Kerry L. Wong 🦋 Float Like a Buttahfly
@buttahflyk.bsky.social
Writer | Educator | Patient Advocate
floatlikeabuttahfly.blogspot.com 🦋 buttahflyk.substack.com
🦋 Kaleidoscope Rare Disease Stories a.co/d/ia0zSim
🦋 Columnist | Sarcoidosis News
🥄🕊️ #🟦 #BLM #defy🧹#resist #SarcStrong #ZebraStrong🦓 #AlwaysCoordinated😘 she/her
floatlikeabuttahfly.blogspot.com 🦋 buttahflyk.substack.com
🦋 Kaleidoscope Rare Disease Stories a.co/d/ia0zSim
🦋 Columnist | Sarcoidosis News
🥄🕊️ #🟦 #BLM #defy🧹#resist #SarcStrong #ZebraStrong🦓 #AlwaysCoordinated😘 she/her
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
You woke up. You got out of bed. You got dressed. These may seem like small things. When you're living with a chronic illness, these small things may take enormous effort and determination. Not everyone will understand your accomplishment today. WELL DONE, MY FRIEND. ~Unknown
#MySeveralWorlds
#MySeveralWorlds
December 13, 2025 at 5:01 AM
You woke up. You got out of bed. You got dressed. These may seem like small things. When you're living with a chronic illness, these small things may take enormous effort and determination. Not everyone will understand your accomplishment today. WELL DONE, MY FRIEND. ~Unknown
#MySeveralWorlds
#MySeveralWorlds
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Ableism makes you think you will be the exception.
Disability won’t happen to you.
You’re “better than that”.
You’re “stronger”.
You will succeed where the rest of us failed.
It’s not true. Disability can & does happen to almost everyone.
It’s not a moral failing.
Disability won’t happen to you.
You’re “better than that”.
You’re “stronger”.
You will succeed where the rest of us failed.
It’s not true. Disability can & does happen to almost everyone.
It’s not a moral failing.
December 13, 2025 at 5:45 AM
Ableism makes you think you will be the exception.
Disability won’t happen to you.
You’re “better than that”.
You’re “stronger”.
You will succeed where the rest of us failed.
It’s not true. Disability can & does happen to almost everyone.
It’s not a moral failing.
Disability won’t happen to you.
You’re “better than that”.
You’re “stronger”.
You will succeed where the rest of us failed.
It’s not true. Disability can & does happen to almost everyone.
It’s not a moral failing.
Alt text for below image: woman holding a protest sign that reads
"EVERYONE IS ENTITLED TO HUMAN RIGHTS AND HUMAN DECENCY- EVEN THE PEOPLE YOU HATE"
~🦋
"EVERYONE IS ENTITLED TO HUMAN RIGHTS AND HUMAN DECENCY- EVEN THE PEOPLE YOU HATE"
~🦋
December 13, 2025 at 10:22 PM
Alt text for below image: woman holding a protest sign that reads
"EVERYONE IS ENTITLED TO HUMAN RIGHTS AND HUMAN DECENCY- EVEN THE PEOPLE YOU HATE"
~🦋
"EVERYONE IS ENTITLED TO HUMAN RIGHTS AND HUMAN DECENCY- EVEN THE PEOPLE YOU HATE"
~🦋
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
As he celebrates his 100th Birthday this very day, can we all take a moment to acknowledge that time when Dick Van Dyke won the internet internet.
Forever.
Forever.
December 13, 2025 at 12:43 PM
As he celebrates his 100th Birthday this very day, can we all take a moment to acknowledge that time when Dick Van Dyke won the internet internet.
Forever.
Forever.
*Alt text: I image below from Dr. Seuss' "The Lorax," with quote:
"UNLESS someone like you cares a whole awful lot, nothing is going to get better. It's not."
~🦋
"UNLESS someone like you cares a whole awful lot, nothing is going to get better. It's not."
