#MECfs
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jamessentacnoly.bsky.social
何かを始めるのに遅いということはない
行動することで変わることができる
遺伝子は運命ではなく、単なる初期設定
問題はそれを踏まえた戦略
#コロナ後遺症
#ワクチン後遺症
#MECFS
寿命を伸ばすには「空腹でトレーニング」!?長生き遺伝子FOXO3を目覚めさせる日々の習慣とは
diamond.jp/articles/-/3...
寿命を伸ばすには「空腹でトレーニング」!?長生き遺伝子FOXO3を目覚めさせる日々の習慣とは
ゲノム研究の進展により、寿命を左右する遺伝子FOXO3の存在が明らかになった。しかもこの遺伝子は、生まれつきの体質ではなく、私たちの行動次第で活性化させることができるという。長寿のスイッチを入れる生活習慣とは？※本稿は、医師のピーター・アッティア著、ジャーナリストのビル・ギフォード著、小坂恵理訳『OUTLIVE（アウトリブ）人はどこまで生きられるのか：健康長寿の限界を超える科学的戦略』（NHK出…
diamond.jp
December 17, 2025 at 3:43 AM
jamessentacnoly.bsky.social
我々の体は生き物だという当然の理屈
時間の意識も持って療養を考えてみたい
#コロナ後遺症
#ワクチン後遺症
#MECFS
免疫療法は「午後3時」が分かれ目：進行・死亡リスクに大きな差
nazology.kusuguru.co.jp/archives/189...
免疫療法は「午後3時」が分かれ目：進行・死亡リスクに大きな差 - ナゾロジー
中国の中南大学（Central South University, CSU）の湘雅医学院付属がん病院で行われた研究によって、広範期小細胞肺がん（全身に広がった危険な進行性のがん）、同じ免疫療法＋抗がん剤治療でも「いつ点滴するか」という時間帯によって、その後の生存期間に大きな差が出る可能性が示されました。…
nazology.kusuguru.co.jp
December 17, 2025 at 3:29 AM
jamessentacnoly.bsky.social
結局全ては一人一人の責任ある行動による
それは、コンピューターウイルスだけでなく、普通の社会でも同じ
#コロナ後遺症
#ワクチン後遺症
#MECFS
守ったつもりが、守れていなかった　アスクルのランサム被害報告書の衝撃
www.itmedia.co.jp/enterprise/a...
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�uEDR������Έ��S�v�Ƃ����l�����ł��댯��������܂���B�A�X�N���̓����T���E�F�A��Q�Ɋւ���ڍׂȃ��|�[�g�����J���܂����B�������猩�����̂́u�ŐV�΍�𓱓����Ă�����Ɓv�ł��U���ɑ����Ƃ��������ł��B�ł͂ǂ�����΂����̂ł��傤���B
www.itmedia.co.jp
December 17, 2025 at 3:25 AM
tomkindlon.bsky.social
From China:

Alterations in gut microbiota and associated metabolites in patients with chronic fatigue syndrome

www.nature.com/articles/s41...

Screenshot from Science for ME weekly update

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Alterations in gut microbiota and associated metabolites in patients with chronic fatigue syndrome — Cheng et al. "This study, utilizing 16S rRNA gene sequencing and gas chromatography–mass spectrometry, confirmed the presence of structural dysbiosis in the gut microbiota and metabolic disturbances in short-chain fatty acids in patients with chronic fatigue syndrome."
December 17, 2025 at 1:53 AM
tomkindlon.bsky.social
From Australia:

Distinct white matter alteration patterns in post-infectious and gradual onset chronic fatigue syndrome revealed by diffusion MRI

www.nature.com/articles/s41...

Screenshot from Science for ME weekly update

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Distinct white matter alteration patterns in post-infectious and gradual onset chronic fatigue syndrome revealed by diffusion MRI — Yu et al. "findings highlight distinct patterns of axial diffusivity (AD) changes in these subgroups, with PI-ME/CFS patients exhibiting increased AD in various association and projection fibres and GO-ME/CFS patients showing decreased AD in commissural fibres."
December 17, 2025 at 1:47 AM
tomkindlon.bsky.social
UK study using samples from the UK ME/CFS biobank

Abnormal T-Cell activation and cytotoxic T-Cell frequency discriminate symptom severity in myalgic encephalomyelitis/chronic fatigue syndrome

link.springer.com/article/10.1...

