Alison Twycross RN PhD
@alitwy.bsky.social
Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Pinned
https://petition.parliament.uk/petitions/7320…
We need UKHSA to start doing their job
If they provide data on hospital acquired #covid infections then the need for effective airborne infection prevention measures will be clear for ALL to see
Please SIGN & help to AMPLIFY
🔽 🔽
petition.parliament.uk/petitions/7320…
If they provide data on hospital acquired #covid infections then the need for effective airborne infection prevention measures will be clear for ALL to see
Please SIGN & help to AMPLIFY
🔽 🔽
petition.parliament.uk/petitions/7320…
Reposted by Alison Twycross RN PhD
🧠 COVID-19 with gut symptoms may affect your brain 🧠
Memory, focus and thinking could be impacted.
Gut-brain connection in action.
Read More: shh-uk.org/?p=35226
#LongCovid #Cognition #GutHealth #longcovidawareness #longcovid #longcovidjourney
Memory, focus and thinking could be impacted.
Gut-brain connection in action.
Read More: shh-uk.org/?p=35226
#LongCovid #Cognition #GutHealth #longcovidawareness #longcovid #longcovidjourney
November 24, 2025 at 9:00 AM
🧠 COVID-19 with gut symptoms may affect your brain 🧠
Memory, focus and thinking could be impacted.
Gut-brain connection in action.
Read More: shh-uk.org/?p=35226
#LongCovid #Cognition #GutHealth #longcovidawareness #longcovid #longcovidjourney
Memory, focus and thinking could be impacted.
Gut-brain connection in action.
Read More: shh-uk.org/?p=35226
#LongCovid #Cognition #GutHealth #longcovidawareness #longcovid #longcovidjourney
Reposted by Alison Twycross RN PhD
This study found that 'among individuals with a known history of #SARSCoV2 infection, 5% had a profile characterized by a persistently high #LongCOVID related symptom burden, an additional 12% had intermittently high burden of symptoms that did not improve over time.'
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Long COVID trajectories in the prospectively followed RECOVER-Adult US cohort - Nature Communications
Long COVID has heterogeneous presentation and clinical trajectories are not well defined. Here, the authors define trajectories using data from a prospective cohort study in the United States involvin...
www.nature.com
November 20, 2025 at 11:46 AM
This study found that 'among individuals with a known history of #SARSCoV2 infection, 5% had a profile characterized by a persistently high #LongCOVID related symptom burden, an additional 12% had intermittently high burden of symptoms that did not improve over time.'
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Reposted by Alison Twycross RN PhD
Great to see our Chair @alitwy.bsky.social quoted in this @bmj.com article.
#LongCovid: Government failure to recognise disease as occupational is “unconscionable,” say unions
BMJ 2025; 391 doi: doi.org/10.1136/bmj.... (Published 14 November 2025)
BMJ 2025; 391 doi: doi.org/10.1136/bmj.... (Published 14 November 2025)
Long covid: Government failure to recognise disease as occupational is “unconscionable,” say unions
Long covid and severe post-covid complications must be recognised as a prescribed industrial disease for health and social care workers, health unions have said.
The BMA and the Royal College of Nurs...
doi.org
November 18, 2025 at 10:20 AM
Great to see our Chair @alitwy.bsky.social quoted in this @bmj.com article.
Reposted by Alison Twycross RN PhD
Long COVID and the Increased Risk of Food Insecurity Among Participants in Arizona CoVHORT: A matched cohort study. https://www.medrxiv.org/content/10.1101/2025.11.14.25340219v1
November 18, 2025 at 6:43 AM
Long COVID and the Increased Risk of Food Insecurity Among Participants in Arizona CoVHORT: A matched cohort study. https://www.medrxiv.org/content/10.1101/2025.11.14.25340219v1
Reposted by Alison Twycross RN PhD
Really sorry to hear this. Nurses and other healthcare workers with Long Covid keep an eye on our social media accounts for info about our online support groups - starting in January.
November 20, 2025 at 10:23 AM
Really sorry to hear this. Nurses and other healthcare workers with Long Covid keep an eye on our social media accounts for info about our online support groups - starting in January.
