Elle C
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tis-me-elle.bsky.social
Elle C
@tis-me-elle.bsky.social
80 followers 240 following 5 posts
Was ocean and climate modelling phd | Now bedbound advocacy | masking is community care | #SevereME
Posts Replies Media Videos
Reposted by Elle C
aljazeera.com
Israel’s killing of five Al Jazeera journalists in Gaza prompts global outrage and calls for accountability.
‘Targeted assassination’: Israel’s killing of Al Jazeera staff condemned
Israel’s killing of five Al Jazeera journalists in Gaza prompts global outrage and calls for accountability.
bit.ly
August 11, 2025 at 9:30 AM
Reposted by Elle C
emilyesfraser.bsky.social
This is how the #GreatestMEdicalScandal continues. Patients spend precious energy raising awareness for #MEAwarenessDay on May 12th & @bmj.com publishes harmful, disproven, psychologizing propaganda on May 14th to put us back in our places. It’s disgusting, cruel, extremely pre-meditated behavior
putrinolab.bsky.social Putrino Lab @putrinolab.bsky.social · May 15
Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has

www.bmj.com/content/389/...

1/
Patients with severe ME/CFS need hope and expert multidisciplinary care
Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, write Alastair Miller, Fiona Symington, Paul Garner, and Maria Pedersen Myalgic...
www.bmj.com
May 15, 2025 at 8:11 PM
Reposted by Elle C
somethingchronic.bsky.social
ME is one of the cruellest diseases you can possibly have. Most people think it’s as insignificant as having a cold.

#May12 #MEAwarenessDay #StillTheSaME #StillSickStillFighting #ME #MECFS #SevereME #LongCovid #EndMEcfs #MEAction #MillionsMissing #GreatestMEdicalScandal #ThereForME #BerlinBuyers
Pink background with bright blue text saying: I haven’t been able to get downstairs in my own house for 2 years #SevereME
May 12, 2025 at 8:06 AM
Reposted by Elle C
longcovidadvoc.com
Today is #MEAwarenessDay
🐋 Let's take a deep dive into what ME is
and
😇 Why allyship is so important
1/15
May 12, 2025 at 11:06 AM
Reposted by Elle C
longcovidadvoc.com
🏥 It's 171 years since Florence Nightingale developed ME...

And hospitals are still not safe places for #pwME

We need national ME safe protocols established and
😷 Infection Control
#MEAwarenessDay
A historical black-and-white image featuring a quote from Florence Nightingale on hospital care and compassion.
May 12, 2025 at 8:06 AM
Reposted by Elle C
cabruce.bsky.social
Thousands of people are too ill to post on #MEAwarenessDay Most of us will struggle to wash or eat if we use our energy to post. Why do it? Because we are desperate after decades of neglect, false promises and lies. It has to change. That is why we are here to beg for action 💙
May 12, 2025 at 9:34 AM
tis-me-elle.bsky.social
Please have a watch to understand what we face when we advocate for research and informed, compassionate medical care #MEAwarenessDay #GreatestMEdicalScandal
May 12, 2025 at 1:21 PM
Reposted by Elle C
restingdinoface.bsky.social
I don’t think cis people understand the amount of pressure and coercion trans people face to not come out, to not transition. How swiftly and strictly gender is policed. How something as simple as listening to a song, a line of eyeliner, playing with the wrong toy meets stern correction.
May 1, 2025 at 11:30 PM
Reposted by Elle C
johnvsjonvsme.bsky.social
You'll look great receiving your EMMY🌹for covering #GreatestMEdicalScandal
@thedailyshow.com
@weeklyshowpodcast.bsky.social (especially if you beat @lastweektonight1.bsky.social to win #JohnVsJonVsME too)! Make our #ValentinesDay  dreams come true @TheDailyShow! 💕 (MEme c/o @PeteCaruso.bsky.social)
A meme of a man in a tuxedo that says “You Complete M.E.” at the top in black text. The man has the face of Jon Stewart and is holding three long stem roses. Above each rose is “Awareness”, “Funding”, “Treatment” in black text. The background is a light pink color with three bright pink hearts in the upper left. On the lower right of the cell is “Valentine’s Edition” in black text. At the bottom is “#GreatestMEdicalScandal” and “#JohnVsJonVsME” in black text.
February 15, 2025 at 12:01 AM
Reposted by Elle C
emilyesfraser.bsky.social
It’s dystopian as f*** in here, but we try to stay cheerful! 🫶🏻

