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Kayli Jamieson

@wanderingkayli.bsky.social

4.9K followers 370 following 41 posts

@wandering on Instagram ✍🏻 Disabled with Long Covid 44+ months Long COVID Researcher @sfu-fhs.bsky.social Master’s Student @sfucmns.bsky.social writing on biopolitics & Long COVID https://beacons.ai/wanderingkayli

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Kayli Jamieson @wanderingkayli.bsky.social · Nov 12

Bluesky intro post! Hello! I’m Kayli, a longhauler of almost 3 years, writing a MA Thesis on #LongCOVID & biopolitics. I also help conduct some studies on Long COVID in B.C.
Some of you may know me from IG, where I try to make learning about COVID science accessible via infographics.
#BCCOVID

Mixed Asian/White woman wearing a black respirator, red plaid blazer, white collared shirt, gray pleated skirt and red Mary Janes. Posing holding onto a sticker that reads Long COVID is chronic, masking is iconic, by Berlin Buyers Club. Background is of grassy park with trees and vendors of clean air festival.

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Voices of Long Covid Podcast @voicesoflcovidpod.bsky.social · 4d

Museum of Vancouver Long Covid exhibit launch #longcovidawareness

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Kaylee Byers, PhD @kayleebyers.bsky.social · 4d

Today we launched the Living with Long COVID exhibition @museumofvan.bsky.social. In 2023 we conducted a study in which we heard from longhaulers that this invisible illness needs more awareness and attention. This exhibition was co-created with longhaulers to do just that. On view until March 2026

SFU Faculty of Health Sciences @sfu-fhs.bsky.social · 5d

A new exhibition at the @museumofvan.bsky.social, co-produced by FHS, invites visitors into the often-invisible world of those living with the life-altering effects of COVID-19.

The exhibit runs from Oct 4, 2025 to March 22, 2026

🔗: bit.ly/4pUPA4V

#SFU #SFUResearch #MOV #LongCOVID #KT #KM
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A fragmented photo of an adult covering their face with their hands, surrounded by a sea of bottle containing supplements and medications. Text reads: "Living with Long Covid: On view from October 4, 2025 – March 22, 2026 at the Museum of Vancouver"

A series of logos are featured showing the organizations who contributed to this exhibit financially or in-kind:
Museum of Vancouver
Project Partners: SFU Faculty of Health Sciences, Post-COVID-19 Interdisciplinary Clinical Care Network – Provincial Health Services Authority
Institutional Partners: City of Vancouver, British Columbia Arts Council with the BC Government
Funding Partners: Pacific Public Health Foundation, Michael Smith Health Research BC

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Chantzy @chantzy.bsky.social · 4d

It was standing room only at today's Living with Long Covid exhibit at the @museumofvan.bsky.social!

I was moved to tears by some of the personal stories on display. Such a great event

Long Covid researcher and activist Kayli Jamison speaks at today's Long Covid launch event at the Museum of Vancouver

Selfie at event wearing a white headstrap zimi mask with purple flowers

One of the stories that resonated - "I was able to venture out for an ice cream cone with a friend this day. I don't feel comfortable eating in restaurants or going to bars like most people my age. Spring and summer are nice beaches they give me more options to spend time outdoors with fewer people around - which means I get to see the people I love more often. Even short moments like this help me feel a little more like a "normal" 24 year old again

Some of the personal stories on display. A combo of text and pictures artistically laid out on white walls with brightly coloured orange and yellow backgrounds

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Tara Moriarty @moriartylab.bsky.social · 22d

Canadian COVID Forecast: Sep 13 - Sep 26, 2025
Severe: NL, PEI, SK
Very high: CAN, AB, BC, MB, NB, North, NS, ON
High: QC
Moderate: none

About 1 in 81 people in Canada are CURRENTLY infected.