Reposted by Alison Twycross RN PhD
QICN to close long Covid nursing network
#QICN #nursing #NHS #covid #longcovid #healthcare #UKnurses
#QICN #nursing #NHS #covid #longcovid #healthcare #UKnurses
QICN to close long Covid nursing network
The Queen’s Institute of Community Nursing (QICN) has made the ‘difficult decision’ to close its long Covid network
buff.ly
November 20, 2025 at 8:59 AM
QICN to close long Covid nursing network
#QICN #nursing #NHS #covid #longcovid #healthcare #UKnurses
#QICN #nursing #NHS #covid #longcovid #healthcare #UKnurses
Reposted by Alison Twycross RN PhD
As I said to a friend some time back, "Covid broke me". Not in terms of my getting Long Covid or such but, rather, because of the destruction of my trust in people in high places as well as the shock of discovering that some people I considered intelligent and were my friends were utter Covidiots.
Eat out to Help Out was killing people, but they “kept it out of the news”.
November 20, 2025 at 8:58 AM
As I said to a friend some time back, "Covid broke me". Not in terms of my getting Long Covid or such but, rather, because of the destruction of my trust in people in high places as well as the shock of discovering that some people I considered intelligent and were my friends were utter Covidiots.
Reposted by Alison Twycross RN PhD
Eat out to Help Out was killing people, but they “kept it out of the news”.
November 20, 2025 at 6:53 AM
Eat out to Help Out was killing people, but they “kept it out of the news”.
Reposted by Alison Twycross RN PhD
#pwME Glad I attended the debate in person yesterday. None of the speakers captured the reality of DHSC/NHS 'care' for anyone with #ME in England @tessamunt.bsky.social.
Getting the FDP into shape is the latest version of DIY for ME & #LongCovid ie deliberate hot air from the Minister.
Justice4ME.uk
Getting the FDP into shape is the latest version of DIY for ME & #LongCovid ie deliberate hot air from the Minister.
Justice4ME.uk
Justice4ME.uk
November 20, 2025 at 8:21 AM
#pwME Glad I attended the debate in person yesterday. None of the speakers captured the reality of DHSC/NHS 'care' for anyone with #ME in England @tessamunt.bsky.social.
Getting the FDP into shape is the latest version of DIY for ME & #LongCovid ie deliberate hot air from the Minister.
Justice4ME.uk
Getting the FDP into shape is the latest version of DIY for ME & #LongCovid ie deliberate hot air from the Minister.
Justice4ME.uk
Reposted by Alison Twycross RN PhD
As a pwLC, how do you feel about these 8 trajectories?
Long COVID can follow one of eight different symptom paths, as patients suffer for months past their initial infection, a new study reports.
www.upi.com/Health_News/...
www.upi.com/Health_News/...
Experts identify eight distinct symptom paths for long COVID - UPI.com
Long COVID can follow one of eight different symptom paths, as patients suffer for months past their initial infection, a new study reports.
www.upi.com
November 20, 2025 at 7:20 AM
As a pwLC, how do you feel about these 8 trajectories?
Reposted by Alison Twycross RN PhD
~Started low but increased after 15 months, driven partly by an increase in post-exertional malaise.
Infected: January 2020
One of the most stressful years of my life: 2021
Moderate Long COVID onset: Early 2022
Never recovered, slow but sure progression to moderate/severe.
Assume I'm terminal.
Infected: January 2020
One of the most stressful years of my life: 2021
Moderate Long COVID onset: Early 2022
Never recovered, slow but sure progression to moderate/severe.
Assume I'm terminal.
November 20, 2025 at 8:07 AM
~Started low but increased after 15 months, driven partly by an increase in post-exertional malaise.
Infected: January 2020
One of the most stressful years of my life: 2021
Moderate Long COVID onset: Early 2022
Never recovered, slow but sure progression to moderate/severe.
Assume I'm terminal.
Infected: January 2020
One of the most stressful years of my life: 2021
Moderate Long COVID onset: Early 2022
Never recovered, slow but sure progression to moderate/severe.
Assume I'm terminal.
