Dan the LC Kiwi
@longcovidkiwi.bsky.social
Kiwi/New Zealander 🇳🇿 with #LongCovid (since 01/06/2022). Former Ophthalmic Technician 👨⚕️.
Here to keep up with LC advocacy, LC news, and LC research updates. 📰😷🌏🩻❤️🩹🔬🥼
Here to keep up with LC advocacy, LC news, and LC research updates. 📰😷🌏🩻❤️🩹🔬🥼
Pinned
First Post:
Well, I’m finally in the process of leaving that “other place” (same @).
Hopeful that this platform is a better place (for me) to connect with the Long COVID community.
#LongCOVID #FBLC #Community
Well, I’m finally in the process of leaving that “other place” (same @).
Hopeful that this platform is a better place (for me) to connect with the Long COVID community.
#LongCOVID #FBLC #Community
Reposted by Dan the LC Kiwi
No one chooses to be disabled or chronically ill.
It’s not a moral failing.
People blame the disabled because it makes them feel morally superior.
They can tell themselves it’ll never happen to them.
It can happen to anyone. It’s a minority group you can join at any time.
It’s not a moral failing.
People blame the disabled because it makes them feel morally superior.
They can tell themselves it’ll never happen to them.
It can happen to anyone. It’s a minority group you can join at any time.
December 30, 2025 at 5:11 AM
No one chooses to be disabled or chronically ill.
It’s not a moral failing.
People blame the disabled because it makes them feel morally superior.
They can tell themselves it’ll never happen to them.
It can happen to anyone. It’s a minority group you can join at any time.
It’s not a moral failing.
People blame the disabled because it makes them feel morally superior.
They can tell themselves it’ll never happen to them.
It can happen to anyone. It’s a minority group you can join at any time.
Reposted by Dan the LC Kiwi
Glasgow Times: 'Glasgow dad reveals four-year battle with Long Covid'
'A Glasgow man has revealed his daily battle with Long Covid four years on from testing positive for coronavirus.'
www.glasgowtimes.co.uk/news/2570674...
'A Glasgow man has revealed his daily battle with Long Covid four years on from testing positive for coronavirus.'
www.glasgowtimes.co.uk/news/2570674...
'The loneliness is the worst': Glasgow dad reveals four-year battle with Long Covid
A Glasgow man has revealed his daily battle with Long Covid four years on from testing positive for coronavirus.
www.glasgowtimes.co.uk
December 29, 2025 at 4:14 PM
Glasgow Times: 'Glasgow dad reveals four-year battle with Long Covid'
'A Glasgow man has revealed his daily battle with Long Covid four years on from testing positive for coronavirus.'
www.glasgowtimes.co.uk/news/2570674...
'A Glasgow man has revealed his daily battle with Long Covid four years on from testing positive for coronavirus.'
www.glasgowtimes.co.uk/news/2570674...
This year was my 4th Christmas with Long COVID. I am struggling to even put into words how hopeless I feel. #LongCOVID
December 29, 2025 at 8:37 AM
This year was my 4th Christmas with Long COVID. I am struggling to even put into words how hopeless I feel. #LongCOVID
@ricksteves.bsky.social is one of the good guys. Thank you Mr Steves. The world needs more people like you.
It’s the “season of love and giving”…but this year, doesn’t it seem more like a “season of fear and taking”? Like many of you, I’ve been saddened by the human impact of draconian government budget cuts and how angry many housed Americans are at unhoused Americans.
🧵 1 of 9
🧵 1 of 9
December 21, 2025 at 8:34 PM
@ricksteves.bsky.social is one of the good guys. Thank you Mr Steves. The world needs more people like you.
Reposted by Dan the LC Kiwi
my long covid wrapped be like "you took 22,147 pills this year"
December 17, 2025 at 1:44 AM
my long covid wrapped be like "you took 22,147 pills this year"
Reposted by Dan the LC Kiwi
1/
A large film production is underway in #Whitehorse, indoors, with temps currently around -34 degrees C.
Over the last couple of weeks, there have been at least 3x clusters of illness on this shoot (unnamed/untested) -
www.thecanary.co/global/world...
A large film production is underway in #Whitehorse, indoors, with temps currently around -34 degrees C.
Over the last couple of weeks, there have been at least 3x clusters of illness on this shoot (unnamed/untested) -
www.thecanary.co/global/world...
Tom Hanks on mask wearing: "I’ve had COVID enough in my life”
Tom Hanks has joined a growing movement of COVID-conscious artists who are openly speaking up about the threats of the disease
www.thecanary.co
December 9, 2025 at 6:34 PM
1/
A large film production is underway in #Whitehorse, indoors, with temps currently around -34 degrees C.
Over the last couple of weeks, there have been at least 3x clusters of illness on this shoot (unnamed/untested) -
www.thecanary.co/global/world...
