#longcovidKids
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tomkindlon.bsky.social
Exhaled breath-based clusters in children with post-COVID condition

iopscience.iop.org/article/10.1...

Screenshot from latest Science for ME weekly update

#LongCovid #LongCovidKids #LCKids #PASC
Exhaled breath-based clusters in children with post-COVID condition — Shahriyar Shahbazi Khamas et al. Compared to Cluster 1 (n=38), Cluster 2 (n=16) consisted predominantly of older girls (69%) with a median age of 16 years and exhibited more severe PPCC-related outcomes, including higher PROMIS fatigue scores. Six volatile organic compounds (VOCs) were identified as biomarkers that effectively differentiated the two clusters." "These VOCs, previously reported in the literature, highlight metabolic and inflammatory disruptions and demonstrated high discriminatory performance "
January 15, 2026 at 1:44 AM
arizona10238417.bsky.social
Man fängt an

#PacingTeam
#MECFS
#Longcovid
#Pais
#LongCovidKids

youtu.be/B76enaVzLdQ?...
Nachbarn mit ME/CFS helfen - Milena stellt das Pacingteam Freiburg vor
YouTube video by Initiative ME-CFS Freiburg
youtu.be
January 14, 2026 at 8:20 AM
keithmuise.bsky.social
Sign up if you want to join the zoom for some great networking and conversation about clean air and viral safety. #ConnectTheDots #Covid #MaskUp #LongCovid #LongCovidKids
publichealthaction.bsky.social Public Health Action Network @publichealthaction.bsky.social · 2d
Would you like to help shape PHAN's work for 2026? If so, please join us on Zoom on Tuesday, January 27, 2026 at 10 am PT / 1 pm ET / 6 pm GMT. We'll review our work in our first year, present our plans for 2026, and invite feedback and suggestions. Register today: https://bit.ly/phan_2026_plans
PHAN 2026 Plans Tuesday, 1/27/2026 10 AM PM / 1 PM ET / 6 PM GMT https://bit.ly/phan_2026_plans PHAN logo
January 13, 2026 at 10:49 PM
arizona10238417.bsky.social
#PEDNET #MoveCovid
Das ist keine Lösung des Problems, das med. Personal mit dieser Gesinnung ist weiterhin stolz vor Eltern sitzend und erklärt ihnen ihre Pippi Langstrumpf Welt entgegen der Forschung+Realität

#MECFS #LongCovidKids

Zur KH des Kindes obendrauf

Unmenschlich!
#GrößterMedizinskandal
Eine Entschuldigung für die Irritationen des Reel
January 13, 2026 at 3:09 PM
arizona10238417.bsky.social
Gibt es Anwälte für #MECFS #LongCovidKids die noch Kapazitäten frei haben?

#DasKannManNieWiederGutMachen

(Nicht für uns, wir hatten Glück)
January 13, 2026 at 12:15 PM
arizona10238417.bsky.social
Es gibt übrigens keine Überwachung des Wissens, weder bei #PEDNET noch bei #MoveCovid

#Longcovidkids
#MECFS

Eltern sollen anstatt um das Leben des Kindes zu kämpfen, die Ausbildung des medizinischen Personals übernehmen?
www.instagram.com/stories/pedn...
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January 13, 2026 at 8:17 AM
apresj20.bsky.social
5️⃣ Mobilisation
citoyenne

✍️ La pétition pour un plan d'action national sur le Covid Long pédiatrique est toujours ouverte

🔗 www.change.org/p/covid-long...
#CovidLongPediatrique
#LongCovidKids
January 12, 2026 at 9:21 AM
sophief.bsky.social
Interessant (und traurig zu gleich) 51 Prozent der Betroffenen in dieser Studie waren Jungs.

#LongCovidKids
January 12, 2026 at 7:38 AM
tomkindlon.bsky.social
Comment today from Dr Nigel Speight

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #LongCovid #LongCovidKids #LCKids
Nigel Speight Nigel SpeightNigel Speight • 1st1st Paediatrician at 'Self-Employed'Paediatrician at 'Self-Employed' 4h • 4 hours ago • Visible to anyone on or off LinkedIn Re the discussion on Child Abuse and our current failings as a society, could I add an observation from a different angle? Over recent years I have been involved in protecting over 200 innocent families from the child abuse machinery Most of the families had children with ME or long Covid Their paediatricians had failed to protect them by making a firm enough diagnosis and they had then been accused of FII Apart from the distress to the families this has involved an enormous waste of resources especially on the part of social services I have often felt like exclaiming at a case conference, “ don’t you have any real abuse in this area?” It seems that some social service departments are allowing these cases to work as a diversion from the challenge of confronting real abuse These cases seem to be increasingly common ever since our college endorsed (unwisely in my opinion) the wider definition of FII which includes MUS and PP
January 11, 2026 at 1:08 PM
jennannemiller.bsky.social
We are all walking petri dishes and transmission and mutation vectors
#ProtectYourselfBecauseNoOneElseWill #CovidRoulette

#FightForDavosSafeEverywhere

#CovidDamages #PostIllnessDisabled #IACC #PAISs

#CovidIsNotOver #COVIDisAirborne

#LongCovidKids
#ProtectTheChildren

#PlayTheLongGame #MaskUp_N95
January 10, 2026 at 10:17 PM
arizona10238417.bsky.social
Es geht übrigens, sollte sich ein Arzt zu uns verirren, nicht um "wird etwas gefunden oder kann man etwas verbessern", sondern vorrangig um, schädigt der Arztbesuch mangels Kenntnis über #MECFS #SevereME #VerySevereME?

