Jen ♿️
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trippingtreacle.bsky.social
Jen ♿️
@trippingtreacle.bsky.social
30+ years diagnosed with MS 🎗️ Loves family, crochet, coffee, blogging, reading, yoga, cocktails, sleep! 🛏️
Reposted by Jen ♿️
March 15, 2025 at 3:45 PM
Reposted by Jen ♿️
😂🤣
February 4, 2025 at 11:54 PM
Reposted by Jen ♿️
Hot off the press! Nice summary. Front. Immunol., 22 December 2024 #MS #EBV #vitaminD
doi.org/10.3389/fimm...
Epstein-Barr virus, vitamin D and the immune response: connections with consequences for multiple sclerosis
Atia Rasheed Dr. Gulfaraz Kahn

www.frontiersin.org/journals/imm...
Frontiers | Epstein-Barr virus, vitamin D and the immune response: connections with consequences for multiple sclerosis
www.frontiersin.org
December 23, 2024 at 5:56 PM
Reposted by Jen ♿️
[Updated] "Many of these #wishlist items are things I’d never thought I’d want or need in another life. If not for my #ChronicIllnesses, I probably wouldn’t even know of their existence": https://buff.ly/3DilmF4 #MondayBlogs #NEisVoid #GiftIdeas
December 23, 2024 at 4:30 AM
Fantastic way to explain #MS
New to #MS or trying to explain it to your family without losing your mind? Here’s a snarky, simple breakdown to help them finally get it—because nothing says holiday spirit like dodging Aunt Karen’s unsolicited health advice.

itreallydoes.com/what-is-ms-b...
MS Sucks -   - Breaking It Down for Friends and Family
Struggling to explain MS to friends and family? Break it down with simple, snarky insights about symptoms, treatment, and how they can support you this holiday season.
itreallydoes.com
December 23, 2024 at 7:42 AM
Reposted by Jen ♿️
Brain fog is like having an internet connection from the ’90s. You’re just sitting there, waiting for something to load. #MS
December 22, 2024 at 1:00 PM
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December 13, 2024 at 5:24 PM
Reposted by Jen ♿️
Campaign for Disability Justice is a new national campaign run by a local charity Inclusion Barnet. We are calling on Govt. to improve #OpportunitySecurityRespect for Disabled people, whether in work or not. Sign up to support us and keep updated on the latest developments.
Sign up to support
Spread the word! Tell your friends and family about this campaign. Every supporter counts and will make this campaign even more powerful. #OpportunitySecurityRespect
buff.ly
November 19, 2024 at 12:27 PM
Reposted by Jen ♿️
"The #holidays bring along with them: Increased physical activity, shopping for gifts, sparkly lights, #Christmas carols on repeat, rich foods..I love all that, but it also means an increase in #PainLevels if left unmanaged": buff.ly/3mcZwov #ChronicPain #MondayBlogs
December 2, 2024 at 3:56 AM
“So I’ve really had to think about chilling out and accepting where I am now. Which looks 100% different to how it used to but I’m telling myself, “that’s okay”.”

trippingthroughtreacle.com/expectations...
Expectations - Learning How to Let Them Go -
As someone who's had a chronic illness for 30+ years, I've had to learn how to let expectations go. Not only of myself but of others too.
trippingthroughtreacle.com
December 5, 2024 at 7:36 AM
Reposted by Jen ♿️
100%!
So much of being disabled is grieving. Grieving the body you’ll never have, grieving the capabilities you used to have but no longer do, grieving friends and family who no longer reach out. It’s a heavy, ongoing type of grief that is compounding.
November 30, 2024 at 2:03 AM
Reposted by Jen ♿️
Frank Sinatra on Multiple Sclerosis
patienttalk.org/frank-sinatr...
November 26, 2024 at 8:29 AM
Reposted by Jen ♿️
"#Medications, #DoctorAppointments and the endless #medical investigations add up quickly, and there is never a ‘final solution’ to your problems. A lot of trial and error is involved": www.achronicvoice.com/2020/02/05/c... #NEisVoid #ChronicIllness
The Extra Costs Of Living With A Chronic Illness Or Disability (That The News Often Don't Reflect)
'Health is wealth’, both metaphorically and literally when you live with chronic illness or disability. Pain management isn't cheap, and costs add up fast.
www.achronicvoice.com
November 22, 2024 at 5:08 AM