@transplantpolicy.org
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Reposted
pennldi.bsky.social
Read this op-ed in the @bostonglobe.com by LDI Fellow @zekeemanuel.bsky.social. ⤵️
zekeemanuel.bsky.social
RFK is turning the CDC into an ideological rubber stamp of the Trump admin. Congress must use their oversight power to restore qualified leadership and adequate funding to the CDC. Our children's health and our scientific credibility depend on it.

www.bostonglobe.com/2025/09/04/o...
How to respond to Kennedy’s purge at the CDC - The Boston Globe
Major responsibility rests on Republican Senator Bill Cassidy of Louisiana, who cast the pivotal vote for Kennedy’s confirmation as HHS secretary.
www.bostonglobe.com
transplantpolicy.org
Per at least one of the authors, the hope is that these findings can work their way into kidney allocation policy, when ever HHS/HRSA realizes that Continuous Distribution is important to patients.
jama.com
JAMA @jama.com · 21d
Although EBV can cause complications after a transplant, less than 14% of EBV-negative children received kidneys from EBV-negative donors, who mostly went to low-risk EBV-positive adults.

ja.ma/4nyUNgL
JAMA Research Letter: "Donor-Derived Epstein-Barr Virus Infection Among Pediatric Kidney Transplant Recipients" by Vishnu S. Potluri, Sandra Amaral, and Chethan M. Puttarajappa. Published online September 17, 2025.
Reposted
cobaltjacket.com
After today, I want to start a new movement - Make Transplant Boring Again.
transplantpolicy.org
Concrete announcements:

1. Decertification of UMiami OPO
2. Expansion of living donor supports
3. Expansion of KidneyX xenotransplant accelerator
Reposted
melodyschreiber.com
Here's what ACIP is planning to vote on today and tomorrow:

- No MMRV vaccine before age 4 (only MMR and V separately)

- No hepatitis B vaccine at birth unless the birthing parent is hep B+ (what about others?). After one month of age, "shared decision making" w/ doctor
www.cdc.gov/acip/meeting...
Next ACIP Meeting: Anticipated Votes
Read draft vote language to be considered during the next ACIP meeting.
www.cdc.gov
transplantpolicy.org
Johns Hopkins has created a measles outbreak tracker, similar to the one they operated during the initial stages of COVID-19. #TXID #InfectiousDiseases

publichealth.jhu.edu/ivac/resourc...

@pidsociety.bsky.social @idsainfo.bsky.social @ast-idcop.bsky.social
Reposted
cobaltjacket.com
Great work by @jamesalcorn.bsky.social and team.
transplantation.bsky.social
New in Transplantation Direct: Modernizing the Design Process for US Organ Allocation Policy — moving toward a continuous distribution framework for #kidneys #TXPforAll #OpenAccess #MedTwitter @MIT tinyurl.com/439e3phe
Reposted
cobaltjacket.com
How can anyone reasonably expect to "manage the logistics of the new allocation policies" when HRSA/HHS continuously conducts policy head-fakes/diversions/distractions and overrides community will by fiat?
amjtransplant.bsky.social
Check out this month's AJT Report, "Managing the logistics of the new allocation policies." www.amjtransplant.org/article/S160...
AJT Report
Reposted
cobaltjacket.com
One of the keywords that triggered the cancellation was "transition" - ie. child-to-adult transition. "Transition" and "transplant"/"transplantation" are in 1,188 Pubmed-listed scientific papers.
Reposted
cobaltjacket.com
This article makes important points, but most needs assessments ignore the most vulnerable: minorities, underserved, and pediatrics.
jama.com
JAMA @jama.com · 23d
Viewpoint: Addressing the gap between therapeutic investments and unmet medical needs in the US requires strategic alignment through improved data, partnerships, funding, and policies.

ja.ma/4nyWlHO
A JAMA article titled 'Developing New Therapies—Putting the Money Where the Need Is' by Ellen J. Mackenzie et al., published online September 15, 2025. The viewpoint discusses unmet medical needs and investments in therapeutic development.
Reposted
cobaltjacket.com
Pediatric nephrologists and/or the general transplant community, please take note of this important work that should be considered in future revisions to pediatric transplant policy. Congratulations to the team, and I love that Dr. Amaral (one of my frequent collaborators) helped to drive this.
jama.com
JAMA @jama.com · 21d
Although EBV can cause complications after a transplant, less than 14% of EBV-negative children received kidneys from EBV-negative donors, who mostly went to low-risk EBV-positive adults.

ja.ma/4nyUNgL
JAMA Research Letter: "Donor-Derived Epstein-Barr Virus Infection Among Pediatric Kidney Transplant Recipients" by Vishnu S. Potluri, Sandra Amaral, and Chethan M. Puttarajappa. Published online September 17, 2025.
transplantpolicy.org
September 18, 2025 | 10:00 AM - 11:30 AM EDT
President Trump and HHS under Secretary Kennedy are making historic moves to encourage more organ donation through reforms and policies, delivering hope to patients and families waiting for transplants.
transplantpolicy.org
Livestream tomorrow:

"HHS Makes Historic Improvements to Organ Programs"

Link: www.hhs.gov/live/live-1/...
www.hhs.gov
Reposted
mlmcqueen.bsky.social
I want to applaud the patient and donor representatives on the board. As someone who has recently been there, I know this was not a decision come to lightly. Your bravery is truly inspiring!
scottyauerbach.bsky.social
www.instagram.com/p/DIKExuRPmy... Protesting the changes at the Organ Procurement and Transplantation Network (OPTN), the Patient and Donor Affairs representatives of the OPTN board have all submitted their resignation effective April 15th. @phtsociety @action4hf @transplantfamilies @starzlnetwork
Reposted
scottyauerbach.bsky.social
www.instagram.com/p/DIKExuRPmy... Protesting the changes at the Organ Procurement and Transplantation Network (OPTN), the Patient and Donor Affairs representatives of the OPTN board have all submitted their resignation effective April 15th. @phtsociety @action4hf @transplantfamilies @starzlnetwork
Reposted
cobaltjacket.com
Per /u/lake_huron on Reddit, HOPE Act (HIV) and xenotransplantation NIH grants terminated. #OrganTransplant taggs.hhs.gov/Content/Data...
taggs.hhs.gov
Reposted
Reposted
cobaltjacket.com
As a longtime fan of AAKP, I can't help but feel disappointed that they’re putting a positive spin on what is an unmitigated disaster for transplant recipients.
Reposted
astinfo.bsky.social
Funding cuts to the NIH threaten critical transplant research that improves patient outcomes and drives innovations like new immunosuppressants and organ regeneration. We need your help to protect NIH funding. Take action today! 👇

www.myast.org/take-action#/
Take Action
Make a difference in the field of transplantation by donating to support our cause.
www.myast.org
Reposted
astinfo.bsky.social
💙 To Our Transplant Community 💙
We know that changes and challenges in transplantation can bring uncertainty, but you are not alone. Your voice, health, and future remain at the heart of everything we do.