Long Covid Safety Net
@longcovidsafetynet.bsky.social
Advocacy for people with post-viral illnesses facing homelessness, domestic violence, and poverty. We need a safety net for Long Covid and ME/CFS.
New York City | longcovidsafety.net
New York City | longcovidsafety.net
Always
Thinking today how homelessness runs through this story, through Epstein's (Virginia Guiffre had been homeless before meeting him), and even through Gaiman's (his nanny was sleeping on the beach when Palmer recruited her, and he used threats of homelessness against another victim).
The woman whom the House Ethics Committee determined Matt Gaetz paid for sex when she was 17 years old was living in a homeless shelter, working at McDonald's, and needed the money for braces www.nytimes.com/2025/11/13/u...
November 13, 2025 at 7:33 PM
Always
Reposted by Long Covid Safety Net
FYI for anyone in New York State who is affected by the SNAP situation, we got this notice just a couple hours ago.
November 8, 2025 at 1:28 AM
FYI for anyone in New York State who is affected by the SNAP situation, we got this notice just a couple hours ago.
Deeply frustrated to see that this guide from @dysautonomia.bsky.social on how to speak to the press doesn't include any mention of Long Covid or the fact that Covid has drastically increased the percentage of children and adults with POTS.
www.dysautonomiainternational.org/pdf/MediaGui...
www.dysautonomiainternational.org/pdf/MediaGui...
www.dysautonomiainternational.org
October 8, 2025 at 4:09 PM
Deeply frustrated to see that this guide from @dysautonomia.bsky.social on how to speak to the press doesn't include any mention of Long Covid or the fact that Covid has drastically increased the percentage of children and adults with POTS.
www.dysautonomiainternational.org/pdf/MediaGui...
www.dysautonomiainternational.org/pdf/MediaGui...
The state is starving people with very severe ME.
www-omroephorstaandemaas-nl.translate.goog/actueel/uitg...
To our great regret, we must inform you that Sanne has lost the lawsuit filed against three hospitals and will not receive parenteral nutrition... 💔
To our great regret, we must inform you that Sanne has lost the lawsuit filed against three hospitals and will not receive parenteral nutrition... 💔
October 2, 2025 at 5:31 PM
The state is starving people with very severe ME.
Reposted by Long Covid Safety Net
#LongCOVID is not functional neurological disorder (FND), but some patients are getting diagnosed with it.
Here’s @davetuller1.bsky.social on what to do if it happens to you: bit.ly/4mxAyiB
Here’s @davetuller1.bsky.social on what to do if it happens to you: bit.ly/4mxAyiB
September 26, 2025 at 5:20 PM
#LongCOVID is not functional neurological disorder (FND), but some patients are getting diagnosed with it.
Here’s @davetuller1.bsky.social on what to do if it happens to you: bit.ly/4mxAyiB
Here’s @davetuller1.bsky.social on what to do if it happens to you: bit.ly/4mxAyiB
Very important ⤵️
Reporter Laura Weiss (@lauralew105.bsky.social) is looking to speak with people with #LongCOVID who are on Medicaid and concerned about losing benefits due to work requirements or otherwise due to Trump's spending bill. Contact her at (lauraweisswrites at gmail dot com).
September 23, 2025 at 5:55 PM
Very important ⤵️
Reposted by Long Covid Safety Net
The two-day RECOVER-TLC workshop on new #LongCOVID clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times: bit.ly/4giPmAi
September 10, 2025 at 7:41 PM
The two-day RECOVER-TLC workshop on new #LongCOVID clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times: bit.ly/4giPmAi
🍅🍅🍅
Mayor Eric Adams’ administration has moved ahead with a controversial rule change that will increase the share working families with housing vouchers will have to pay in rent.
Rent Hike for Some Voucher Tenants Starts, Spurred by Mayor Adams
The increase will require thousands of families who use the CityFHEPS voucher to pay 40% of their income if they renew the rental subsidy after five years.
buff.ly
August 29, 2025 at 6:16 PM
🍅🍅🍅
Not. Homeless. Enough.
