Ezra S
@ezra.zone
1.9K followers 560 following 790 posts
creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
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ezra.zone
today is the three-year anniversary of the covid infection that turned into long covid. it has completely rewritten the course of my life. it has brought me untold levels of physical suffering. it has devastated my mental health.
Reposted by Ezra S
devinlane.com
In addition to being a software engineer I've been a musician and guitar teacher for 15+ years.

I'm growing my lessons business into an online music school and we're launching our first offering with one of my fav teachers:

"Write a song using music theory"

lightninglessons.com/classes/writ...
Flyer for online music theory songwriting workshop. Text reads:

Songwriting class, Lightning Lessons
Write a song using music theory
Virtual group workshop on Zoom
Register now at lightninglessons.com

An outline drawing of two teens dancing in a 50s Archie style
Reposted by Ezra S
julialmv.bsky.social
"I know my dad had a hard time understanding. He thought I was just making it up, like, ‘Oh, she’s making it up, she’s not really feeling bad,’ and so on."

"I don’t really dare to have dreams anymore…my first goal or dream is to get better."

bmcpediatr.biomedcentral.com/articles/10....

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Experiences of living with long COVID during childhood and adolescence: a qualitative study from the child’s perspective - BMC Pediatrics
Background In February 2023, the World Health Organization (WHO) defined long COVID in children, highlighting limited knowledge about its psychosocial impact. Studies show it as a complex, long-lasting condition affecting multiple systems. WHO and researchers emphasise the need for more understanding, particularly its effect on daily life. The aim of this study was to explore how life is experienced and how it changed whilst living with long COVID during childhood. Methods We present a qualitative study with an inductive and exploratory approach. Between October 2022 and March 2024, 16 children between 9 and 18 years old diagnosed with long COVID were interviewed face-to-face using a semi-structured interview guide. The results were analysed using reflexive thematic analysis by Braun and Clarke. Results The results present the subjective reality of children suffering from long COVID and their struggle in daily life. The findings are presented through three themes: Losing my foothold, Fatigue decides my path, and My way forward, illustrating a temporal and emotional journey, reflecting how children make sense of their experiences, adapt to the persistent impact of long COVID, and gradually move toward acceptance. Conclusions This study addresses the lack of knowledge of long COVID in the society, how it affects children in their struggle to find a new path in life. It also shows that, with knowledge and support, the symptoms and the burden of the condition can decrease or even pass. It is important that people around these children, including health care, school and family, use this knowledge to promote health and avoid educational, health and social problems at a vulnerable time in life.
bmcpediatr.biomedcentral.com
Reposted by Ezra S
julialmv.bsky.social
This qualitative study of LC in children and adolescents includes heartbreaking quotes like:

"The friends she had before are not there anymore because, as she puts it: 'they got tired of me not being able to do so much anymore.' "

bmcpediatr.biomedcentral.com/articles/10....

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Experiences of living with long COVID during childhood and adolescence: a qualitative study from the child’s perspective - BMC Pediatrics
Background In February 2023, the World Health Organization (WHO) defined long COVID in children, highlighting limited knowledge about its psychosocial impact. Studies show it as a complex, long-lasting condition affecting multiple systems. WHO and researchers emphasise the need for more understanding, particularly its effect on daily life. The aim of this study was to explore how life is experienced and how it changed whilst living with long COVID during childhood. Methods We present a qualitative study with an inductive and exploratory approach. Between October 2022 and March 2024, 16 children between 9 and 18 years old diagnosed with long COVID were interviewed face-to-face using a semi-structured interview guide. The results were analysed using reflexive thematic analysis by Braun and Clarke. Results The results present the subjective reality of children suffering from long COVID and their struggle in daily life. The findings are presented through three themes: Losing my foothold, Fatigue decides my path, and My way forward, illustrating a temporal and emotional journey, reflecting how children make sense of their experiences, adapt to the persistent impact of long COVID, and gradually move toward acceptance. Conclusions This study addresses the lack of knowledge of long COVID in the society, how it affects children in their struggle to find a new path in life. It also shows that, with knowledge and support, the symptoms and the burden of the condition can decrease or even pass. It is important that people around these children, including health care, school and family, use this knowledge to promote health and avoid educational, health and social problems at a vulnerable time in life.
bmcpediatr.biomedcentral.com
Reposted by Ezra S
rusty.todayintabs.com
she cooked with that second post
chibdm.bsky.social
Robin Williams' daughter has some quality thoughts on AI slop
Reposted by Ezra S
chromatowski.bsky.social
Want to pull out this slide: people deserve to know there’s a growing mountain of evidence finding more Covid infections = more likelihood of being left chronically ill.