Reposted by Alison Twycross RN PhD
Any other #LongCovid sufferers excited to see just how ignored we’ll be by the #CovidEnquiry outcomes today.
November 20, 2025 at 7:38 AM
Any other #LongCovid sufferers excited to see just how ignored we’ll be by the #CovidEnquiry outcomes today.
Reposted by Alison Twycross RN PhD
The Patient-Led Research Collaborative just released a Long COVID Fact Sheet. Please feel free to take a look and share as needed. 🖤🤘
patientresearchcovid19.com/2025-long-co...
patientresearchcovid19.com/2025-long-co...
2025 Long COVID Fact Sheet – Patient Led Research Collaborative
patientresearchcovid19.com
March 18, 2025 at 6:01 PM
The Patient-Led Research Collaborative just released a Long COVID Fact Sheet. Please feel free to take a look and share as needed. 🖤🤘
patientresearchcovid19.com/2025-long-co...
patientresearchcovid19.com/2025-long-co...
Reposted by Alison Twycross RN PhD
Reposted by Alison Twycross RN PhD
Long COVID can follow one of eight different symptom paths, as patients suffer for months past their initial infection, a new study reports.
www.upi.com/Health_News/...
www.upi.com/Health_News/...
Experts identify eight distinct symptom paths for long COVID - UPI.com
Long COVID can follow one of eight different symptom paths, as patients suffer for months past their initial infection, a new study reports.
www.upi.com
November 20, 2025 at 4:06 AM
Long COVID can follow one of eight different symptom paths, as patients suffer for months past their initial infection, a new study reports.
www.upi.com/Health_News/...
www.upi.com/Health_News/...
Reposted by Alison Twycross RN PhD
Big new long-COVID study:
💉 3 doses before infection → provides a sustained protective effect against long COVID + better quality of life for 2 years.
💉 After infection → no impact
Bottom line? Boosters matter.
#BlueSky #MedSky #SciSky #IDSky #NurseSky #EMSky #PedsSky #ObSky
💉 3 doses before infection → provides a sustained protective effect against long COVID + better quality of life for 2 years.
💉 After infection → no impact
Bottom line? Boosters matter.
#BlueSky #MedSky #SciSky #IDSky #NurseSky #EMSky #PedsSky #ObSky
Optimizing the schedule of BNT162b2 COVID-19 against long COVID and associated quality of life losses - PubMed
Receiving at least three COVID-19 vaccine doses prior to SARS-CoV-2 infection provides a sustained protective effect against long COVID and its negative impact on quality of life for at least two years. The longer-term durability of this protection, the role of reinfection, and the influence of emer …
pubmed.ncbi.nlm.nih.gov
November 20, 2025 at 3:01 AM
Reposted by Alison Twycross RN PhD
Only about 9,000 more signatures needed so government responds petition.parliament.uk/petitions/73... [via @alitwy.bsky.social ]
Petition: Direct the UKHSA to monitor COVID infections that occur in particular settings
Ensure that the UK Health Security Agency (UKHSA) monitors, and reports on, the numbers of COVID infections that occur in healthcare settings through its routine surveillance programmes, and advises o...
petition.parliament.uk
November 18, 2025 at 11:30 AM
Only about 9,000 more signatures needed so government responds petition.parliament.uk/petitions/73... [via @alitwy.bsky.social ]
Reposted by Alison Twycross RN PhD
TIL there's a brain fog scale but its behind a paywall :(
November 18, 2025 at 2:25 AM
TIL there's a brain fog scale but its behind a paywall :(
Reposted by Alison Twycross RN PhD
at the beginning of long covid i got so frustrated with the lock of a way to describe the severity of brain fog that i tried to invent my own scale, which, due to brain fog, did not go well
TIL there's a brain fog scale but its behind a paywall :(
November 18, 2025 at 2:27 AM
at the beginning of long covid i got so frustrated with the lock of a way to describe the severity of brain fog that i tried to invent my own scale, which, due to brain fog, did not go well
Reposted by Alison Twycross RN PhD
My psychiatrist relates to me that she doesn't find antidepressants to be very effective in newer patients who come to her with a depression Dx from their GP, but with what she determines to be long COVID, based on the H&P she conducts. She's heard the Sx constellation enough to spot LC by now.