~🦋
Caring is an act of resistance in a system that thrives on indifference.
December 13, 2025 at 10:05 PM
*Alt text: I image below from Dr. Seuss' "The Lorax," with quote:
"UNLESS someone like you cares a whole awful lot, nothing is going to get better. It's not."
~🦋
"UNLESS someone like you cares a whole awful lot, nothing is going to get better. It's not."
~🦋
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Things to Do On Bed Rest: Education #Advocacy & Volunteering ~ @achronicvoice.bsky.social
"Even if you aren’t a blogger, you can help. Reading & resharing blog posts from other #ChronicIllness & #disabled bloggers helps raise awareness."
🔗
buff.ly/3OGUdPd
#StrongerTogether #BloggingCommunity
"Even if you aren’t a blogger, you can help. Reading & resharing blog posts from other #ChronicIllness & #disabled bloggers helps raise awareness."
🔗
buff.ly/3OGUdPd
#StrongerTogether #BloggingCommunity
buff.ly
December 13, 2025 at 11:13 AM
Things to Do On Bed Rest: Education #Advocacy & Volunteering ~ @achronicvoice.bsky.social
"Even if you aren’t a blogger, you can help. Reading & resharing blog posts from other #ChronicIllness & #disabled bloggers helps raise awareness."
🔗
buff.ly/3OGUdPd
#StrongerTogether #BloggingCommunity
"Even if you aren’t a blogger, you can help. Reading & resharing blog posts from other #ChronicIllness & #disabled bloggers helps raise awareness."
🔗
buff.ly/3OGUdPd
#StrongerTogether #BloggingCommunity
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Just a few more days 'til the Arthritis Foundation Jingle Bell Run in Westchester!
Join us if you can, or please make a donation to support over 4 million New Yorkers living with some form of #arthritis.
Anything you can do is greatly appreciated.
~🦋
events.arthritis.org/participant/JBRButtahfly
Join us if you can, or please make a donation to support over 4 million New Yorkers living with some form of #arthritis.
Anything you can do is greatly appreciated.
~🦋
events.arthritis.org/participant/JBRButtahfly
December 9, 2025 at 3:11 PM
Just a few more days 'til the Arthritis Foundation Jingle Bell Run in Westchester!
Join us if you can, or please make a donation to support over 4 million New Yorkers living with some form of #arthritis.
Anything you can do is greatly appreciated.
~🦋
events.arthritis.org/participant/JBRButtahfly
Join us if you can, or please make a donation to support over 4 million New Yorkers living with some form of #arthritis.
Anything you can do is greatly appreciated.
~🦋
events.arthritis.org/participant/JBRButtahfly
@rarepatientvoice.bsky.social is looking for patients for a PAID opportunity to share their experience
WHO: Patients diagnosed with #RheumatoidArthritis
WHAT: 30-60 minute initial interview
COMPENSATION: $120
Visit rarepatientvoice.com/Buttahfly for details
~🦋
#arthritis #ChronicIllness #SpoonieSky
WHO: Patients diagnosed with #RheumatoidArthritis
WHAT: 30-60 minute initial interview
COMPENSATION: $120
Visit rarepatientvoice.com/Buttahfly for details
~🦋
#arthritis #ChronicIllness #SpoonieSky
December 9, 2025 at 1:02 AM
@rarepatientvoice.bsky.social is looking for patients for a PAID opportunity to share their experience
WHO: Patients diagnosed with #RheumatoidArthritis
WHAT: 30-60 minute initial interview
COMPENSATION: $120
Visit rarepatientvoice.com/Buttahfly for details
~🦋
#arthritis #ChronicIllness #SpoonieSky
WHO: Patients diagnosed with #RheumatoidArthritis
WHAT: 30-60 minute initial interview
COMPENSATION: $120
Visit rarepatientvoice.com/Buttahfly for details
~🦋
#arthritis #ChronicIllness #SpoonieSky
Looking for the perfect gift for someone with a #ChronicIllness? This week's #Sarcoidosis News column is here to help!