Das ist moderne Medizin
#PingPong
#LongCovidKids
January 10, 2026 at 3:12 PM
njbbari3.bsky.social
Part 2

#COVIDisStillKilling
#LongCOVID
#LongCOVIDKids
#COVIDisNotOver
January 9, 2026 at 1:24 PM
jeweljam.bsky.social
👀 #Influenza #RespiratoryIllness #CovidIsNotOver #COVIDisAirborne #N95sSaveLives #CleanAirNow #LongCovid #LongCovidKids #WeNotMe #TogetherWeCan #ShareTheCare
durhamhealthnc.bsky.social Durham County Department of Public Health (DCoDPH) @durhamhealthnc.bsky.social · 6d
We don’t know who needs to hear this, but the flu is getting out of hand. And we needed to make a post about it. Here are our pretty direct thoughts, because sometimes our social media manager/infographic designer is tired & can’t think of a way to put it more gently. Please make good choices. (1/2)
Here’s the thing: Ridiculous numbers of people are getting the flu right now. Cases, hospitalizations, and deaths are reaching or have already reached record-breaking numbers. People of all ages are getting sick, being hospitalized, and dying, even if they had no other health conditions. And lots of people who are “ok” and don’t require hospitalization are feeling terrible and probably wish they were not sick. You should really be trying not to get the flu (and COVID-19 and RSV and more). This means, yes, you should really get vaccinated….Vaccines teach your body how to recognize and respond to the particular viruses they were created for. No amount of washing your hands, eating healthy, sleeping, or exercising can do this for you. Sorry. These are all important for your immune system and other reasons, but they cannot replace the work of vaccines. People of all ages, with or without other health issues, should get vaccinated. Vaccines help prevent infection and severe illness in people of all ages (yes, even kids. Healthy children can and do die from the flu. And most children who die are unvaccinated*). *Sources if you don’t believe us: bit.ly/428YhOU, tinyurl.com/4tmv8km8, bit.ly/mm7241a2. ... and you should wear masks. If you don’t want to get or spread the flu (or COVID-19 or other things) you should really wear masks. Seriously, people. Yes, we know, some of you love them and some of you hate them. But we’re a health agency so we’re here to share the things that work to protect your health. Masks keep you from breathing in, or breathing out into the air, virus particles that make you and others sick, even if you don’t know you or the people around you are sick (and honestly you often won’t know). You should wash your hands frequently, eat healthy foods, and get plenty of sleep, but no amount of any of this is going to keep you from breathing in virus particles in the air. Definitely wash your hands. Please. Viruses can spread in multiple ways, and handwashing helps prevent some of those ways. But you can’t wash away a virus you’ve breathed in. There’s a reason masks often become required again at doctors’ offices and hospitals whenever virus spread gets bad (like now). It’s because they work. Also, it’s very unkind to choose to be unmasked around others if you know you’re sick (and if there’s no reason you can’t wear a mask). For you, maybe it’s “just” the flu or a mild case of another illness, and you don’t care if you’re sick. But for the person you pass it to, it could be: Too much for their body to handle in addition to their chronic illness | The illness they pass to a loved one who has cancer | The reason they are sick on the day of an important life event | A hospital stay for a child | The infection that leads to a disability | Their cause of death. If you are sick, please be kind and stay away from others as much as possible, and wear a mask if you have to spend time away from home. PS: A lot of cases of illness spread by people who don’t have symptoms, so if you want to be even more considerate, it’s a good idea to mask around other people even if you don’t think you’re sick.
January 8, 2026 at 6:38 PM
castltrastondrs.bsky.social
#Medsky🧪#IDsky #pedsky #Casereport #Longcovidkids associated #JDM #publichealth
Juvenile dermatomyositis (JDM) is a rare autoimmune disorder characterized by distinctive skin rashes & muscle weakness. Its pathogenesis involves vascular endothelial damage, thrombosis & vascular remodeling .
January 8, 2026 at 7:52 AM
covidsolutions.bsky.social
...of #LongCovid, let alone the utter immorality of #LongCovidKids, warrants a thorough examination of why a perfectly viable prevention approach is still being rejected. Yes, #VirusFreeAir is entirely doable, and holds the promise of elimination of *all* respiratory diseases.