Screenshot from Science for ME weekly update

#MEcfs #PwME
Abnormal T-Cell activation and cytotoxic T-Cell frequency discriminate symptom severity in myalgic encephalomyelitis/chronic fatigue syndrome — Lee et al. "In this study we have demonstrated clear differences exist in immune cells in people with mild/moderate compared with severe ME/CFS, and that these differences remain over years of longitudinal sampling."
December 17, 2025 at 1:36 AM
madelinenerd.bsky.social
New podcast episode, " The Fine Art Of Distraction " open.spotify.com/show/0oNLwzI...
#MyalgicE #pwME #MECFS #pots #fibromyalgia #MEAction #disability #immunedeficiency #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada #Canadian #Vancouver #genderbias #medicalbias
December 17, 2025 at 1:32 AM
tomkindlon.bsky.social
Petition Call for Funding a New Clinical Study on Daratumumab for ME/CFS

www.change.org/p/call-for-f...

Screenshot from Science for ME weekly update

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Petition Call for Funding a New Clinical Study on Daratumumab for ME/CFS A petition created by patients to encourage the Norwegian government to fund the clinical study ResetME, on Daratumumab as a potential treatment for ME/CFS. The study has begun, but is still not fully funded. Anyone can sign the petition.
December 17, 2025 at 1:31 AM
stillcovidingca.bsky.social
Long-COVID research just got a big funding boost: will it find new treatments?

Nature
December 8, 2025
By Michael Marshall

stillcoviding.ca/en/news/long...

#COVID #LongCovid #ME #MECFS #health #CovidIsNotOver
Long-COVID research just got a big funding boost: will it find new treatments?
stillcoviding.ca
December 17, 2025 at 1:19 AM
meactnet.bsky.social
Read about #MEaction’s Freakin Frail campaign to protect Medicaid here: freakinfrail.org

#ProtectMedicaid #Disability #PwME #MECFS #DisabilityJustice
FREAKIN' FRAIL | #MEAction
Sign this letter to HHS Secretary, RFK Jr., so that he includes ME/CFS and Long COVID as “medically frail” in his recommendations for medically frail exemptions.
freakinfrail.org
December 17, 2025 at 12:32 AM
darthfoo.bsky.social
substack.com/@darthfoo/p-...

#LongCovid #MECFS #ChronicIllness #Disability
The Holiday Tax
When December Becomes a Debt You Can’t Afford to Pay
substack.com
December 17, 2025 at 12:17 AM
elendraug.bsky.social
Can anyone please help Ang fight back against medical abuse to save Sasha's life? Please, what legal action is available? Are ANY organizations willing to be patient advocates??

#NEISVoid #DisabilitySky #MECFS #EDS #hEDS
giveearichlifeline.bsky.social Save my Sister's Life, make us viral, get $400 @giveearichlifeline.bsky.social · 5h
Because of the false narrative she’s been rejected by every major hospital and left to die barely getting necessary care. I’m so sick you cannot fathom the trauma of watching your own family die up close and personal unless you’ve been through it at this level. Get us help please
December 16, 2025 at 11:59 PM
elendraug.bsky.social
URGENT: Ang's hospitalized sister is being medically neglected to death. #NEISVoid

Please help them connect with #hEDS #MECFS drs & orgs! Can YOU help Sasha receive necessary ER care?

More info: givemearichlifeline.com

#GiveMeARichLifeline #DisabilitySky #FundSky #HelpFolksLive2025 #MutualAid
URGENT: Ang's sister Sasha needs immediate, life-saving help from doctors & organizations familiar with hEDS, C. diff, organ failure, and providing genuine care for U.S.-based, medically-complex patients. Can YOU help save Sasha? Email Ang (see Google Document within GFM campaign for details & contact info) Light pink Open Dyslexic font on a purple tiled wood pattern background from Ang's website.
December 16, 2025 at 11:19 PM
corbden.defcon.social.ap.brid.gy
My IBS has been worse lately in spite of the best pacing and stress-reduction I've had in years.