This image shows gauges with the September 13-26, 2025 COVID Forecast scores for Canada, the provinces, & territories. From left to right:

Canada: 13.4 - VERY HIGH
Alberta: 14.8 - VERY HIGH
British Columbia: 14.1 - VERY HIGH
Manitoba: 14.4 - VERY HIGH
New Brunswick: 14.6 - VERY HIGH
Newfoundland and Labrador: 15.8 - SEVERE
North: 14.1 - VERY HIGH
Nova Scotia: 14.7 - VERY HIGH
Ontario: 14.9 - VERY HIGH
Prince Edward Island: 15.6 - SEVERE
Quebec: 9.8 - HIGH
Saskatchewan: 15.1 - SEVERE

A text box reads: "The COVID Forecast is calculated from 3 equally weighted categories: 1) Current infections and spread; 2) Healthcare system impact; 3) Mortality. Within each category, there is one sub-category for trends over the most recent week (Trends) and one sub-category for current parameter values relative to a specified baseline (Current values). Trends and current values are weighted equally when determining the final score for a category. All Forecast input data and sources are available here (https://datastudio.google.com/embed/u/0/reporting/42b886cf-d661-488e-b7d8-5c5836b55ab6/page/p_2yqs028mwc). Past Forecast scores are available in the table below. Forecast scores are grouped into 4 ranges: MODERATE (1 to <5, white), HIGH (6 to <10, yellow), VERY HIGH (10 to <15, orange), SEVERE (>15, red)."

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Taylor Lorenz @taylorlorenz.bsky.social · Jul 30

Breakthrough study: COVID-19 reactivates dormant breast cancer, triggering deadly metastasis. Cancer survivors who got COVID had 4.5× higher cancer-related deaths and 1.4× greater breast cancer. MASK UP!! Protect yourself from Covid, which is airborne

Respiratory viral infections awaken metastatic breast cancer cells in lungs - Nature

Mouse models show that respiratory infections from viruses such as influenza and SARS-CoV-2 can trigger metastasis of dormant breast cancer cells in the lungs, a finding supported by epidemiological d...

www.nature.com

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Kayli Jamieson @wanderingkayli.bsky.social · May 20

@longcovidcan-co.bsky.social @canadahealthwatch.ca @cancovsoc.bsky.social @chantzy.bsky.social @kashprime.bsky.social @ryantennant.ca @tryangregory.bsky.social @longcovidsupport.bsky.social @stillcovidingca.bsky.social

Kayli Jamieson @wanderingkayli.bsky.social · May 20

Here are the links (also in the QR codes via posters):
English www.surveymonkey.ca/r/YourPhotos
French: www.surveymonkey.ca/r/YourPhotosFR
Traditional Chinese: www.surveymonkey.ca/r/YourPhotos...
Simplified Chinese: www.surveymonkey.ca/r/YourPhotos...
Punjabi: www.surveymonkey.ca/r/YourPhotos...

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Kayli Jamieson @wanderingkayli.bsky.social · May 20

It’s not too late to complete your submission for our #LongCOVID photovoice exhibit at the Museum of #Vancouver, debuting this fall! Open Canada-wide to any self-identified #longhauler 18+. Upload your photos by June 1 here: www.surveymonkey.ca/r/YourPhotos

Poster with black and yellow text against blue background and a photo-film-like strip displaying examples of submissions such as medication, an Apple Watch of high heart rate, flowers, and a symptom crash. Submission prompt titles are: starting the day, middle of the day, lowlight, healthcare moment, end of the day, and highlight. Poster text with camera icon says: Your Life, Your Photos, Your Story. A Day in the Life of a Longhauler. Share your Long COVID story at the museum of Vancouver! "A Day in the Life of a Longhauler" is a photography project that captures the daily life of individuals living with Long COVID to enhance visibility, reduce stigma, and advocate for improved support. Whether you have a Long COVID diagnosis or are dealing with long-term symptoms following a COVID-19 infection, we invite you to share up to six photos from your everyday life which will be showcased at the Museum of Vancouver in the Fall of 2025.QR code for submission. Logos from Simon Fraser University, OH-HI Science CoLab, Museum of Vancouver, Post-COVID-19 Interdisciplinary Clinical Care Network, and Michael Smith Health Research BC.

French version of poster. See English alt-text (sorry)

Punjabi version of poster. See English alt-text (sorry)

Chinese (simplified) version of poster. See English alt-text (sorry)

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Dr Satoshi Akima, FRACP @toshiakima.bsky.social · Apr 1

Droplet dogmatists deny that COVID is an airborne contagion for similar reasons why miasmatists once denied cholera is waterborne. If spread by droplets, then mitigation can be decentralised and passed on to “individual responsibility”.

