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Adam @abrokenbattery.bsky.social · 17h

It’s @davetuller1.bsky.social‘s birthday today, so I’ve donated to his fundraising campaign so that he can carry on his important work calling out bad research. Happy Birthday David!

crowdfund.berkeley.edu/project/47768

David Tuller's Trial by Error Fall 2025

Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!

crowdfund.berkeley.edu

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Wilhelmina Jenkins @wilhelminaj.bsky.social · 2d

An excellent article by Laurie Jones, executive director of @meaction-mi.bsky.social, about the difficulties that proposed Medicaid work requirements would cause the ME/CFS community.

MedPage Today @medpagetoday.com · 2d

"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no

Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities

ME/CFS and long COVID patients must qualify as 'medically frail'

www.medpagetoday.com

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#MEAction Network @meactnet.bsky.social · 1d

@meactnet.bsky.social's Executive Director, Laurie Jones, wrote a op-ed about the medicaid work requirements that was recently published in MedPage Today!

Thank a look below!👇

MedPage Today @medpagetoday.com · 2d

"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no

Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities

ME/CFS and long COVID patients must qualify as 'medically frail'

www.medpagetoday.com

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MedPage Today @medpagetoday.com · 2d

"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no

Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities

ME/CFS and long COVID patients must qualify as 'medically frail'

www.medpagetoday.com

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George Monbiot @georgemonbiot.bsky.social · 2d

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome

Research could offer hope for ME patients – but some experts urge caution and say more studies needed

www.theguardian.com

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George Monbiot @georgemonbiot.bsky.social · 2d

This commission points to where the government is heading. If the problem is “overdiagnosis” – which appears to be its foregone conclusion – then large numbers of people with horrendous conditions will be put through an even more punishing regime of tests and obstacles to qualify for benefits.

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Gail Drakes @gaildrakes.bsky.social · 4d

I just learned that the number of children in the U.S. navigating life with Long COVID exceeds that of the number of kids with asthma.

Wow.

Long COVID is here to stay—even in children

Post-acute sequelae of SARS-CoV-2 infection (PASC, also known as long COVID) are complex, multisystem, long-lasting complications of SARS-CoV-2 infection that profoundly impact the daily life of those...

www.thelancet.com

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Senator Patty Murray @murray.senate.gov · 3d

Here are the 10 states that will see the highest premium increases for families that lose tax credits if Republicans refuse to act.

West Virginia 387%
Wyoming 382%
Alaska 346%
Tennessee 320%
Mississippi 314%
Texas 289%
South Carolina 285%
Alabama 284%
South Dakota 235%
North Dakota 234%

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Eric Michael Garcia @ericmgarcia.bsky.social · 5d

The Trump administration is preparing a plan that will make it harder for older Americans to qualify for Social Security disability payments, which could result in hundreds of thousands of people losing benefits, according to people familiar with the plans (GIFT LINK). wapo.st/4qa8yoq

Trump plan would limit disability benefits for older Americans

Trump administration officials are considering eliminating age as a factor in deciding whether someone is capable of working.

wapo.st

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KOJAMF🤘🖤🤘 @kojamf.bsky.social · 5d

Dr. Jane Goodall filmed an interview with Netflix in March 2025 that she understood would only be released after her death.

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🎃 public HELLth guy 🎃 @publichealthguy1.bsky.social · 5d

a respected senior CDC official telling the public that the federal agency has undergone a hostile takeover and it barely makes the news because that’s the state of the world today

Prof Sheena Cruickshank @sheencr.bsky.social · 5d

This is another damning picture of Kennedy refusing to meet with senior scientists and get advice about infections or vaccines whilst he spreads disinformation #healthpolicy

A ‘hostile takeover’: ousted CDC official raises alarm over RFK Jr approach to infectious disease

Debra Houry speaks after testifying on eight months under Kennedy, who critics say shuns science and spreads falsehoods

www.theguardian.com

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Verena Hackl @verhac.bsky.social · 9d

"Oldie" but goldie: einfach sehr guter Text über #PEM, #MECFS, #LongCovid, etc. von Ed Yong.

Re-Leseempfehlung.

www.theatlantic.com/health/archi...

Fatigue Can Shatter a Person

Everyday tiredness is nothing like the depleting symptom that people with long COVID and ME/CFS experience.

www.theatlantic.com

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Waldo Jaquith @waldo.net · 5d

The Trump administration has cancelled 4,304 deliveries to food banks so far this year, refusing to deliver 94 million pounds of contracted-for food. Food banks simply can’t feed people enough anymore. Millions of Americans are going hungry as a result.

Trump Canceled 94 Million Pounds of Food Aid. Here’s What Never Arrived.

ProPublica obtained records from the Department of Agriculture that detail the millions of pounds of food, down to the number of eggs, that never reached food banks because of the administration’s cut...

projects.propublica.org

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Jacqueline Antonovich @jackiantonovich.bsky.social · 5d

Not to be *that* obnoxious academic, but the term "moron" was invented by eugenicists to classify high-functioning "feebleminded" people, and most often targeted at women who were sexually promiscuous.