I guess it's time for another round of serious meditation.

Sigh.

#mecfs #recovery2025
December 16, 2025 at 11:18 PM
bigpolarbear.bsky.social
今日は青い鉄鋼をお届けします☺️

筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。

#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
December 16, 2025 at 10:52 PM
turnoftheshrew.bsky.social
When the same people repeatedly misunderstand, it is bc they are not truly trying to understand or listen. I am exhausted of navigating other people’s fragility & denial while trying to survive. And so I don’t tolerate it. After a lifetime of people pleasing, I choose myself.
#MECFS #LongCovid
December 16, 2025 at 10:21 PM
kiza72.bsky.social
Ging um MINT-Fächer der „Fünfis“, den Stoff hat sie noch drauf bzw. hat die Experimente im Vorfeld mit geplant und erarbeitet. Selten kam sie so glücklich von der Schule nach Hause.
Selbst traut sie sich morgen die Mathearbeit nicht zu aber sei‘s drum, sie muss nicht. #MECFS
December 16, 2025 at 9:43 PM
tomkindlon.bsky.social
New from Australia:

Mapping the complexity of ME/CFS: Evidence for abnormal energy metabolism, altered immune profile, and vascular dysfunction

Free fulltext:
www.sciencedirect.com/science/arti...

"these findings indicate mitochondrial dysfunction and energy stress"

#MEcfs #CFS #PwME
Graphical abstract plus Highlights • This study involves age- and sex-matched 61 healthy controls and 61 ME/CFS patients • Abundance of AMP and ADP, with reduced ATP/ADP ratio in immune cells • Lower proportion of terminal effector memory T cell, NK, and DC subpopulations • Elevated plasma proteins associated with vascular and anti inflammation activity In brief Heng et al. apply a multi-omics approach combining analyses of energy metabolism, immune cell composition, and plasma proteomics. They reveal altered energy metabolism and immune profiles, alongside plasma proteins associated with vascular dysfunction in ME/CFS, highlighting coordinated dysregulation across multiple biological systems in this disorder.
December 16, 2025 at 9:30 PM
chikocfm.bsky.social
Does Christmas gifting overwhelm and stress you out? Learn more from my latest @tiktok videI>>> vm.tiktok.com/ZNRYFxw48/
You are not alone🫶💜 Follow for updates! #fibromyalgia #chronicillness #mecfs #spoonies
TikTok - Make Your Day
vm.tiktok.com
December 16, 2025 at 8:50 PM
pumpkinstars.bsky.social
i need to recover more from the experience. the MECFS crash from all that is starting to come on and it’s going to hit me hard soon. i think.

and other things are all unregulated.

it’s going to take me time to heal from all of it

so i’m glad i have the disabled community for company hehe
December 16, 2025 at 7:58 PM
pumpkinstars.bsky.social
the MECFS community, oh i learned so much. what it is, how to pace, so many energy saving tips my brain foggy head would never have thought of

the EDS community and stabilizing joints and how to relocate certain body parts and how to handle adhesive reactions
December 16, 2025 at 7:36 PM
mfairma.bsky.social
For anyone doing archival work in #MECFS, this might be of interest. Eastern CT State University has catalogued 19 boxes of materials donated by CT CFIDS. Here’s the current finding aid, which is in process of being updated: easternct.libguides.com/ld.php?conte...
easternct.libguides.com
December 16, 2025 at 7:26 PM
hourlybreezing.ntw.app

Bluesky's Top 10 Trending Words (past 60min):
💨x1* - epstein 🔓
💨x1* - ukraine 🔓
💨x197 - wiles
💨x1* - democracy 🔓
💨x1* - gaza 🔓
💨x90 - larian
💨x66 - 1﹐641
💨x62 - susie
💨x61 - foley
💨x57 - swen
*🔓 = Unlocked Emergency Words (see img)

