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Didier @medidier.bsky.social · 1d

Strangely, there is another layer of hell to this. Bc the parts of the brainstem affected are related to your emotional/stress/psy/hormonal regulation, your thoughts/emotions/psy become 'chemically' extremely fucked up.

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Tom Kindlon @tomkindlon.bsky.social · 1d

An article on how being ill with ME, particularly severe ME, is psychologically challenging

meglobalchronicle.wordpress.com/2022/09/25/l...

#SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @ludiekje.bsky.social

thought scramble
Gepubliceerd op 25 september 2022
This disease chases you day and night. It keeps you awake at night and when you eventually fall asleep it follows you into your dreams. There is no escape.

Being bedridden with severe ME/CFS also means that you have a lot of time. Although time is the most valuable currency in the world and I have much of it, it is useless.

Finding distractions is hard. Then you just lie there alone with your thoughts. It’s like being in a lockdown. Not in the house or in the room but in your body. Only you and your thoughts. Nothing else. They are always there. Not to think is not possible. If the body doesn’t function any more, you are left alone with your thoughts. You might have suppressed them in the past but that’s not possible anymore. You can’t go out to clear your mind or distract yourself with sports or partying. You must face them. With them comes fear. Fear about the future.

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Vlad Vexler @vladvexler.bsky.social · 4d

We often assume the deal between the Russian state and its contract soldiers is not ideological. But what could be more ideological than believing the state owes you nothing, you owe the state nothing, and everything - including your life - can be reduced to a business transaction?

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Vlad Vexler @vladvexler.bsky.social · 1d

A short video on unsafety in chronic illness on the Vlads ME Diary channel - youtu.be/_6KSh9AKA-o?...

What “Unsafety” Feels Like in ME and Long Covid

YouTube video by Vlad Vexler ME Diary

youtu.be

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Reuters @reuters.com · 1d

'When authoritarians seize power, it is crucial to recognize courageous defenders of freedom who rise and resist,' the Norwegian Nobel Committee said as it announced Maria Corina Machado as the winner of the 2025 Nobel Peace Prize

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A. F.M.D., a teacher @fmdteacher.bsky.social · 1d

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Jason Jasonson @jaseygalore.bsky.social · 1d

Hello Briarniony 🤗

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The Daily Show @thedailyshow.com · 1d

The following is REAL footage from Portland, 2025. Viewer discretion is advised.

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Didier @medidier.bsky.social · 2d

How on earth is almost 2026 and this shit is about hospitalised patients from 2020/2021...

Do we have to wait 5 more years for looking at #pwME/LC with PEM (both pre & post covid)? And people with other sequalae?

Finding answers in science takes time, blablabla... this is just about 'doing it'!

Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 2d

Brainstem damage found to be behind long-lasting effects of severe Covid-19.

"Using ultra-high-resolution scanners that can see the living brain in fine detail, researchers from the Universities of Cambridge and Oxford were able to observe the damaging effects Covid-19 can have on the brain."

Brainstem damage found to be behind long-lasting effects of severe Covid-19

Damage to the brainstem - the brain's 'control center' - is behind long-lasting physical and psychiatric effects of severe Covid-19 infection, a study suggests.

www.news-medical.net

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Tom Kindlon @tomkindlon.bsky.social · 2d

"Six things I learned from my time in a wheelchair" by a woman with ME and POTS

chronicallycraptastic.com/six-things-i...

#MEcfs #POTS #Disabled #Disability #chronicillness #Spoonies
#Spoonie

Six things I learned from my time in a wheelchair
Nov232023
Blog
Spread the love

Photo of a woman in a wheelchair on a bridge overlooking a river or something similar

Wheelchairs are shit.

No, wait, let me rephrase that: Wheelchairs are absolutely fantastic and afford disabled people a world of independence and mobility they would otherwise be stripped of. But – you knew that already.

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Sardonicus @sardonicus.eu · 2d

Emil Nolde’s Red & Yellow Cloud, 1930

large red and yellow sky a small building to the left on a horizon low in the painting

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 2d

I love this story 😭

TIMELINE CLEANSE ✨

Nicholas Whyte @nwhyte.bsky.social · 2d

Dr Ramsdell, whose phone had been on airplane mode, told the BBC's Newshour Programme that his first response when his wife said, "You've won the Nobel prize" was: "I did not."

To which Ms O'Neill replied that she had 200 text messages that suggested he had.

www.bbc.com/news/article...

Scientist on three-week off-grid hike finds out he's won the Nobel prize

Dr Fred Ramsdell was "living his best life" offline when the Nobel committee tried to contact him.

www.bbc.com

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Dr Charlie Gardner @charliejgardner.bsky.social · 3d

There's good reason why the oil and gas industry lobbies so hard for carbon capture - because it's the one 'climate solution' that wouldn't necessarily require shutting down the oil and gas industry

But it doesn't work. They need to be shut down

InfluenceMap @influencemap.bsky.social · 3d

📢 🚨New Report - How the UK oil and gas industry spent 15 years pushing for subsidies & incentives for Carbon Capture and Storage rather than regulatory accountability or science-based emissions reductions; maintaining a funding pipeline for a technology yet to deliver on its promises 👇

