miss_malingerer
@missmalingerer.bsky.social
absolutely zonked on the ‘oids 🥳
100% Bedbound ME/CFS/Long Covid
100% Bedbound ME/CFS/Long Covid
Pinned
becoming more autistic by the hour
Reposted by miss_malingerer
an AI that kills itself for you
December 24, 2025 at 2:56 AM
an AI that kills itself for you
Reposted by miss_malingerer
Raffle full of handmade goods is also full of possibilities to support Mems chronically ill household needing food tn. And bills paid. 🥲
pls enter!!!! Please!! Each $1 = 1 entry, winner is chosen at 2000 entries!
Memo: "raffle"
P: vaporwavee
C: vaporwaveeee (4 e's)
V: cr34tur33
pls enter!!!! Please!! Each $1 = 1 entry, winner is chosen at 2000 entries!
Memo: "raffle"
P: vaporwavee
C: vaporwaveeee (4 e's)
V: cr34tur33
please, share this thread & RAFFLE info!🧵
these next 10 days are crucial. We must strive toward medical, house cleaning, used car & more unmet needs in January.
Today we are at $0 raised for $124 to start gas pay plan & $75 for hot meals, taken out of a just met weeks long grocery goal, savings.
these next 10 days are crucial. We must strive toward medical, house cleaning, used car & more unmet needs in January.
Today we are at $0 raised for $124 to start gas pay plan & $75 for hot meals, taken out of a just met weeks long grocery goal, savings.
December 23, 2025 at 2:10 AM
Raffle full of handmade goods is also full of possibilities to support Mems chronically ill household needing food tn. And bills paid. 🥲
pls enter!!!! Please!! Each $1 = 1 entry, winner is chosen at 2000 entries!
Memo: "raffle"
P: vaporwavee
C: vaporwaveeee (4 e's)
V: cr34tur33
pls enter!!!! Please!! Each $1 = 1 entry, winner is chosen at 2000 entries!
Memo: "raffle"
P: vaporwavee
C: vaporwaveeee (4 e's)
V: cr34tur33
Reposted by miss_malingerer
Portrait: Bedbound in the Dark w/ Wuthering Heights
December 14, 2025 at 12:56 AM
Portrait: Bedbound in the Dark w/ Wuthering Heights
Reposted by miss_malingerer
Reddit: "The people who are studying the impact of COVID literally talk about it in the past tense, as if we are building monuments to some past event. Like “wow we should learn from COVID to listen to disabled people” you mean the disabled people trying to tell you covid is still ongoing??!"
December 13, 2025 at 11:14 PM
Reddit: "The people who are studying the impact of COVID literally talk about it in the past tense, as if we are building monuments to some past event. Like “wow we should learn from COVID to listen to disabled people” you mean the disabled people trying to tell you covid is still ongoing??!"
Reposted by miss_malingerer
We’re over halfway through our end-of-year fundraiser, and we’re not where we need to be to keep our vital work going. We have three weeks left to hit our goals of $60,000 and 200 monthly supporters.
The #LongCOVID community needs us — we need you! the-sick-times.fundjournalism.org/donate/
The #LongCOVID community needs us — we need you! the-sick-times.fundjournalism.org/donate/
December 12, 2025 at 5:39 PM
We’re over halfway through our end-of-year fundraiser, and we’re not where we need to be to keep our vital work going. We have three weeks left to hit our goals of $60,000 and 200 monthly supporters.
The #LongCOVID community needs us — we need you! the-sick-times.fundjournalism.org/donate/
The #LongCOVID community needs us — we need you! the-sick-times.fundjournalism.org/donate/
Reposted by miss_malingerer
So chicken farms have started spending millions of dollars putting in state of the art air filtration and circulation systems - because culling whole flocks to mitigate avian flu is expensive - but we have done zero to improve air quality in schools - because kids are expendable I guess.
December 12, 2025 at 1:49 PM
So chicken farms have started spending millions of dollars putting in state of the art air filtration and circulation systems - because culling whole flocks to mitigate avian flu is expensive - but we have done zero to improve air quality in schools - because kids are expendable I guess.
Reposted by miss_malingerer
I was outlining a new short story and the words were flowing, character-specific quotes were plopping on the page, my typing fingers were tingling with delight!
And I ended up plotting a novel. 🙄
#5amwritersclub #writingcommunity #writesky
And I ended up plotting a novel. 🙄
#5amwritersclub #writingcommunity #writesky
December 8, 2025 at 12:11 PM
I was outlining a new short story and the words were flowing, character-specific quotes were plopping on the page, my typing fingers were tingling with delight!
And I ended up plotting a novel. 🙄
#5amwritersclub #writingcommunity #writesky
And I ended up plotting a novel. 🙄
#5amwritersclub #writingcommunity #writesky
Reposted by miss_malingerer
We're half a decade into studies finding that improving airflow in classrooms will reduce disease transmission enormously, and that bleaching surfaces etc. does very little. And yet nothing changes. Waves of flu and colds wash over schools, and the schools pretend it's an act of God.
