Karen Scorer
@scorerruff.bsky.social
Occupational Therapist currently taking a hiatus from my clinical lead role. Now in a trainer role #autism #learningdisability. Balancing life with being Neurodivergent and having an immune system that attacks itself #axialSpA #ulcerativecolitis #uveitis
Reposted by Karen Scorer
Disabled people aren’t “choosing” to be sick.
They can’t “try harder” to be well.
It’s not about how hard we fight or whether we want it bad enough.
Disability is not a moral failing.
Many of us were just like you, until we weren’t.
Its one of the only minority groups you can join at any time
They can’t “try harder” to be well.
It’s not about how hard we fight or whether we want it bad enough.
Disability is not a moral failing.
Many of us were just like you, until we weren’t.
Its one of the only minority groups you can join at any time
June 21, 2025 at 4:53 AM
Disabled people aren’t “choosing” to be sick.
They can’t “try harder” to be well.
It’s not about how hard we fight or whether we want it bad enough.
Disability is not a moral failing.
Many of us were just like you, until we weren’t.
Its one of the only minority groups you can join at any time
They can’t “try harder” to be well.
It’s not about how hard we fight or whether we want it bad enough.
Disability is not a moral failing.
Many of us were just like you, until we weren’t.
Its one of the only minority groups you can join at any time
Reposted by Karen Scorer
“I Open My Own Front Door, Do You?” is a powerful campaign from Gloriously Ordinary Lives and Learning Disability England — all about rights, safety, and having real choice over where and how you live.
Read more about the campaign and blog from @tricianicoll.bsky.social here: tinyurl.com/25jvme4f
Read more about the campaign and blog from @tricianicoll.bsky.social here: tinyurl.com/25jvme4f
Gloriously Ordinary Sundays - 9th March 2025 — Gloriously Ordinary Lives
So, it's the end of the I Open My Own Front Door, Do You? campaign… well, the start of it, I guess, as this was the launch week - but don’t think it’s gone away. In this blog I reflect on a couple o...
tinyurl.com
June 12, 2025 at 8:47 AM
“I Open My Own Front Door, Do You?” is a powerful campaign from Gloriously Ordinary Lives and Learning Disability England — all about rights, safety, and having real choice over where and how you live.
Read more about the campaign and blog from @tricianicoll.bsky.social here: tinyurl.com/25jvme4f
Read more about the campaign and blog from @tricianicoll.bsky.social here: tinyurl.com/25jvme4f
Reposted by Karen Scorer
National Autism Trainer Programme (NATP)
Closing Conference
19 February 2025, 1230-1535
#NATPmentalhealth
In 2022, Anna Freud and AT-Autism joined forces to develop and deliver a ground-breaking autism trainer programme, commissioned by NHS England.
Follow along to find out what we learned.
🧵
Closing Conference
19 February 2025, 1230-1535
#NATPmentalhealth
In 2022, Anna Freud and AT-Autism joined forces to develop and deliver a ground-breaking autism trainer programme, commissioned by NHS England.
Follow along to find out what we learned.
🧵
February 19, 2025 at 12:22 PM
National Autism Trainer Programme (NATP)
Closing Conference
19 February 2025, 1230-1535
#NATPmentalhealth
In 2022, Anna Freud and AT-Autism joined forces to develop and deliver a ground-breaking autism trainer programme, commissioned by NHS England.
Follow along to find out what we learned.
🧵
Closing Conference
19 February 2025, 1230-1535
#NATPmentalhealth
In 2022, Anna Freud and AT-Autism joined forces to develop and deliver a ground-breaking autism trainer programme, commissioned by NHS England.
Follow along to find out what we learned.
🧵
Reposted by Karen Scorer
Am I missing something with the new NHS priorities? The only reference to people with learning disabilities is a reduction in mental health inpatient stays? Really? Have I just travelled back 30 years? Nothing about poor general health that causes people to die almost 30 years early? Health checks?
January 31, 2025 at 9:09 AM
Am I missing something with the new NHS priorities? The only reference to people with learning disabilities is a reduction in mental health inpatient stays? Really? Have I just travelled back 30 years? Nothing about poor general health that causes people to die almost 30 years early? Health checks?
Reposted by Karen Scorer
Alongside a mandate that promises a reduction in health inequalities and a move to prevention rather than treatment, this makes no sense.
Shocking that NHS planning guidance removes targets for Annual Learning Disability Health Checks
It’s hard enough to convince GPs to do these in many localities, let alone removing targets and accountability
@rthonwesstreeting.bsky.social this is the wrong move
www.england.nhs.uk/publication/...