A large film production is underway in #Whitehorse, indoors, with temps currently around -34 degrees C.
Over the last couple of weeks, there have been at least 3x clusters of illness on this shoot (unnamed/untested) -
www.thecanary.co/global/world...
I had another #Covidversary on 01 December 2025: 3 years and 6 months battling #LongCovid.
I still find it hard to believe that so much time has passed. Crazy.
I still find it hard to believe that so much time has passed. Crazy.
December 2, 2025 at 5:42 AM
I had another #Covidversary on 01 December 2025: 3 years and 6 months battling #LongCovid.
I still find it hard to believe that so much time has passed. Crazy.
I still find it hard to believe that so much time has passed. Crazy.
Reposted by Dan the LC Kiwi
Chicago Reader: 'After a diagnosis of long COVID, cellist Joshua Roman builds community around Immunity'
'His Chicago appearance on December 7 at the Arbory..it’s intended first and foremost for audience members living with long COVID and other chronic illnesses'
chicagoreader.com/music/concer...
'His Chicago appearance on December 7 at the Arbory..it’s intended first and foremost for audience members living with long COVID and other chronic illnesses'
chicagoreader.com/music/concer...
After a diagnosis of long COVID, cellist Joshua Roman builds community around Immunity - Chicago Reader
The concert is free to all with an RSVP, but it’s intended first and foremost for audience members living with long COVID and other chronic illnesses.
chicagoreader.com
December 1, 2025 at 10:30 PM
Chicago Reader: 'After a diagnosis of long COVID, cellist Joshua Roman builds community around Immunity'
'His Chicago appearance on December 7 at the Arbory..it’s intended first and foremost for audience members living with long COVID and other chronic illnesses'
chicagoreader.com/music/concer...
'His Chicago appearance on December 7 at the Arbory..it’s intended first and foremost for audience members living with long COVID and other chronic illnesses'
chicagoreader.com/music/concer...
Reposted by Dan the LC Kiwi
'Australian study tracks ties between Long COVID, disabling conditions'
'A total of 86 percent of those with Long COVID met the threshold for serious disability compared with 9 percent of Australians overall.'
accesspress.org/australian-s...
'A total of 86 percent of those with Long COVID met the threshold for serious disability compared with 9 percent of Australians overall.'
accesspress.org/australian-s...
Australian study tracks ties between Long COVID, disabling conditions | Access Press
When most people think of COVID now, they picture a short illness like a cold – a few days of […]
accesspress.org
December 1, 2025 at 1:11 PM
'Australian study tracks ties between Long COVID, disabling conditions'
'A total of 86 percent of those with Long COVID met the threshold for serious disability compared with 9 percent of Australians overall.'
accesspress.org/australian-s...
'A total of 86 percent of those with Long COVID met the threshold for serious disability compared with 9 percent of Australians overall.'
accesspress.org/australian-s...
Reposted by Dan the LC Kiwi
Yale Medicine: Quick Question: Do We Know What Causes Long COVID?
Iwasaki: "There’s been so much progress that’s been made in this area of Long COVID research...there are hypotheses that we’re testing..both at the basic science level and..through..clinical trials'
medicine.yale.edu/news-article...
Iwasaki: "There’s been so much progress that’s been made in this area of Long COVID research...there are hypotheses that we’re testing..both at the basic science level and..through..clinical trials'
medicine.yale.edu/news-article...
Quick Question: Do We Know What Causes Long COVID?
During an interview on the Health & Veritas podcast, Akiko Iwasaki, PhD, discussed post-acute infection syndromes, like Long COVID, and what we’re learning
medicine.yale.edu
December 1, 2025 at 4:30 PM
Yale Medicine: Quick Question: Do We Know What Causes Long COVID?
Iwasaki: "There’s been so much progress that’s been made in this area of Long COVID research...there are hypotheses that we’re testing..both at the basic science level and..through..clinical trials'
medicine.yale.edu/news-article...
Iwasaki: "There’s been so much progress that’s been made in this area of Long COVID research...there are hypotheses that we’re testing..both at the basic science level and..through..clinical trials'
medicine.yale.edu/news-article...
Reposted by Dan the LC Kiwi
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
substack.com
November 23, 2025 at 6:23 PM
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
Reposted by Dan the LC Kiwi
VICE: “A New Study Could Explain Why Long COVID Lingers for So Many”
“Turns out the problem might be microscopic—and everywhere.”
www.vice.com/en/article/a...
“Turns out the problem might be microscopic—and everywhere.”
www.vice.com/en/article/a...
A New Study Could Explain Why Long COVID Lingers for So Many
A long COVID microclots study suggests your lingering brain fog and exhaustion might come down to microscopic clots that just won’t quit.
www.vice.com
November 19, 2025 at 3:56 AM
VICE: “A New Study Could Explain Why Long COVID Lingers for So Many”
“Turns out the problem might be microscopic—and everywhere.”
www.vice.com/en/article/a...