The relative contribution of close-proximity contacts, shared classroom exposure and indoor air quality to respiratory virus transmission in schools - Nature Communications
The relative importance of close-proximity interactions, shared space and air quality to the transmission of respiratory viruses is not well understood. Here, the authors investigate this question by ...
www.nature.com
December 8, 2025 at 4:23 AM
We're half a decade into studies finding that improving airflow in classrooms will reduce disease transmission enormously, and that bleaching surfaces etc. does very little. And yet nothing changes. Waves of flu and colds wash over schools, and the schools pretend it's an act of God.
December 7, 2025 at 10:14 PM
a perk about being bedbound: i get to be really delusional about what clothes i could theoretically pull off since i haven’t glimpsed my own reflection in almost a year
December 7, 2025 at 12:16 AM
a perk about being bedbound: i get to be really delusional about what clothes i could theoretically pull off since i haven’t glimpsed my own reflection in almost a year
Reposted by miss_malingerer
sample of what it’s like to sit on my front porch every weekend (as filmed by my husband)
November 22, 2025 at 6:26 PM
sample of what it’s like to sit on my front porch every weekend (as filmed by my husband)
Reposted by miss_malingerer
✨ We’re thrilled to share that a generous donor has increased the matching fund, allowing us to triple donations up to $1 MILLION!
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
November 18, 2025 at 5:32 PM
✨ We’re thrilled to share that a generous donor has increased the matching fund, allowing us to triple donations up to $1 MILLION!
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Reposted by miss_malingerer
absolutely zonked on the ‘oids 🥳
November 16, 2025 at 9:51 PM
absolutely zonked on the ‘oids 🥳
Reposted by miss_malingerer
It is near impossible to convince people that I’m telling the truth when I say “exercise damages my muscles” bc it’s so counter to everything we think we know about bodies.
Update on Dr. David Systrom Study led by Harvard MECFS Collaboration
A cardiopulmonary exercise test with muscle biopsy reveals reduced mitochondrial biomass and disturbed mitochondrial function in skeletal muscle.
www.omf.ngo/investigatio...
A cardiopulmonary exercise test with muscle biopsy reveals reduced mitochondrial biomass and disturbed mitochondrial function in skeletal muscle.
www.omf.ngo/investigatio...
Investigating PEM via Muscle Biopsy in ME/CFS and Long COVID - Open Medicine Foundation
The study explores the pathophysiology of post-exertional malaise (PEM), the hallmark symptom of ME/CFS.
www.omf.ngo
November 10, 2025 at 9:56 PM
It is near impossible to convince people that I’m telling the truth when I say “exercise damages my muscles” bc it’s so counter to everything we think we know about bodies.
Reposted by miss_malingerer
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Alice Wong on Instagram: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it ...
423 likes, 73 comments - alicatsamurai on November 14, 2025: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the t...
www.instagram.com
November 15, 2025 at 5:57 AM
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Reposted by miss_malingerer
Marriage equality does not exist for everyone until disabled people can marry without losing their benefits.
November 14, 2025 at 4:59 PM
Marriage equality does not exist for everyone until disabled people can marry without losing their benefits.
Reposted by miss_malingerer
New from the Maureen Hanson team in the US
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
November 14, 2025 at 12:47 PM
New from the Maureen Hanson team in the US
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Reposted by miss_malingerer
I’m heartbroken at the loss of Leslie & for YB who he loved deeply & fiercely. For seven years, I had the privilege of knowing him—his mind, his humor, his boundless creativity, & unflinching political clarity. The world is immeasurably poorer without his voice. All gfm will cover funeral & expenses
I've been struggling with Long COVID for about three years. I'm seeking support to access new treatments and daily maintenance. Please consider donating or sharing. Every bit helps, and thank you all so much for the support. It has meant the world to me. gofund.me/d0a10512b
Donate to Support Leslie Lee III's Long COVID Recovery, organized by Leslie Lee III
Short version: I'm a teacher and writer seeking support for medical and ot… Leslie Lee III needs your support for Support Leslie Lee III's Long COVID Recovery
gofund.me
November 14, 2025 at 10:15 PM
I’m heartbroken at the loss of Leslie & for YB who he loved deeply & fiercely. For seven years, I had the privilege of knowing him—his mind, his humor, his boundless creativity, & unflinching political clarity. The world is immeasurably poorer without his voice. All gfm will cover funeral & expenses
Reposted by miss_malingerer
[through gritted teeth, visibly trembling] I must strive to maintain a sense of whimsy
November 10, 2025 at 2:02 AM
[through gritted teeth, visibly trembling] I must strive to maintain a sense of whimsy
i’m ascending. i’ve only listened to half of LUX so far, and i’ve already been raptured. from god’s lips to rosaliá’s ear
November 9, 2025 at 1:00 AM
i’m ascending. i’ve only listened to half of LUX so far, and i’ve already been raptured. from god’s lips to rosaliá’s ear
Reposted by miss_malingerer