It’s hard enough to convince GPs to do these in many localities, let alone removing targets and accountability
@rthonwesstreeting.bsky.social this is the wrong move
www.england.nhs.uk/publication/...
NHS England » 2025/26 priorities and operational planning guidance
NHS England » 2025/26 priorities and operational planning guidance
www.england.nhs.uk
January 31, 2025 at 3:22 PM
Alongside a mandate that promises a reduction in health inequalities and a move to prevention rather than treatment, this makes no sense.
Reposted by Karen Scorer
This puts how I feel into beautiful words. Being human, curious and simply "with" someone is unfortunately not valued by services pushing for results, progress and a near constant state of activity. We need to slow down and walk alongside the people we are working with 💚
"There’s no KPI for being with. No measure for being alongside. No time for being curious. No space for being human." Essential new year reading from @bryonyshannon.bsky.social
rewritingsocialcare.blog/2025/01/04/d...
rewritingsocialcare.blog/2025/01/04/d...
Doing and being
I feel fortunate and grateful to have had plenty of time for ‘just’ being over the last couple of weeks. Getting up when I’m ready rather than when the alarm wakes me. Enjoying time with family and…
rewritingsocialcare.blog
January 4, 2025 at 12:18 PM
This puts how I feel into beautiful words. Being human, curious and simply "with" someone is unfortunately not valued by services pushing for results, progress and a near constant state of activity. We need to slow down and walk alongside the people we are working with 💚
Reposted by Karen Scorer
I was today years old when I learned about the Mankoski Pain Scale, which would’ve been so helpful to have access to on countless ER trips/hospital stays.
#audhd #mankoskipainscale #health #neurodivergent #advocacy #selfhelp #spoons #spoonie #hospital #er
#audhd #mankoskipainscale #health #neurodivergent #advocacy #selfhelp #spoons #spoonie #hospital #er
December 22, 2024 at 2:40 PM
I was today years old when I learned about the Mankoski Pain Scale, which would’ve been so helpful to have access to on countless ER trips/hospital stays.
#audhd #mankoskipainscale #health #neurodivergent #advocacy #selfhelp #spoons #spoonie #hospital #er
#audhd #mankoskipainscale #health #neurodivergent #advocacy #selfhelp #spoons #spoonie #hospital #er
New hip day for the teenage boy 😬
December 19, 2024 at 10:41 AM
New hip day for the teenage boy 😬
Reposted by Karen Scorer
Imagine if every branch of Waitrose or Tesco could choose its own IT systems. That is effectively what we have in the NHS with hospitals and Integrated Care Boards selecting the systems they use locally. This leads to numerous problems in trying to deliver health services.
December 5, 2024 at 10:23 AM
Imagine if every branch of Waitrose or Tesco could choose its own IT systems. That is effectively what we have in the NHS with hospitals and Integrated Care Boards selecting the systems they use locally. This leads to numerous problems in trying to deliver health services.
Reposted by Karen Scorer
Everyone has their own preferred way of communicating. We have free, open-source, downloadable resources to support Autistic adults in advocating for their workplace, healthcare, and family needs.
Find out more:
www.thrivingautistic.org/resources-fo...
Find out more:
www.thrivingautistic.org/resources-fo...
December 5, 2024 at 6:55 AM
Everyone has their own preferred way of communicating. We have free, open-source, downloadable resources to support Autistic adults in advocating for their workplace, healthcare, and family needs.
Find out more:
www.thrivingautistic.org/resources-fo...
Find out more:
www.thrivingautistic.org/resources-fo...
Reposted by Karen Scorer
Reposted by Karen Scorer
ND adults, please help me with some research for my next book. I want to hear about your experiences of burnout as a neurodivergent adult (esp when autistic, ADHD, PDA, AuDHD)
docs.google.com/forms/d/1OyE...
docs.google.com/forms/d/1OyE...
Experiences of neurodivergent burnout
Every ND individual’s experience of burnout can be different and that is linked to your personal profile, neurotype, differences, etc. Please use this form to anonymously describe your experiences of...
docs.google.com
November 23, 2024 at 12:43 PM
ND adults, please help me with some research for my next book. I want to hear about your experiences of burnout as a neurodivergent adult (esp when autistic, ADHD, PDA, AuDHD)
docs.google.com/forms/d/1OyE...
docs.google.com/forms/d/1OyE...
Reposted by Karen Scorer
The Autistic Burnout Conference 2025 is coming your way. Date TBC.
To be kept updated register here www.autisticadvocate.co.uk/autistic-bur...