JohnVsJon.com

#GreatestMEdicalScandal
#JohnVsJonVsME
@johnvsjonvsme.bsky.social
Severance meme of Mark S talking to Helly R in the supply room. He’s saying “I find it helps to focus on the effects of sleep since we don’t get to experience it.” White text at the top says “When your love language is cheerfully sharing coping tips for your f***ed up situation with your fellow meeps.” Smaller text below says “#JohnVsJonVsME #GreatestMEdicalScandal”
February 15, 2025 at 12:53 AM
Reposted by Elle C
mecfsmama.bsky.social
Here’s the TOOLKIT for the @johnvsjonvsme.bsky.social LoveFest. Have a browse out the MEme’s if you need a pick me up or some inspiration!
johnvsjonvsme.bsky.social @JohnVsJonVsME @johnvsjonvsme.bsky.social · Feb 12
Ready for #JohnVsJonVsME #ValentinesDay LoveFest? Here's a TOOLKIT w/ details, sample posts/MEmes & ways to create your own Valentines💝--telling your Jo(h)n why you think he should be the first to cover #GreatestMEdicalScandal!
docs.google.com/document/d/1...
February 12, 2025 at 10:19 PM
Reposted by Elle C
johnvsjonvsme.bsky.social
It’s a Love Fest! It’s #JohnVsJonVsME #ValentinesDay Edition. Time to start sharing your virtual valentines–telling
@lastweektonight1.bsky.social @thedailyshow.com why you would LOVE for them to cover #GreatestMEdicalScandal 🧵 (MEme c/o @diatoma.bsky.social)
ALT Text: a meme of personified cartoon flowers with the faces of Jon Stewart and John Oliver on them holding balloons that say “All you need is love” “& funding for biomedical research & care” on them. Above them “Invite your friends & Valentines to join!” Below “February 14th starting at: 7pm Sydney/9 am Berlin/3 am EST/12 am PST (join when you’re awake!)” and then “#Greatest MEdical Scandal #John Vs Jon Vs ME Valentine’s Edition Love Fest”
February 14, 2025 at 7:36 AM
tis-me-elle.bsky.social
Please sign to try and stop what is medical malpractice and outright torture in the year 2025!!! These situations are all too common but they cannot be ignored. Help #SaveLine

#VerySevereME
alexisme.bsky.social Alexis Gilbert @alexisme.bsky.social · Jan 20
Please sign and share the petition to stop a patient with Very Severe ME being forced to take inappropriate antipsychotic meds and detained because they can’t get out of bed.

bit.ly/linepetition
A screenshot of the first page of the petition showing Line, a 26-year-old white woman A screenshot of the text of this first page of the petition. Very Severe ME patient Line aged 26 from Denmark (@nebulow on IG) has appealed to the international ME and Long Covid community to help prevent her being involuntarily removed to a psychiatric hospital from the nursing home she has been living in for the past 10 months. The core values page on their website states that "It is crucial that the residents are met with: Respect Dignity Empathy Realistic Expectations" Please sign the petition below in support of our letter asking them to recognise her energy-limiting chronic illness as a debilitating biological disease and to spare her suffering further deterioration or even death
January 20, 2025 at 8:08 PM
Reposted by Elle C
chromatowski.bsky.social
Prob not how I’d report a study that found 7.2% of kids who got Covid still hadn’t recovered two years later.

I mean come on man. It’s kids. If baby food left 7.2% of kids sick two years later, we’d be climbing the walls.

www.nature.com/articles/s43...
Post from The Guardian @theguardian.com • 2h Most teenagers recover from long Covid after two years, study shows The Guardian Most teenagers recover from long Covid after two years, study shows World's largest 'longitudinal cohort study' reports that older teens and society's m...
December 5, 2024 at 7:41 AM
Reposted by Elle C
daniellebeckman.bsky.social
"Look guys, the new head of the NIH is not that bad."
The New York Times, Nov 27, 2024.
luckytran.com Dr. Lucky Tran @luckytran.com · Nov 27
Much like they have done throughout the pandemic, the opinion sections of major papers are killing people by normalizing unqualified quacks with deadly ideas.
The New York Times: Trump’s Pick to Lead the N.I.H. Gets Some Things Right
November 27, 2024 at 9:46 PM
Reposted by Elle C
sunsopeningband.bsky.social
1.7% of a population with a large closed health system in the U.S. had ME/CFS-like illness as defined by IOM criteria. 14% of all cases had COVID-19 as a precipitating factor.

ME/CFS is still the most common thing nobody's ever heard of. journals.plos.org/plosone/arti...
Impact of COVID-19 on myalgic encephalomyelitis/chronic fatigue syndrome-like illness prevalence: A cross-sectional survey
Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can be triggered by infectious agents including severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). However, the impact...
journals.plos.org
November 26, 2024 at 6:35 PM
Reposted by Elle C
christinavirgil.bsky.social
I created this starter pack if anyone is interested:
•SARS-CoV-2 & other infectious diseases focused
—It automatically adds me (which I find a bit cringe 🥴)

#SARS2 #covid #saltingthevibes #science #infectiousdisease #h5n1 #copium
November 23, 2024 at 11:31 PM