#йобанарусня 🇺🇦

(Something not right? Reply!)
Word Cloud; its top words (sorted by weighted frequency, descending): epstein*, ukraine*, wiles, democracy*, gaza*, larian, 1﹐641, susie, foley, swen, alcoholic's, dembélé, vincke, uline, ousmane, @larianstudios.com, 2025-12-16, obregón, júlio, ipsum, 12/16/2025, tite, erasmus, lorem, spielberg's, 64﹐000, mick, waterbed, placeholder, spielberg, quaest, summerall, larian's, wmd, urdaibai, brookline, 新式, vanity, placeholders, austen, ely, edika, aol, 16/12/2025, $10bn, アルカディア, wiegman, whipple, jivani, combustión, arcadion, ramelow, powerpoints, jinek, 12/16/25, るる, wmds, foley's, dos2, austen's, vf, unloads, susie's, self-hosted, rétractation, hoogeveen, garantimeli, dwyer, dembele, bonmati, belangrijk-doe, @vanityfair.com, @flutedyke.bsky.social, 鈴原, thielbar, takieddine, qualtrics, mozilla, loureiro, lancellotti, gogmazios, gaston, automóvil, aitana, 16-dec-2025, 105﹐000, sarina, neurosurgeon, moray, melihj, divinity, borsato, bonmatí, bg3, badalona, autoindustrie, 2035, çocukmağdur, zl, whiffed, weerwind, top-20, theorist, terneuzen, summerall's, scaramucci, requiert, reiner, raphinha, nita, msq, motores, melicupons, levee, lazard, glams, garotinho, disneygpt, designates, declarações, condorito, carmakers, bussing, bruni, bettina, annetutuklu, andaluces, amateurclub, alcoholic, 64k, 2025/12/17, 1﹐642, 16/12/25, προϋπολογισμός, weltfußballer, vijfde, verbrenner-aus, unemployment, telstar, tell-all, satanism, residências, reiners, regurgitates, radley, odilo, newshour, meowstic, luminar, lindner, koepp, huelo, guvf, guggenheim, genai, fabelmans, expsosing, définitivement, disingenuously, desembargador, contratação, batsh*t, alpen, @alsobrooks.senate.gov, 905, 12/17, 誕生日, 装飾, 特撮, 牧場, 引か, ミラプリ, マフィア, パッチ, προϋπολογισμό, £45, zulassen, ziad, zealot, yoru, welle, waterbeds, waffenstillstand, vz, utorok, usl, suzie, scalise, rogamos, rise-nbc, rescheduling, renvoi, reiner's, recaudados, re-posting, ratinho, públics, psny, paganism, osborne Hashtag Cloud; its hashtagged words/phrases (sorted by weighted frequency, descending): secretsantaaonz, ffxiv, tummytuesday, eva, artadventcalendar, tcmparty, robreiner, tittytuesday, susiewiles, 919, jobs, holidays, fallout, citizenportal, birdoftheday, economy, disclosureday, muscle, hotwife, thethingfromanotherworld, streetart, chocolatefoodsinasongormovie, tftuesday, teaseyagame, publichealth, minor, jinek, happyholidays, transformation, pokemontcg, kirby, janeausten, hollowknight, davidsmonthofmusic, bskyart, borsato, フィギュア, verbrenneraus, travelphotography, riprobreiner, giantess, foster, days, alt, alaska, agu25, yqrcc, sciart, mickfoley, marvellegends, footfetish, eroticart, bussy, artvsartist, and, 653, 2025, weekyforyearpast, vanityfair, theamazingdigitalcircus, soles, snowbunny, sff, sega, openaccess, nycacc, naturespantry, mecfs, jockstrap, danmark, covid, climatecrisis, boxoffice, 