Visit sarcoidosisnews.com/columns/holi... for some great ideas!
~🦋
#HappyHolidays #SpoonieSky #GiftGuide
#arthritis #fibromyalgia #sarcoidosis
Visit sarcoidosisnews.com/columns/holi... for some great ideas!
~🦋
#HappyHolidays #SpoonieSky #GiftGuide
#arthritis #fibromyalgia #sarcoidosis
December 5, 2025 at 4:58 PM
Looking for the perfect gift for someone with a #ChronicIllness? This week's #Sarcoidosis News column is here to help!
Visit sarcoidosisnews.com/columns/holi... for some great ideas!
~🦋
#HappyHolidays #SpoonieSky #GiftGuide
#arthritis #fibromyalgia #sarcoidosis
Visit sarcoidosisnews.com/columns/holi... for some great ideas!
~🦋
#HappyHolidays #SpoonieSky #GiftGuide
#arthritis #fibromyalgia #sarcoidosis
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
You know how a toddler has a massive tantrum that goes on for hours and hours, until they exhaust themselves and fall asleep?
And it turns out that they had a full diaper, but couldn't use their words, hence the tantrum, then they take a nap they don't want to take?
Toddlers, man.
And it turns out that they had a full diaper, but couldn't use their words, hence the tantrum, then they take a nap they don't want to take?
Toddlers, man.
December 2, 2025 at 8:59 PM
You know how a toddler has a massive tantrum that goes on for hours and hours, until they exhaust themselves and fall asleep?
And it turns out that they had a full diaper, but couldn't use their words, hence the tantrum, then they take a nap they don't want to take?
Toddlers, man.
And it turns out that they had a full diaper, but couldn't use their words, hence the tantrum, then they take a nap they don't want to take?
Toddlers, man.
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
"Being disabled is not being able to plan ahead more than 24 hours. It's waking up feeling the disabled version of fine, making plans for the day, then having to cancel them an hour later because you took a turn. It's exhausting, but here is to friends that understand." #IDPD @_SamBosworth
#IDPD2025
#IDPD2025
December 3, 2025 at 3:25 AM
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
December 1, 2025 at 8:20 PM
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Please don't let the fear of not doing something well stop you from trying it for the first time. Write a messy story. Paint a crappy flower. Whittle the worst wooden bear of all time.
The best gift you can give yourself is to have fun and grow.
The best gift you can give yourself is to have fun and grow.
December 1, 2025 at 8:12 AM
Please don't let the fear of not doing something well stop you from trying it for the first time. Write a messy story. Paint a crappy flower. Whittle the worst wooden bear of all time.
The best gift you can give yourself is to have fun and grow.
The best gift you can give yourself is to have fun and grow.
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Calling out to the #SpoonieSky community:
I'm working on a column for #Sarcoidosis News with holiday gift ideas.
What have YOU gotten (or do you hope to get) that's helpful for someone with #Chroniclllness / #disability?
Suggestions greatly appreciated!
~🦋
I'm working on a column for #Sarcoidosis News with holiday gift ideas.
What have YOU gotten (or do you hope to get) that's helpful for someone with #Chroniclllness / #disability?
Suggestions greatly appreciated!
~🦋
November 28, 2025 at 8:04 PM
Calling out to the #SpoonieSky community:
I'm working on a column for #Sarcoidosis News with holiday gift ideas.
What have YOU gotten (or do you hope to get) that's helpful for someone with #Chroniclllness / #disability?
Suggestions greatly appreciated!
~🦋
I'm working on a column for #Sarcoidosis News with holiday gift ideas.
What have YOU gotten (or do you hope to get) that's helpful for someone with #Chroniclllness / #disability?
Suggestions greatly appreciated!
~🦋
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Arrested, tried and convicted.. The country will not settle for less..
