Enjoyer of cozy fluffy things, tea, books, and the way the light filters through the forest.
Passionate about animal welfare + nutrition, the paranormal, & weather.
"'You'd get better if you just....' is bullying and we don't deserve it."
substack.com/@mecfs/note/...
#MEcfs #chronicillness #hiddenillness #invisibleillness #ChronicIllnesses #LongCovid #ChronicPain
"'You'd get better if you just....' is bullying and we don't deserve it."
substack.com/@mecfs/note/...
#MEcfs #chronicillness #hiddenillness #invisibleillness #ChronicIllnesses #LongCovid #ChronicPain
It's something everyone can do safely. No spending on ANYTHING but absolute necessities.
I understand some shut ins can not do this but very many of us can.
It's something everyone can do safely. No spending on ANYTHING but absolute necessities.
I understand some shut ins can not do this but very many of us can.
"We must actively take on the world as it is, not wait around for a world we wish to be."
"What does it mean for middle powers to live the truth? First it means naming reality..." (🧵1/6)
"We must actively take on the world as it is, not wait around for a world we wish to be."
"What does it mean for middle powers to live the truth? First it means naming reality..." (🧵1/6)
A massive study of 40,537 people in @ScienceDirect just redefined C0VID as "a condition of long-lasting immune compromise."
20 months post-infection, T-cells & NK cells (our primary viral & cancer defense) had NOT recovered. So much for "It's mild."
X link: x.com/lisawhelan/s...
A massive study of 40,537 people in @ScienceDirect just redefined C0VID as "a condition of long-lasting immune compromise."
20 months post-infection, T-cells & NK cells (our primary viral & cancer defense) had NOT recovered. So much for "It's mild."
X link: x.com/lisawhelan/s...
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
"A couple of very important studies out just in the last 24 hours confirming what we've been saying for years and years now: Covid infections affect your immune system *badly*.
Here's a few..."
Full 86-tweet 🧵 (86!!!)
threadreaderapp.com/thread/20126...
"A couple of very important studies out just in the last 24 hours confirming what we've been saying for years and years now: Covid infections affect your immune system *badly*.
Here's a few..."
Full 86-tweet 🧵 (86!!!)
threadreaderapp.com/thread/20126...
fair.org/home/media-b...
"The distance from the entrance to the gate at larger airports is about a mile, an impossible distance for many with #MECFS"
#LongCovid & the Covid pandemic is mentioned as is #POTS
1/
fair.org/home/media-b...
"The distance from the entrance to the gate at larger airports is about a mile, an impossible distance for many with #MECFS"
#LongCovid & the Covid pandemic is mentioned as is #POTS
1/
'A faulty ion channel function is a consistent biological feature of Myalgic Encephalomyelitis (ME/CFS), providing long-awaited validation...'
medicalxpress.com/news/2026-01...
'A faulty ion channel function is a consistent biological feature of Myalgic Encephalomyelitis (ME/CFS), providing long-awaited validation...'
medicalxpress.com/news/2026-01...
Ousting Trump may take protests similar to those taking place in countries like Romania, Georgia and Iran.
Ousting Trump may take protests similar to those taking place in countries like Romania, Georgia and Iran.
and we should say so
I genuinely believed we would move forward as a more inclusive society.
That disabled people would start receiving the accommodations they had needed for years (like remote work).
That hope was crushed when we rushed back to normal
I genuinely believed we would move forward as a more inclusive society.
That disabled people would start receiving the accommodations they had needed for years (like remote work).
That hope was crushed when we rushed back to normal
www.thailandmedical.news/news/researc...
www.thailandmedical.news/news/researc...
“ME/CFS Science Blog has published a review of the most interesting ME/CFS studies in 2025, including DecodeME, the daratumumab trial, autopsy findings from the Netherlands, & most extensive study on antibodies in ME/CFS to date”
#MEcfs #CFS #PwME
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.