The Coordinated Entry system turned this family away--possibly because they failed to score high enough on a "points" system. They have been living in 7-year-old Samara's hospital room.
The Coordinated Entry system turned this family away--possibly because they failed to score high enough on a "points" system. They have been living in 7-year-old Samara's hospital room.
7-year-old Samara "has endured three major spinal surgeries. The last one required implants and a halo crown."
San Francisco "has denied her family permanent supportive housing multiple times."
Support their GoFundMe: www.gofundme.com/f/help-maria...
#California #USA #Policing #Healthcare #Housing
San Francisco "has denied her family permanent supportive housing multiple times."
Support their GoFundMe: www.gofundme.com/f/help-maria...
#California #USA #Policing #Healthcare #Housing
Homeless mother fights to get disabled daughter into SF housing
Her 7-year-old daughter is recovering in a hospital, but San Francisco says the family is not “homeless enough” for housing help.
eltecolote.org
August 29, 2025 at 2:24 PM
Not. Homeless. Enough.
The Coordinated Entry system turned this family away--possibly because they failed to score high enough on a "points" system. They have been living in 7-year-old Samara's hospital room.
The Coordinated Entry system turned this family away--possibly because they failed to score high enough on a "points" system. They have been living in 7-year-old Samara's hospital room.
August 26, 2025 at 6:15 PM
Reposted by Long Covid Safety Net
I am literally begging anyone who does any kind of journalism to spend an hour in an eviction courtroom every week for a month. Please.
The eviction crisis in this country is downplayed at best and ignored at worst. It's racialized state violence that hearkens back to the worst of Jim Crow,
The eviction crisis in this country is downplayed at best and ignored at worst. It's racialized state violence that hearkens back to the worst of Jim Crow,
August 22, 2025 at 9:21 PM
I am literally begging anyone who does any kind of journalism to spend an hour in an eviction courtroom every week for a month. Please.
The eviction crisis in this country is downplayed at best and ignored at worst. It's racialized state violence that hearkens back to the worst of Jim Crow,
The eviction crisis in this country is downplayed at best and ignored at worst. It's racialized state violence that hearkens back to the worst of Jim Crow,
NYLAG's Evelyn Frank Legal Resources Program is hosting a webinar on the upcoming changes to NY home care eligibility. Highly recommend if you anticipate needing to navigate this system. nylag-org.zoom.us/webinar/regi...
![Text reads:
New ADL Eligibility Criteria for Medicaid Home Care Beginning September 1, 2025
Medicaid home care applicants assessed by the New York Independent Assessor (NYIAP) will face stricter requirements to qualify for:
[bullet] Managed Long Term Care (MLTC)
[bullet] Medicaid Advantage Plus (MAP)
[bullet] Personal Care or CDPAP services through local Department of Social Services (HRA in NYC) or mainstream Medicaid managed care plans
Under the new law, the NYIAP nurse assessor must find that the applicant requires “limited assistance with physical maneuvering” in at least three Activities of Daily Living (ADLs). An exception applies to individuals diagnosed with Alzheimer’s disease or dementia, who may qualify with “supervisory or cueing assistance” in two ADLs, if certified by a physician using the new DOH-5821 form.
Those already receiving services will not be subject to the new criteria and retain “legacy status.” Applicants who were assessed by NYIAP between Sept. 1, 2024, and Aug. 31, 2025, will also retain “legacy status” and are not subject to the new criteria, provided they begin services or enroll in a plan within one year of their assessment.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:q5tl4zrok47pjk525jubwglm/bafkreici2clb7ll22tsd7toc7od4pc2ib7fqvz5wbuephp7twsji6z2ecy@jpeg)
August 20, 2025 at 7:50 PM
NYLAG's Evelyn Frank Legal Resources Program is hosting a webinar on the upcoming changes to NY home care eligibility. Highly recommend if you anticipate needing to navigate this system. nylag-org.zoom.us/webinar/regi...
