KH
@khvmd.bsky.social
pwME since 2018
Veterinarian
Pittsburgh, PA USA
Veterinarian
Pittsburgh, PA USA
Reposted by KH
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
substack.com
November 23, 2025 at 6:23 PM
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
@bsky.app Why are there endless posts of people’s half naked selfies and explicitly drawn cartoons in my discovery feed? How can I make this stop?
September 21, 2025 at 3:40 PM
@bsky.app Why are there endless posts of people’s half naked selfies and explicitly drawn cartoons in my discovery feed? How can I make this stop?
www.nature.com/articles/s41... It has been my belief since I first got ME/CFS, 7 yrs ago, that one day there would be straight lines drawn between mitochondria and literally every symptom of ME. Here’s an article that finds mitos in certain brain neurons are what controls sleep. In fruit flies.
Mitochondrial origins of the pressure to sleep - Nature
Research on Drosophila neurons shows links between the need to sleep and aerobic metabolism, indicating that the pressure to sleep may have a mitochondrial origin.
www.nature.com
August 20, 2025 at 10:17 PM
www.nature.com/articles/s41... It has been my belief since I first got ME/CFS, 7 yrs ago, that one day there would be straight lines drawn between mitochondria and literally every symptom of ME. Here’s an article that finds mitos in certain brain neurons are what controls sleep. In fruit flies.
Reposted by KH
Texas Floods Missing Pets: Kerrville Pets Alive and Austin Pets Alive have set up a hotline for the many rescued cats and dogs in their care that need to be reunited with their owners.
July 7, 2025 at 11:07 PM
Texas Floods Missing Pets: Kerrville Pets Alive and Austin Pets Alive have set up a hotline for the many rescued cats and dogs in their care that need to be reunited with their owners.
Reposted by KH
Seeing the Invisible: Illuminating brain function in ME/CFS & #LongCovid
youtu.be/3-54JAgZ2x8
Dr Chris Armstrong & his team at OMF’s Melbourne ME/ #CFS Collaboration are investigating the link between neuroinflammation, cerebral blood flow, & dysregulated hormones in #MECFS, #POTS, & Long #COVID
youtu.be/3-54JAgZ2x8
Dr Chris Armstrong & his team at OMF’s Melbourne ME/ #CFS Collaboration are investigating the link between neuroinflammation, cerebral blood flow, & dysregulated hormones in #MECFS, #POTS, & Long #COVID
Illuminating Brain Function in ME/CFS and Long COVID
YouTube video by Open Medicine Foundation - OMF
youtu.be
June 15, 2025 at 1:02 PM
Seeing the Invisible: Illuminating brain function in ME/CFS & #LongCovid
youtu.be/3-54JAgZ2x8
Dr Chris Armstrong & his team at OMF’s Melbourne ME/ #CFS Collaboration are investigating the link between neuroinflammation, cerebral blood flow, & dysregulated hormones in #MECFS, #POTS, & Long #COVID
youtu.be/3-54JAgZ2x8
Dr Chris Armstrong & his team at OMF’s Melbourne ME/ #CFS Collaboration are investigating the link between neuroinflammation, cerebral blood flow, & dysregulated hormones in #MECFS, #POTS, & Long #COVID
Donated.
New-ish fundraising page to support Ian Lipkin's "ME/CFS Research - Center for Infection and Immunity" whose federal funding has sadly been decimated
joinus.cuimc.columbia.edu/index.cfm?fu...
More information on the program at the link
#MEcfs #CFS #PwME
joinus.cuimc.columbia.edu/index.cfm?fu...
More information on the program at the link
#MEcfs #CFS #PwME
May 29, 2025 at 11:59 PM
Donated.
Signed.
Hey, #MyalgicEncephalomyelitis or #LongCovid allies!
Could you sign this letter to the NIH director--it takes five seconds--if you haven't already?
We desperately need increased funding.
Loving reminder that post-infectious illnesses are #disabling and potentially fatal.
Thx!
#disability #pwME
Could you sign this letter to the NIH director--it takes five seconds--if you haven't already?
We desperately need increased funding.
Loving reminder that post-infectious illnesses are #disabling and potentially fatal.
Thx!
#disability #pwME
May 21, 2025 at 1:23 PM
Signed.
Reposted by KH
May 12 is the annual Millions Missing protest in DC, where people with ME/CFS and #LongCovid and related disorders demand appropriate care and research.
My late partner Beth Mazur was one of the originators of #millionsmissing and the first protest was, I believe, in 2016, marking this as the […]
My late partner Beth Mazur was one of the originators of #millionsmissing and the first protest was, I believe, in 2016, marking this as the […]
Original post on sciencemastodon.com
sciencemastodon.com
May 2, 2025 at 12:25 AM
May 12 is the annual Millions Missing protest in DC, where people with ME/CFS and #LongCovid and related disorders demand appropriate care and research.
