffer.
Wear a mask. It’s the right thing to do.
I never received pushback. Now ALL I get is pushback
Masks were made political & the patients suffer.
Wear a mask. It’s the right thing to do.
November 27, 2024 at 4:57 AM
Healthcare workers didn’t have a problem masking prior to COVID. Especially in NICU, oncology, transplant and/or around vulnerable patients
I never received pushback. Now ALL I get is pushback
Masks were made political & the patients suffer.
Wear a mask. It’s the right thing to do.
I never received pushback. Now ALL I get is pushback
Masks were made political & the patients suffer.
Wear a mask. It’s the right thing to do.
November 27, 2024 at 10:13 PM
Nothing like the crushing day-before-thanksgiving depression, where SAD and holiday trauma collide. Going it alone this year which I wasn’t expecting. This year compounded by a multitude of looming existential threats.
Who’s in the same boat? Wanted to say you’re not alone I guess.
#NEISvoid
Who’s in the same boat? Wanted to say you’re not alone I guess.
#NEISvoid
November 27, 2024 at 9:56 PM
Nothing like the crushing day-before-thanksgiving depression, where SAD and holiday trauma collide. Going it alone this year which I wasn’t expecting. This year compounded by a multitude of looming existential threats.
Who’s in the same boat? Wanted to say you’re not alone I guess.
#NEISvoid
Who’s in the same boat? Wanted to say you’re not alone I guess.
#NEISvoid
Reposted by RaiinbowEyes
Being disabled and chronically ill is beyond lonely. Far too many people in society can’t comprehend illnesses which are permanent & unrelenting but don’t necessarily kill you. As a result they EXPECT you to get better.
When you don’t - they abandon you.
🧵/1
When you don’t - they abandon you.
🧵/1
November 24, 2024 at 3:12 AM
Being disabled and chronically ill is beyond lonely. Far too many people in society can’t comprehend illnesses which are permanent & unrelenting but don’t necessarily kill you. As a result they EXPECT you to get better.
When you don’t - they abandon you.
🧵/1
When you don’t - they abandon you.
🧵/1
Reposted by RaiinbowEyes
All aboard the Skylark!
A feed for the Long Covid community's new arrivals to BlueSky. You may not have time or energy to re-establish your connections just yet, so this feed will repost from all your trusted LC advocates and allies.
Think of it as a gentle landing until you're ready to rebuild.
A feed for the Long Covid community's new arrivals to BlueSky. You may not have time or energy to re-establish your connections just yet, so this feed will repost from all your trusted LC advocates and allies.
Think of it as a gentle landing until you're ready to rebuild.
November 23, 2024 at 6:17 PM
All aboard the Skylark!
A feed for the Long Covid community's new arrivals to BlueSky. You may not have time or energy to re-establish your connections just yet, so this feed will repost from all your trusted LC advocates and allies.
Think of it as a gentle landing until you're ready to rebuild.
A feed for the Long Covid community's new arrivals to BlueSky. You may not have time or energy to re-establish your connections just yet, so this feed will repost from all your trusted LC advocates and allies.
Think of it as a gentle landing until you're ready to rebuild.
The holiday should be about giving back to the natives and being thankful for their kindness, as well as teaching acceptance and generosity for immigrants fleeing corrupt regimes. That’s the real spirit of #Thanksgiving.
November 24, 2024 at 6:01 PM
The holiday should be about giving back to the natives and being thankful for their kindness, as well as teaching acceptance and generosity for immigrants fleeing corrupt regimes. That’s the real spirit of #Thanksgiving.
If you have a cardiac condition like #INOCA (often caused by #LongCOVID and possibly #POTS / #dsyautonomia ) that is triggered by the cold, masks give a buffer from breathing the cold air helps prevent flares! #NEISvoid
Annual reminder: In addition to preventing virus transmission, N95 masks are great for keeping your face warm in the winter! 😷❄️
November 24, 2024 at 4:18 AM
If you have a cardiac condition like #INOCA (often caused by #LongCOVID and possibly #POTS / #dsyautonomia ) that is triggered by the cold, masks give a buffer from breathing the cold air helps prevent flares! #NEISvoid
As someone with #MECFS and #MCAS, cooking Thanksgiving dinner seems impossible. This year my husband is helping me cook, and we started last week- cooking one thing at a time and freezing it. So the day of, we can defrost and have a traditional dinner that won’t upset my mast cells. #NEISvoid
November 24, 2024 at 3:11 AM
My life with brain fog 😅
Y’all ever watch a movie or something miss a part and rewind the part and miss it tf again ?! 😩
November 21, 2024 at 10:28 PM
My life with brain fog 😅
Reposted by RaiinbowEyes
To the person who posted years back that whenever you’re on a customer service line with a switchboard and you want to talk to someone, just keep pressing “0” until you get a human…I could kiss you, I hope your pillow is always cool, I pray your wine succulent and sweet, I hope you know love…
November 21, 2024 at 6:53 PM
To the person who posted years back that whenever you’re on a customer service line with a switchboard and you want to talk to someone, just keep pressing “0” until you get a human…I could kiss you, I hope your pillow is always cool, I pray your wine succulent and sweet, I hope you know love…
Reposted by RaiinbowEyes
Long Covid Advocacy's response to The ME Association in solidarity with #ThereForME
November 19, 2024 at 4:26 PM
Long Covid Advocacy's response to The ME Association in solidarity with #ThereForME