To be kept updated register here www.autisticadvocate.co.uk/autistic-bur...
November 15, 2024 at 6:16 PM
The Autistic Burnout Conference 2025 is coming your way. Date TBC.
To be kept updated register here www.autisticadvocate.co.uk/autistic-bur...
To be kept updated register here www.autisticadvocate.co.uk/autistic-bur...
Out of office on for a few days and a slower pace to December planned. It’s been full on at work delivering training and recruiting and now it’s time to focus on my most important role as Mum. 16 year old has tests and procedures to make sure all is ready for his total hip replacement.
December 4, 2024 at 2:14 PM
Out of office on for a few days and a slower pace to December planned. It’s been full on at work delivering training and recruiting and now it’s time to focus on my most important role as Mum. 16 year old has tests and procedures to make sure all is ready for his total hip replacement.
Reposted by Karen Scorer
Is it possible that the increase in demand for ND assessments, which outstrip supply, is not in fact because of "misleading discussion on social media", but due to the decades of under-diagnosis leading to insufficient service provision?
Surely not!
#DarziReport
Surely not!
#DarziReport
September 13, 2024 at 10:07 AM
Is it possible that the increase in demand for ND assessments, which outstrip supply, is not in fact because of "misleading discussion on social media", but due to the decades of under-diagnosis leading to insufficient service provision?
Surely not!
#DarziReport
Surely not!
#DarziReport
Reposted by Karen Scorer
If you aren’t sure how to make (or didn’t know about making) your posts here on @bsky.app work for disabled folks, here’s A Guide to Basic Accessibility on Social Media with Easy, Actionable Ways to Make Your Content More Inclusive. From Access Living:
www.accessliving.org/newsroom/gui...
www.accessliving.org/newsroom/gui...
Guide: Basic Accessibility on Social Media - Access Living
Easy, Actionable Ways to Make Your Content More Inclusive Social media tools and channels change fast (RIP Vine), which means that guides on how to use their various features can […]
www.accessliving.org
November 26, 2024 at 11:38 PM
If you aren’t sure how to make (or didn’t know about making) your posts here on @bsky.app work for disabled folks, here’s A Guide to Basic Accessibility on Social Media with Easy, Actionable Ways to Make Your Content More Inclusive. From Access Living:
www.accessliving.org/newsroom/gui...
www.accessliving.org/newsroom/gui...
Reposted by Karen Scorer
While it may look like you go from 0-100 instantaneously. You were never at 0. There is no 0. You're running beyond 100 and trying to keep it all under control.
Are you 'over reacting' to something innocuous?
No. You are running far beyond capacity. You are reacting to everything. All at once.
Are you 'over reacting' to something innocuous?
No. You are running far beyond capacity. You are reacting to everything. All at once.
November 28, 2024 at 9:43 AM
While it may look like you go from 0-100 instantaneously. You were never at 0. There is no 0. You're running beyond 100 and trying to keep it all under control.
Are you 'over reacting' to something innocuous?
No. You are running far beyond capacity. You are reacting to everything. All at once.
Are you 'over reacting' to something innocuous?
No. You are running far beyond capacity. You are reacting to everything. All at once.
Reposted by Karen Scorer
I definitely recommend following @sedsconnective.bsky.social and @jgjanegreenmbe.bsky.social for great resources on #Hypermobility, Ehler's Danlos Syndrome #EDS and neurodivergency
We’re the foremost leading charity for #hypermobility neurodivergence sedsconnective.org
#Neurodivergence / #neurodivergent is having a brain that behaves, learns and processes differently from the neuromajority.
#Neurodivergence / #neurodivergent is having a brain that behaves, learns and processes differently from the neuromajority.
November 26, 2024 at 5:32 PM
I definitely recommend following @sedsconnective.bsky.social and @jgjanegreenmbe.bsky.social for great resources on #Hypermobility, Ehler's Danlos Syndrome #EDS and neurodivergency
Reposted by Karen Scorer
New post from the much missed on social media Prof Hatton... chrishatton.blogspot.com/2024/11/soci...
Social care statistics and adults with learning disabilities in England - 2023/24 update
Every year NHS Digital (now absorbed into NHS England) publish statistics collected by councils related to social care and adults with learn...
chrishatton.blogspot.com
November 25, 2024 at 10:56 AM
New post from the much missed on social media Prof Hatton... chrishatton.blogspot.com/2024/11/soci...