My late partner Beth Mazur was one of the originators of #millionsmissing and the first protest was, I believe, in 2016, marking this as the […]
My late partner Beth Mazur was one of the originators of #millionsmissing and the first protest was, I believe, in 2016, marking this as the […]
Reposted by KH
Have you taken a JAK STAT inhibitor for Long COVID or ME? I'm working on a story about these drugs (baricitinib, abrocitinib, upadacitinib, and others) which are currently being investigated in clinical trials for the disease.
Reach me at: [email protected] or dm for signal!
Reach me at: [email protected] or dm for signal!
April 25, 2025 at 12:11 AM
Have you taken a JAK STAT inhibitor for Long COVID or ME? I'm working on a story about these drugs (baricitinib, abrocitinib, upadacitinib, and others) which are currently being investigated in clinical trials for the disease.
Reach me at: [email protected] or dm for signal!
Reach me at: [email protected] or dm for signal!
Reposted by KH
"Cards2Warriors has a special program called Happy Mail, where they send snail mail cards to those [who are ill] who need encouragement & cheer"
Links:
www.cards2warriors.org
www.cards2warriors.org/happy-mail
Image from Institute for Neuro-Immune Medicine e-bulletin
#chronicillness
Links:
www.cards2warriors.org
www.cards2warriors.org/happy-mail
Image from Institute for Neuro-Immune Medicine e-bulletin
#chronicillness
April 11, 2025 at 3:59 PM
"Cards2Warriors has a special program called Happy Mail, where they send snail mail cards to those [who are ill] who need encouragement & cheer"
Links:
www.cards2warriors.org
www.cards2warriors.org/happy-mail
Image from Institute for Neuro-Immune Medicine e-bulletin
#chronicillness
Links:
www.cards2warriors.org
www.cards2warriors.org/happy-mail
Image from Institute for Neuro-Immune Medicine e-bulletin
#chronicillness
Reposted by KH
THIS IS NOT OK!!!!! 🤬
March 29, 2025 at 9:11 PM
THIS IS NOT OK!!!!! 🤬
Reposted by KH
Confirming this scoop by @thesicktimes.bsky.social - an HHS source says that Sen. Todd Young (R-IN), who secured a commitment from RFK Jr. during his confirmation hearing that he'd continue funding long COVID research, intervened.
BREAKING: The RECOVER Long COVID pathobiology grants have been restored! Finally a win after all the awful news of the last few weeks. thesicktimes.org/2025/03/28/u...
UPDATE: RECOVER Long COVID pathobiology grants restored - The Sick Times
Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, accord...
thesicktimes.org
March 28, 2025 at 7:46 PM
Confirming this scoop by @thesicktimes.bsky.social - an HHS source says that Sen. Todd Young (R-IN), who secured a commitment from RFK Jr. during his confirmation hearing that he'd continue funding long COVID research, intervened.
Reposted by KH
NBC: “HHS sends all employees a $25,000 voluntary buyout offer”
The agency’s approximately 80,000 employees were emailed Friday night with the offer of a “voluntary separation incentive payment”
www.nbcnews.com/politics/tru...
The agency’s approximately 80,000 employees were emailed Friday night with the offer of a “voluntary separation incentive payment”
www.nbcnews.com/politics/tru...
HHS sends all employees a $25,000 voluntary buyout offer
The agency’s approximately 80,000 employees were emailed Friday night with the offer of a “voluntary separation incentive payment.”
www.nbcnews.com
March 9, 2025 at 4:16 AM
NBC: “HHS sends all employees a $25,000 voluntary buyout offer”
The agency’s approximately 80,000 employees were emailed Friday night with the offer of a “voluntary separation incentive payment”
www.nbcnews.com/politics/tru...
The agency’s approximately 80,000 employees were emailed Friday night with the offer of a “voluntary separation incentive payment”
www.nbcnews.com/politics/tru...
Reposted by KH
"The Elizabeth Glaser Pediatric AIDS Foundation said the latest cuts will deprive 350,000 people of HIV treatment"
It's a death sentence for those who are deprived of treatment.
It's a death sentence for those who are deprived of treatment.
"A whole new level of cruelty": Health experts decry "devastating" cuts to HIV treatment programs
The Elizabeth Glaser Pediatric AIDS Foundation said the latest cuts will deprive 350,000 people of HIV treatment.
www.salon.com
March 9, 2025 at 6:09 AM
"The Elizabeth Glaser Pediatric AIDS Foundation said the latest cuts will deprive 350,000 people of HIV treatment"
It's a death sentence for those who are deprived of treatment.
It's a death sentence for those who are deprived of treatment.