🧠 Daily Feed of Brain Damage 🧠
Part 3...
Depression is real and biological in Long Cövid
www.sciencedirect.com/science/arti...
Part 3...
Depression is real and biological in Long Cövid
www.sciencedirect.com/science/arti...
SARS-CoV-2 spike protein induces depressive-like behaviors by disrupting astrocytic Cx43-mediated gap junction intercellular communication
Long COVID has emerged as a global health concern, with depression being one of its most debilitating and poorly understood manifestations. Despite ev…
www.sciencedirect.com
November 18, 2025 at 2:52 AM
My psychiatrist relates to me that she doesn't find antidepressants to be very effective in newer patients who come to her with a depression Dx from their GP, but with what she determines to be long COVID, based on the H&P she conducts. She's heard the Sx constellation enough to spot LC by now.
Reposted by Alison Twycross RN PhD
#Medsky🧪#IDsky #neurosky #immunosky #Publichealth This study shows that certain blood parameters can help differentiate #Longcovid from #MyalgicEncephalomyelitis/ChronicFatigueSyndrome (ME/CFS) & #Fibromyalgia (FM).
@brainbehavimm.bsky.social
www.sciencedirect.com/science/arti...
@brainbehavimm.bsky.social
www.sciencedirect.com/science/arti...
November 18, 2025 at 5:56 AM
#Medsky🧪#IDsky #neurosky #immunosky #Publichealth This study shows that certain blood parameters can help differentiate #Longcovid from #MyalgicEncephalomyelitis/ChronicFatigueSyndrome (ME/CFS) & #Fibromyalgia (FM).
@brainbehavimm.bsky.social
www.sciencedirect.com/science/arti...
@brainbehavimm.bsky.social
www.sciencedirect.com/science/arti...
Reposted by Alison Twycross RN PhD
1) 🇺🇸 The RECOVER study published its data on Long COVID trajectories.
Of those infected with SARS-CoV-2 infection, 5% had persistently high Long COVID-related symptom burden. An additional 12% had a high burden that fluctuated but did not improve over time.
Of those infected with SARS-CoV-2 infection, 5% had persistently high Long COVID-related symptom burden. An additional 12% had a high burden that fluctuated but did not improve over time.
November 18, 2025 at 8:43 AM
1) 🇺🇸 The RECOVER study published its data on Long COVID trajectories.
Of those infected with SARS-CoV-2 infection, 5% had persistently high Long COVID-related symptom burden. An additional 12% had a high burden that fluctuated but did not improve over time.
Of those infected with SARS-CoV-2 infection, 5% had persistently high Long COVID-related symptom burden. An additional 12% had a high burden that fluctuated but did not improve over time.
Reposted by Alison Twycross RN PhD
We'd like the unions to recognise that covid is not an historic event. Their members continue to be harmed and disabled by infection and they continue not to be protected.
November 18, 2025 at 9:24 AM
We'd like the unions to recognise that covid is not an historic event. Their members continue to be harmed and disabled by infection and they continue not to be protected.
Reposted by Alison Twycross RN PhD
#LongCovid: Government failure to recognise disease as occupational is “unconscionable,” say unions
BMJ 2025; 391 doi: doi.org/10.1136/bmj.... (Published 14 November 2025)
BMJ 2025; 391 doi: doi.org/10.1136/bmj.... (Published 14 November 2025)
Long covid: Government failure to recognise disease as occupational is “unconscionable,” say unions
Long covid and severe post-covid complications must be recognised as a prescribed industrial disease for health and social care workers, health unions have said.
The BMA and the Royal College of Nurs...
doi.org
November 18, 2025 at 8:54 AM
#LongCovid: Government failure to recognise disease as occupational is “unconscionable,” say unions
BMJ 2025; 391 doi: doi.org/10.1136/bmj.... (Published 14 November 2025)
BMJ 2025; 391 doi: doi.org/10.1136/bmj.... (Published 14 November 2025)
Reposted by Alison Twycross RN PhD
November 18, 2025 at 9:46 AM