#WorldMEday
LightNews LightNews
dgspsoa.bsky.social
#LongCOVID
#PAIS
#MEcfs
#MEAwareness
#HealthEquity #MillionsMissing #WorldMEDay #GlobalVoiceForME #ChangeTheFuture4ME
#STOPtheHarm #FUNDtheResearch #STARTtheTreatment

Creator Unknown. Please tag for credit.
Bild. Ersteller unbekannt. Zu sehen ist eine Fassade, rechts zu sehen ist ein aufgemalter Mann mit Pinsel und Eimer ind den Händen und 2 Rollen (Tapete?) unterm Arm. Links steht mit grauschwarzer Pinselschrift: 'FOLLOW YOUR DREAMS' Der Spruch wurde mit einem Stempel mit Aufschrift 'CANCELLED' überstrichen (roter Block mit weißer Schrift und minimaler schwarzer Umrandung) darunter steht in PC-Schrift: 'because of #mecfs'
May 19, 2025 at 4:20 PM
alexisme.bsky.social
@annadixonmp.bsky.social great to see you bluesky instead of X now - hope you can advocate for those in your constituency with ME and long covid this ME awareness week.
Myth versus fact images from World ME alliance https://worldmealliance.org/worldmeday/ Myth versus fact. Myth ME is a mental health condition, fact ME is a biological illness that disrupt the metabolism and impaired brain immune system and autonomic nervous system.
May 18, 2025 at 11:07 AM
meassociation.org.uk
ME World Alliance Myth v's Fact

Myth: Long COVID is entirely different from ME.

Fact: Many Long COVID patients have symptoms that match ME.

Download and share any of the Myth v's Fact images here:

https://worldmealliance.org/worldmeday/

#MECFS #pwME #MEAwarenessWeek #WorldMEDay #MEAW
IMAGE DESCRIPTION: Photo of a woman wearing a face mask and holding her head. Wording - Myth vs Fact, the Myalgic Encephalomyelitis Edition. Myth: Long COVID is entirely different from ME. Fact: Many Long COVID patients have symptoms that match ME. What facts do you want toe world to understand this World ME Day?
May 18, 2025 at 9:30 AM
tink-ina.bsky.social
Thank you for reading my story.
If this resonated with you—please repost. Help it reach someone who doesn’t yet understand.

#MillionsMissing #WorldMEDay #ChronicIllness #LongCovid #MedicalTrauma

(12)
May 17, 2025 at 2:17 PM
actionforme.bsky.social
The World ME Alliance has updated their free ME Factsheet! It's a valuable resource for anyone looking to learn more about ME.

Read, print or download the factsheet, which is available in several languages👇

worldmealliance.org/worldmeday/

#WorldMEDay #MECFS #pwME #MyalgicEncephalomyelitis
Graphic with text in top centre ‘Together, let’s replace the myths with facts this #WorldMEDay’. Beneath is a dark blue box with text in white ‘Read, share & print the World ME Alliance’s ME Factsheet’ with 2 images, each a page of the World ME Alliance ME Factsheet. Action for ME logo in top right corner.
May 16, 2025 at 1:42 PM
meassociation.org.uk
Myth: Drs cannot help people with ME
Fact: Drs can help people manage ME symptoms. While there is no cure for ME, there are compassionate ways to help patients manage their symptoms, in addition to pacing to prevent post- exertional malaise
https://worldmealliance.org/worldmeday/

#WorldMEDay #MECFS
IMAGE DESCRIPTION: Photo of a doctor smiling. Wording reads: Myth: Doctors cannot help people with ME. Fact: Doctors can help people manage ME symptoms. While there is no cure for ME, there are compassionate ways to help patients manage their symptoms, in addition to pacing to prevent post- exertional malaise.
May 16, 2025 at 11:30 AM
intensivdiva.bsky.social
Bitte unterschreiben ✍️ und re-posten!
Vielen Dank. 🙏🏻

#followerpower #MECFS #keinLebenmitMECFS #WorldMEDay

www.openpetition.de/petition/onl...
Post-Covid, ME/CFS und Post-Vac: Versorgung, Aufklärung und Forschung in Sachsen verbessern - Online petition
Hilfe für Post-Covid-, ME/CFS- und Post-Vac-Betroffene in Sachsen! Die Versorgungslage der Betroffenen von Post-Covid, ME/CFS und Post-Vac in Sachsen ist nach wie vor prekär. Die Kenntnisse zu den Krankheitsbildern sind bei vielen Ärzten, Therapeuten und medizinischem Personal mangelhaft. Die wenigen Spezialambulanzen sind überlastet, häufig zugangsbeschränkt und bieten keine Behandlungsoptionen an. Die zuständigen Behörden berücksichtigen die Schwere der Erkrankung bei der Gewährung von Soziall
www.openpetition.de
May 15, 2025 at 7:37 AM
diatoma.bsky.social
(People with #ME are still at the point of using our very limited energy to try to raise #MEAwareness on #WorldMEDay #MillionsMissing and really every day of the year.) (6/8)
May 14, 2025 at 10:10 PM
katieklocksin.bsky.social
I nominate @AndreaGrimes.com to help expose the #GreatestMEdicalScandal for this #WorldMEDay #DisabilitySOS. Thank you for speaking up about ableism on this app recently, please visit JohnVsJon.com to learn more & help us raise awareness for this neglected, stigmatized disease.
A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Andrea Grimes for this team” in red text. On left side, an image of Andrea with pink hair as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.
May 14, 2025 at 9:35 PM
smileformeuk.bsky.social
“A special #WorldMEDay delivery!