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Kayli Jamieson @wanderingkayli.bsky.social · Mar 29

Thank you sooo much! 😭 fantastic work

Reposted by Kayli Jamieson

Ryan Tennant @ryantennant.ca · Mar 27

Grateful to everyone who helped coordinate our Long COVID awareness event at #UWaterloo today and to the Faculty of Health Dean's Advisory Committee on Equity, Diversity, Inclusion, and Anti-Racism for supporting us! It was so nice gathering with everyone on campus.

www.ctvnews.ca/kitchener/vi...

Long COVID Awareness Silent Walk

A group is taking steps to make the community aware of a condition called Long COVID. CTV’s Jeff Pickel explains.

www.ctvnews.ca

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Ryan Tennant @ryantennant.ca · Mar 25

Some selfies from today’s Long COVID Awareness booth at #UWaterloo!

Today we were joined by a representative from MaskBlocWR and CanadaMasq (who kindly donated CA-N95s for our Care Kits). 😷

Stay tuned for our walk at noon on Thursday! We’ll also livestream it on Instagram @care_coalition_uw

A group of people wearing white N95s and and teal long COVID t shirts standing around a table with gift bags and a long COVID banner sign

A group of people wearing white N95s and and teal long COVID t shirts standing around a table with gift bags and a CanadaMasq banner sign

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Conor Browne @brownecfm.bsky.social · Mar 25

1. Perhaps the most damaging blowback from the response to Covid-19 in 2020 and 2021 is the mainstreaming of a public health ideology that is rooted in a dangerous combination of survivorship bias, nostalgia, and the naturalistic fallacy.

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Dr. Lucky Tran @luckytran.com · Mar 25

Trump’s CDC is cancelling $11 billion in COVID funding allocated to health departments and nonprofits, claiming the grants are no longer necessary because the pandemic is over.

This is wrong. COVID is a continuing threat and millions have Long COVID. We still need to do more to mitigate its harms.

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Eric Topol @erictopol.bsky.social · Mar 25

In <24 hours, Covid funding is DOGEd across HHS, CDC, NIH as if it and Long Covid didn't exist and there is no worry for future pandemics
www.science.org/content/arti...
www.nbcnews.com/health/healt...
www.science.org/content/arti...

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Dr Satoshi Akima, FRACP @toshiakima.bsky.social · Mar 25

This is why I say the pandemic is just beginning (as a crisis of chronic disease). Instead of ending it with science-based intervention, we think emoting how “over it” we feel suffices.

Science Magazine @science.org · Mar 25

Exclusive: Science has learned that grant termination letters went out last night to principal investigators of 29 awards made by NIAID, including nine grants that were part of a program hoping to deliver antiviral drugs to prevent future pandemics. scim.ag/4iVm7mY

Saying ‘pandemic is over,’ NIH institute starts cutting COVID-19 research

Grant terminations halt research on improving vaccinations and preventing future pandemics

scim.ag

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C.H. Romatowski @chromatowski.bsky.social · Mar 25

Tweet from Michael Lin, MD PhD @michaelzlin

Our NIH grant to discover coronavirus antiviral meds was terminated today.

With this grant, we had developed a better SARSCoV2 inhibitor than Paxlovid, and we recently discovered an improved drug that looks better than Pfizer's own second-generation inhibitor.

Attached is a screenshot of a research paper’s title page:

An orally bioavailable SARS-CoV-2 main protease inhibitor exhibits improved affinity and reduced sensitivity to mutations
MICHAEL WESTBERG
YICHI SU AND MICHAEL Z. LIN (D
+19 authors
Authors Info & Affiliations
SCIENCE TRANSLATIONAL MEDICINE • 13 Mar 2024 • Vol 16, Issue 738 • DOI: 10.1126/scitransimed.adi0979

6:05 PM • Mar 25, 2025 • 3,400 Views

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It's ME(Jaime) @exceedhergrasp1.bsky.social · Mar 25

Folks, very bad news for #LongCOVID. Deep breath.

29 awarded grants to do with COVID and Long COVID have been rescinded by NIH. 🧪

www.science.org/content/arti...

Science has learned that grant termination letters went out last night to principal investigators of 29 awards made by the National Institute of Allergy and Infectious Diseases (NIAID), including nine grants that were part of a program hoping to deliver antiviral drugs to prevent future pandemics.

Other terminated grants involved research to develop improved COVID-19 vaccines and to address Long Covid, the mysterious lingering aftermath of some SARS-CoV-2 infections. “The research is being treated like we already have all the answers we will need in the future and that the current vaccines work well enough and don’t need improvement, which we know is not true,” says an investigator involved with one of the NIAID grants who asked not to be named for fear of retribution. “Some of the studies being canceled were attempting to make a pancoronavirus vaccine, which would hopefully be available the next time a novel coronavirus jumps species into humans.”