Reposted by Karen Scorer
Back on bsky. Please follow or point me to accounts #hypermobility #eds #autism #adhd #brain-body. WATCH THIS SPACE for super exciting #research due to be published soon from our group at BSMS @lisaquadt.bsky.social @sedsconnective.bsky.social @hmsacharity.bsky.social @sarahgarf.bsky.social
November 24, 2024 at 1:22 PM
Back on bsky. Please follow or point me to accounts #hypermobility #eds #autism #adhd #brain-body. WATCH THIS SPACE for super exciting #research due to be published soon from our group at BSMS @lisaquadt.bsky.social @sedsconnective.bsky.social @hmsacharity.bsky.social @sarahgarf.bsky.social
Reposted by Karen Scorer
Can't find an England/Wales equivalent to the 'Tell us what you think about the Assisted Dying for Terminally Ill Adults
(Scotland) Bill?' for people with Learning Disabilities? Have I missed it?
Does anyone know what the Scottish findings were?
www.parliament.scot/-/media/File...
(Scotland) Bill?' for people with Learning Disabilities? Have I missed it?
Does anyone know what the Scottish findings were?
www.parliament.scot/-/media/File...
www.parliament.scot
November 24, 2024 at 12:39 PM
Can't find an England/Wales equivalent to the 'Tell us what you think about the Assisted Dying for Terminally Ill Adults
(Scotland) Bill?' for people with Learning Disabilities? Have I missed it?
Does anyone know what the Scottish findings were?
www.parliament.scot/-/media/File...
(Scotland) Bill?' for people with Learning Disabilities? Have I missed it?
Does anyone know what the Scottish findings were?
www.parliament.scot/-/media/File...
Reposted by Karen Scorer
Note: check context because "Learning Disability" means different things in UK and US English and can cause confusion.
In the US, a Learning Disability would be called a Learning *Difficulty* in the UK.
In the UK, a Learning Disability (LD) is referred to in the US as Intellectual Disability (ID).
In the US, a Learning Disability would be called a Learning *Difficulty* in the UK.
In the UK, a Learning Disability (LD) is referred to in the US as Intellectual Disability (ID).
November 23, 2024 at 1:27 PM
Note: check context because "Learning Disability" means different things in UK and US English and can cause confusion.
In the US, a Learning Disability would be called a Learning *Difficulty* in the UK.
In the UK, a Learning Disability (LD) is referred to in the US as Intellectual Disability (ID).
In the US, a Learning Disability would be called a Learning *Difficulty* in the UK.
In the UK, a Learning Disability (LD) is referred to in the US as Intellectual Disability (ID).
Reposted by Karen Scorer
How I Communicate explores the communication of minimally/non-speaking autistic young people aged 13 - 21. We need:
✅ Parents/carers of minimally/non-speaking autistic people 13 - 21 who
✅ Attend a UK education setting to
✅Take part in an online focus group
Info below 👇 #Autismresearch
Please share!
✅ Parents/carers of minimally/non-speaking autistic people 13 - 21 who
✅ Attend a UK education setting to
✅Take part in an online focus group
Info below 👇 #Autismresearch
Please share!
November 23, 2024 at 9:35 AM
How I Communicate explores the communication of minimally/non-speaking autistic young people aged 13 - 21. We need:
✅ Parents/carers of minimally/non-speaking autistic people 13 - 21 who
✅ Attend a UK education setting to
✅Take part in an online focus group
Info below 👇 #Autismresearch
Please share!
✅ Parents/carers of minimally/non-speaking autistic people 13 - 21 who
✅ Attend a UK education setting to
✅Take part in an online focus group
Info below 👇 #Autismresearch
Please share!
Reposted by Karen Scorer
Why are new things potentially tricky for autistic people?
A thread (the first I've done for years and years)
#neurodiversity #autistic
A thread (the first I've done for years and years)
#neurodiversity #autistic
November 23, 2024 at 9:21 AM
Why are new things potentially tricky for autistic people?
A thread (the first I've done for years and years)
#neurodiversity #autistic
A thread (the first I've done for years and years)
#neurodiversity #autistic
Son’s total hip replacement is feeling real now. Scans tomorrow in preparation for surgery. He’s only 16 and needle/medical procedure phobic. He’s only 16 but 6ft2 and strong willed, wish me luck keeping him of the mindset it will be worth it and it needs to happen.
November 21, 2024 at 8:56 PM
Son’s total hip replacement is feeling real now. Scans tomorrow in preparation for surgery. He’s only 16 and needle/medical procedure phobic. He’s only 16 but 6ft2 and strong willed, wish me luck keeping him of the mindset it will be worth it and it needs to happen.