One of these two guys is rethinking his life choices.
i'm stealing this from someone on twitter but the difference in body language here is due to the fact that both of these men are condemned to eternal damnation in the deepest circle of Hell but only Rubio realizes it
March 1, 2025 at 2:58 AM
One of these two guys is rethinking his life choices.
Reposted by KH
archive.ph/2025.02.23-1...
Sean O'Neill writes about the sheer uselessness of Coroner's Courts from terrible experience.
#MEcfs
Sean O'Neill writes about the sheer uselessness of Coroner's Courts from terrible experience.
#MEcfs
archive.ph
February 23, 2025 at 8:42 PM
archive.ph/2025.02.23-1...
Sean O'Neill writes about the sheer uselessness of Coroner's Courts from terrible experience.
#MEcfs
Sean O'Neill writes about the sheer uselessness of Coroner's Courts from terrible experience.
#MEcfs
Reposted by KH
This morning at Dept of Housing and Urban Development (HUD) HQ in DC as mandatory return to office began, this video played on loop for ~5 mins on screens throughout the building, per agency source.
Building staff couldn’t figure out how to turn it off so sent people to every floor to unplug TVs.
Building staff couldn’t figure out how to turn it off so sent people to every floor to unplug TVs.
February 24, 2025 at 2:51 PM
This morning at Dept of Housing and Urban Development (HUD) HQ in DC as mandatory return to office began, this video played on loop for ~5 mins on screens throughout the building, per agency source.
Building staff couldn’t figure out how to turn it off so sent people to every floor to unplug TVs.
Building staff couldn’t figure out how to turn it off so sent people to every floor to unplug TVs.
Reposted by KH
I've been thinking about how to explain the challenge of living with ME/CFS and created this cartoon visualization.
Imagine the life of someone without ME is a rainbow of activities that each take a certain amount of energy.
ME limits your energy, and thereby the vibrancy of your life.
Imagine the life of someone without ME is a rainbow of activities that each take a certain amount of energy.
ME limits your energy, and thereby the vibrancy of your life.
February 23, 2025 at 7:35 PM
I've been thinking about how to explain the challenge of living with ME/CFS and created this cartoon visualization.
Imagine the life of someone without ME is a rainbow of activities that each take a certain amount of energy.
ME limits your energy, and thereby the vibrancy of your life.
Imagine the life of someone without ME is a rainbow of activities that each take a certain amount of energy.
ME limits your energy, and thereby the vibrancy of your life.
Reposted by KH
2-minute video clip from ABC (Australian national TV) plus longer text piece on ME Research UK-funded study
"Long COVID [& ME/CFS] patients show brain swelling linked to memory and concentration problems, study finds"
www.abc.net.au/news/2025-02...
#MEcfs #LongCovid
"Long COVID [& ME/CFS] patients show brain swelling linked to memory and concentration problems, study finds"
www.abc.net.au/news/2025-02...
#MEcfs #LongCovid
February 11, 2025 at 2:33 AM
2-minute video clip from ABC (Australian national TV) plus longer text piece on ME Research UK-funded study
"Long COVID [& ME/CFS] patients show brain swelling linked to memory and concentration problems, study finds"
www.abc.net.au/news/2025-02...
#MEcfs #LongCovid
"Long COVID [& ME/CFS] patients show brain swelling linked to memory and concentration problems, study finds"
www.abc.net.au/news/2025-02...
#MEcfs #LongCovid
Reposted by KH
Dealing with someone with very severe ME can be frightening as most people, including medical doctors, have never seen a patient so ill.
Understandably, there is a natural tendency for people (families and physicians) to panic, to worry that the person might die, and to rush the person to a
Understandably, there is a natural tendency for people (families and physicians) to panic, to worry that the person might die, and to rush the person to a
February 9, 2025 at 1:59 PM
Dealing with someone with very severe ME can be frightening as most people, including medical doctors, have never seen a patient so ill.
Understandably, there is a natural tendency for people (families and physicians) to panic, to worry that the person might die, and to rush the person to a
Understandably, there is a natural tendency for people (families and physicians) to panic, to worry that the person might die, and to rush the person to a
He doesn’t see the connection!
February 9, 2025 at 4:49 PM
He doesn’t see the connection!
Reposted by KH
Looking for some recommendations for some adult coloring books or the like. Going to try it to quiet the mind a bit. I’m struggling. A lot. Distress tolerance is a skill set I learned long ago but I’m not sure I’m skilled enough for this reality 😭#grief
a cartoon of a dog sitting in front of a laptop with a speech bubble saying it 's fine
ALT: a cartoon of a dog sitting in front of a laptop with a speech bubble saying it 's fine
media.tenor.com
February 8, 2025 at 10:03 PM
Looking for some recommendations for some adult coloring books or the like. Going to try it to quiet the mind a bit. I’m struggling. A lot. Distress tolerance is a skill set I learned long ago but I’m not sure I’m skilled enough for this reality 😭#grief