Reposted by PJ
#MECFSAwarenessMonth – Day 17
2017: The CDC drops its recommendation for Graded Exercise Therapy and CBT — a major step away from the psychological model. An analysis of multiple treatment surveys finds over 50% of #MECFS patients report Graded Exercise Therapy made them worse.
2017: The CDC drops its recommendation for Graded Exercise Therapy and CBT — a major step away from the psychological model. An analysis of multiple treatment surveys finds over 50% of #MECFS patients report Graded Exercise Therapy made them worse.
May 17, 2025 at 5:08 AM
#MECFSAwarenessMonth – Day 17
2017: The CDC drops its recommendation for Graded Exercise Therapy and CBT — a major step away from the psychological model. An analysis of multiple treatment surveys finds over 50% of #MECFS patients report Graded Exercise Therapy made them worse.
2017: The CDC drops its recommendation for Graded Exercise Therapy and CBT — a major step away from the psychological model. An analysis of multiple treatment surveys finds over 50% of #MECFS patients report Graded Exercise Therapy made them worse.
Reposted by PJ
New study (not a surprise) found that people with #LongCOVID & #POTS have worse cognitive function than healthy peers, with working memory, attention, verbal fluency most affected.
#Psychological symptoms including #anxiety and #depression also play a role.
link.springer.com/article/10.1...
#Psychological symptoms including #anxiety and #depression also play a role.
link.springer.com/article/10.1...
January 29, 2025 at 6:21 AM
New study (not a surprise) found that people with #LongCOVID & #POTS have worse cognitive function than healthy peers, with working memory, attention, verbal fluency most affected.
#Psychological symptoms including #anxiety and #depression also play a role.
link.springer.com/article/10.1...
#Psychological symptoms including #anxiety and #depression also play a role.
link.springer.com/article/10.1...
There are now exactly 100 little people in my phone despite me only having 4 here like 3 days ago! Hello! I hope your mass exodus from the bird app went well! How are you all doing?
October 20, 2024 at 5:53 AM
There are now exactly 100 little people in my phone despite me only having 4 here like 3 days ago! Hello! I hope your mass exodus from the bird app went well! How are you all doing?
Hello little people in my phone I do not know where you all came from
October 18, 2024 at 12:42 PM
Hello little people in my phone I do not know where you all came from
Bluesky now has over 10 million users, and I was #1,400,743!
October 10, 2024 at 4:59 AM
Bluesky now has over 10 million users, and I was #1,400,743!
Reposted by PJ
Why are some people so hell bent on insisting #MECFS is a psychosomatic disorder when it isn’t? Like why? What are you gaining by harassing sick people? Why are you trying to gain from them?
March 19, 2024 at 1:20 AM
Why are some people so hell bent on insisting #MECFS is a psychosomatic disorder when it isn’t? Like why? What are you gaining by harassing sick people? Why are you trying to gain from them?
Reposted by PJ
Reposted by PJ
Can anyone recommend a good shower seat/bench? Every one I look up has a review that's like "this broke."
#NEISvoid #chronicillness
#NEISvoid #chronicillness
November 1, 2023 at 9:04 PM
Can anyone recommend a good shower seat/bench? Every one I look up has a review that's like "this broke."
#NEISvoid #chronicillness
#NEISvoid #chronicillness
Reposted by PJ
Hey, #COVID long-haulers! If you need an understanding ear, the Brooke Line will connect you to another person with #longCOVID. You can call or text 24/7.
Would you like to support the Brooke Line so we can expand internally? Visit our Patreon at Patreon.com/BrookeLine
Would you like to support the Brooke Line so we can expand internally? Visit our Patreon at Patreon.com/BrookeLine
October 22, 2023 at 1:26 AM
Hey, #COVID long-haulers! If you need an understanding ear, the Brooke Line will connect you to another person with #longCOVID. You can call or text 24/7.
Would you like to support the Brooke Line so we can expand internally? Visit our Patreon at Patreon.com/BrookeLine
Would you like to support the Brooke Line so we can expand internally? Visit our Patreon at Patreon.com/BrookeLine
Reposted by PJ
I posted a migraine version of this on Instagram but wanted to make it more general for all my chronically ill friends.
Chronic illness Scaries.
Just in time for Halloween. 👻
#MigraineChat
#NEISvoid
Chronic illness Scaries.
Just in time for Halloween. 👻
#MigraineChat
#NEISvoid
October 28, 2023 at 11:36 PM
I posted a migraine version of this on Instagram but wanted to make it more general for all my chronically ill friends.
Chronic illness Scaries.
Just in time for Halloween. 👻
#MigraineChat
#NEISvoid
Chronic illness Scaries.
Just in time for Halloween. 👻
#MigraineChat
#NEISvoid
Reposted by PJ
needing my bed more thru the day on my days off work/later shift starts lately, #fibroflare is in full swing! 😩 fibromyalgia is a bloody horrible way to live. iykyk!
