Kerry L. Wong 🦋 Float Like a Buttahfly
@buttahflyk.bsky.social
Writer | Educator | Patient Advocate
floatlikeabuttahfly.blogspot.com 🦋 buttahflyk.substack.com
🦋 Kaleidoscope Rare Disease Stories a.co/d/ia0zSim
🦋 Columnist | Sarcoidosis News
🥄🕊️ #🟦 #BLM #defy🧹#resist #SarcStrong #ZebraStrong🦓 #AlwaysCoordinated😘 she/her
floatlikeabuttahfly.blogspot.com 🦋 buttahflyk.substack.com
🦋 Kaleidoscope Rare Disease Stories a.co/d/ia0zSim
🦋 Columnist | Sarcoidosis News
🥄🕊️ #🟦 #BLM #defy🧹#resist #SarcStrong #ZebraStrong🦓 #AlwaysCoordinated😘 she/her
Beyond despicable ... and completely on brand.
😱
😱
Epstein survivors raise their hands to signal they've been ignored by Trump's DOJ as AG Pam Bondi refuses to look at them
(Roberto Schmidt/AFP via Getty)
(Roberto Schmidt/AFP via Getty)
February 12, 2026 at 2:49 AM
Beyond despicable ... and completely on brand.
😱
😱
In anticipation of #RareDiseaseDay, you can now get Kaleidoscope: #RareDisease Stories at a new, lower price.
🦓 Proceeds donated to National Organization for Rare Disorders (NORD) 🦓
Order your copy at a.co/d/06pXcqzk
~🦋
#PatientExperience #PatientVoice #sarcoidosis #SpoonieSky #ZebraStrong
🦓 Proceeds donated to National Organization for Rare Disorders (NORD) 🦓
Order your copy at a.co/d/06pXcqzk
~🦋
#PatientExperience #PatientVoice #sarcoidosis #SpoonieSky #ZebraStrong
February 11, 2026 at 6:49 PM
In anticipation of #RareDiseaseDay, you can now get Kaleidoscope: #RareDisease Stories at a new, lower price.
🦓 Proceeds donated to National Organization for Rare Disorders (NORD) 🦓
Order your copy at a.co/d/06pXcqzk
~🦋
#PatientExperience #PatientVoice #sarcoidosis #SpoonieSky #ZebraStrong
🦓 Proceeds donated to National Organization for Rare Disorders (NORD) 🦓
Order your copy at a.co/d/06pXcqzk
~🦋
#PatientExperience #PatientVoice #sarcoidosis #SpoonieSky #ZebraStrong
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
"Dear Docs, Think twice before ignoring the next #ChronicIllness patient clinging to life & sanity. Almost all my patients have #MedicalPTSD. Before sneering at the next one, remember--It could just as easily be you, or someone you love. Rule 1 Listen to them."
StevePhillipsMD
#MedicalGaslighting
StevePhillipsMD
#MedicalGaslighting
February 10, 2026 at 3:44 PM
"Dear Docs, Think twice before ignoring the next #ChronicIllness patient clinging to life & sanity. Almost all my patients have #MedicalPTSD. Before sneering at the next one, remember--It could just as easily be you, or someone you love. Rule 1 Listen to them."
StevePhillipsMD
#MedicalGaslighting
StevePhillipsMD
#MedicalGaslighting
An incredible thread with all the details you may have missed ...
Bad Bunny did so much more than a musical performance – it was a history lesson, a cultural celebration ... and an amazing experience!
~🦋
Bad Bunny did so much more than a musical performance – it was a history lesson, a cultural celebration ... and an amazing experience!
~🦋
First shot: sugarcane
The backbone of Puerto Rico's agricultural economy since colonial times
Still used to make rum of course!
The backbone of Puerto Rico's agricultural economy since colonial times
Still used to make rum of course!
February 9, 2026 at 5:43 AM
An incredible thread with all the details you may have missed ...
Bad Bunny did so much more than a musical performance – it was a history lesson, a cultural celebration ... and an amazing experience!
~🦋
Bad Bunny did so much more than a musical performance – it was a history lesson, a cultural celebration ... and an amazing experience!