A big thank you to Smile For ME for brightening up my loved one’s day. After a particularly hard month it means the world 💙”
May 14, 2025 at 3:03 PM
actionforme.bsky.social
❤️ Help us and the World ME Alliance share the facts about ME this #WorldMEDay, as we debunk 6 common myths about ME.

❌ Myth 6: Doctors cannot help people with ME.

✔ Fact: Doctors can help people manage ME symptoms.
World ME Alliance graphic. Photo of a doctor sat at a desk. Text in white from top to bottom: Myth vs Fact. The Myalgic Encephalomyelitis Edition. Myth: Doctors cannot help people with ME. Fact: Doctors can help people manage ME symptoms. While there is no sure for ME, there are compassionate ways to help patients manage their symptoms, in addition to pacing to prevent post-exertional malaise. What facts do you want the world to understand this World ME Day?'
May 14, 2025 at 2:01 PM
meassociation.org.uk
Myth: ME is just about feeling tired

Fact: The defining symptom of ME is Post- Exertional Malaise (PEM) - an extreme worsening of symptoms after even minor physical or mental exertion. This can trigger a "crash" lasting for days or longer.
https://worldmealliance.org/worldmeday/

#MECFS #WorldMEDay
IMAGE DESCRIPTION: Photo of a woman lying on a sofa. Wording - Myth vs Fact. The Myalgic Encephalitis edition. Myth: ME is just about feeling tired. Fact: The defining symptom of ME is Post- Exertional Malaise (PEM) - an extreme worsening of symptoms after even minor physical or mental exertion. This can trigger a "crash" lasting for days or longer. What facts do you want the world to understand this World ME Day?
May 14, 2025 at 12:45 PM
actionforme.bsky.social
🤝 Join us and the World ME Alliance for #WorldMEDay as we debunk 6 common myths about ME, and share the medical information about ME that everyone should know.

❌ Myth 5: Long Covid is entirely different from ME.

✔ Fact: Many long Covid patients have symptoms that match ME.
World ME Alliance graphic. Photo of a lady sat with a face mask on. Text in white from top to bottom: 'Myth vs Fact. The Myalgic Encephalomyelitis Edition. Myth: Long COVID is entirely different from ME. Fact: Many Long COVID patients have symptoms that match ME. What facts do you want the world to understand this World ME Day?'
May 14, 2025 at 9:04 AM
johnvsjonvsme.bsky.social
We nominated Simone Biles because she recognizes that there are times when “pushing through” is not the right move. We hope she joins the fight to combat #GreatestMEdicalScandal and to find effective treatments for #MillionsMissing this #WorldMEDay! (Meme c/o @emilyesfraser.bsky.social)
Photo of Simone Biles wearing her gold medal & making a kissing face at the camera. With John Oliver’s face and Jon Stewart’s face superimposed on goats which are over her shoulder (respectively). Pink text at the bottom reads: “Which Jo(h)n will become the GOAT of our hearts?” There are two cartoon hearts just above the text that are looking up at Oliver and Stewart like they’re in love.
May 13, 2025 at 10:28 PM
jasmijndoorgeest.bsky.social
Naar aanleiding van #WorldMEDay sprak ik Mariëlle Selser (@marielles.bsky.social) over haar boek 'Landziek'.

We hadden het zoal over de beeldvorming van #ME, de medeplichtigheid van de overheid en de verbinding met andere PAIS – waaronder #LongCovid.

Zie hier het artikel voor @redpers.bsky.social.
Ziek zonder erkenning: ‘Als ME voornamelijk mannen had getroffen, was de geschiedenis anders gelopen’ - Red Pers
In 'Landziek' vertelt Mariëlle Selser over haar ziekte, haar zoektocht naar erkenning en de pijnlijke tekortkomingen van de overheid.
redpers.nl
May 13, 2025 at 6:34 PM
chronicaction.bsky.social
Thank you Tessa Munt for using yesterday’s #WorldMEDay to highlight the whole picture of what’s happening to sick and disabled people with ME, Chronic fatigue syndrome, longcovid and similar chronic conditions.

#cutscutscuts #disabilitycuts
May 13, 2025 at 6:06 PM
actionforme.bsky.social
For #WorldMEDay, we are joining the World ME Alliance to tackle 6 common myths about ME.

📢 Help us spread the facts about ME by sharing!
World ME Alliance graphic. Photo of a child sleeping. Text in white from top to bottom: 'Myth vs Fact. The Myalgic Encephalomyelitis Edition. Myth: Only certain groups of people can develop ME. Fact: ME affects people of all races, genders, ages, & socioeconomic backgrounds. What facts do you want the world to understand this World ME Day?'
May 13, 2025 at 2:10 PM
cbme-mark.bsky.social
#WorldMEDay #ThereForME
May 13, 2025 at 11:05 AM
andrewhaglington.bsky.social
Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙
May 13, 2025 at 10:06 AM
andrewhaglington.bsky.social
Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙
May 13, 2025 at 10:05 AM
lucibee.bsky.social
Excellent short (15 mins) film from Re: News (New Zealand) for #MEAwarenessDay #WorldMEDay

ME/Chronic fatigue syndrome: The mysterious illness trapping people in their bodies

Parent carer of daughter with #SevereME sets up hospice to care for others.

www.youtube.com/watch?v=DsOA...
ME/Chronic fatigue syndrome: The mysterious illness trapping people in their bodies
YouTube video by Re: News
www.youtube.com
May 13, 2025 at 10:05 AM
andrewhaglington.bsky.social
Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙
May 13, 2025 at 10:04 AM
andrewhaglington.bsky.social
Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙
May 13, 2025 at 10:04 AM
andrewhaglington.bsky.social
Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙
May 13, 2025 at 10:04 AM
andrewhaglington.bsky.social
Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
May 13, 2025 at 10:02 AM