Miranda
@crookedneighbor.bsky.social
Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her)
LongCovidSafety.net
LongCovidSafety.net
Pinned
Miranda
@crookedneighbor.bsky.social
· Jul 10
Escalating Anti-Homeless Policies Fall Hardest on Disabled People in the US
As legislative attacks on unhoused people ramp up, disabled people are on the front lines.
truthout.org
I've spent the past year trying to help my friends get housing and keep them out of nursing homes. @longcovidsafetynet.bsky.social is the labor of love and frustration that has come out of this struggle.
truthout.org/articles/esc...
truthout.org/articles/esc...
Reposted by Miranda
It's now been over two months, and we still don't have any updates from the federal government on RFK Jr.'s Long COVID Consortium. During the meeting the head of ARPA-H stated they would have plans within "weeks".
thesicktimes.org/2025/10/21/i...
thesicktimes.org/2025/10/21/i...
It’s been a month. And we still don’t know much about Kennedy’s Long COVID consortium. - The Sick Times
Preliminary meetings are occurring amid the ongoing government shutdown, while some advocates call for Health Secretary Kennedy’s removal
thesicktimes.org
November 25, 2025 at 5:59 PM
It's now been over two months, and we still don't have any updates from the federal government on RFK Jr.'s Long COVID Consortium. During the meeting the head of ARPA-H stated they would have plans within "weeks".
thesicktimes.org/2025/10/21/i...
thesicktimes.org/2025/10/21/i...
I signed a bedbound friend up for this a while back, and she's gotten like five or six cards! Highly recommend.
I got my chronic market newsletter this morning.
It is a great website. You can buy items from folks with MECFS and you can also sign up to have a letter sent to you if you need a pick me up.
chronic.market
It is a great website. You can buy items from folks with MECFS and you can also sign up to have a letter sent to you if you need a pick me up.
chronic.market
Chronic Market
chronic.market
November 25, 2025 at 6:37 PM
I signed a bedbound friend up for this a while back, and she's gotten like five or six cards! Highly recommend.
Reposted by Miranda
"Activist" is being purposely used by Sky News here to obscure the fact that Linehan had a violent outburst with a teenager.
Graham Linehan cleared of harassment but guilty of criminal damage to trans activist's phone
Graham Linehan cleared of harassment but guilty of criminal damage to trans activist's phone
Father Ted creator Graham Linehan has been found guilty of criminal damage to the phone of a trans activist but not guilty of harassment.
news.sky.com
November 25, 2025 at 12:18 PM
"Activist" is being purposely used by Sky News here to obscure the fact that Linehan had a violent outburst with a teenager.
I'm too tired to go digging for my "covid denialism and transphobia" thread, but here's another one I guess
![bluesky post by UnHerd @unherd.com
[Muted by "Quacks, Cranks, and Liars Block List"]
“'The People's CDC preserved the emotional realities of early 2021' | Ryan Zickgraf
[article: The last of the Covidians
Some people are living in the eternal 2020. Caption: Getty
unherd.com]”
Nov 24, 2025 at 4:00 AM](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:reatxkwxwfh2osvbkbxyjktg/bafkreih5sv6qu6iuqh5ejti3laac4zsvantkwjjn7ylnc26e24zcpuzuya@jpeg)
November 25, 2025 at 5:38 PM
I'm too tired to go digging for my "covid denialism and transphobia" thread, but here's another one I guess
Today in hell: Got told by insurance that the person I care for, who is bedbound with severe ME, should walk at least 30 minutes a day
November 25, 2025 at 4:38 PM
Today in hell: Got told by insurance that the person I care for, who is bedbound with severe ME, should walk at least 30 minutes a day
Incredible quote
The rationale behind these studies, Seltzer contests, is [that] “it presumes that the patient had never heard of exercise until a doctor told them [it] exists.”
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
“People who are performing these studies are extraordinarily ignorant, and their ignorance is dangerous,” said @exceedhergrasp1.bsky.social. She and other experts agree these trials are a waste of $$ and will not advance our biological understanding of Long COVID. thesicktimes.org/2025/11/21/l...