October 29, 2023 at 4:45 PM
needing my bed more thru the day on my days off work/later shift starts lately, #fibroflare is in full swing! 😩 fibromyalgia is a bloody horrible way to live. iykyk!
Reposted by PJ
October 29, 2023 at 6:59 PM
Reposted by PJ
Anyone with #mecfs who is being forced through multi-day CPAD assessments, be aware of this. Assessors have an ordinary duty of care to NOT harm you, and assessments designed to trigger PEM, & then force FURTHER exertion, will do just that.
October 21, 2023 at 4:51 PM
Anyone with #mecfs who is being forced through multi-day CPAD assessments, be aware of this. Assessors have an ordinary duty of care to NOT harm you, and assessments designed to trigger PEM, & then force FURTHER exertion, will do just that.
Reposted by PJ
🧵
New:
"Diagnosis and Management of #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome"
Free full text:
www.mayoclinicproceedings.org/article/S002...
New, sympathetic guidelines. Have some status as in Mayo Clinic Proceedings & are eligible for CME
#MedEd #MEcfs #CFS #PwME #MedBluesky
1/
New:
"Diagnosis and Management of #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome"
Free full text:
www.mayoclinicproceedings.org/article/S002...
New, sympathetic guidelines. Have some status as in Mayo Clinic Proceedings & are eligible for CME
#MedEd #MEcfs #CFS #PwME #MedBluesky
1/
October 4, 2023 at 4:58 PM
🧵
New:
"Diagnosis and Management of #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome"
Free full text:
www.mayoclinicproceedings.org/article/S002...
New, sympathetic guidelines. Have some status as in Mayo Clinic Proceedings & are eligible for CME
#MedEd #MEcfs #CFS #PwME #MedBluesky
1/
New:
"Diagnosis and Management of #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome"
Free full text:
www.mayoclinicproceedings.org/article/S002...
New, sympathetic guidelines. Have some status as in Mayo Clinic Proceedings & are eligible for CME
#MedEd #MEcfs #CFS #PwME #MedBluesky
1/
Reposted by PJ
Who in the Long Covid community here has seen their friendships take a dive since they became sick? I’d like to hear your stories. #longcovid #covid
October 22, 2023 at 8:55 PM
Who in the Long Covid community here has seen their friendships take a dive since they became sick? I’d like to hear your stories. #longcovid #covid
Reposted by PJ
Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic
disease often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant...
www.mayoclinicproceedings.org
October 7, 2023 at 4:03 PM
Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Reposted by PJ
Oh, man, the idea of getting #longcovid as a preverbal kid and having no idea that it's possible to feel anything but crappy all the time smashes my heart to pieces. www.cidrap.umn.edu/covid-19/not...
October 10, 2023 at 8:44 PM
Oh, man, the idea of getting #longcovid as a preverbal kid and having no idea that it's possible to feel anything but crappy all the time smashes my heart to pieces. www.cidrap.umn.edu/covid-19/not...
Current pain vibe: feel like I've been run over by a ford f-150
#fibro
#fibro
October 10, 2023 at 4:04 AM
Current pain vibe: feel like I've been run over by a ford f-150
#fibro
#fibro
Reposted by PJ
I've decided to open my code-distribution project to folks in the disability community as well as the chronically ill community. Please help spread the word! And I continue to be grateful for donated codes. forms.gle/ohDAHronsA2t...
October 7, 2023 at 4:26 PM
I've decided to open my code-distribution project to folks in the disability community as well as the chronically ill community. Please help spread the word! And I continue to be grateful for donated codes. forms.gle/ohDAHronsA2t...
Reposted by PJ
Just a reminder to all of you that you are valuable no matter what. Your condition does not make you any less valuable, even in a society that says it does. 🫂
#ChronicPain #Spoonie #ChronicIllness #MigraineChat #Migraine
#ChronicPain #Spoonie #ChronicIllness #MigraineChat #Migraine
October 7, 2023 at 2:28 PM
Just a reminder to all of you that you are valuable no matter what. Your condition does not make you any less valuable, even in a society that says it does. 🫂
#ChronicPain #Spoonie #ChronicIllness #MigraineChat #Migraine
#ChronicPain #Spoonie #ChronicIllness #MigraineChat #Migraine
Reposted by PJ
With some help from @owasow.bsky.social, I've figured out how to use Sky Follower Bridge to find the people I follow on Twitter over on B l u e S k y. It's pretty easy. I've updated the tips I send folks when they get their code with info on how to do it, and I thought I'd share here too.
October 7, 2023 at 4:08 PM
With some help from @owasow.bsky.social, I've figured out how to use Sky Follower Bridge to find the people I follow on Twitter over on B l u e S k y. It's pretty easy. I've updated the tips I send folks when they get their code with info on how to do it, and I thought I'd share here too.