“Turns out the problem might be microscopic—and everywhere.”
www.vice.com/en/article/a...
Reposted by Dan the LC Kiwi
“Quiet, Piggy” would be fitting for his tombstone.
November 19, 2025 at 1:10 AM
“Quiet, Piggy” would be fitting for his tombstone.
As someone who is on SLP, thank you @drbex.bsky.social for writing this. It is time changes were made.
What if we did tho, what if we didn’t means test disabled people on the SLP and just paid it like we do for NZ Super? Not related to your partner’s income, not related to your income, and just, well, supported people?!
#nzpol
open.substack.com/pub/drbex/p/...
#nzpol
open.substack.com/pub/drbex/p/...
What if we paid the Supported Living Payment like we pay the pension?
A simple policy change that could dramatically lift disabled households out of poverty
open.substack.com
November 5, 2025 at 5:57 AM
As someone who is on SLP, thank you @drbex.bsky.social for writing this. It is time changes were made.
Reposted by Dan the LC Kiwi
ABC Net: 'Nurse among patients calling for better access to long COVID treatment'
'A Melbourne-based long COVID specialist says there's a long way to go in improving treatment for patients'
www.abc.net.au/news/2025-11...
'A Melbourne-based long COVID specialist says there's a long way to go in improving treatment for patients'
www.abc.net.au/news/2025-11...
Long COVID patients seeking help 'let down by the system'
Patients are calling for better access to long COVID care after the closure of one of the country's last public clinics.
www.abc.net.au
November 1, 2025 at 3:46 PM
ABC Net: 'Nurse among patients calling for better access to long COVID treatment'
'A Melbourne-based long COVID specialist says there's a long way to go in improving treatment for patients'
www.abc.net.au/news/2025-11...
'A Melbourne-based long COVID specialist says there's a long way to go in improving treatment for patients'
www.abc.net.au/news/2025-11...
Reposted by Dan the LC Kiwi
" #LongCOVID is underdiagnosed, researchers say, and there’s work to be done to change that":
www.cbc.ca/player/play/...
www.cbc.ca/player/play/...
Long COVID is underdiagnosed, researchers say, and there’s work to be done to change that
St. John’s hosted the 2025 Canadian Symposium on Long COVID earlier this month, a gathering of top researchers, clinicians, and people living with long COVID. As the CBC’s Adam Walsh reports, those on...
www.cbc.ca
November 1, 2025 at 2:44 PM
" #LongCOVID is underdiagnosed, researchers say, and there’s work to be done to change that":
www.cbc.ca/player/play/...
www.cbc.ca/player/play/...
Reposted by Dan the LC Kiwi
Remember each individual with MCAS is different and every single one of these doesn’t apply to everyone. For example, some people react very badly to many food triggers, others only have a few food triggers.
November 2, 2025 at 12:50 AM
Remember each individual with MCAS is different and every single one of these doesn’t apply to everyone. For example, some people react very badly to many food triggers, others only have a few food triggers.
Reposted by Dan the LC Kiwi
Medscape report on the IACFS/ME conference that took place last week:
"No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
www.medscape.com/viewarticle/...
No mention of new data from new treatment trials here
#MEcfs #CFS #PwME
"No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
www.medscape.com/viewarticle/...
No mention of new data from new treatment trials here
#MEcfs #CFS #PwME
November 1, 2025 at 8:32 PM
Medscape report on the IACFS/ME conference that took place last week:
"No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
www.medscape.com/viewarticle/...
No mention of new data from new treatment trials here
#MEcfs #CFS #PwME
"No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
www.medscape.com/viewarticle/...
No mention of new data from new treatment trials here
#MEcfs #CFS #PwME
Reposted by Dan the LC Kiwi
🏀 NBA player Kristaps Porziņģis said he was diagnosed with #POTS
COVID-19 has led to an enormous rise in cases, since POTS can be triggered by infections, but most mainstream media omitted any mention of COVID while contextualizing POTS in articles about Porziņģis.
thesicktimes.org/2025/10/25/n...
COVID-19 has led to an enormous rise in cases, since POTS can be triggered by infections, but most mainstream media omitted any mention of COVID while contextualizing POTS in articles about Porziņģis.
thesicktimes.org/2025/10/25/n...
NBA player Kristaps Porziņģis shares POTS diagnosis - The Sick Times
Earlier this week, professional basketball player Kristaps Porziņģis shared his diagnosis of postural orthostatic tachycardia syndrome (POTS). The 30-year-old player began facing severe health challen...
thesicktimes.org
October 25, 2025 at 7:50 PM
🏀 NBA player Kristaps Porziņģis said he was diagnosed with #POTS
COVID-19 has led to an enormous rise in cases, since POTS can be triggered by infections, but most mainstream media omitted any mention of COVID while contextualizing POTS in articles about Porziņģis.
thesicktimes.org/2025/10/25/n...