Reposted by Long Covid Safety Net
unhoused people don’t fear there is nowhere to go. they KNOW there is nowhere to go: no safe shelters, no social safety net. being poor, homeless, disabled, medically vulnerable are all increasingly becoming criminalized and structurally treated as disposable, not human, “not our problem”
Mississippi's new laws targeting homeless people include:
-House Bill 1203, which prohibits camping on public property not designated for shelter, punishable by a fine up to $50.
-House Bill 1197, requiring people who solicit donations to obtain a permit that could cost up to $25 per day.
-House Bill 1203, which prohibits camping on public property not designated for shelter, punishable by a fine up to $50.
-House Bill 1197, requiring people who solicit donations to obtain a permit that could cost up to $25 per day.
Unhoused Mississippians Fear ‘Nowhere to Go’ Under New Laws
Two state laws targeting the homeless population that went into effect July 1 are raising concerns across Mississippi.
buff.ly
August 1, 2025 at 2:20 PM
unhoused people don’t fear there is nowhere to go. they KNOW there is nowhere to go: no safe shelters, no social safety net. being poor, homeless, disabled, medically vulnerable are all increasingly becoming criminalized and structurally treated as disposable, not human, “not our problem”
Reposted by Long Covid Safety Net
Today is Severe ME Awareness Day, and we’re sharing our explainer about Severe ME.
Highlights in thread, and check out the full resource at longcovidjustice.org/severe-me
This is part of the Long COVID Essentials series by @longcovidjustice.org + @thesicktimes.bsky.social
Highlights in thread, and check out the full resource at longcovidjustice.org/severe-me
This is part of the Long COVID Essentials series by @longcovidjustice.org + @thesicktimes.bsky.social
August 8, 2025 at 6:24 PM
Today is Severe ME Awareness Day, and we’re sharing our explainer about Severe ME.
Highlights in thread, and check out the full resource at longcovidjustice.org/severe-me
This is part of the Long COVID Essentials series by @longcovidjustice.org + @thesicktimes.bsky.social
Highlights in thread, and check out the full resource at longcovidjustice.org/severe-me
This is part of the Long COVID Essentials series by @longcovidjustice.org + @thesicktimes.bsky.social
Reposted by Long Covid Safety Net
This day is always extremely difficult every year. It’s Severe ME day. This disease has been the most difficult thing I’ve ever had to face in my life, and I’ve faced a lot.
We remain one of the least funded diseases by disease burden, if not the least.
Having a severe form of ME is horrifying.
We remain one of the least funded diseases by disease burden, if not the least.
Having a severe form of ME is horrifying.
August 8, 2025 at 5:47 PM
This day is always extremely difficult every year. It’s Severe ME day. This disease has been the most difficult thing I’ve ever had to face in my life, and I’ve faced a lot.
We remain one of the least funded diseases by disease burden, if not the least.
Having a severe form of ME is horrifying.
We remain one of the least funded diseases by disease burden, if not the least.
Having a severe form of ME is horrifying.
Reposted by Long Covid Safety Net
@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
July 31, 2025 at 7:11 AM
@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.
Reposted by Long Covid Safety Net
Low income people of color are more likely to get Long Covid. Yet, it's mostly white people w/ Long Covid whose accounts tend to blow up more.
American College of Physicians: "Study finds economically disadvantaged patients at greater risk for long COVID"
'Researchers from Brigham and Women's Hospital, Harvard Medical School, and colleagues studied data from 3,787 adults enrolled in the RECOVER study...'
medicalxpress.com/news/2025-07...
'Researchers from Brigham and Women's Hospital, Harvard Medical School, and colleagues studied data from 3,787 adults enrolled in the RECOVER study...'
medicalxpress.com/news/2025-07...