There’s a temptation to think that if you recovered ok last time, then you will next time too, but that’s not what the data say.
Researchers in Spain assessed over 190,000 participants, using data from a public health research network, in a study published in the journal Vaccines. They found that Long COVID prevalence was three to 10 times higher in individuals with three or more reported infections (about 600 people in the dataset) than in those with only one infection. 

They also found that the number of thrombotic events, including strokes and pulmonary embolisms, in people under 60 doubled from 2020 to 2024, in both people who were and weren’t vaccinated. The authors concluded that policymakers should prevent the spread of SARS-CoV-2 and that healthcare workers should continue wearing protective masks.
ezra.zone
thinking about all the time my friends in government had to spend in Hatch Act trainings only for it to all have been a farce all along.
Reposted by Ezra S
marisakabas.bsky.social
Someone should write an obituary for the Hatch Act.
Reposted by Ezra S
kenwhite.bsky.social
Every few months now I re-read this "Who Goes Nazi?" piece from 1941 and am blown away by how it captures the people we are dealing with 80 years later.

harpers.org/archive/1941...
Who Goes Nazi?, by Dorothy Thompson
harpers.org
Reposted by Ezra S
juliametraux.bsky.social
This Disability Employment Awareness Month, I'm going to judge companies that are aggressively rolling back work from home.
ezra.zone
rusty's stoveposting on main
rusty.todayintabs.com
Help, my house, it is AI now
A gray blue induction stove with a lot of brass knobs and brass oven trim
ezra.zone
Really fascinating article about how technology changes have affected radiology - not always in the ways you’d assume!
ezra.zone
We are failing generations of children.
Reposted by Ezra S
erictopol.bsky.social
The accompanying editorial tells the sad truth that is largely being ignored
www.thelancet.com/journals/lan...
Reposted by Ezra S
erictopol.bsky.social
Children and teens who had a Covid reinfection had a doubling of #LongCovid risk (PASC) and a significant increase in many other adverse outcomes (Figure) www.thelancet.com/journals/lan...
ezra.zone
That has been my experience recently, too.
ezra.zone
these people literally send me ads by email. scum.
Reposted by Ezra S
juliekliegman.com
This is a good, clear story from @juliametraux.bsky.social about what ”able-bodied” actually means and how it’s being abused by the White House
The deceptive phrase behind Trump's Medicaid purge
How the idea of “able-bodied” is abused
www.motherjones.com
Reposted by Ezra S
jesseltaylor.bsky.social
the sinclair charlie kirk tribute has 71K views nine days after it was supposed to preempt jimmy kimmel

by comparison, this antique toaster restoration video has 102K views after one day
111 Years Old Antique Toaster Restoration
YouTube video by Odd Tinkering
www.youtube.com
ezra.zone
shoutout to cheeseboard green sauce
Reposted by Ezra S
cabel.panic.com
just in case you’re curious what the scene is like RIGHT NOW at the war ravaged ICE building here in portland.

chilling
wyden.senate.gov
Taken just a few minutes ago outside the ICE facility in Portland that Trump claims is under siege. My message to Donald Trump is this: we don’t need you here. Stay the hell out of our city.