November 21, 2025 at 8:25 PM
Incredible quote
Reposted by Miranda
The only way to understand this is to realize that they are eugenicists.
To Survive the Next Pandemic, Walk More, the NIH Says
The agency is picking up Robert F. Kennedy Jr.’s argument that a healthy immune system can keep even pandemic germs at bay.
www.theatlantic.com
November 19, 2025 at 6:04 PM
The only way to understand this is to realize that they are eugenicists.
Reposted by Miranda
Not ready to talk about Alice yet.
For now, please share the eSims project she worked on with @pipagaopoetry.bsky.social and @thellpsx.bsky.social.
chuffed.org/project/crip...
For now, please share the eSims project she worked on with @pipagaopoetry.bsky.social and @thellpsx.bsky.social.
chuffed.org/project/crip...
Crips for eSims for Gaza
Crips for eSims for Gaza is a collaboration between Jane Shi, Leah Lakshmi Piepzna-Samarasinha, and Alice Wong.
chuffed.org
November 15, 2025 at 3:23 PM
Not ready to talk about Alice yet.
For now, please share the eSims project she worked on with @pipagaopoetry.bsky.social and @thellpsx.bsky.social.
chuffed.org/project/crip...
For now, please share the eSims project she worked on with @pipagaopoetry.bsky.social and @thellpsx.bsky.social.
chuffed.org/project/crip...
Journo request for trans caregivers ⤵️
November 18, 2025 at 10:35 PM
Journo request for trans caregivers ⤵️
Reposted by Miranda
I see a lot of people speculating about how Alice died and I am asking you to...please not do that. If her family wants to share information about that on their own time, they will, but the speculation and sometimes outright conspiracy theories are actually really upsetting for them to see.
November 17, 2025 at 4:27 PM
I see a lot of people speculating about how Alice died and I am asking you to...please not do that. If her family wants to share information about that on their own time, they will, but the speculation and sometimes outright conspiracy theories are actually really upsetting for them to see.
Reposted by Miranda
I get why it happens but goddamn do I wish anything could hit as hard on the timeline as something that sucks that everyone hates written by or about the worst person you know. I wish something good or interesting was able to get anywhere near the traction some shit that sucks does.
November 17, 2025 at 5:39 PM
I get why it happens but goddamn do I wish anything could hit as hard on the timeline as something that sucks that everyone hates written by or about the worst person you know. I wish something good or interesting was able to get anywhere near the traction some shit that sucks does.
Reposted by Miranda
those of us laid off from Teen Vogue were really fortunate to complete our fundraising goal — the laid-off staffers at VIBE deserve the same support, as Black media outlets and journalists continue to be targeted and discriminated against in “austerity” measures
It was announced on October 16, 2025 that VIBE was "joining forces" with Rolling Stone. As a result, the majority of VIBE employees were laid off. If you have the means to give, this team could use the support! www.gofundme.com/f/support-vi...
Donate to Support VIBE Staff After Sudden Layoffs, organized by Mya Abraham
It was announced on October 16, 2025 that VIBE was "joining forces" with Rolling S… Mya Abraham needs your support for Support VIBE Staff After Sudden Layoffs
www.gofundme.com
November 15, 2025 at 4:38 PM
those of us laid off from Teen Vogue were really fortunate to complete our fundraising goal — the laid-off staffers at VIBE deserve the same support, as Black media outlets and journalists continue to be targeted and discriminated against in “austerity” measures
Reposted by Miranda
May Leslie and Alice rest in peace. Thinking of their loved ones. They each clearly meant so much to so many people 🩷 I didn’t know them well but both were super encouraging about the podcast and that meant a lot to me. We will keep fighting for the future they were fighting for
November 15, 2025 at 6:26 PM
May Leslie and Alice rest in peace. Thinking of their loved ones. They each clearly meant so much to so many people 🩷 I didn’t know them well but both were super encouraging about the podcast and that meant a lot to me. We will keep fighting for the future they were fighting for
Reposted by Miranda
I know this isn’t what’s most important and maybe it’s bc I’m having trouble coping with my own health downturn but all I can think about is Teen Vogue firing her like a week and a half ago.