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Chantzy @chantzy.bsky.social · Mar 18

"My friends and family don't believe that I'm sick because I look OK on the outside" ❤️‍🩹

So many heartbreaking stories from this weekend's International Long Covid Awareness Day event at the Vancouver Art Gallery

Colorful pillowcases on display at the Vancouver art gallery sharing messages from long Covid sufferers. March 15, 2025

Jacob age 39 shares: "my friends and family don't believe that I'm sick because I look okay on the outside. They don't understand why I had to leave my job. I miss my old life and the activities I used to enjoy. I need the government to step up and help us!"

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Kayli Jamieson @wanderingkayli.bsky.social · Mar 16

Global News among other local outlets covered the event! Here’s their video where my friends are interviewed: globalnews.ca/video/110839...

Vancouver rally raising awareness around long COVID | Watch News Videos Online

Watch Vancouver rally raising awareness around long COVID Video Online, on GlobalNews.ca

globalnews.ca

Reposted by Kayli Jamieson

The Sick Times @thesicktimes.org · Mar 15

Demonstrations for International Long COVID Awareness Day have sparked around the globe. We reached out to international organizers for photos from their actions to document the demonstrations and highlight their demands. bit.ly/4im6qFk

Long COVID and ME advocates lied on the ground in Berlin, Germany with signs reading "Half a Decade of Neglect"

The advocacy group LCME Billboard and Not Recovered UK handed out leaflets about the Long COVID and ME in Edinburgh, Scotland /Judith Stark

The organization Asociación Long COVID Aragón held an in-person demonstration in Aragon, Spain / Asociación Long COVID Aragón

Advocates drew attention to International Long COVID Awareness in Melbourne, Australia, by placing a billboard calling for “recognition, research, remedy” on a busy intersection in the city / Pandemic Resistance Inc.

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Kelly @broadwaybabyto.bsky.social · Mar 15

This Long Covid Awareness Day, let's look at why people believe they don't know anyone with Long Covid.

We are in the middle of a mass disabling event that most people refuse to acknowledge.

When we face the truth & stop denying reality, we can save lives:

I Don't Know Anyone With Long Covid

Yes. You do. This Long Covid Awareness Day I want to talk about the reasons why many people don't realize they have Long Covid, as well as why others choose to hide their diagnosis.

www.disabledginger.com

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Kayli Jamieson @wanderingkayli.bsky.social · Mar 15

Incredibly drained after today, but it was fantastic being able to attend a local event for Long COVID Awareness Day! Thank you so much to the organizers at @longcovidcan-co.bsky.social & @cancovsoc.bsky.social 🩵💙 Pillowcases were laid out at Vancouver Art Gallery of longhauler stories. Emotional😭

6 photo collage of 200 pillowcases being laid out at Vancouver art gallery of handwritten patient stories. Attendees with umbrellas and a selfie of Kayli in a white N95, wearing teal and black and a long covid ribbon button. Poster reads: 5 years of long COVID. Cure long COVID now!

6 photo collage grid. One is of a tote bag that reads long covid is chronic masking is iconic with various long covid themed stickers. Another is a patient story handwritten onto a pillowcase. 2 photos are of an art piece, a gown of longhauler faces printed all over it and handwritten symptoms on the gown’s train, reading at the end “I’m sorry there’s nothing more we can do for you.” A poster reads: Living with Ongoing Neurological Gastrointestinal & Cardiovascular Issues. Very Incapacitating & Distressing. Acronym for Long COVID. A photo of the crowd watching a guest speaker.

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Kayli Jamieson @wanderingkayli.bsky.social · Mar 15

You were a big highlight of the event!!

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Emily van Lidth de Jeude @emilyartist.ca · Mar 14

Tomorrow is Long Covid Awareness day, and I'll be performing this poem for the LC Awareness even in downtown Vancouver, outside the Vancouver Art Gallery. Sometime just after 11am, March 15. It's not over.
www.youtube.com/watch?v=0GvR...
#art #longcovid #contemporaryart #sciart

(dis)robe: Hospital Gown, Wearable Art by Emily van Lidth de Jeude

YouTube video by emilyvanartist

www.youtube.com

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