Molly Jong-Fast @mollyjongfast.bsky.social · 5d

It almost ceases to be ideological, I think anti-moron could be a lane for a political party.

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Dr. Genevieve Guenther (she/they) @doctorvive.bsky.social · 5d

And, to be clear, some models have us reaching 3°C over preindustrial as soon as 2060. (Tweet from @hausfath.bsky.social.)

Zeke Hausfather • @hausfath • Sep 28 However, if we constrain CMIP6 to match recent observed global temperatures, we see no models reaching 3C until at least 2060:

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Tom Kindlon @tomkindlon.bsky.social · 6d

🧵
"The Trouble With Recovery Stories" by Naomi Whittingham @naomiwhitt.bsky.social (with severe ME for decades)

alifehidden.com/2024/11/05/r...

An excellent, articulate article discussing “Recovery Stories” and the complex impressions and impacts they bring about

#MEcfs #CFS #PwME

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The Trouble With Recovery Stories
Posted on 5th Nov 2024

Photo of somebody up a tall mountain near the edge

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Fergus Murray @fergus.oolong.co.uk · 7d

Fun fact: he's talking about the bizarre and horrifying history of ME/CFS here, but this is almost exactly what's happened with the anti-trans movement as well, and this time the British media are even more culpable.

George Monbiot @georgemonbiot.bsky.social · Oct 18

I see my own profession, the media, as being as culpable as any. How did we allow a bizarre sect, with a phenomenally cruel and brutal agenda, to set the prevailing view of this and other issues?
And it was right across the board: just about every major outlet in the UK.

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PZ @itsmepz.bsky.social · 12d

It's 2025, 6 years into a pandemic that has caused an epidemic of new cases of #MECFS.

There have never been so many advocacy orgs and quality resources available to inform on MECFS.

And still, media pieces that mention #MyalgicEncephalomyelitis are misinformed and incorrect.

#pwME

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Assigned Media @assignedmedia.org · 9d

On Friday 18 blue state attorneys general BLASTED the Federal Trade Commission, telling it to back off trans youth healthcare and warning of an insidious attempt to reshape the regulation of medicine in the US.

And nobody covered it.

www.assignedmedia.org/breaking-new...

State AGs Defend Trans Americans in Stunning Rebuke to Trump’s FTC — Assigned

Eighteen state Attorneys General unite to stand up in defense of trans Americans, in opposition to a Federal Trade Commission investigation into trans healthcare.

www.assignedmedia.org

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Litsa Dremousis @litsadremousis.bsky.social · 12d

Telehealth is crucial for the tens of millions of Americans w/ #MyalgicEncephalomyelitis, #LongCovid, or dozens of other major illnesses and/or #disabilities.

Please help us save telehealth!

Even if you're healthy, this greatly impacts someone you love❤️

#MEAction Network @meactnet.bsky.social · 14d

Take action to save telehealth now! You can call or email your member of Congress.

To make this action easier, we have drafted up a sample script/email wording you can use: www.meactions.org/telehealth

#Telehealth #PwME #MECFS #LongCovid #disability

Graphic with megaphone and speech bubble in bright colors. Text: Take action today: support keeping telehealth!

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Emerge Australia @emergeaustralia.bsky.social · 21d

If you're a Culturally & Linguistically Diverse (#CALD) person living with or caring for someone with #MECFS or #longCOVID, we invite you to share your experiences to guide us in making our services more inclusive and community-led.
Take the survey: zurl.co/O28dI

Image of three people with various brown skin tones reading and looking at forms. One person is wearing a pale coloured headscarf "Your voice matters: help us make our services more inclusive"

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The New Yorker @newyorker.com · 21d

Under the Trump Administration, federal offices and programs that insure equal treatment are being shuttered and scaled back.

Donald Trump’s Assault on Disability Rights

Federal offices and programs that insure equal treatment are being shuttered and scaled back.

www.newyorker.com

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Emily Mullin @emilymullin.bsky.social · 21d

At the ACIP meeting this afternoon, a representative from the American Pharmacists Association had to point out to members that in many states, the authority for pharmacists to give vaccines is based on ACIP recommendations.

It's as if the new ACIP members don't actually know what ACIP does.

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Kat Abughazaleh @katmabu.bsky.social · 21d

They just tear-gassed us. They tried to run us over in a van holding a peaceful protester. They shot us with pepper balls. They dragged another protester into the facility.

shawn @mulchy.bsky.social · 21d

moments ago, ice agents again came out of the broadview detention/“professing” facility to escort a silver suv out of the lot.

one of the agents picked up and threw congressional candidate kat abughazaleh to the ground.

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Shematologist, MD @shematologist.medsky.social · 22d

In case anyone has forgotten, vaccines are literally MIRACLES and one of the greatest inventions in the history of mankind.

Seriously MAGIC.

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