That was the last thing she talked about here.
That shouldn’t be what I’m remembering.
That was the last thing she talked about here.
That shouldn’t be what I’m remembering.
A real loss. Rest in power, Alice Wong.
November 15, 2025 at 6:48 AM
I know this isn’t what’s most important and maybe it’s bc I’m having trouble coping with my own health downturn but all I can think about is Teen Vogue firing her like a week and a half ago.
That was the last thing she talked about here.
That shouldn’t be what I’m remembering.
That was the last thing she talked about here.
That shouldn’t be what I’m remembering.
Thank you, Alice, for everything
November 15, 2025 at 6:48 AM
Thank you, Alice, for everything
Reposted by Miranda
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Alice Wong on Instagram: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it ...
423 likes, 73 comments - alicatsamurai on November 14, 2025: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the t...
www.instagram.com
November 15, 2025 at 5:57 AM
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
I don't think I ever met Leslie Lee III (which is a shame especially since he lived in my city), but I'm grateful to see these tributes to him. We are losing too many people. 🖤
As often the case he was more critical of that show than I was. I don’t want to say he was contrarian because that makes it sound like it was a deliberate stance but he had such a smart critical perspective. His analysis was always interesting and I’d leave smarter than I began. Donate if you can:
Donate to Support Leslie Lee III's Long COVID Recovery, organized by Leslie Lee III
Short version: I'm a teacher and writer seeking support for medical and ot… Leslie Lee III needs your support for Support Leslie Lee III's Long COVID Recovery
www.gofundme.com
November 15, 2025 at 1:09 AM
I don't think I ever met Leslie Lee III (which is a shame especially since he lived in my city), but I'm grateful to see these tributes to him. We are losing too many people. 🖤
Reposted by Miranda
Happy fall, everyone! 🍂 I am officially open to queries once again! If you've got something in my categories, please submit to my QM at querytracker.net/query/3926 !
Query GiannaMarie Dobson at Neighborhood Literary Agency
QueryTracker.net
November 14, 2025 at 7:57 PM
Happy fall, everyone! 🍂 I am officially open to queries once again! If you've got something in my categories, please submit to my QM at querytracker.net/query/3926 !
Reposted by Miranda
Waiting on hold. I want all my minutes back. What minutes? The minutes I spend on hold with doctor’s offices and pharmacies. It seriously adds up. #NEISVoid
November 13, 2025 at 1:49 PM
Waiting on hold. I want all my minutes back. What minutes? The minutes I spend on hold with doctor’s offices and pharmacies. It seriously adds up. #NEISVoid
Reposted by Miranda
remember when most of Congress went hard after Backpage in early 2018 but did nothing to actually help young people who are poor, homeless, and trying to get by
The woman whom the House Ethics Committee determined Matt Gaetz paid for sex when she was 17 years old was living in a homeless shelter, working at McDonald's, and needed the money for braces www.nytimes.com/2025/11/13/u...
November 13, 2025 at 8:55 PM
remember when most of Congress went hard after Backpage in early 2018 but did nothing to actually help young people who are poor, homeless, and trying to get by
Re Megyn Kelly--I'm surprised not to see more people talking about her infamous role in the Duggars' crisis PR tour. Of course she would do the same thing for Trump and Epstein
November 13, 2025 at 7:47 PM
Re Megyn Kelly--I'm surprised not to see more people talking about her infamous role in the Duggars' crisis PR tour. Of course she would do the same thing for Trump and Epstein
Reposted by Miranda
Please share everywhere!
Please help our friend @sndesireecha.bsky.social stay safe and with accessing documents she needs to find safer shelter.
Housing should be a human right but it isn't.
Desiree and her ESA deserve safety.
If you can't help, please share!