~🦋
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
#AI isn't just the wave of the future; it's here now (whether we like it or not). But when it comes to its use in #healthcare, we've got to approach with caution. Read all about it in my latest #Sarcoidosis News column.
sarcoidosisnews.com/columns/pati...
~🦋
#ChronicIllness #RareDisease #SpoonieSky
sarcoidosisnews.com/columns/pati...
~🦋
#ChronicIllness #RareDisease #SpoonieSky
February 6, 2026 at 3:05 PM
#AI isn't just the wave of the future; it's here now (whether we like it or not). But when it comes to its use in #healthcare, we've got to approach with caution. Read all about it in my latest #Sarcoidosis News column.
sarcoidosisnews.com/columns/pati...
~🦋
#ChronicIllness #RareDisease #SpoonieSky
sarcoidosisnews.com/columns/pati...
~🦋
#ChronicIllness #RareDisease #SpoonieSky
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
I'll be honest, I don't expect fair elections for the midterms. But I'm going to push for voting anyway because we can't just hand this country over to them. We've got to fight to the bitter end to restore Democracy in this country.
February 1, 2026 at 3:14 PM
I'll be honest, I don't expect fair elections for the midterms. But I'm going to push for voting anyway because we can't just hand this country over to them. We've got to fight to the bitter end to restore Democracy in this country.
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
One of the best things I’ve read in a while:
January 25, 2026 at 10:39 PM
One of the best things I’ve read in a while:
A #RareDisease like #sarcoidosis can leave us with more questions than answers. #Menopause seems to do the same. And when the two combine ... yeesh!
Read all about it in this week's #SarcoidosisNews column:
sarcoidosisnews.com/columns/meno...
~🦋
#ChronicIllness #SpoonieSky #GYN #WomensHealth
Read all about it in this week's #SarcoidosisNews column:
sarcoidosisnews.com/columns/meno...
~🦋
#ChronicIllness #SpoonieSky #GYN #WomensHealth
January 23, 2026 at 3:00 PM
A #RareDisease like #sarcoidosis can leave us with more questions than answers. #Menopause seems to do the same. And when the two combine ... yeesh!
Read all about it in this week's #SarcoidosisNews column:
sarcoidosisnews.com/columns/meno...
~🦋
#ChronicIllness #SpoonieSky #GYN #WomensHealth
Read all about it in this week's #SarcoidosisNews column:
sarcoidosisnews.com/columns/meno...
~🦋
#ChronicIllness #SpoonieSky #GYN #WomensHealth
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
"Shoutout to everyone who has exactly two modes:
1) Doing all the things
2) Doing absolutely nothing while recovering from doing all the things."
Image Credit: @PolydotLand
Source: kixxarse1986
#MySeveralWorlds #ChronicTruths #TheChronicLife
1) Doing all the things
2) Doing absolutely nothing while recovering from doing all the things."
Image Credit: @PolydotLand
Source: kixxarse1986
#MySeveralWorlds #ChronicTruths #TheChronicLife
January 10, 2026 at 3:50 PM
"Shoutout to everyone who has exactly two modes:
1) Doing all the things
2) Doing absolutely nothing while recovering from doing all the things."
Image Credit: @PolydotLand
Source: kixxarse1986
#MySeveralWorlds #ChronicTruths #TheChronicLife
1) Doing all the things
2) Doing absolutely nothing while recovering from doing all the things."
Image Credit: @PolydotLand
Source: kixxarse1986
#MySeveralWorlds #ChronicTruths #TheChronicLife
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Buttigieg: Some say you can’t talk about any of the things that were wrong about America because that must mean you hate America. To me, anytime we talk about something that wrong, it’s because some of the finest moments that brought out the greatest character of this country is how we put it right.
January 17, 2026 at 1:58 AM
Buttigieg: Some say you can’t talk about any of the things that were wrong about America because that must mean you hate America. To me, anytime we talk about something that wrong, it’s because some of the finest moments that brought out the greatest character of this country is how we put it right.