November 26, 2025 at 6:36 AM
Arrested, tried and convicted.. The country will not settle for less..
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
We need a new, strong Senate Minority Leader. My choice👇
a woman is sitting at a podium giving a speech and saying do your job .
ALT: a woman is sitting at a podium giving a speech and saying do your job .
media.tenor.com
November 25, 2025 at 4:20 PM
We need a new, strong Senate Minority Leader. My choice👇
Yes, please!!!
(And about f*n' time!)
Thank you @warren.senate.gov @sanders.senate.gov & others who can read the room and meet the moment!
~🦋
Sanders, Warren Help Form Senate Democratic ‘Fight Club’ Challenging Schumer’s Leadership search.app/T4aDs
(And about f*n' time!)
Thank you @warren.senate.gov @sanders.senate.gov & others who can read the room and meet the moment!
~🦋
Sanders, Warren Help Form Senate Democratic ‘Fight Club’ Challenging Schumer’s Leadership search.app/T4aDs
Sanders, Warren Help Form Senate Democratic ‘Fight Club’ Challenging Schumer’s Leadership | Common Dreams
"So glad there are some Senate Dems willing to fight back," said one progressive strategist.
search.app
November 25, 2025 at 11:42 PM
Yes, please!!!
(And about f*n' time!)
Thank you @warren.senate.gov @sanders.senate.gov & others who can read the room and meet the moment!
~🦋
Sanders, Warren Help Form Senate Democratic ‘Fight Club’ Challenging Schumer’s Leadership search.app/T4aDs
(And about f*n' time!)
Thank you @warren.senate.gov @sanders.senate.gov & others who can read the room and meet the moment!
~🦋
Sanders, Warren Help Form Senate Democratic ‘Fight Club’ Challenging Schumer’s Leadership search.app/T4aDs
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Incoming NJ governor Mike Sherrill says she will withhold federal income taxes from the government to defy Trump.
More of this, please! Just inject it into my veins.
More of this, please! Just inject it into my veins.
November 24, 2025 at 10:22 PM
Incoming NJ governor Mike Sherrill says she will withhold federal income taxes from the government to defy Trump.
More of this, please! Just inject it into my veins.
More of this, please! Just inject it into my veins.
November 23, 2025 at 3:46 AM
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Our own “Freaky Friday” experience:
When my #caregivers and I swapped roles, it was definitely a learning experience. Read all about it in this week’s Sarcoidosis News column.
~🦋
sarcoidosisnews.com/columns/when...
#ChronicIllness #PatientExperience #sarcoidosis #SpoonieSky
When my #caregivers and I swapped roles, it was definitely a learning experience. Read all about it in this week’s Sarcoidosis News column.
~🦋
sarcoidosisnews.com/columns/when...
#ChronicIllness #PatientExperience #sarcoidosis #SpoonieSky
November 21, 2025 at 7:43 PM
Our own “Freaky Friday” experience:
When my #caregivers and I swapped roles, it was definitely a learning experience. Read all about it in this week’s Sarcoidosis News column.
~🦋
sarcoidosisnews.com/columns/when...
#ChronicIllness #PatientExperience #sarcoidosis #SpoonieSky
When my #caregivers and I swapped roles, it was definitely a learning experience. Read all about it in this week’s Sarcoidosis News column.
~🦋
sarcoidosisnews.com/columns/when...
#ChronicIllness #PatientExperience #sarcoidosis #SpoonieSky
Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Got to see an early screening of #Wicked For Good this evening, and I already can't wait to see it again! It may not be as good as the first one (is anything?), but they did an excellent job. Bravo, everybody.
💚🧹🦋
💚🧹🦋
November 18, 2025 at 3:57 AM
Got to see an early screening of #Wicked For Good this evening, and I already can't wait to see it again! It may not be as good as the first one (is anything?), but they did an excellent job. Bravo, everybody.
💚🧹🦋
💚🧹🦋