COVID-19 has led to an enormous rise in cases, since POTS can be triggered by infections, but most mainstream media omitted any mention of COVID while contextualizing POTS in articles about Porziņģis.
thesicktimes.org/2025/10/25/n...
Reposted by Dan the LC Kiwi
If you are fed up with social media suppressing info on Covid, other viruses and Long Covid, give this a like and repost. Let's make our voices be heard LOUD and clear all across everyone's feed!!
October 22, 2025 at 11:16 PM
If you are fed up with social media suppressing info on Covid, other viruses and Long Covid, give this a like and repost. Let's make our voices be heard LOUD and clear all across everyone's feed!!
Reposted by Dan the LC Kiwi
Only 20 years old
A sobering reminder that Covid is still with us, still killing & disabling
You may have gone “back to normal” but repeat infections just increase the risk
It’s a multi system vascular virus & ignoring it has devastating consequences
Get boosted. Wear a respirator. Clean the air
A sobering reminder that Covid is still with us, still killing & disabling
You may have gone “back to normal” but repeat infections just increase the risk
It’s a multi system vascular virus & ignoring it has devastating consequences
Get boosted. Wear a respirator. Clean the air
Evergreen Safeway unexpectedly loses two employees
The Evergreen Safeway lost two of its most beloved employees within only a few days this month.
www.canyoncourier.com
October 23, 2025 at 1:57 AM
Only 20 years old
A sobering reminder that Covid is still with us, still killing & disabling
You may have gone “back to normal” but repeat infections just increase the risk
It’s a multi system vascular virus & ignoring it has devastating consequences
Get boosted. Wear a respirator. Clean the air
A sobering reminder that Covid is still with us, still killing & disabling
You may have gone “back to normal” but repeat infections just increase the risk
It’s a multi system vascular virus & ignoring it has devastating consequences
Get boosted. Wear a respirator. Clean the air
Bloody smoke alarm going off again.
Oh wait, that’s just my tinnitus.
One of the many joys of #LongCovid
Oh wait, that’s just my tinnitus.
One of the many joys of #LongCovid
October 14, 2025 at 3:21 AM
Bloody smoke alarm going off again.
Oh wait, that’s just my tinnitus.
One of the many joys of #LongCovid
Oh wait, that’s just my tinnitus.
One of the many joys of #LongCovid
In another #PEM crash. Have hardly left my bed in 1.5 days. I hate feeling like this. My mind is trying to tell me there will never be a treatment. I just hope I am wrong. #LongCovid #PEM
October 13, 2025 at 1:01 PM
In another #PEM crash. Have hardly left my bed in 1.5 days. I hate feeling like this. My mind is trying to tell me there will never be a treatment. I just hope I am wrong. #LongCovid #PEM
Reposted by Dan the LC Kiwi
The devastating impact of Long COVID on young people in Aotearoa
Watch the 16 min video in the article below
#LongCovid
#LongCovidAwareness
#CovidIsNotOver
Watch the 16 min video in the article below
#LongCovid
#LongCovidAwareness
#CovidIsNotOver
Offered rest home care at 24: the lonely plight of young Kiwis with long Covid
A group of young Kiwis prove what international studies show: that long Covid has a particularly debilitating effect on young people. But how much medical support is there for them?
www.1news.co.nz
October 9, 2025 at 9:04 PM
The devastating impact of Long COVID on young people in Aotearoa
Watch the 16 min video in the article below
#LongCovid
#LongCovidAwareness
#CovidIsNotOver
Watch the 16 min video in the article below
#LongCovid
#LongCovidAwareness
#CovidIsNotOver
Reposted by Dan the LC Kiwi
Patients with COVID had a higher risk of developing double vision (diplopia) and cranial nerve VI palsy than those with influenza.
mRNA vaccination cut the risk of posterior eye complications—like retinal swelling, optic neuritis, and vitreous bleeding—by over 30%.
Source: archive.md/sKZJj
mRNA vaccination cut the risk of posterior eye complications—like retinal swelling, optic neuritis, and vitreous bleeding—by over 30%.
Source: archive.md/sKZJj
October 8, 2025 at 10:04 PM
Patients with COVID had a higher risk of developing double vision (diplopia) and cranial nerve VI palsy than those with influenza.
mRNA vaccination cut the risk of posterior eye complications—like retinal swelling, optic neuritis, and vitreous bleeding—by over 30%.
Source: archive.md/sKZJj
mRNA vaccination cut the risk of posterior eye complications—like retinal swelling, optic neuritis, and vitreous bleeding—by over 30%.
Source: archive.md/sKZJj