Please be a blessing to Desiree.
💖🌸❤️🌺🍓
Please help our friend @sndesireecha.bsky.social stay safe and with accessing documents she needs to find safer shelter.
Housing should be a human right but it isn't.
Desiree and her ESA deserve safety.
If you can't help, please share!
Please be a blessing to Desiree.
💖🌸❤️🌺🍓
today i was chased around, yelled at, and fear for my physical safety. still working on bureaucratic red tape that cannot be circumvented. i am trapped here.
please boost and share if you’re able. please help. thank you.
please boost and share if you’re able. please help. thank you.
we are homeless and fundraising for survival and certificate of citizenship.
please share. please help.
gofund.me/deec2a49d
please share. please help.
gofund.me/deec2a49d
October 28, 2025 at 11:13 PM
Please share everywhere!
Please help our friend @sndesireecha.bsky.social stay safe and with accessing documents she needs to find safer shelter.
Housing should be a human right but it isn't.
Desiree and her ESA deserve safety.
If you can't help, please share!
Please be a blessing to Desiree.
💖🌸❤️🌺🍓
Please help our friend @sndesireecha.bsky.social stay safe and with accessing documents she needs to find safer shelter.
Housing should be a human right but it isn't.
Desiree and her ESA deserve safety.
If you can't help, please share!
Please be a blessing to Desiree.
💖🌸❤️🌺🍓
Reposted by Miranda
hi, sooo I GOT HIRED FOR THE PERFECT JOB!!! 🫨🫨🫨🥳
however, it’s in atlanta so that means i have to be moved and settled by january 1st!
im gonna start cfing now for mainly housing costs since i have this eviction on my record *sigh*
chuffed: bit.ly/4gNd2fy
direct links: linktr.ee/adrianmica
however, it’s in atlanta so that means i have to be moved and settled by january 1st!
im gonna start cfing now for mainly housing costs since i have this eviction on my record *sigh*
chuffed: bit.ly/4gNd2fy
direct links: linktr.ee/adrianmica
help a black disabled trans man survive!
my name is adrian, and i am a black, disabled, trans man. i recently moved and i need help getting a bit more stable after months of homelessness. my 25th birthday is next month and i'd love to rest a...
bit.ly
November 12, 2025 at 4:40 AM
hi, sooo I GOT HIRED FOR THE PERFECT JOB!!! 🫨🫨🫨🥳
however, it’s in atlanta so that means i have to be moved and settled by january 1st!
im gonna start cfing now for mainly housing costs since i have this eviction on my record *sigh*
chuffed: bit.ly/4gNd2fy
direct links: linktr.ee/adrianmica
however, it’s in atlanta so that means i have to be moved and settled by january 1st!
im gonna start cfing now for mainly housing costs since i have this eviction on my record *sigh*
chuffed: bit.ly/4gNd2fy
direct links: linktr.ee/adrianmica
It absolutely won't happen so this is a great reminder that we need to keep fucking saying it anyway.
Earnest post: there is increasingly direct evidence that Trump participated in child sex trafficking or at least knew about it.
He should resign, be impeached and removed from office, and prosecuted.
Even if you don’t think that WILL happen it’s important to say publicly that it SHOULD happen.
He should resign, be impeached and removed from office, and prosecuted.
Even if you don’t think that WILL happen it’s important to say publicly that it SHOULD happen.
November 12, 2025 at 9:58 PM
It absolutely won't happen so this is a great reminder that we need to keep fucking saying it anyway.
Yes. Yes they are.
I think anyone who has been an underpaid executive assistant can attest to this, just as a general trend.
I think anyone who has been an underpaid executive assistant can attest to this, just as a general trend.
Seen a few of the epstein emails now, all with different people and it's not the main issue here but is everyone illiterate
November 12, 2025 at 7:36 PM
Yes. Yes they are.
I think anyone who has been an underpaid executive assistant can attest to this, just as a general trend.
I think anyone who has been an underpaid executive assistant can attest to this, just as a general trend.