3dprinting, united_states, transfur, thehousemaid, tfeveryday, tf, susie, spc, slave, publicsafety, psg, poland, navidad, market, kidlitart, indieauthors, folklore, federalreserve, erasmus, ena, donald, diamondpainting, deadpool, cubs, canarias, brexit, bondibeach, artvsartist2025, arctic, aislop, 펨돔, 멜섭, 初音ミク, ドット絵, worldnews, wayv, wa, urbanism, tuoreimmat, trumpderangementsyndrome, trains, toweltuesday, tongueouttuesday, tombraider, taquilla, tagtuesday, stocks, solana, short, scicomm, relationships, pääuutiset, protogen, policy, pixel_dailies, nyheder, ny, ncpol, ncbd, mcu, mature, malefeet, luetuimmat, latest, larian, klimaschutz, johncena, it, intune, giant, gayass, ffxivspoilers, festive, femme, felizmartes, english, earth, dubai, dkmedier, deadpoolandwolverine, cityscape, ciencia, chilltraxradio, balochistan, audiobook, asshole, accessibility, 5albums25, 318b12o1o14, 16, 初音, パズル, ไซด์ไลน์, รับงานลำลูกกา, รับงานรังสิต, wolverine, weightloss, varesa, unitedkingdom, uncutcock, thicktrunktuesday, thetraitorsus, therookie, thebest, terneuzen, sweepstakes, supportsmallstreamers, stevenspielberg, sockfetish, sjsharks, sdol, sailing, rusia, rstv, rockintuesday, rhapmafia, retrogame, rethink, report, pledge4rescue, play, peeing, pakistani, ourfuture, otter, newsletter, negociostv Emoji Cloud; its emojis (sorted by weighted frequency, descending): 🪪, 🤷🏾, 🙋🏼, 🎅🏾, 🇹🇭, 🪜, 🪚, 🧑‍🎄, 🧇, 🤶, 🛰️, 🛩, 🚹, 🕎, 🔀, 📥, 👩‍❤️‍💋‍👩, 👋🏿, 👃🏼, 🎋, 🎅🏽, 🇸🇬, 🇲🇩, 🇦🇲, 🆙, 🆔, ⚙, ⚗️, 🫷, 🪭, 🪞, 🪕, 🪁, 🧯, 🧬, 🧫, 🧧, 🧞‍♂️, 🧘🏻‍♀️, 🧒, 🧍‍♀️, 🦙, 🦑, 🥽, 🥷🏻, 🥢, 🥏, 🤦🏽‍♂️, 🤜🏾, 🤛🏾, 🤒, 🛻, 🛷, 🛩️, 🛁, 🚻, 🚰, 🚜, 🚐, 🚅, 🚄, 🙋🏽‍♀️, 🗑, 🖕🏿, 🖕🏾, 🖕🏽, 🔺, 🔳, 🔑, 📨, 📔, 💴, 💠, 💃🏽, 💁🏻‍♀️, 💁, 👶🏻, 👱🏻‍♀️, 👩‍🔬, 👩‍🏫, 👖, 👂🏻, 🐵, 🐡, 🐔, 🐋, 🐆, 🏦, 🏟, 🏍️, 🏊‍♂️, 🏄, 🎙, 🎖, 🎌, 🎄, 🍼, 🍳, 🍱, 🍧, 🌮, 🌘, 🌓, 🌁, 🇿🇼, 🇵🇭, 🇲🇦, 🇱🇺, 🇮🇳, 🇮🇩, 🇬🇷, 🇬🇱, 🇪🇹, 🇪🇬, 🇩🇰, 🇨🇾, 🇨🇱, 🇦🇺, 🇦🇹, 🇦🇴, 〽️, ✌🏿, ⛲, ♨️, ♠, ☣️, ☝🏼, ☃, ◼, ⌛ Emoji Legend 💨x# | "Increased Trending Rate" for a Word (meaningful value; "💨x8 - burger" will mean "burger" is trending at 8 times its own normal rate for this time of day) 🔓 | "Unlocked" Ongoing Emergency Word (such words are not weighted down by their own previous usage; their *ongoing* increased usage--weeks, months, years--would otherwise move them down the list.) [PREVIOUSLY USED] ⚠️💨# | "Trend Strength Rating" ⚠️🌀💨 | "Trend Strength Rating" (see above) ⚠️🌀 CAT. # | [same; "CAT." = Category, like hurricane] 💬# | 10min Post Count 🆎# | 10min Word Count 🙂# | 10min Emoji Count
December 16, 2025 at 7:03 PM
everettem.bsky.social
I'm recovering from a family trip to New Orleans this past weekend, so I won't be posting for #Lexember for a few days. #conlang #MEcfs #pwME
December 16, 2025 at 7:01 PM
chronicmum.bsky.social
Meine Besserung schwindet langsam wieder. Der Unfall war in jeder Hinsicht schlecht.
#MECFS
December 16, 2025 at 6:58 PM