What do you say?
🙏🤘
January 8, 2026 at 12:14 AM
elhopkins.bsky.social
#AnyonesChild #LongCovidKids

This could happen to any child!
elhopkins.bsky.social Esther @elhopkins.bsky.social · Feb 7
Over 6 million children in the US are suffering from long covid. In the UK tens of thousands of children have #Longcovid. Any child, regardless of health status can get long Covid.
January 7, 2026 at 1:41 PM
elhopkins.bsky.social
#AnyonesChild #LongCovidKids
January 7, 2026 at 1:40 PM
tomkindlon.bsky.social
News Release 5-Jan-2026

"Food insecurity and adverse social conditions tied to increased risk of long COVID in children: Results identified social risk factors associated with greater odds of prolonged SARS-CoV-2 symptoms"

www.eurekalert.org/news-release...

#LongCovid #LongCovidKids #LCKids
News Release 5-Jan-2026 Food insecurity and adverse social conditions tied to increased risk of long COVID in children Results identified social risk factors associated with greater odds of prolonged SARS-CoV-2 symptoms Peer-Reviewed Publication Brigham and Women's Hospital FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail Mass General Brigham researchers looked at data on 4,584 participants across 52 U.S. sites from the federally funded RECOVER-Pediatrics study Results identified social risk factors associated with greater odds of prolonged SARS-CoV-2 symptoms New research led by Mass General Brigham investigators suggests that long COVID is more prevalent in school-aged children and adolescents who experience economic instability and adverse social conditions. The multi-center, observational study found that the risk of long COVID was significantly higher in households that faced food insecurity and challenges such as low social support and high levels of discrimination. Results are published in JAMA Pediatrics. “Long COVID in children is especially concerning because of the potential for long-term health effects that could persist into adulthood,” said co-first author Tanayott Thaweethai, PhD, of Massachusetts General Hospital Biostatistics. "Public health interventions that target social risk factors—such as food insecurity and lack of social support—are critical to reduce the burden of long COVID and safeguard the overall health of children as they continue to acquire COVID-19."
January 6, 2026 at 3:21 PM
jeweljam.bsky.social
💔 #DidntHaveToBeThisWay #CovidIsNotOver #COVIDisAirborne #N95sSaveLives #CleanAirNow #LongCovid #LongCovidKids #WeNotMe #TogetherWeCan #ShareTheCare
January 6, 2026 at 3:16 PM
elhopkins.bsky.social
6 years, still no clean air in schools. There has been a huge increase in sickness absence since 2019 due to COVID. Policy isn’t keeping pace with the science. Ignoring #Longcovidkids is part of the problem.
www.heraldscotland.com/news/2573814...
School attendance crisis as 70,000 Scottish pupils miss half of school
More than 70,000 Scottish pupils missed at least half of school over six years, with over 6,000 not attending at all, according to new FOI figures.
www.heraldscotland.com
January 6, 2026 at 2:55 PM
bodokrauss.bsky.social
Ja, aber auf der anderen Seite sitzen keine medical professionals sondern random bestenfalls Tagesschau-Informierte.
Seit Herr #Ehrenwieler fort ist? Gibt es das Thema in der Öffentlichkeit nicht mehr.
Und ich bleibe bei seiner Aussage und erweitere um #LongCovidKids:
January 5, 2026 at 8:53 PM
arizona10238417.bsky.social
In Baden-Württemberg überlässt man den Kampf um eine Versorgung schwerkranken Menschen

Eltern, die eigentlich sich um die Erkrankung der Kindern kümmern sollten, müssen erst den Aufbau der Versorgung sich erkämpfen

Nein, es muss der Arzt zum transportunfähig Ki/Ju

#MECFS #LongCovidKids
lisathefirst20.bsky.social Lisa @lisathefirst20.bsky.social · 11d
2023 habe ich mich beim ärztlichen Direktor einer Klinik über deren Neurologie im Umgang mit ME/CFS beschwert- dieses Jahr geh ich wenn mein Zustand so bleibt genau in diese Neurologie für einen stationären Aufenthalt🫠.

unter Leitung einer der Ärztinnen von damals.
wird gar nicht awkward oder so.
January 3, 2026 at 9:25 AM
arizona10238417.bsky.social
In Hamburg startet die aufsuchende Versorgung für Kinder und Jugendliche innerhalb kürzester Zeit, nachdem Eltern laut geworden sind

In BW wird dies nur wenigen zugute kommen und nur sporadisch

#MECFS #LongCovidKids #LTWahl @oezdemir.de @regierungbw.bsky.social
Bild des Instagram Post von ME/CFS Kinder Hilfe bei der Pflege gesucht in Bayern In Hamburg startet die aufsuchende Versorgung für Ki/Erw ab Februar 26
January 2, 2026 at 7:01 PM
covidsolutions.bsky.social
Here's a good story for teachers to tell: #CovidIsAirborne, #LongCovidIsCumulative, and #LongCovidKids is immoral.
🤷🏻‍♀️🙏

#VirusFreeAirNow
January 1, 2026 at 5:51 PM
longcovidkids.bsky.social
young people living with Long Covid and overlapping illnesses.

#HappyNewYear2026
#HappyNewYear #LongCovid #LongCovidKids
#OverlappingIllnesses
January 1, 2026 at 8:42 AM