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Senate Democrats absolutely have to shut the govt down to stop this ICE insanity in the Twin Cities. This is not sustainable & cannot be normalized. Any Democratic vote to provide money to the thugs who are brutalizing this community is a grave betrayal to the people here. Accountability can't wait.
January 15, 2026 at 3:37 AM
Senate Democrats absolutely have to shut the govt down to stop this ICE insanity in the Twin Cities. This is not sustainable & cannot be normalized. Any Democratic vote to provide money to the thugs who are brutalizing this community is a grave betrayal to the people here. Accountability can't wait.
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Murphy: The United States Congress should not fund a Department of Homeland Security that is not obeying the laws of the United States of America
January 13, 2026 at 10:38 PM
Murphy: The United States Congress should not fund a Department of Homeland Security that is not obeying the laws of the United States of America
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
WILL CAIN: Joining me now is Democrat Florida congressman Maxwell Frost
FROST: It's "Democratic" congressman
FROST: It's "Democratic" congressman
January 13, 2026 at 9:28 PM
WILL CAIN: Joining me now is Democrat Florida congressman Maxwell Frost
FROST: It's "Democratic" congressman
FROST: It's "Democratic" congressman
💯💯💯
Goldman: Until DHS reins in this rogue and authoritarian ICE secret police force, there should be no more funding provided to DHS.
January 13, 2026 at 9:44 PM
💯💯💯
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
We’ve now sent over 10,000 letters to Congress demanding they impeach Kristi Noem!
Have you sent one yet today?
Have you sent one yet today?
Tell Congress: Impeach DHS Secretary Kristi Noem
Contact Congress today!
actionnetwork.org
January 12, 2026 at 2:30 AM
We’ve now sent over 10,000 letters to Congress demanding they impeach Kristi Noem!
Have you sent one yet today?
Have you sent one yet today?
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
January 11, 2026 at 9:10 PM
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
“If you know someone with #chronicillness, I urge you to reassure them when they cancel plans—that you know it is not their fault… Guilt is our constant companion. We are trying our best, and we only want you to see and appreciate that.” https://cme.sh/self-worth #ChronicPain #Disability
January 11, 2026 at 12:23 AM
“If you know someone with #chronicillness, I urge you to reassure them when they cancel plans—that you know it is not their fault… Guilt is our constant companion. We are trying our best, and we only want you to see and appreciate that.” https://cme.sh/self-worth #ChronicPain #Disability
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
DAVE MATTHEWS: “I don’t want my taxes to pay for masked thugs to roam our streets & terrorize our communities... She was trying to get away. He shot her 3x in the head. Murdered in cold blood. They’re trying to tell us not to believe what we see. FUCK ICE.”
(H/T @marcofoster.bsky.social )
(H/T @marcofoster.bsky.social )
January 10, 2026 at 6:11 PM
DAVE MATTHEWS: “I don’t want my taxes to pay for masked thugs to roam our streets & terrorize our communities... She was trying to get away. He shot her 3x in the head. Murdered in cold blood. They’re trying to tell us not to believe what we see. FUCK ICE.”
(H/T @marcofoster.bsky.social )
(H/T @marcofoster.bsky.social )
I've been using a #MobilityScooter for a little over 10 years now ... and my latest trip made me reevaluate the whole experience. Read all about it in this week's #Sarcoidosis News column.
~🦋
sarcoidosisnews.com/columns/chal...
#arthritis #ChronicIllness #disabled #disability #SpoonieSky #travel
~🦋
sarcoidosisnews.com/columns/chal...
#arthritis #ChronicIllness #disabled #disability #SpoonieSky #travel
January 9, 2026 at 3:15 PM
I've been using a #MobilityScooter for a little over 10 years now ... and my latest trip made me reevaluate the whole experience. Read all about it in this week's #Sarcoidosis News column.
~🦋
sarcoidosisnews.com/columns/chal...
#arthritis #ChronicIllness #disabled #disability #SpoonieSky #travel
~🦋
sarcoidosisnews.com/columns/chal...
#arthritis #ChronicIllness #disabled #disability #SpoonieSky #travel