The UK Oil and Gas Industry's Advocacy on Carbon Capture and Storage (CCS)

New analysis from InfluenceMap suggests that for more than 15 years, the oil and gas industry has systematically pushed the UK government to adopt a costly, emissions-intensive energy policy agenda de...

influencemap.org

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Roen Tree @roentree.bsky.social · 6d

Exclusive* early drop for the BSky crew of my Artfully Queer 2025 entry. Title "I Wish You'd Let Us Love You" or, alternatively, "An Honest Portrait of Gerrit Kruijver". #TraditionalArt #ColourPencil #BlueSkyArtShow #ArtfullyQueer

*lol

A coloured pencil drawing; there are three portraits of the same man. The centre portrait is the man smiling with a sparkle in his eye, drawn in lively colours. On his chest and shoulders are a variety of smaller animal portraits: two border collies, a yellow lab, and two rams. The left and right hand portraits are the same man, but in dark, desaturated colours. The left portrait stares into the distance, with an expression that's a mixture of dissociation and fear. The right portrait has downcast eyes and a drooping expression that conveys a weary bitterness and sadness.

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Eleanor Padman @ellie1p.bsky.social · 2d

Horrible reporting from the ABC describing China as “once a climate villain”. Actually no, on a per capita basis and since industrialisation they are middle of the pack. Whereas Australia 👇

#auspol

Graph showing global emissions on a per capita basis since 1750.

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Jason Jasonson @jaseygalore.bsky.social · 2d

Non-Australians: All Australian animals are deadly

Numbats: please read the following article www.abc.net.au/news/2025-10...

Shutterbugs warned search for perfect shot is stressing out numbats

Authorities say getting to close to numbats can make them anxious enough to abandon their young and are urging photographers to give the endangered animals their space.

www.abc.net.au

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Jason Jasonson @jaseygalore.bsky.social · 2d

"Three cheers for daylight slavings!" they cried.

('they' being the jerks who thought it up)

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Peter George @indy4franklin.bsky.social · 3d

Tasmanian ship’s captain Madeleine Habib has been detained after the boat The Conscience was intercepted in international waters off the coast of Gaza in recent hours.

The ship was carrying 92 passengers, all journalists and medical staff, with the mission to open sea access for Gazans 1/3

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Jason Jasonson @jaseygalore.bsky.social · 2d

They even removed any concession discounts on course fees which is completely cruel.

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Jen @juniperlilacs.bsky.social · 2d

I did Cert 3 arts at the NW TAFE pre covid, had freelance gigs as a result, watched my classmates get jobs or start small businesses - one of which directly contributed to the Spirit of Tasmania children’s entertainment program, which is a major public face of state tourism. The arts create jobs.

Briony Kidd @brionykidd.bsky.social · 2d

“The AEU warned that removing subsidies for 12 courses, including those in the creative arts, will cause a devastating fee hike of up to 5400%, effectively ‘killing courses’ and locking out young Tasmanians.”

Disgraceful decision, must be reconsidered.

#politas tasmaniantimes.com/2025/10/tafe...

TAFE Arts Crisis - Fees Skyrocket, Exodus Feared - Tasmanian Times

The decision by the Minister for Skills and Jobs, Felix Ellis, to redirect TasTAFE course subsidies was defended as an essential move for “long-term viability” and to better meet the state’s growing d...

tasmaniantimes.com

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Christine Hallquist @christinehallquist.bsky.social · 3d

A typical road in Vermont. Sixty percent of Vermont roads are dirt. They are smoothest during winter. That's when they get iced over. Don't worry, we covered the ice with sand.

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Parkrose Permaculture ❌👑 @parkroseperma.bsky.social · 2d

We get ONE life, I'll be damned if I let these fascist fucks steal the joy and awe and beauty from it.

They want us miserable, suffering, scared. So I choose joy, pleasure, courage at every opportunity.

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Miss Ann Thrope 🇬🇧🇹🇹 @ltellenripley.bsky.social · 3d

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George E. Osborn @georgeosborn.bsky.social · 3d

I'm attending a NATO conference today and someone has done the funniest thing possible with the name of their wi-fi network

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Jason Jasonson @jaseygalore.bsky.social · 2d

Please excuse my outburst, but WHHHHAAAAT?!? WHAT THE ACTUAL???!

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Jen @juniperlilacs.bsky.social · 2d

Oh that’s fine it’s not like it’s been one of THE conduits for online misogynistic radicalisation of young men for DECADES. But please, take all my data!

Guardian Australia @australia.theguardian.com · 2d

4chan unlikely to be included in Australia’s under-16s social media ban, eSafety commissioner says

Julie Inman Grant says message board will need to comply with other codes which will also include age assurance for sites hosting violent and adult content * Follow our Australia news live blog for latest updates * Get our breaking news email, free app or daily news podcast The eSafety commissioner is not expected to block children from accessing 4chan as part of the under-16s social media ban, despite it being labelled one of the “darker” places on the internet. The eSafety commissioner, Julie Inman Grant, was asked by independent senator Fatima Payman in Senate estimates on Wednesday night whether 4chan, the message board often referred to as the engine room of the internet, would be considered one of the sites required to prevent under-16s when the social media ban comes into effect from 10 December. Continue reading...

www.theguardian.com

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