Study finds economically disadvantaged patients at greater risk for long COVID
A prospective observational cohort study determined the associations between social determinants of health (SDoH) at the time of SARS-CoV-2 infection and subsequent risk for long COVID. The study foun...
medicalxpress.com
July 28, 2025 at 9:45 PM
Low income people of color are more likely to get Long Covid. Yet, it's mostly white people w/ Long Covid whose accounts tend to blow up more.
Know Your Rights: APS Edition
for anyone keeping updated with my story
CW: APS investigation
I am privileged to have a phd & knowledge of social work. & So, I've been researching since the unannounced visit. I also called APS asking about my rights. I knew it'd be futile, but wanted on record their refusal to provide KYR. 🧵
CW: APS investigation
I am privileged to have a phd & knowledge of social work. & So, I've been researching since the unannounced visit. I also called APS asking about my rights. I knew it'd be futile, but wanted on record their refusal to provide KYR. 🧵
I’ve finally stopped shaking like a leaf. Surveillance is never the answer to systemic failures. Even though I do this work for a living & have called for the abolition of investigative social workers for years, I’m deeply traumatized. I’ll be offline for while to game plan for the next APS visit.
July 27, 2025 at 4:37 PM
Know Your Rights: APS Edition
Reposted by Long Covid Safety Net
Federal government is shutting down the program that helps homeless people with SSI/SSDI applications @mariannedhe.bsky.social @marisakabas.bsky.social @economichardship.bsky.social
July 10, 2025 at 3:40 PM
Federal government is shutting down the program that helps homeless people with SSI/SSDI applications @mariannedhe.bsky.social @marisakabas.bsky.social @economichardship.bsky.social
Reposted by Long Covid Safety Net
ICYMI: @council.nyc.gov scored a legal win yesterday when an appeals court ruled the city must implement its package of laws to expand eligibility for CityFHEPS rental vouchers. The mayor's office said it's now weighing its next steps. bit.ly/3GgPAdK
Mayor Must Implement Council Laws Expanding Rental Vouchers, Appeals Court Rules - City Limits
City Hall has so far refused to carry out the package of bills passed by the Council in 2023, which would expand CityFHEPS eligibility to any income eligible household at risk of eviction, among other...
bit.ly
July 11, 2025 at 2:55 PM
ICYMI: @council.nyc.gov scored a legal win yesterday when an appeals court ruled the city must implement its package of laws to expand eligibility for CityFHEPS rental vouchers. The mayor's office said it's now weighing its next steps. bit.ly/3GgPAdK
Previously, you could only access the CityFHEPS voucher if you were already in a homeless shelter--but shelters are inaccessible and will turn you away if you're too disabled, making it impossible to get the voucher.
Now that has to change. It's a humongous win.
gothamist.com/news/adams-a...
Now that has to change. It's a humongous win.
gothamist.com/news/adams-a...
Adams administration must expand city-funded rental subsidies, appeals court says
The decision reverses a lower-court ruling, requiring New York City to implement a package of laws to expand rental vouchers.
gothamist.com
July 11, 2025 at 4:17 PM
Previously, you could only access the CityFHEPS voucher if you were already in a homeless shelter--but shelters are inaccessible and will turn you away if you're too disabled, making it impossible to get the voucher.
Now that has to change. It's a humongous win.
gothamist.com/news/adams-a...
Now that has to change. It's a humongous win.
gothamist.com/news/adams-a...
Reposted by Long Covid Safety Net
I've spent the past year trying to help my friends get housing and keep them out of nursing homes. @longcovidsafetynet.bsky.social is the labor of love and frustration that has come out of this struggle.
truthout.org/articles/esc...
truthout.org/articles/esc...
Escalating Anti-Homeless Policies Fall Hardest on Disabled People in the US
As legislative attacks on unhoused people ramp up, disabled people are on the front lines.
truthout.org
July 10, 2025 at 9:39 PM
I've spent the past year trying to help my friends get housing and keep them out of nursing homes. @longcovidsafetynet.bsky.social is the labor of love and frustration that has come out of this struggle.
truthout.org/articles/esc...
truthout.org/articles/esc...